Calendar

Past Events

October 10, 2012

New England School of Optometry, Profiles in Vision
Conference Award Recipient
Copley Plaza, Boston

October 11, 2012

Building Community Lecture
Temple Israel Center
280 Old Mamaroneck Road,
White Plains, NY

October 18, 2012

Positive Exposure Fall Fundraiser 2012
Metropolitan Pavilion,
125 West 18th Street, 4th Floor
New York, NY
6 – 10 PM
Tickets Available Online

October 26, 2012

Photo Expo New York
Photo District News in collaboration with Photo Philanthropy
Photography for social impact
Before Our Eyes: A Panel
Javits Center, NYC
8:30 – 11:30 AM

October 26, 2012

Hunter in Focus Exhibition
USA, Poland, Germany
Sponsor, Shire
Premiere: GRAND CENTRAL STATION, NYC

October 28, 2012

Ohel Photo Shoot, Sibling Project, NYC

October 29, 2012

Sarah Lawrence College, Lecture
Genetic Counseling Program
Director – Caroline Lieber

October 30, 2012

Ohel Photo Shoot, Sibling Project, NYC

October 31, 2012

Weill Cornell Medical College Lecture
1st Year Medical Students
Genetics Director: Jessica Davis, MD

November 5, 2012

American Society of Human Genetics High School Workshop
San Francisco, CA

November 14, 2012

Association for the Education and Rehabilitation of the Blind
and Visually Impaired
Conference Keynote
Newport, RI

November 29, 2012

UJA – Federation of New York
Exhibition, PEARLS Project, NYC
Funded by Oppenheimer Haas Foundation

December 6, 2012

Philadelphia College of Osteopathic Medicene
Lecture, Medical Students
Ruth D. Thornton, Ph.D.
Director Biochemistry / Molecular Biology

December 13, 2012

Public Health Department – Community and Public Health
Research & Clinical Rounds
Seminar Lecture
Public Health Department’s Conference Center
Public Health Building
402 East 67th St., NYC (67th and 1st)
12:30 PM

December 14, 2012

University of Minnesota, Minneapolis
Medical Student morning lecture
Lunch with Genetic Counseling Students
Bonnie LeRoy MS, CGC
Editor, Journal of Genetic Counseling, Professor and Director of
the Graduate Program of Study in Genetic Counseling
Department of Genetics Cell Biology and Development

January 19, 2013

Grand Nevi Winter Camp: Pinegrove Ranch NY
www.nevus.org

February 1, 2013

John Hopkins lecture, Genetic Counseling Students
Bethesda, MD

February 7, 2013

University of Iowa, lecture: public, the students in the Art
Department, UI Health Care faculty.

February 10, 2013

PEARLS in Focus: Celebrating Diversity

Sunday, February 10, 2013: 1:30 – 4:00 p.m.

UJA-Federation of New York
Seventh-Floor Conference Center
130 East 59th Street (between Park and Lexington avenues)
New York City

February 11, 2013

Sarah Lawrence Genetic Counseling Student Lecture
Bronxville, NY

February 22 – 26, 2013

Parent Project Muscular Dystrophy Conference
Rome, Italy

March 6, 2013

2013 Pennsylvania Department of Education Conference Keynote
Hershey PA

March 7, 2013

Biennial Henrietta Lacks Symposium
Baltimore, MD

March 9, 2013

Positive Exposure Exhibition Opening
JCC Manhattan
334 Amsterdam Ave at 76th Street, NYC
ReelAbilities Film Festival

March 21-29

Hunter in Focus: Moscow Russia
Photography: Shire

April 4, 2013

Dermatology Nurses Association Lecture
Sheraton
New Orleans, LA
More info

April 14, 2013

Ramapo for Children Lecture
49 West 38th Street, 5th Floor
New York, NY

April 18th

TedMed Talk
Philadelphia College of Osteopathic Medicine
Philadelphia, PA
More Info

April 25-26

HudsonAlpha: DNA  Day
Community exhibition and presentation

May 8th

Keynote Speaker
ADVANCE: The Ruderman Jewish Disabilities Funding Conference
Scholastic  Event Space
557 Broadway
New York, NY 10012
More Info

May 15th

Hunter in Focus Opening
Moscow, Russia
More Info

May 17th – 18th

GoldLab 4th Annual Symposium
University of Colorado Boulder
Denver, CO
More Info

May 4

NOAH New York Metro Regional Conference
La Quinta Hotel
Secaucus, NJ

June 7th

Positive Exposure Feature
Rock Center with Brian Williams
10:00pm/9c
NBC
More Info

June 13th

Exhibit Opening
Genome Zone: Mosaic of Humanity
National Museum of Natural History
Washington, D.C.
More Info

June 25th – 26st

Parent Project Muscular Dystrophy Transition Workshop
Baltimore, MD
More Info

June 29th – July 3rd

Little People of America’s 2013 National Conference
Washington, DC
More Info

July 17th – 21st

22q11 Ireland’s 20th International Scientific Meeting
Dublin, Ireland
More Info

July 26th – 27th

Sturge-Weber Foundation International Conference
Denver, CO
More Info

July 25th – 27th

IsoDicentric 15 Conference 2013
Minneapolis, MN

More Info

July 28th – 31st

Chromosome 18 Annual Family Conference
Savannah, GA
More Info

August 28th

Faculty Lecture
Overbrook School for the Blind
More Info

September 5th

Lecture
Bucknell Unversity
Lewisburg, PA
More Info

September 6th

Staff and Faculty Lecture
Geisinger Health System
Danville, PA
More Info

September 6th

Fragile X Community Lecture and Photo Shoot
Autism & Developmental Medicine Institute
Geisinger Health System
Lewisburg, Pennsylvania
More Info

September 7th

Photo shoot
Autism & Developmental Medicine Institute
Geisinger Health System
Camp Victory, Millville, PA
More Info

September 18

Villanova University
Health and Human Values Lecture Series
College of Nursing @ 5pm
800 E. Lancaster Avenue
Villanova, PA 19085

 

September 21st

Exhibition Opening (through January 2014)
Center of Science and Industry (COSI)
Columbus, OH
More Info

September 21st

Recipient of the RARE Champion of Hope Award – Advocacy
The 2nd Annual Tribute to Champions of Hope Gala
The Global Genes Project
Newport Beach, CA
More Info

September 28th – 30th

2013 International Nevus Conference Positive Exposure Exhibition
Marseille, France
More Info

October 4th – 6th

Communication Workshop
Parent Project Muscular Dystrophy Italy
Tuscany, Italy
More Info

October 9th

Lecture and Exhibition (through October 18th)
Toledo Children’s Hospital
Toledo, Ohio
More Info

October 12th

Williams Syndrome Changing Lives Foundation
Photo Shoot for Williams Syndrome Awareness Campaign
RainForest Adventures in Seiverville, TN (near Knoxville)
More Info

October 20th

Lecture
Center of Science and Industry (COSI)
Columbus, OH
More Info

October 21st

9:30 AM to 11:00 AM

  • Faces Redefining the Art of Medical Education (FRAME) workshop for medical students.

Room 230 of McCampbell Hall (Nisonger Center)

1581 Dodd Drive

Columbus, OH 43210

12:00PM to 1:00PM:

  • Grand Rounds at Prior Health Sciences Library, Ohio State University, followed by a reception to celebrate the opening of the Positive Exposure gallery there.

Prior Health Sciences Library

376 W 10th Ave

Columbus, OH 43210

2:15 PM to 2:45 PM

  • PEARLs Project Launch Assembly at Worthington Hills Elementary School (WHES)

Worthington Hills Elementary School

1221 Candlewood Drive

Columbus, OH 43235

 

October 22nd

High School Workshop
American Society of Human Genetics
Boston, MA
More Info

October 24th – 29th

Student Workshop
Festival della Scienza: Beauty
Sponsored by the Ligurian Genetics Department
Genova, Italy
More Info

November 1st

Student Lecture
Baylor Medical School
Houston, TX
More Info

November 6th

Canadian Association of Genetic Counselors
Oakville, Ontario
More Info

November 16

You are cordially invited to take part in an afternoon of fun and games, and to meet Rick Guidotti of Positive Exposure, a celebrated photographer and champion of the rare disease community. Rick uses his camera to capture the spirit and joy of children with rare diseases, and we are excited to announce he will be taking photographs at this special event! To learn more about Rick and his work, please visit his website, Positive Exposure.

Come to hear Rick’s inspirational story or have your photo taken; come to enjoy arts and crafts projects and games; come to meet other members of the Manton Center community and rare disease patients and their families; come to make great memories; whatever you do- make sure you come! The details of the event are as follows:

Date: Saturday, November 16th, 2013
Time: 11:00 am – 3:00 pm
Place: Center for Life Sciences Boston | 3 Blackfan Circle, Boston, MA

November 19

University of Maryland Medical Student Lecture
11:00
MSTF auditorium
685 W. Baltimore Street.
Baltimore, MD

November 21

Kaiser Permanente Inclusion and Diversity Conference
Lecture and workshop
San Francisco, CA

December 4

Ohio Association of County Boards
Serving PEopke with Developmental Disabilities
73 East Wilson Bridge Road, Suite B1, Worthington, Ohio 43085
641-431-0616
www.oacbdd.org

Lecture

Presentation Date: December 4, 2013
Time of Presentation: 9:15 to 10:15 am

December 5

Medical Grand Rounds
8:00 -9:00 am

Nationwide Children’s Hospital
700 Children’s Drive
Columbus, OH 43205

December 6

University of Minnesota Medical Student Lecture
8:00 – 10:00 am

Minneapolis, MN

December 13

Philadelphia College of Osteopathic Medicine

Medical Student Lecture
2:00 pm

4170 City Avenue
Philadelphia, PA 19131

January 15, 2014

The Calhoun School

433 West End Ave, New York, NY 10024
New York City

Lecture/ Workshop PEARLS Project

www.calhoun.org

The Calhoun School is a co-educational independent school on Manhattan’s Upper West Side, serving students from 3’s through 12th grade.

January 19

PHOTO SHOOT in Houston

Photo shoot with local families at The Houstonian, Houston, TX

Images will be added to Exhibition at Longnecker Gallery, Supplemental Exhibition Grand Opening: Wednesday, February 12 @ 7:30pm

January 30

Buffalo Pediatric Society

Presentation @ 31 Club downtown Buffalo, NY
6PM

www.the31club.com

January 31

8 – 9 am Grand Rounds at Children’s Hospital

Women & Children’s Hospital of Buffalo – A Kaleida Health Facility 

219 Bryant St, Buffalo, NY 14222
(716) 878-7000

www.kaleidahealth.org/childrens/

Women & Children’s Hospital of Buffalo, a Kaleida Health facility and teaching hospital for the University at Buffalo School of Medicine and Biomedical Sciences , 

February 6

Eastern Kentucky University

Chautauqua Lecture: BEAUTY MATTERS

http://www.chautauqua.eku.edu

TITLE OF PRESENTATION: “Positive Exposure: The Beauty and Spirit of Difference”
DATE: Thursday, February 6, 2014

STARTING TIME:

[a] Informal Discussion: 3:00-4:00 PM.
[b] Informal Dinner: 6:00-7:00 PM.
[c] Lecture & Q&A: 7:30-9:00 PM. [1-Hour Lecture & 30-Minute Q&A]

February 11

Albert Einstein College of Medicine

3:00 to 4:30 pm

Medical Student/ Faculty/ Fellows  Lecture

Albert Einstein College of Medicine
1300 Morris Park Avenue
Bronx, NY 10461 USA

February 12

Houston ReelAbilities Film Festival: http://houston.reelabilities.org/events

Positive Exposure

Rick Guidotti challenges our vision of beauty with his stunning photographs of individuals who have genetic differences in his “Positive
Exposure” exhibition. For ReelAbilities, Rick will exhibit his current selection of photos as well as pictures he takes of local Houstonians during a photo shoot in January.

Nicole Longnecker Gallery

On view: Saturday, January 18 – February 15
(Local Houstonians’ photos on view February 11-15)
Opening Reception with Artist: Saturday, January 18, 5:00 – 9:00 p.m.
JFS Reception begins at 7:00 p.m.

Evelyn Rubenstein Jewish Community Center

“Positive Exposure” Multi-Media Presentation with Rick Guidotti:
Wednesday, February 12, 8:00 p.m.
Dessert Reception to follow

“Change how you see. See how you change.”

Made possible in part through the City’s InitiatIve Grant Program of the Houston Arts Alliance

March 5

NYU seminar series funded by the Andrew Mellon Foundation, entitled

“A Post-Genomic Embrace of the Human? The Social Science and Humanities of Non-Reductionist Life Sciences.”

Positive Exposure: 6-8 pm

http://postgenomic.wordpress.com/
The seminar series will bring together scholars in the social
sciences, humanities, and life sciences to explore themes including:
the conceptual move away from linear causation toward
neuroplasticity, networks and epigenetics in the life sciences; the
ways that non-reductionist science can be aesthetically represented
and made accessible to wider publics; and the philosophical and
political imperatives of post-genomic science. In your case, we
would like for you to discuss your photography as a way to give
audiences a sensory experience that helps them to see beyond simple
genetic definitions of normal and abnormal, able and disabled,
beautiful and scarred, to heighten their awareness of the social
malleability of such categories.

March 8

Hermansky-Pudlak Syndrome  Family Conference
Uniondale, Long Island
www.hpsnetwork.org

March 9

Photo Shoot for NYU Langone Exhibition of our friends with Familial Dysautonomia
http://www.familialdysautonomia.org

April 2

University of Wisconsin Madison

Wisconsin Institute for Discovery
330 North Orchard St.
Madison, WI 53715

5pm – keynote address
6pm – reception

Host organizations:
Morgridge Institute for Research
University of Wisconsin Genetics Counseling Department
University of Wisconsin Art Department
Wisconsin Medical Alumni Association

The purpose of Rick’s visit will be multi-fold. Primarily Positive Exposure epitomizes the
constructive things that can happen when art and science/medicine intersect. One of
the main goals of the Wisconsin Institute for Discovery is to foster collaboration between
the arts and sciences. Participants coming from more of a science/medical background
are excited about the humanizing, empowering aspects of Rick’s work and would like to
know more about how art and medicine might constructively interact in other ways.
Those attending from more of an art background are interested in learning about his
creative process and the nuances of working in medically-relevant portraiture. Rick’s
visit, including both a keynote address and a workshop, will help to bring physicians,
students, and the community, all from varied backgrounds, together to achieve a
dialogue that will result in long-lasting collaborations.
http://discovery.wisc.edu

April 3

Rick  Guidotti will present the Henry Howe Chan Memorial Bioethics Keynote Lecture  at MCW Muses Thursday April 3, 2014 at 5:30pm.

MCW Muses is an annual event of the Medical College of Wisconsin’s Medical Humanities Program and is co-sponsored by the MCW Center for Bioethics and Medical Humanities, the Department of Psychiatry and Behavioral Medicine and the Society of Teaching Scholars.

Faculty, residents and students display their artwork or other handiwork, their poetry and prose, and perform musical selections.

Mr. Guidotti’s photographs will be displayed in the MCW Cafeteria Lobby Monday March 31-Thursday April 3rd.

The Henry Howe Chan Memorial Lecture was endowed by  Carlyle Chan, MD in honor of his father, who had a deep interest in bioethics.
Center for Bioethics & Medical Humanities
Institute for Health & Society

Medical College of Wisconsin
8701 Watertown Plank Road
Milwaukee, WI 53226

5:30 PM Chan Bioethics Lecture, MCW HRC Auditorium

GUIDOTTI POSTER – final final- CHAN LECTURE 3-14-14[1]

April 8

Oppenheimer Haas Foundation presents:

POSITIVE EXPOSURE: THE PEARLS PROJECT
A WESTCHESTER EVENING WITH RICK GUIDOTTI
TUESDAY, APRIL 8, 2014

PURPOSE OF THE EVENT
Through the introduction of the Pearls Project to the students in the Westchester Jewish Center, Westchester Reform Temple, and Westchester Day School communities, the students have become more interested in and sensitive to their peers living with genetic, physical and behavioral differences as they learned about the Pearls Ambassadors and then blogged with them from November to December 2013.

Additionally, our students have conveyed this information and enthusiasm to their families and the greater Westchester community. In an effort to culminate the Project, a proposal is being made to give the students, their families, and the greater Westchester community an opportunity to hear about the genesis of Positive Exposures and the Pearls Project from its creator, Rick Guidotti at a community event for the participating groups.

LOCATION OF EVENT
Westchester Jewish Center
Rockland and Palmer Avenues
Mamaroneck, New York

ACTIVITIES AT EVENT
6-7 pm: Rick will meet and have dinner with the Westchester PEARLS bloggers…hearing about their experiences and responding to their questions

7-8:30 pm: Rick will present his “story” to the Westchester PEARLS participants and their respective communities of students, parents, clergy, etc. with Q and A to follow

April 8th flyer

April 11

Stevens Health Professionals Club

Stevens Institute of Technology

Castle Point on Hudson
Hoboken, NJ 07030
(201) 216-8957

Lecture: 4:10 – 6 pm. Room Kidde 226

April 23

Geisinger’s Autism & Developmental Medicine Institute

Autism & Developmental Medicine Institute
Geisinger-Bucknell Autism & Developmental Medicine Center | Lewisburg, PA
(570) 522-6281
meepler@geisinger.edu

Wednesday, 4/23/2014

10:00 am, photo shoot at ADMI, Lewisburg, PA

4:30 pm – 6:00 pm, Community vent, Packwood House Museum, Lewisburg PA

7:00 pm – 8:30 pm, presentation followed by Q&A at the Campus Theatre, Lewisburg PA

Purpose of event:

As part of ADMI’s commitment to community outreach & family support, we want to give back by spreading Positive Exposure’s message to our community and to ADMI stakeholders. This event will celebrate the one year anniversary of ADMI, autism awareness month and Lewisburg’s annual Celebration of the Arts.

Target audience:

Patients, families, donors, education professionals, community members, Geisinger Health System staff & faculty, ADMI staff & faculty, ADMI Advisory Council, students & faculty from local school districts, colleges and universities.

April 24

RAMAPO FOR CHILDREN
49 West 38th Street | 5th Floor | New York, NY 10018
Direct: 646.588.2314 | Fax:
212.754.4994 | clowe@ramapoforchildren.org

Lecture: 6:30-7:30pm

April 28

YAI Seeing beyond disability

Keynote Presentation at the YAI International Conference in NYC – we’re expecting over 40 states and 12 countries

460 West 34th Street, 11th Floor, New York, NY 10001
yai.org

May 1

site5POSITIVE EXPOSURE SPRING GALA

May 14 – June 17


POSITIVE EXPOSURE Exhibition NYU Langone Center

POSITIVE EXPOSURE ExhibitionPhoto Exhibition at NYU Langone Center in collaboration with the Dysautonomia Foundation. May 14- June 17  

 

 

May 16

Eastern Regional AACO (American Association of Certified Orthoptists)  This orthoptic meeting is  planned by the orthoptists from three different  pediatric ophthalmology departments: Boston Children’s Hospital, Boston Medical Center and Tufts Medical Center.

12:00 – 1:00

New England Eye Center at Tufts Medical Center
800 Washington St., Box 450
Boston, MA 02111

Contact:

Shelley Klein, CO, COMT
Pediatric Ophthalmology/Ocular Motility
New England Eye Center at Tufts Medical Center
Phone 617-636-6769

May 17-18

Gold Symposium

May 16 – 17, 2014 • Muenzinger Auditorium

University of Colorado, Boulder, CO

8:30 am – 5:30 pm

 

May 20

Xerox Corporate Conference: Tucson AZ
Positive Exposure — Redefining Beauty

Keynote: 11 am-12 pm

Westin La Paloma Resort & Spa, 3800 E. Sunrise Dr., Tucson, AZ, 85718

June 8


Familial Dysautonomia Day

NYU Langone Center
550 1st Avenue
NYC

10-3pm

Familial Dysautonomia (FD) is a rare genetic neurological disorder that effects the sensory and autonomic nervous systems, causing life-threatening medical complications from birth.

Sponsored by the Dysautonomia Foundation, Inc

http://www.familialdysautonomia.org

June 12


United Nation Conference:  Changing Attitudes and Fighting Stereotypes for an Inclusive Society.

10:00-11:30am, conference room 5 at the UN.

Activities to implement the CRPD and create more inclusive societies are often met with segregated social environments, stereotypes and negative attitudes towards people with disabilities. These create barriers for the implementation of many of the CRPD articles. This event will present inter-sectorial public awareness and training programs from around the world, from both governments and civil society organizations, aimed at assisting in the implementation of CRPD articles, as well as the full participation of people with disabilities in the process.
Panelists include:

Rick Guidotti, Positive Exposure
Gabor Gambos, International Disability Alliance
Verena Bentele , Federal Government Commissioner for Matters relating to Disabled Persons, Germany
Ahiya Kamara, Commissioner for Equal Rights of Persons with Disabilities, Israel
Eric Mathews, Associate Director, Disability Rights International
Jean Judes, Executive Director, Beit Issie Shapiro, Israel

June 15-17

 

Skin to Live In Global Campaign.

Mexico City, Mexico

June 18

AADMD 12th Annual Education Conference

the 2014 Princeton Meeting of the NTG on ID and Dementia Practices

In conjunction with American Academy of Developmental Medicine and Dentistry

The Special Olympics 2014 USA Games

Hyatt Regency Princeton
102 Carnegie Center
Princeton, NJ, 08540
www.aadmd.org

June 19

PHACE: 4th Bi-annual PHACE Syndrome Community Family Conference.

Country Springs Hotel
2810 Golf Road
Pewaukee, WI 53072

PHACE Syndrome, a congenital condition characterized by the association between large infantile hemangiomas, usually of the head and neck, and birth defects of the brain, heart, eyes, skin and/or arteries.

PHACE is an acronym that stands for the medical names of the parts of the body it often impacts:

  • P – Posterior fossa abnormalities and other structural brain abnormalities
  • H – Hemangioma(s) of the cervical facial region
  • A – Arterial cerebrovascular anomalies
  • C – Cardiac defects, aortic coarctation and other aortic abnormalities
  • E – Eye anomalies

Further information about the PHACE Syndrome Community is available at

www.phacesyndromecommunity.org.

 

June 20-22


FIRST: Foundation for Ichthyosis and Related Skin Types, Inc.®

Keynote and workshop
2014 National Family Conference –

Hilton Indianapolis

120 W. Market St.
Indianapolis, IN 46204

www.firstskinfoundation.org

June 25


AAIDD American Association on Intellectual and Developmental Disabilities 2014 Media Award for Positive Exposure: The Spirit of Difference.

This award recognizes significant contributions in depicting Americans with disabilities in a positive light.

The 138th AAIDD Annual Meeting will be held at:

Buena VIsta Palace
1900 E. Buena Vista Drive
Lake Buena Vista, FL 32830

www.aaidd.org

Rick, although thrilled and honored with this award,  will not be able to attend the award ceremony as he will be in Europe collaborating on a global campaign focusing on Psoriasis and Urticaria.