Featured Events

January – December 2017

The Resource Exchange and the Chapel Hills Mall, Colorado Springs!

Exhibition extended: Now through to the end of the YEAR!! Stay tuned for new exhibition images and premiere!


A Positive Exposure POP-UP gallery.

Colorado Springs, CO


June 24

2017 Smith-Lemli-Opitz Family Medical Conference – Cincinnati, OH at the Embassy Suites RiverCenter.

The first “SLOS Awareness Day” Celebration: June 24th, 2017

June 23

 Foundation for Nager and Miller Syndromes conference. Cambridge, MA

The conference is June 22-25, 2017, and our family outing and dinner/party is Saturday, June 24th. The conference will be held at the Cambridge Marriott in Kendall Square, Cambridge, and the Broad Institute (a genomic research institute for day-time information meetings, also in Kendall Square)

June 12

Respectability USA

Rockville, M

National Leaders Cohort: Diversity Advocates

Photography and presentation.




June 11

International Sacral Agenesis/ Caudal Regression Association

Fairfax, VA

Family gathering, photography and presentation

May 24-31

Casa Azul America & Nationwide Children’s Hospital in Lima, Peru