Top Supporters

A Squared Design

Beth Edwards Harris Foundation

Cail Family

Coastline Logistics

Cody Family

Golisano Foundation

Goldman Sachs

Beth Jacob Family

Jacob Family and Family Member

Kilmartin- O’Rorke Family

Manning Family

Masterson Family

National Marfan Foundation

NOAH- National Organization for Albinism and Hypopigmentation

Oppenheimer Haas Foundation

Parent Project Muscular Dystrophy

Respectability USA

Sage Foundation

Silverstein Family

Special Hope Foundation

The With Foundation


Additional Supporters

American College of Medical Genetics Foundation

American Society for Human Genetics

Ann Reinking, National Marfan Foundation

Arizona Association of School Psychology

Association for the Education/Rehabilitation AE/AER Rhode Island

Brigham and Women’s Hospital

Cambridge Healthtech

Children’s Hospital Oakland

Chromosome 18 Registry & Research Society USA and Australia

Cincinnati Museum Center

Colorado Bioscience Association

Cornelia de Lange Syndrome

Flowe Family

Fragile X Foundation


Herbert The Losen

Little People of America

Moebius Foundation

Myotonic Dystrophy FoundationNationwide Children’s Hosptial

New England College of Optometry

Penn State Medical School

Ralph Rucci

Sarah Lawrence College

Sturge-Weber Foundation

The Resource Exchange

University of Minnesota