Thank you so much for this. My little nephew has x-linked myotubular myopathy and I know how much seeing these pictures has meant to everyone. I will be linking this around.
As the parent of a child with Koolen-de Vries Syndrome (chromosome 17 microdeletion), it is such a blessing to see photographs of other beautifully special children. Unfortunately, most of the world will never stop to see their beauty or know the inner strength these special children exhibit each and every day of their lives. THANK YOU !!
I didn’t know what to expect when I ventured into the portraits of the girls with Turner Syndrome. It is wonderful that you show so many different girls with the same disorder. My first cousin Lisa was born with Turner’s Syndrome in the fifties. No one knew what it was that she had. Years and years later, she was finally diagnosed.
In the eighties, my son had a girlfriend who reminded me of my cousin. When I met her mother, I told her that her daughter reminded me a lot of my cousin who had Turner’s. She told me that it had taken almost ten years to find that out and multiple doctors had no idea what it was.
I say all of this because I believe that your galleries are not only beautiful but that they are valuable diagnostic tools. Some of these conditions, if diagnosed early enough, can be treated successfully in a variety of ways. My cousin missed that window of opportunity and my son’s friend did as well because there were no resources available for unknowing doctors and other medical people to refer to. So, not only beautiful portraits, but your work also should be required viewing for medical professionals.
Thank you for these beautiful things. If Lisa were living today, I know that she would love them.
You are helping the world see these beautiful people the way God does!
your idea is awesome!I love that finally someone captures another side of beauty!
I think u are a truly beautiful person inside and out
Thank you from the bottom of my heart for showing
these wonderful people how beautiful they truly are
Your work and your mission lit up my Sunday better than church. The “beauty myth” is more than a myth — it is a prison. You are helping us to jailbreak these unfair attitudes that cause so much pain and misunderstanding. As a woman who came of age in the 1970s, I’d say younger women now have a much harder time, even with more opportunities than we had. Please keep doing your loving work so we can all be seen in our best light. (And if you come to Taiwan, my university or a better venue should be proud to host you and your work, maybe with some official support — contact me by e-mail if you might have time for this…)
I absolutely LOVE the pictures. What beautiful people! What great shots. The compassion that shows through your pictures and the essence of TRUE beauty is amazing! All I could do was smile. Keep up the GREAT work.
Your photographs touched my heart:) You really captured the beauty of your subjects – kudos. With much respect, Lisa
At some time in my life I obtained the ability to see inner beauty. I think most people have the capacity to see inner beauty, but many have not yet developed that ability. I think empathy is related to the ability to see inner beauty, and now that our society is global we need all the empathy that we can muster. Thank you for helping spread empathy.
Thank you for making my day – I love your photos and the joy that you have captured.
I have always had a hard time with traditional beauty – it is forgettable. Not these guys!
Please keep up the great work and show us more!
Kudos to you! I’m an occupational therapist working with students in the public school system in nyc. They are wonderful, unique, and beautiful, no matter what their classification or diagnosis is. Thank you so much for being an advocate for people of all abilities.
Dear Mr. Guidotti,
Thank you for your efforts. I fear the time for high school graduation pictures because as a parent it is hard to keep our daughter in a pose if at all. She has Pitt-Hopkins Syndrome (Chromosome 18 deletion) and only recently diagnosed after our genetic search for 15 years. If you have any tips to pass on to capture the high school graduation picture that would be awesome. Thanks. Dana
My premature triplet daughter Anna was born with Anencephaly on May 4, 1998. I was shown a picture in a medical book of what she’d look like. I was horrified, as you said in your Rock Center video. Since then, thanks to a Facebook page dedicated to these babies and their families, I have seen some stunningly beautiful pictures of these babies who are born with all or most of their brain missing, no skull, bulging eyes. But you see the parents pictures and you see them in their babies and you see that child’s chubby cheeks or beautiful rosebud lips. You see that babies personality. I wasn’t prepared to see those good things. But Anna had a personality even before she was born, as did her triplet sisters, all who passed. Thank you for bringing to light the people, the babies, the adults who get stares and quizzical looks and sometimes horrified looks. Contact me if you want more info on Anencephaly.
LOVE LOVE LOVE what you are using your gifts and talents for. I recently adopted a son from China that has Radial Aplasia which basically means he does not have a radius bone. He is a normal healthy happy boy who just so happens to have one arm that is smaller than the other.
Thank you for posting such great pictures.
Thank you for these amazing pictures. I have a son with Cerbral Palsy who is in a wheelchair so I get to see first hand how his happiness and personality brings a smile to everyone he meets. So
thank you again for taking wonderful pictures and sharing them with everyone
I have a 12 year old daughter – just a regular girl…but what these kids…what all of us have been taught to believe is a specific definition of beauty. And, unfortunately that definition is being pounded into all of us as fact. Thank you for seeing beauty where most refuse to even look. Thank you for shining light on the fact that different is NOT unattractive…it is just different and our understanding of beauty needs to be re-evaluated.
Thank you very much for such inspirational work! I am a medical student and am particularly interested in Genetics. Thank you for letting me see beyond the medical text books!
My son has a rare condition that makes him look substantially different to what is perceived as normal. This project made my heart smile, as it shows the person, not the condition, which is what we as parents want to know about. We get enough medical jargon from the doctors; to see what our children can look like from the inside is simply amazing! Please let us know if you ever venture to Australia!!
Words cannot express how I feel to know that someone appreciates the beauty of human life. I can’t thank you enough! You are a truly wonderful artist. I am a mother of 5 children, 3 of which have special needs and multiple diagnoses including chromosome conditions.
Thank you so so much for helping raise awareness for rare conditions.
You have already touched the lives of so many and I know that you will touch many more people around the world.
Thank you from the bottom of my ♥heart ♥
Dear Rick Guidotti,
Having worked as a model for two years I understand where you are coming from. I just found out about your work through a report on NBC and I just want to say how I admire a previous fashion photographer to stand up for real beauty that is found in each and every one of us. One of the reasons why I stopped modeling is because I did not agree philosophically with my work. I see modeling as a work of art, not as a skill only reserved for a few selectees. Thank you for letting us hear the voices of many human beings, not medical cases!
Love, love, love your project and each photo! We have adopted three children from China. Our daughters were born with cleft lip and palate. They are still very conscious of the way their mouths, lips and noses are different from other little girls but they can see a photo of a baby with cl/cp and they will ooooh and aaaah over how cute the baby is. Thank you so much for showing the world that different is so beautiful!!
Absolutely stunning! My daughter ha a chromosome disorder and I love that you are showing how beautiful we all are <3
Thank you so very much for sharing these beautiful photos with the world! I am a mother of a special needs child and I feel that you have indeed shown these people’s true hearts in your photos! Thank you for using your gifts and talents to educate the public about the beauty of our differences!! May the Lord bless you and your work as you embrace our uniquenesses! Thank you!!
Thank You, thank you, thank you! As a mother of two boys born w/CHARGE Syndrome, the cause of their craniofacial deformities, I applaud your compassion and resolve to change the stigma of those with them. You have touched so many with your work that you will never ever know. Thank you.
Beautiful!!!!! Warms my heart.
I commend you on this project. As a parent of two special needs children (one deceased and one grown), I am touched deeply by the beauty you see. Your subjects/models are the loveliest models I have ever laid eyes on. Far and away more beautiful than any high fashion model, in part because there is nothing hidden in these photos. They are as honest as the day is long. Thank you for doing this,
I love what you are doing! I worked with profoundly disabled young children for a long time. What I saw, and what you are capturing in your photos, is the spirit within each child. that is a very special gift and thank you for sharing it with the world.
you are working with unconditional love….so wonderful!
love and laughter,
Thank you, so very very much. These photos are amazing but so are the people in them. I saw the piece on “Rock Center” and I understood exactly what you meant. I have primary lymphedema — nothing like what these folks face, but it can have repercussions if left untreated. When I first heard about lymphedema and thought “could I have that” the pictures from medical journals and sites scared the bejeezus out of me, and it led to a little denial: “I can’t have that, my symptoms are not like that” (and they weren’t but I still have the condition). I was lucky — I didn’t have that worst-case scenario yet. The pictures were horrid. I wish I’d been able to see pictures of people living well with the condition – in various stages of management and doing well, beaming smiles.
Bless you. Bless you for showing us the beauty in every one, no matter what the stage of life. Oh, and one more thank you — for the Dravet picture. I have a dear friend whose daughter has Dravet, and to me, she’s always beautiful. Glad the world can finally begin to see Dravet kids too!
These photos are beautiful. I am so happy to see the beauty I see at work each day, and that parents see each day, here. You capture spirits, not just faces!
I met you when you came to the Perkins School for the Blind several years ago. I was a volunteer in the Infant and Toddler program and we were doing a special albinism group. I was blown away then by your vision and humanity. You saw these beautiful children as we did. I was once again reminded of that day while watching a piece about you on Rock Center. I’m very happy that a wider audience could be made aware of the wonderful work you are doing. With much admiration – Natasha
I am a registered nurse and saw program on Rock Center last night and was so totally inspired by what Mr. Guidotti was all about. The pictures in medical books are so outdated and what a person sees upon looking up any information on any disabilities of any kind are unspeakable, I want so badly to help promote the education of the general public and especially children so that they learn from a very early age that these people are really no different than you and I. Please help me to help them learn in any way I possible could. God bless all medical educators so they to can see the importance and change this could and will make in this world. I pray I am able to be a part of this education and learning process.
Thank You !!
Thank you for your work. As someone living with a genetic defect, Turner’s Syndome, your work and images were a true blessing to me. I appreciate it.
Peace and Good;
Absolutely spectacular!!! I will send the link to this website to everyone I know!
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