Program AWARDS

2019

American Society of Human Genetics, Advocacy Award

2017

American Cleft Palate – Craniofacial Association (ACPA) Leadership Award Maxi Award: Cause Related Marketing – GOLD
Sturge-Weber Foundation Champion Award

2016

Imaging Alliance, Innovation Award
National Organization for Albinism and Hypopigmentation (NOAH) Founders Award

2015

The Golisano Foundation: Move To Include Award

2014

Eurordis Media Award, Rare Diseases Europe
American Association of Intellectual and Developmental Disabilities (AAIDD) Media Award
Hermansky-Pudlak Syndrome Network, World of Difference Award

2013

Kathleen Lyle Murray, AACPDM American Academy of Cerebral Palsy and Developmental Medicine
Champion of Hope, Global Genes/ RARE Project

2012

Presidential Medal of Honor, New England College of Optometry

2010

Harvard Foundation Humanitarian Award

2008

Dorthea Lynde Dix Humanitarian Award, Ellwyn Genetics

2007

The Heart of the Matter Award, National Marfan Foundation

1999

Art of Reporting Award, Genetic Alliance,