HALIFAX, Nova Scotia
Friday, 24 September 2021, 4:30-5:30 PM ADT
In-person (students, staff, & faculty)
Virtual (unlimited attendance)
This year’s speaker is Rick Guidotti, founder of Positive Exposure.
Register for the virtual event.
Starts:
Ends:
Ondaatje Theatre
Marion McCain Arts & Social Sciences Building
6135 University Avenue
Dental Program for the Diagnosis and Treatment of Individuals with Special Health Care Needs
8:30-9:00 am: Welcome
Remarks from Dean Huja and Dr. Michelle Ziegler
9:00-10:00 am: Keynote:
Positive Exposure by Rick Guidotti
10:00-11:00 am: Orthodontic
Treatment Through the Lens of the Parent of your Patient with Intellectual Disabilities by Dr. Marc Ackerman
11:00-11:30 am: Poster:
Identifying Barriers to Access of Dental Care for Special Needs Patients During COVID-19 Pandemic by Rachael Elvis and Alexa Cox
11:30-12:00 pm: Break
12:00-1:00 pm: Welcoming Patients with Special Heath Care Needs into your Practice by Dr. Michelle Ziegler
1:00-2:00 pm: Prevention,
Caries Management and Silver Diamine Fluoride by Dr. Allen Wong
2:00-2:15 pm: Closing Remarks with Dr. Michelle Ziegler
Speaker Biographies
Rick Guidotti Rick Guidotti, an award-winning photographer, has spent the past twenty five
years collaborating internationally with nonprofit organizations, hospitals, medical schools,
educational institutions, museums, galleries, advocacy groups and communities to effect a
change in societal attitudes towards individuals living with genetic, physical, behavioral or
intellectual difference. Rick is the founder and director of POSITIVE EXPOSURE, which has
significantly impacted the field of human rights, mental health, medicine, and education by
providing new opportunities to see each individual as a human being and valued member of our society.
Dr. Ackerman specializes in the orthodontic treatment of children with dentofacial anomalies,
intellectual and physical disabilities and sleep disordered breathing. He received his DMD
from the University of Pennsylvania School of Dental Medicine in and his certificate in
Orthodontics from the University of Rochester-Eastman Dental Center. Dr. Ackerman later
completed his MBA in Executive Leader[1]ship at Jacksonville University Davis College of
Business as well as a Fellowship in Medical Ethics at Harvard Medical School in 2014. Dr. Ackerman
is the Director of Orthodontics at Boston Children’s Hospital and teaches medical students at Harvard
Medical School and dental students/residents from Harvard School of Dental Medicine.
Dr. Ziegler is an Associate Professor in the Department of Oral Rehabilitation, Director of the
Advanced Education in General Dentistry Residency Program and clinical faculty of the newly
opened Special Care Dentistry Clinic at the James B. Edwards College of Dental Medicine
at the Medical University of South Carolina. She graduated from the New York University
College of Dentistry, as well as receiving her BS from Columbia University and an AS in Dental
Hygiene from the University Of Pennsylvania School Of Dental Medicine. Dr. Ziegler’s
postgraduate training includes a two year General Practice Residency at Lutheran Medical
Center in Brooklyn, NY where she was Chief Resident. She was the Director of the General Residency
Program at Lutheran Medical Center and Director of the General Practice Residency Program at Monmouth
Medical Center in New Jersey. Over the last 20 years Dr. Ziegler’s passion has been treating patient with
special needs.
Dr. Allen Wong has taught postdoctoral general dentistry for over 35 years. He currently
teaches at the University of the Pacific Arthur A. Dugoni School of Dentistry as a Professor
in the Department of Diagnostic Sciences as well as maintains a private practice in San
Francisco. He has lectured nationally and internationally in the areas of special care dentistry,
and minimally invasive dentistry. Dr. Wong is the immediate past president of The American
Academy of Developmental Medicine & Dentistry, a non-profit, membership organization of
interdisciplinary health professionals — including primary physicians, medical specialists, dentists, optometrists,
Please join us from 11:00-11:30a for the poster presentation by our 4th Year
Dental Students, Rachel Elvis (L) and Alexa Cox (R).
BEYOND Limits: Canada’s Conference for Diversity and Accessibility: 7PM EST
September 16, 5pm – 7pm CDT, 6pm – 8pm EST
IMAGE DESCRIPTION: Eight square pictures of people are across the top. They are all different ages and races. Each person is looking into the camera and smiling or laughing. In the center on a gold background, black wording reads, “POSITIVE EXPOSURE 2021 Celebration, Airing Wednesday, September 22, 7:00 PM EST, Tickets now available.” Below on a white background black wording reads, “Special Thanks to Our Sponsors and Champions for Change.” Below are logos from companies including Goldman Sachs, Myers Leadership, Cushman Wakefield, Tastemade, Patti + Ricky, Familial Dysautonomia, Morgan Lewis, Sublime Communications, Miraflex.
Image Description: A family of 4 Mom, Dad & 2 Children, smiling and looking into the camera.
Registration is now closed. Questions? Email us at info@clovessyndrome.org
Join us on Friday August 6th from 6-8pm EST for our opening keynote speaker and social event and Saturday August 7th from 10am to 3pm EST for our main sessions.
Our conference this year is virtual event, with activities for kids over 8 and programming for families and people with CLOVES.
Opening Keynote Speaker: Rick Guidotti of Positive Exposure
Tri-sponsored by the Academic Pediatric Association (APA), the American Academy of Pediatrics (AAP), and the Society of Hospital Medicine (SHM), the PHM meeting provides an all-inclusive arrangement of educational and networking opportunities planned specifically for the pediatric hospital medicine professional. APA will be the host society for the 2021 meeting. The meeting will take place virtually from August 4 – 6, 2021. The meeting time zone is Eastern Daylight Time. Scroll down for complete information on the schedule and to register.
Lee Beers, MD
President
American Academy of Pediatrics
Anthony Fauci, MD
Chief Medical Adviser, Biden Administration
Director, NIAID
Ilan Alhadeff, MD, MBA, SFHM, CLHM
Assistant Vice President of Medical Services and Care Management
at Boca Raton Regional Hospital
Nathan T. Chomilo, MD
Medical Director for the State of Minnesota’s Medicaid & MinnesotaCare at the Minnesota Department of Human Services
Julie K. Silver, MD
Associate Professor, Associate Chair
Department of Physical Medicine and Rehabilitation Harvard Medical School
Rick Guidotti
Founder and director of Positive Exposure, an innovative arts, education and advocacy organization working with individuals with genetic difference.
Priya Chandan, MD, PhD, MPH
Assistant Professor in the Division of Physical Medicine & Rehabilitation at the University of Louisville School of Medicine
Corrie Harris, MD
Associate Professor of Pediatrics in the Division of Pediatric Hospitalist Medicine at the University of Louisville School of Medicine
Live Virtual Presentation
11:45 EST
Presenting to 1400 Medical students @ Melbourne Medical School.
The MD Student Conference (MDSC) is a core university subject of the Doctor of Medicine (MD) Program at the Melbourne Medical School.
MDSC is entirely student-led, with over 100 students involved in its organisation, planning and execution. The annual conference is a unique and innovative step in medical education that brings together over 1400 students of all years within the Melbourne Medical School into a setting akin to what they will experience in their future as medical professionals, in order to explore facets of medicine that are not covered by their MD curriculum.
7:00- 8:00 EST
IMAGE DESCRIPTION: Black and white backgrounds separated by a thin blue line. White font on the left reads Positive Exposure Connects, Facebook LIVE with Rick Guidotti, #BetterTogether, positiveexposure.org. Purple font on the right reads Little People of America on Fashion and Beauty, Laura Casados, Becky Curran Kekula, Jillian Curwin, Lauren Humphries, Wednesday, June 16, 2021, 3:15 PM ET. Two images are below. Left image shows a short-statured gentleman with glasses and dark skin walking on a bridge. He is smiling and wearing a gray shirt, gray shorts, denim jacket and tennis shoes. Right image shows four short-statured people walking on a fashion runway with purple and blue curtains and lighting behind them. All are smiling and wearing dressy attire.
Faces Redefining the Art of Medical Education (FRAME): Visual Arts Advancing Education and Training in Healthcare for Individuals with IDD
Speakers: Seth Keller, M.D., Neurology Associates of South Jersey and Past-President, American Academy of Developmental Medicine and Dentistry (AADMD) and Rick Guidotti, Founder and CEO, Positive Exposure Productions, Inc.
Often health care practitioners do not receive significant education and training about the health issues and concerns facing those with IDD. Training that is typically provided is usually very academic, clinical and sterile in its mode of presentation. Rick Guidotti and Positive Exposure has developed a unique visual arts project that has been crafted towards healthcare practitioners in training; Project FRAME (Faces Redefining the Art of Medical Education). This presentation by Rick Guidotti as well as by Seth Keller MD will review a new Project FRAME effort focusing on persons with epilepsy and early-onset Alzheimer’s disease in adults with Down syndrome, as well as Supported Decision Making.
IMAGE DESCRIPTION: Left side has a black background with white wording that reads “POSITIVE EXPOSURE Connects, Facebook LIVE with Rick Guidotti, #BetterTogether, Sunday 13 June 2021, 9:00 AM ET, positiveexposure.org. A thick red line is between the black background and a white background on the right. Red and gold wording on the white background reads “Doctors with Albinism celebrate June 13 International Albinism Awareness Day Strength Beyond All Odds. A matrix of nine square images are below the words showing nine individuals participating in a video conference call.
POSITIVE EXPOSURE Connects, Thursday, June 10, 2021, 2:00 PM ET
IMAGE DESCRIPTION: Black background on the left with wording in white that reads “POSITIVE EXPOSURE Connects, Facebook Live with Rick Guidotti, #BetterTogether, Thursday, June 10, 2021, 2:00 PM ET, positiveexposure.org” A thin blue bar separates the black background on the left and the white background on the right. Wording in blue at the top reads “Larry P. Johnson, Radio & Television Broadcaster, Motivational Speaker, Author, Step inside my world as a blind child, teenager and young adult growing up in Chicago some 70 years ago, Larry P. Johnson.” Three images at the bottom from left to right — (1) Black and white book cover with a man wearing dark glasses sitting at a desk, (2) an older gentleman wearing dark glasses and a suit pleasantly looking towards the camera, (3) book cover with a pink background, a young boy sits on top of planet earth.
Filming About Beauty with myFace and Make-Up ARTIST, Naomi.
myFace is a non-profit organization dedicated to changing the faces – and transforming the lives – of children and adults with facial differences.
Image Description: Pink and blue lettering for myFace Logo, Changing Faces, Transforming Lives.
Close up Photograph of young lady with big smile, brown skin and blond and gold and green dyed curly hair.)
FRAME (FACES REDEFINING THE ART OF MEDICAL EDUCATION) FILM SHOOT
20th Street Location.
The LOUNGE, POSITIVE EXPOSURE
Featuring Austin Halls Live
(Image Description: Bold White lettering on Black background Logo The LOUNGE Positive Exposure Featuring Austin Halls Live. Photo of Austin sitting in a chair hand in his hair and face in profile, in front of colorful Wall with graphic shapes and the word love in many languages)
Saturday, May 22, 2-4pm EST
Virtual Concert
INSTAGRAM LIVE @PositiveExposure
Austin strives to incorporate his degree in psychology, his story, and his music to promote loving yourself and overcoming any obstacles.
austin-halls.com
THE HAPPY CHAT SHOW!!!!
Rick is being interviewed by 40 new friends at
https://www.communityconnectionslife.com
So excited!!
Nemours/Alfred I. duPont Hospital for Children
Office of Continuing Medical Education
GRAND ROUNDS: 8 am EST
IMAGE DESCRIPTION: White and black backgrounds. Logos for POSITIVE EXPOSURE, FRAME, PCOM and the Chromosome 18 Registry and Research Society are on the left side. A matrix of 18 screenshots from a ZOOM call is on the upper right. The participants are each looking at the computers’ cameras. Several are wearing headphones. On the lower right side, wording in white font on a black background reads, “ You’re invited to join POSITIVE EXPOSURE for the premier of our FRAME Film: Faces Redefining the Art of Medical Education, Tetrasomy 18 in FRMAE, created by PCOM Students & families from the Chromosome 18 Registry & Research Society, Wednesday, April 21, 2021, 7:00 PM EST, Virtual ZOOM Meeting, LINK to follow.
E Case Western PE PEARLS In Our Own Words 03.26.2021 
IMAGE DESCRIPTION: A white background with black font. Four square pictures are on the left. Two guys and two young woman. All are smiling. Wording on the right reads In Our Own Words PEARLS Ambassadors & Youth Advocacy, Friday, March 26, 1:00-2:00 PM EST, Join Rick Guidotti of Positive Exposure as he chats with Andrew Burbank, Kelsey Ferrill, Austin Halls and Amy Hansen, young ambassadors who are changing people’s perspectives with their honesty, thoughtfulness, and humor. They will discuss their own journeys and share what inspires them to speak out. FREE and open to the community. Registration required. Two logos are at the bottom — Case Western Reserve University and POSITIVE EXPOSURE.
About The BU Genetic Counseling Program:
The BU Genetic Counseling Program is committed to providing high-quality training through dynamic coursework, dedicated mentoring, diverse fieldwork and innovative learning experiences to develop motivated genetic counselors to meet the needs of an expanding landscape in genetics and genomics. The primary objective of the Master of Science Degree Program in Genetic Counseling is to educate graduate students in the core concepts of human genetics and counseling. Our focus is to provide students with the appropriate knowledge, experience and mentoring to become competent, sensitive and motivated genetic counselors. This is accomplished through a variety of educational experiences including coursework, clinical training, research project preparation and supplementary activities such as case conferences, grand rounds, journal clubs and seminars.
Case Western Reserve University
Shubert Center for Child Studies
SPECIAL THANKS:
Danielle & Katie Slawitschek for making this happen. OUR AMAZING COSTELLO FAMILIES
Medical Advisor: Karen W. Gripp, MD
Medical students:
Mary Sun: Yale School of Medicine
Silpa Tadavarthy: Lewis Katz School of Medicine at Temple University
Alejandro Vega: SUNY Downstate
Image Description: FRAME Logo FRAME in capital letters, the A is much thinner that the other bold letters. Underneath it reads: Faces Redefining the Art of Medical Education
POSITIVE EXPOSURE Connects
Sunday, 21 March at 3:OO PM EST
FacebookLIVE
March 21 is #WorldDownsyndromeDay! To celebrate we’ll be having a great conversation with GiGi’s Playhouse NYC and people who are living with Down syndrome. We hope you can hang out with us for a little while on Sunday afternoon! Can’t wait to see everyone!!!!!
#PositiveExposure #BetterTogether #ChangeHowYouSee #SeeHowYouChange #FacebookLIVE #WDSD #WDSD2021 #CrazySocks #GiGisPlayhouse
IMAGE DESCRIPTION: Background of black on left side and white on the right. Wording on the left is in white font and reads POSITIVE EXPOSURE Connects, Facebook Live with Rick Guidotti, 3:00 PM EST Sunday 21 March. In the middle is a vertical row of four images. All are smiling and looking in the camera. They are different ages and races. On the right is white and black font and reads Celebrating World Down syndrome Awareness Day, POSITIVE EXPOSURE Connects will host a conversation with GiGi’s Playhouse and others who are living with Down syndrome. A logo for GiGi’s Playhouse in at the bottom middle with bright colors.
March is #BrainInjuryAwareness month. On Wednesday, 17 March at 2:OO PM EST, Rick will be having a roundtable discussion on #FacebookLIVE with five people who have experienced brain injury along with the challenges, stigmas and resilience. Please join us!
#PositiveExposure #BetterTogether#ChangeHowYouSee #SeeHowYouChange#BrainInjury
IMAGE DESCRIPTION: Black, white and blue background. On the left side wording reads, “POSITIVE EXPOSURE Connects, Facebook LIVE with Rick Guidotti, 2:00 PM EST Wednesday 17 March, Facebook LIVE, #BetterTogether. On the right there are six square images of people who are all ages and races who are looking into the camera and smiling. Wording at the top reads, “Brain Injury Awareness.” A round green and blue logo for MORE THAN MY BRAIN INJURY is at the bottom.
Virtual Positive Exposure Presentation: 10 – 10:35 EST
Cochrane produces systematic reviews of primary research in human health care and policy.
Image description: Cochrane logo, 2 dark blue half circled separated blue vertical line and horizontal dashes with the words Cochrane Skin: Trusted evidence. Informed decisions. Better health.
Bottom image: Dark clue background with head and shoulder silhouettes connected by thin white lines. Words read: Cochrane Skin Annual Meeting. Free Registration Click Here to register
Philadelphia College of Osteopathic Medicine Virtual Lecture: 3-4pm
For more than a century, Philadelphia College of Osteopathic Medicine (PCOM) has trained highly competent, caring physicians, health practitioners and behavioral scientists who practice a “whole person” approach—treating people, not just symptoms.
The mission of USU is to support the readiness of America’s Warfighter and the health and well-being of the military community by educating and developing uniformed health professionals, scientists and leaders; by conducting cutting-edge, military-relevant research, and by providing operational support to units around the world.
RARE DISEASE DAY
Let’s Celebrate RARE together with POSITIVE EXPOSURE Connects, Rick and friends from around the Globe.. Cant wait to see you Sunday @ 12pm EST on #FacebookLive
IMAGE DESCRIPTION: Black background with words reading “POSITIVE EXPOSURE Connects, Facebook LIVE with Rick Guidotti” on the left side. A picture of a woman is below. She has shoulder length brown hair and is smiling while looking into the camera. On the right is a white background with words reading “Understanding Audio Description Narrative, 3:OO PM EST, February 25TH, Facebook LIVE, POSITIVE EXPOSURE Connects talks with Michele Spitz, womanofherword.com, Michele delivers the specilized VoiceOver style required for audio and video descriptions. This service makes media and images accessible to those with visual impairments and helps create a world of inclusion and equity.” An image on the lower right shows a pair of white headphones with a iPhone between the earphones. The iPhone projects an image of a man and woman both with dark hair in a tight embrace. The letters AD are at the top of iPhone.
CORNELL Pre-Med Students
Virtual Presentation: 5:30 pm EST
Positive Exposure presentation to General Student body +Health Care Providers in Training
2pm -4pm VIRTUAL
POSITIVE EXPOSURE Connects with Xian Horn and Friends.
We can’t wait for our conversation with the beautiful and vivacious
Link to Allure Magazine Article
Center for Persons with Disabilities Presentation Series and VIRTUAL POSITIVE EXPOSURE Wednesday, January 20th at 5:30-7:00pm
POSITIVE EXPOSURE: Virtual Keynote
The Group aims to accept for review any aspect of skin disease management which it feels will be of value to professionals or to lay people with an interest in skin disease. It will thus accept all randomized controlled trials of interventions relevant to the prevention of skin disease, the treatment and management of established skin disease, and the prevention of complications of skin diseases. This includes alternative/complementary treatments.
POSITIVE EXPOSURE Lecture/ Workshop: Uniformed Services University Bethesda, MD
The F. Edward Hébert School of Medicine is traditional in many ways, but it has unique tenets that make it a special place. Among its singular features is a curriculum that places special emphasis on military and public health medicine. This foundation prepares students for the important roles they will take on as uniformed physicians. Our program melds the study of basic science, the clinical practice of medicine and military leadership training to produce innovative doctors. This signature blend of education and training distinguishes USU as a leader among institutions of learning.
Their motto, “Learning to Care for Those in Harm’s Way.”
The BU Genetic Counseling Program is committed to providing high-quality training through dynamic coursework, dedicated mentoring, diverse fieldwork and innovative learning experiences to develop motivated genetic counselors to meet the needs of an expanding landscape in genetics and genomics. The primary objective of the Master of Science Degree Program in Genetic Counseling is to educate graduate students in the core concepts of human genetics and counseling. Our focus is to provide students with the appropriate knowledge, experience and mentoring to become competent, sensitive and motivated genetic counselors. This is accomplished through a variety of educational experiences including coursework, clinical training, research project preparation and supplementary activities such as case conferences, grand rounds, journal clubs and seminars.
The NEW Center for Persons with Disabilities
POSITIVE EXPOSURE virtual presentation: 5:30 – 7:30 pm
The Care Center for Persons with Disabilities is a one-of-a-kind enterprise dedicated to improving the quality of life for people with all forms of disability. World-wide, people of all ages live with physical or intellectual disabilities either developmental or acquired as they age. Their quality of life is lower by virtue of the lack of well-trained dental practitioners as well as a shortage of facilities capable of delivering necessary care.
Approximately 3,500-square-feet on the second floor of the School’s Robert Schattner Center has been allocated to create the Center, a space that is specifically designed for patients with disabilities. The Personalized Care Suite, the patient care portion of the Center, features 12 operatories, all of which accommodate wheelchairs. There is also a room outfitted with hover dental chairs and at least one room accommodates patients on a gurney. In addition, a stimulation room with low lighting and sound baffling will serve patients with sensory sensitivities. All students will gain direct experience treating patients in the Center and will be expertly trained to handle the unique needs of people with sensory impairments, behavioral problems, psychosocial issues, and other conditions requiring sensitive and comprehensive handling.
Aptima: Corporate presentation. 12:00 (noon) – 1:00pm VIRTUAL
For 25 years, Aptima’s mission has been to improve and optimize performance in mission-critical, technology-intensive settings. We apply deep expertise in how humans think, learn, and perform to today’s challenges. Whether for fighter pilots functioning in the cockpit, medical staff in the ICU, or teams collaborating across distributed networks, our solutions help measure, assess, inform, and augment human performance in defense, intel, aviation, law enforcement, and healthcare.
Aptima’s capabilities:
Image description: APTIMA Logo with Human Centered Engineering
Silhouette of head in profile with 2 round gears in groove on dark blue with the words THE HUMAN is the last frontier for innovation in the age of technology.
IMAGE DESCRIPTION: Black background. POSITIVE EXPOSURE logo in upper left corner. Wording reads POSITIVE EXPOSURE Connects, November 28, Facebook LIVE. A Conversation with Kieran O’Brien Kern: Diversability Project Manager, Writer, Speaker
Saturday 11:00 am EST
2 circular images with Kieran and her 2 daughters, diversability Logo joins the Images.
Image 1 Kieran in purple and white print top and daughters are in maroon tops
Image 2: Kieran in dark grey and purple printed top and daughters wearing pink solid and printed sweaters.
Virtual presentation to Neurogene
Neurogene is accelerating development of new genetic medicines to people with neurological diseases and their families.
Philadelphia College of Osteopathic Medicine: 3 Day Student Elective
DAY 3
October 7, 2020
October 21, 2020
November 4, 2020
Department of Medical Humanities
POSITIVE EXPOSURE Elective:
Positive Exposure (PE) and its film program, FRAME (Faces Redefining the Art of Medical Education) weaves critical medical information, with personal and lived experiences, for healthcare professionals in training, clinicians, families and communities. Each film, 8-12 minutes in length, provides a greater understanding of the most commonly seen diagnoses by demonstrating hallmark characteristics of a particular condition, while modeling an attitude of respect for the humanity of the patients.
This elective will provide students with the opportunity to participate in the creation of a Positive Exposure FRAME (Faces Redefining the Art of Medical Education) film. In Phase 1, Students will explore partnerships with specialists and advocacy organizations, the research process, prompt development and interview techniques. In Phase 2, students will participate in a virtual forum that will enable students to ask questions of specialists and an advocacy group, as well as interview individuals and families living with a particular genetic condition. In Phase 3, students will examine transcripts and a rough film edit of virtual interviews, and discuss the pertinent details to be included in the final film.
Joan H. Marks Graduate Program in Human Genetics: Positive Exposure Lecture
10:30am
POSITIVE EXPOSURE Connects:
This will be an amazing and lively conversation with our friends from
PDF: Oct-29-2020-Grand-Rounds-Rick-Guidotti
University of Saskatchewan College of Medicine
DEPARTMENT OF PEDIATRICS
GRAND ROUNDS Thursday, Oct 29th, 2020 12:00-1:00 p.m.
Rick Guidotti
Presents
Seeing Beyond Diagnosis
Rick Guidotti, an award winning photographer, has spent the past twenty years collaborating internationally with non profit organizations, hospitals, medical schools, educational institutions, advocacy groups and communities to promote a more inclusive and compassionate world where ALL differences are understood and celebrated. Guidotti’s work has been published in newspapers, magazines, and journals as diverse as Elle, GQ, People, the American Journal of Medical Genetics, The Lancet, Spirituality and Health, the Washington Post, New York Times, Atlantic Monthly and LIFE Magazine. Rick is the founder and director of POSTIVE EXPOSURE, an innovative arts, advocacy, and education organization which utilizes the visual arts to celebrate human diversity, inclusive of ethnicity, religion, age, ability, learning style, gender identity, gender expression and sexual orientation. POSTIVE EXPOSURE has significantly
impacted the field of human rights, mental health, medicine, and education by providing new opportunities to see each individual as a human being and valued member of our society.
Objectives
Lecture to Osteopathic Medicine (DO) program.
About Touro California: Touro California is a graduate institution under the Touro Colleges and Universities System. Our campus is located in Vallejo, California on Mare Island, which is historically the site of the first Navy installation on the West Coast. Our school offers professional programs in the fields of Health Sciences, Public Health, and Education. The many graduate programs include Osteopathic Medicine, Pharmacy, Physician’s Assistant, and Nursing.
Virtual Lecture at the Museum Of Tolerance Professional Development for California Educators
Masterclass: Empowering Students Living with Disabilities in the Classroom
Self Acceptance = Self Esteem = Self Advocacy
6pm ET / 3pm PT –
DAY 2
October 7, 2020
October 21, 2020
November 4, 2020
Department of Medical Humanities
POSITIVE EXPOSURE Elective:
Positive Exposure (PE) and its film program, FRAME (Faces Redefining the Art of Medical Education) weaves critical medical information, with personal and lived experiences, for healthcare professionals in training, clinicians, families and communities. Each film, 8-12 minutes in length, provides a greater understanding of the most commonly seen diagnoses by demonstrating hallmark characteristics of a particular condition, while modeling an attitude of respect for the humanity of the patients.
This elective will provide students with the opportunity to participate in the creation of a Positive Exposure FRAME (Faces Redefining the Art of Medical Education) film. In Phase 1, Students will explore partnerships with specialists and advocacy organizations, the research process, prompt development and interview techniques. In Phase 2, students will participate in a virtual forum that will enable students to ask questions of specialists and an advocacy group, as well as interview individuals and families living with a particular genetic condition. In Phase 3, students will examine transcripts and a rough film edit of virtual interviews, and discuss the pertinent details to be included in the final film.
Penn State College of Medicine
1st Year Medical Student Lecture
Virtual Hand Sewing Workshop: FREE
Saturday, October 17, 2020
Time: 12-1pm EST
Venue: Online via Zoom
No. of Participants 10-15
Have you ever wanted to explore hand stitching and felt nervous picking up that needle? Did you ever wonder if you could explore stitching in a non-traditional way? This is an introductory workshop on hand sewing in which we will just learn one or two stitches and explore the endless possibilities they can offer. Working with needles and threads can seem hard or out of reach but together we can make it easy and within reach.
Join me for this workshop to explore non-traditional ways of exploring stitching to create something interesting or simply engage with your hands and connect with our beautiful and rich community.
Supplies you will need:
Supplies You Will Need Click Here for Word Doc
Supplies you will need Click Here for PDF
About Sugandha Gupta
Textile Artist/ Maker/ Designer/ Disability Advocate/ Educator
W: https://sugandhainhere.wixsite.com/website
I: https://www.instagram.com/sugandha.in.here/
Image Description: Portrait of young woman with pale skin and light blond/white hair with nose ring and red lipstick, smiling into the camera. She is wrapped in light beige and almost white textiles around her neck and shoulders.
IMAGE DESCRIPTION: Black Background with white font. POSITIVE EXPOSURE logo is in the upper left corner. POSITIVE EXPOSURE Connects, October 15. Facebook Live with Rick Guidotti. A Conversation with Wheelchair Traveling. 2:00 PM EST. Three square images below. Each image shows a girl in a wheelchair smiling in different outdoor or city locations.
Corporate Presentation:
Enterprise Diversity & Inclusion
Philadelphia College of Osteopathic Medicine: 3 Day Student Elective
October 7, 2020
October 21, 2020
November 4, 2020
Department of Medical Humanities
POSITIVE EXPOSURE Elective:
Positive Exposure (PE) and its film program, FRAME (Faces Redefining the Art of Medical Education) weaves critical medical information, with personal and lived experiences, for healthcare professionals in training, clinicians, families and communities. Each film, 8-12 minutes in length, provides a greater understanding of the most commonly seen diagnoses by demonstrating hallmark characteristics of a particular condition, while modeling an attitude of respect for the humanity of the patients.
This elective will provide students with the opportunity to participate in the creation of a Positive Exposure FRAME (Faces Redefining the Art of Medical Education) film. In Phase 1, Students will explore partnerships with specialists and advocacy organizations, the research process, prompt development and interview techniques. In Phase 2, students will participate in a virtual forum that will enable students to ask questions of specialists and an advocacy group, as well as interview individuals and families living with a particular genetic condition. In Phase 3, students will examine transcripts and a rough film edit of virtual interviews, and discuss the pertinent details to be included in the final film.
Cornell University: Cameradery Photography Club Lecture: Cameradery
FOR TICKETS AND INFORMATION CLICK HERE!!
SAVE THE DATE!
September 24TH, 2O2O, at 7:OO PM EST
POSITIVE EXPOSURE’s Virtual Gala will take place on September 24, 2O2O, at 7PM EST. We are so excited! Make your plans now to join us and a lot of our great friends from around the globe!
We’ll be honoring Judith Heumann with the POSITIVE EXPOSURE “Spirit of Change” Award, and there will be some other incredible surprises! It will be an AMAZING evening!!!!!
Be sure we have your email so you can receive invites and reminders! To send us your information, click on the LINK: positiveexposure.org/connect-with-us/
Special thanks to our sponsors — Netflix, Travelers Insurance, Third Eye Motion Picture Company, Vacant Light and Betsy Myers – Myers Leadership
#PositiveExposure #BetterTogether #ChangeHowYouSee#SeeHowYouChange #VirtualGala #SaveTheDave #CripCamp
IMAGE: Black background with white and gold lettering. Five pictures of our friends looking in the camera and smiling with the words Change How You See written on each picture. Wording: Save the Date. Virtual Gala. 7PM EST September 24th, 2O2O. Gala Chair – Beth Edwards Harris, Honoree – Judith Heumann, international disability rights activist, author of BEING HEUMANN, featured in Netflix film CRIP CAMP. We need your email – To receive an invite and participate in our event, we need your email. Click to connect with us. For registration, sponsorship, or other information, please contact Lisa Johnson, Director of Development at Positive Exposure, 914.420.6283, lisa@positiveexposure.org. Sponsored by Netflix, Travelers Insurance, Third Eye Motion Picture Company, Vacant Light, Myers Leadership. Positive Exposure 2O2O Gala.
The Doctor’s Role in Improving Healthcare for Adults with Intellectual and Developmental Disabilities:
A Virtual Conference for Saskatchewan Physicians
Saturday, Sept. 19th, 2020, 10:00 AM – 12:15 PM
Virtual Presentation: Panel
Saskatchewan Family Medicine Conference
The panelists will be introduced in the following order:
Virtual Lecture.
Physician Assistant Program Presbyterian College.
We are BEYOND excited to have a conversation with internationally-renowned artist, David Marchi, tomorrow on #FacebookLIVE at 2:00 PM EST!!!!!
David’s passion for painting was the direct result of a broken back from a boating accident in 2015.
Prior to this, David never painted.
In 2019, he was diagnosed by Dr. Darold Treffert with Acquired Savant Syndrome. This is where dormant savant skills emerge after a spinal or brain injury or disease in previously non-disabled persons.
Today, David’s life is his painting.
He is currently studying under Larry Poons and Peter Bonner at the Art Students League in New York City and
has traveled to Hamburg, Berlin, Paris, Sao Paulo and London to paint with other artists.
His work is collected world-wide and is currently being critiqued by Pulitzer prize and New York Magazine art critic, Jerry Saltz.
Through his art, he supports Positive Exposure, The Human Rights Campaign, and Lady Gaga’s Born This Way Foundation.
IMAGE: Black background with with lettering. POSITIVE EXPOSURE logo reading “Change How You See, See How You Change” in upper left corner. POSITIVE EXPOSURE Conencts, August 26, Facebook LIVE with Rick Guidotti, #BetterTogether in upper right corner. Wednesday – A Conversation with David Marchi an Internationally-renowned Artist, Acquired Savant Syndrome, Post-traumatic Growth, Mental Health Advocate, 2:00 PM EST. Three square images are at the bottom (from left to right) An abstract painting in greens and blues. A man standing in from of a painting wearing a baseball cap and white shirt. His arms are folded, and he is looking into the camera and smiling. An abstract painting with reds, greens, yellow and blues.
#PositiveExposure #ChangeHowYouSee #SeeHowYouChange #MentalHealth #SavantSyndrome #BornThisWay #LadyGaga #NYTimes #NYAchitectualDigest #Art
Tuesday, August 3rd @ 2pm ET Living in the Light, Levi Gershkowitz, Founder and CEO, Jeff Reinhardt, Head of Advocacy, Living in the Light | I Stay Home for Rare Initiative.
Thursday: August 5th @ 2 pm ET Art and Disabilities with Sugandha Gupta, Textile Artist and Designer | Disability Advocate.
IMAGE: A bright green background with black font. Change How You See, See How You Change black and white logo in the upper left corner. Positive Exposure Connects August 3 and 5, Facebook LIVE with Rick Guidotti, #BetterTogether. Tuesday – Living in the Light, Levi Gershkowitz, Founder and CEO, Jeff Reinhardt, Head of Advocacy, Living in the Light | I Stay Home for Rare Initiative, 2:OO PM EST. A picture with an African American woman wearing glasses, smiling and a young child with oxygen tubing is on the right. Thursday – Art and Disabilities, Sugandha Gupta, Textile Artist and Designer | Disability Advocate, 2:OO PM EST. A picture of a woman with light blond/white hair is looking into camera and smiling is on the right.
Top left:
CHANGE HOW YOU SEE, SEE HOW YOU CHANGE white type, black background
Top Right:
POSITIVE EXPOSURE Connects
July 28-30
Facebook Live with Rick Guidott
#BetterTogether
TUESDAY: July 28 @4pm ET
The Superhero Project
Lisa Kollins and Nikki Montgomery
Creating Joy 1 character at a time.
Superhero Logo in gold and blue, graphic shape resembles person with hands on hips.
WEDNESDAY: July 29 @8pm ET
Sunshine Troupe, Australia
Giving voice to people with disabilities through dance and performance.
Three dances in dance poses, wearing black, white and red clothes.
THURSDAY: July 30 @4pmET
All things ADA & Accessibility
Quemuel Aroyo, Xian Horn, Becky Curran Kekula, Jessica Murray
Image of 3 women smiling in camera. Middle person, in a wedding dress.
Tuesday July 21@ 2pm ET
Building Parent Connections with Michelle O’Connor and Sheila Adamo
PROVIDING SUPPORT, EDUCATION AND GUIDANCE TO PARENTS OF CHILDREN WITH SPECIAL NEEDS
www.buildingparentconnections.com
Wednesday July 22@ 11am ET
Helen Rose Kalia Jacobs, UK and Family
Self Love Architect, Author, Media Personality, Public Speaker, Nutritional Fusion Chef & Musician. International Woman of the Year.
Thursday July 23@ 2pm ET
Outside Voices: Poetry Reading.
“We are smooth and soft like ice cream on a hot day.”
“We are a collective of poets with intellectual and developmental disabilities. Our normal might not be your normal. We occupy new dimensions. We are about advocacy, empowerment, out-of-the-box-thinking and disability pride. We chose our name because we believe that VOICES from the OUTSIDE deserve to be heard. We believe in access. We will not use our quiet, inside voices to get your attention.
Friday July 24 @4pm ET
Giving Voice to the rare disease community through filmmaking.
Emmy Nominated: Joanna Rudnick
Director Producer, Kartemquin Films ON BEAUTY.
Joanna made her directorial debut with In the Family, a deeply personal story about coming to terms with having a mutation in one of the breast cancer (BRCA) genes.
Tuesday July 14: 2pm
Introducing Filmmakers with a unique perspective. Reed Smith, Filmmaker: Graduate of the School of Visual Arts’ MFA Program.
With: Erik Spink & Amitabh Joshi FRAME Film TEAM/ Vacant Light/ Professors, School of VisualArts
Image: Young man in blue shirt with video camera filming lunch on table while seated student with scarf in her hair looks on.
Thursday July 16: 2pm
Advocate for Authentic Casting on Stage & Screen. Christine Bruno; Actor, teaching artist, activist, disability consultant.
Image: Portrait of young woman with short hair, bright eyes, slight smile looking right into the lens of the camera.
July 7th
Tuesday: 2pm ET
Janet LaBreck: Activist and Advocate
Former Commissioner of the Rehabilitation Services Administration (RSA), within the United States Department of Education.
July 8th
Wednesday: 2pm Progressive Visions Photos Club and West Farm
(Printed on a bright yellow background with Change How You See, See How You Change logo in left hand corner. Image of Janet: African American Woman with curly dark hair white blouse and Navy sport jacket. Very elegant. Next photo for photography club, group shot of 4 people, 3 men and 1 woman. Everyone is looking into the camera and smiling.)
Two great interviews for this week on #FacebookLIVE to discuss#Marfansyndrome with @dominoe44 (Dominga Noe) and the #ADA (Americans with Disabilities Act). Be sure to join us today (Tuesday) and Thursday for some great conversations!
(Image: Square image with blue background with black and white wording — Positive Exposure Connects, June 30-July 2, Advocacy for Marfan Syndrome, Tuesday at 2:00 PM EST with a picture of a smiling girl with brown hair and glasses; The Art of Creating an Exhibition Celebrating the Americans with Disabilities Act with a picture showing the back of a girl wearing an orange shirt that reads “advocacy, diversity, acceptance,” Thursday at 3:00 PM EST)
23rd Tuesday: 4pm ET
Little People of America Make the World Your Runway
Chat Fashion with Becky Curran Kekula and Lauren Humphries
https://www.lpaonline.org/2020-lpafs
24th Wednesday: 2pm ET
World Vitiligo Day
Chat with Diane Tribbit & Friends
Houston Vitiligo Awareness Movement
#RockTheSkinYoureIn
#EmbraceWhoYouAre
25th Thursday: 2pm ET
Donna Walton
Divas with Disabilities Project
Zazel Chavah-O’Garra
Founder and Artistic Director, ZCO Project
26th Friday: 2pm
Quemuel Arroyo
Appointed by the Mayor to serve on the Surface Transportation Committee which is helping plan for the reopening of NYC post Covid.
Former Chief Accessibility Specialist of New York City Department of Transportation
June 16 Tuesday 2pm
Avi Golden Aphasia Advocacy
June 17, Wednesday 2 pm
Tiffany A. Yu, Founder of Diversability
Marcela Maranon: Journey of a Brave Woman
June 18, Thursday 12pm (noon)
Anita Hollander: Actress, Singer, Songwriter, Director, Teacher
June 18 Thursday 4pm
Myself My World launch
June19, Friday @3pm
Mem Nahadr an American performance artist and multi-octave vocalist , author, composer, poet, filmmaker, and human rights activist
Tuesday May 26 2 pm
Christie Falco
Lawyer, advocate for people living with albinism & cancer survivor
Wednesday May 27 2 pm
Sugandha Gupta
Textile Artist/ Maker/ Designer/ Disability Advocate/ Educator
W: https://sugandhainhere.wixsite.com/website
I: https://www.instagram.com/sugandha.in.here/
Thursday May 28 2 pm
Katie Wright │ Director
The VEDS Movement
Charging forward. Saving lives.
TheVEDSMovement.org
The VEDS Movement is the Foundation’s newest division. Learn about Vascular Ehlers-Danlos Syndrome (VEDS)
Friday May 29 11am
Bieke kreps
Pediatric Dentist in Belgium and also Department of Pediatric Dentistry at NYU College of Dentistry & Director of Positive Exposure Europe.
With photographer & make-up artist, Joseph Boggess
Saturday May 30 11am
Chromosome 18 Registry and Research Society’s Founder and President Jannine Cody with daughters, Catherine Cody Larson, Child psychiatrist and advocate, Elizabeth Cody.
POSITIVE EXPOSURE Connects
May 19-22, 2020
Tuesday, May 19, 2020
2:30pm (EST)
“The Hack-Ability Toolkit”
Open Style Lab
Grace Jun, CEO
Kieran O’Brien Kern, Engagement Manager
Discussing the Hackability Toolkit
Established in 2014, Open Style Lab (OSL) is 501(c)(3) organization dedicated
to creating functional, wearable solutions for people of all abilities without
compromising on style.
The OSL Team will demonstrate The Hack-Ability toolkit created to
empower people with disabilities everywhere to strategize and create their own solutions.
Wednesday, May 20, 2020
4:00pm (EST)
“Disability Rights”
Becky Curran Kekula, Disability Rights Activist
Brandon Farbstein, Gen Z Activist
Thursday, May 21, 2020
10am (EST)
“Undiagnosed Diseases”
Founders: Helene and Mikk
(A Swedish nonprofit supporting individuals and families that are undiagnosed around the globe.)
Guests also include POSITIVE EXPOSURE PEARLS Ambassador Freya and Ann Nordgren, MD, PhD, from the Karolinska Institute Stockholm.
Friday, May 22, 2020
2:00pm (EST)
“Beauty Tips”
Beauty tips with Joseph Boggess (make-up artist), Dawn Gallagher (best-selling author and supermodel) and Xian Horn (beauty activist)
VIRTUAL PRESENTATIONS: 9am
Pediatric Grand Rounds at Golisano Children’s Hospital at the University of Rochester and Rochester Regional Hospital.
VIRTUAL PRESENTATION:12pm
FRAME Workshop Featuring Cerebral Palsy, Cystic Fibrosis, Fragile X syndrome
On behalf of the pediatric residents at the University of Rochester, the chief residents have invited Rick Guidotti to Rochester as the Richard Ham Memorial Lecturer of 2020. This lectureship was established in memory of Richard Ham, a former pediatric resident at the University of Rochester (1963-1965). Dr. Ham became ill the year following his residency with Hodgkin’s disease and died in 1967 during his postdoctoral fellowship. He is remembered as a warm, selfless, caring colleague, devoted learner, and inspiring teacher, and this lectureship is evidence of the high esteem in which he was held by his fellow house officers. Each year, the Ham Memorial speaker is chosen by the pediatric chief residents.
Virtual Positive Exposure Presentation and FRAME (Faces Redefining the Art of Medical Education)
Hosting Syracuse University’s 
In collaboration with
Positive Exposure Grand Rounds
“Change How You See, See How You Change” presentation to 3rd medical students at Uniformed Services University of the Health Sciences.
Positive Exposure Lecture to First Year Medical Students
BEYOND THE WHITE COAT uses photography and written narrative to celebrate physicians in reflective and personal moments outside the hospital helping to prevent physician burnout.
The South Carolina Medical Association Alliance (SCMAA) educates, advocates and supports the physician family of South Carolina and is proud to present this project and the photography exhibition throughout the state beginning in spring 2020.
• Photo Shoot Dates
February 11 – 16, 2020
• Locations
Charleston, Columbia, Greenville,
Spartanburg and others
• Photographer
Rick Guidotti
Positive Exposure, Founder & CEO
• Information
Suzanne Manning
SCMAA, President 2019-20
(864) 630.6845
scmaalliancepresident@gmail.com
The Beauty of Our Shared Humanity
Talk and Photo Presentation
Rick Guidotti
Photographer, Founder, and Director
POSTIVE EXPOSURE
Keynote:
2:00pm – 3:30pm
Webb Auditorium (1350 Booth Hall)
Reception & Book Signing:
3:30pm – 4:30pm
Bruce and Nora James Atrium, Thomas Gosnell Hall
Speaker Bio:
Rick Guidotti, an award-winning photographer, has spent the past twenty years collaborating internationally with nonprofit organizations, hospitals, medical schools, educational institutions, advocacy groups and communities to promote a more inclusive and compassionate world where ALL differences are understood and celebrated; his work has been published in newspapers, magazines and journals as diverse as Elle, GQ, People, the American Journal of Medical Genetics, The Lancet, Spirituality and Health, the Washington Post, New York Times, Atlantic Monthly and LIFE Magazine.
Rick is the founder and director of POSITIVE EXPOSURE, an innovative arts, advocacy, and education organization which utilizes the visual arts to celebrate human diversity, inclusive of ethnicity, religion, age, ability, learning style, gender identity, gender expression and sexual orientation.
Books will be available for purchase with a book signing at a reception following the presentation.
Intended Audience:
No background knowledge needed. All are welcome.
Open to the Public
Yes
A very unique opportunity at PE109. Be part of the Positive Exposure discussion about Stigma and celebration of our shared humanity. Positive Exposure focuses our lens on Heidi Latsky Dance company.
Open rehearsal for Heidi Latsky Dance, workshop and discussion with choreographer and performers.
Heidi Latsky Dance workshop about Disrupting Space, Dismantling Normal, and Redefining Beauty?
Please visit Positive Exposure 109 (14 East 109th @ 5th Avenue) Jan 10 – 13 to experience Open Rehearsal with the Heidi Latsky Dance Company! This creative exploration is certain to elicit conversation, shift perceptions, and spark new ideas. It might even get you dancing!
HLD is a New York-based modern dance company committed to making relevant, striking work across multiple disciplines. Since its inception in 2001, the company has received numerous commissions and residencies: Abrons Arts Center, Baryshnikov Arts Center, Danspace Project, JCC Manhattan, Joyce Theater, Peak Performances at Montclair State University, New York University.
Friday, Jan 10: 12 – 4 pm rehearsal
Saturday, Jan 11: 1 – 4 pm rehearsal; 5 pm run through
Sunday, Jan 12: 1 – 4 pm rehearsal; 5 pm run through
Monday, Jan 13: 12 pm rehearsal; 1 pm run through
More about Heidi Latsky Dance: http://heidilatskydance.org
Photography: Netherlands and Mali (West Africa)
Metropolitan Hospital Community Photography/ Book/ Exhibition
Photoshoots: December 6, 7 & 13.
SUNY Downstate Medical College: Med student lecture
PRADER-WILLI SYNDROME ASSOCIATION (USA)
Conference: Caribe Royale, Orlando, Florida
Prader-Willi syndrome (PWS) is the most common known genetic cause of life-threatening obesity in children. Although the cause is complex, it results from an abnormality on the 15th chromosome. It occurrs in males and females equally and in all races. Prevalence estimates have ranged from 1:8,000 to 1:25,000 with the most likely figure being 1:15,000.
https://www.ashg.org/press/201907-Advocacy-Award.shtml
11th Annual Current Topics in Neonatal Nutrition and Advances in Neonatal Care Neonatology conference sponsored by The Children’s Hospital at the Albany Medical Center in New York on October 15 and 16, 2019.
Tuscarora Intermediate Unit #11:
Unified In-Service day for teachers in early childhood to career preparation and also some family support programs from Erie to Philly.
Tuscarora Intermediate Unit is a regional educational service agency meeting the needs of the public and nonpublic schools, personnel and students
Grand Rounds: Department of Dermatology, Resident Program 9-11 am
Lecture Hall 1B (ground floor) – Health Science Education Building
SUNY Downstate Medical Center
395 Lenox Road
Brooklyn, NY 11203
1st Year med Student Lecture @ 9am – NYC
Geisinger College of Medicine: Scranton, PA
1 st Year Med Student lecture
Photography, Thursday all day.
Click here for more conference information.
What is Sturge-Weber Syndrome?
Sturge-Weber Syndrome (SWS) (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder caused by the GNAQ gene mutation. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye, endocrine and organ irregularities, as well as developmental disabilities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
1st Year Medical Student Orientation + FRAME Workshop.
Photography and Presentation: Saturday June 29
DoubleTree by Hilton Hotel Bethesda – Washington DC
SLOS is a metabolic disorder caused by a mutation in the DHCR7 (7-dehydrocholesterol reductase) gene on chromosome 11. This gene codes for an enzyme that is involved in the production of cholesterol. People who have SLOS are unable to make enough cholesterol to support normal growth and development.
POSITIVE EXPOSURE Photography, workshop and presentation!
Family Conference @ Boston Children’s Hospital
CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis. CLOVES is caused by a somatic genetic mutation in a gene called PIK3CA that increases the activity of the gene. CLOVES belongs to a category of diseases known as PIK3CA-overgrowth spectrum or PROS.
Positive Exposure in Perth, Australia
A collaboration with the Wilhelm Foundation and individuals that are living with an undiagnosed condition.
The Undiagnosed-a-photo-project
Australia’s first Undiagnosed Diseases Program (UDP) is currently underway in Western Australia. The UDP-WA aims to provide a definitive diagnosis for people with complex and long-standing medical conditions.
POSITIVE EXPOSURE in Australia.
Presenting to Genetic Counselors at the Royal Melbourne Hospital.
Undergrads at the University of Melbourne in collaboration with Dr. Ingrid Winship
Photography with individuals living with Epidermolysis Bullosa and HHT ( Hereditary hemorrhagic telangiectastic)
ROCHESTER, NY:
Positive Exposure will premier our latest FRAME films created with support from the WITH FOUNDATION!
9:15 AM – “RED CARPET” FILM SCREENING AT THE LITTLE THEATRE
FEATURING:
CP in FRAME
Autism in FRAME
Intellectual Disability in FRAME
Keynote: Portland, Oregon. More info about the Conference!
About ANCOR
The American Network of Community Options and Resources (ANCOR) is a national, nonprofit trade association representing more than 1,600 private community providers of services to people with disabilities. Combined, they support over one million individuals with disabilities.
Mission
ANCOR’S mission is to advance the ability of ANCOR’S members in supporting people with intellectual and developmental disabilities to fully participate in their communities.
50th meeting of the German Society of Dermatology (DDG) May 1st to May 4th in 2019 in Berlin.
POSITIVE EXPOSURE Keynote presentation May 2.
Dallas, TX
PRESENTATION and PHOTOSHOOT!!
To Learn More about HealtheVoices
Social media shapes the way people make decisions about healthcare, and onlinehealth advocates are at the forefront of this movement. In an effort to connect, support and further empower the online health advocate community, Janssen created HealtheVoices™ – a groundbreaking leadership conference created exclusively for those using social platforms to advocate for themselves and their communities. Now in its fifth year, the annual HealtheVoices Conference will take place April 12-14, 2019 in Dallas, Texas.
POSITIVE EXPOSURE in Collaboration with Geisinger presents Autism in FRAME. Funded by the WITH Foundation and filmed on location at Friendship House. All involved families in this production attended the red carpet global premiere of AUTISM in FRAME!
The Paparazzi was there!!!!!
Venue: Berwick Theater and Center for Community Arts (110 E Front St, Berwick, PA 18603)
Speaking to students during their Disability Awareness Week @ Kingsborough Community College!
Delhi, India
Ill be in Delhi 20-26 March working in collaboration with the Wilhelm Foundation and The Institute of Medical Genetics & Genomics, Sir Ganga Ram Hospital, photographing local families that have undiagnosed conditions. This global initiative will create community among the undiagnosed families so they dont feel so isolated and alone. There will be an International Undiagnosed Disease conference in Delhi in May and these community-based images will be exhibited then.
RARE DISEASE DAY @ PFIZER NYC
Lecture and Exhibition
Presenting to 3rd Year Medical Students at Uniformed Services University Health Sciences in Bethesda, MD
Positive Exposure Presentation
Lecture to 1st Year medical Students: Philadelphia, PA
FRAME shoot in Houston, TX
The Psychological and Social impact of living with a skin condition like Alopecia, Vitiligo, Ichthyosis etc..
In collaboration with the Children’s House for the Soul and The Health Museum.
The Minnesota Association of Orthodontists (MAO) is comprised of members of the American Association of Orthodontists (AAO), the Midwestern Society of Orthodontists (MSO), and the MAO who reside in the state of Minnesota.
First Year Med Student Lecture: Rick
Come and celebrate the International Day of Persons with Disabilities: The UN Link
POSITIVE EXPOSURE in the FAROE Islands
MEGD, which is the umbrella organization for 24 member organizations of people with disabilities and chronic diseases, is again celebrating this year’s International Day of Persons with Disabilities. The event will be held in the Nordic House in the Faroe Islands on December the 3rd at 3pm. At the same time this will be the opening of a special photo exhibition.
Information about MEGD: www.megd.fo
The photo exhibition, titled “CHANGE HOW YOU SEE, AND SEE HOW YOU CHANGE”, is a result of the collaboration between MEGD and the renowned and award winning photographer Rick Guidotti, who visited the Faroe Islands in September 2018. The purpose of his visit was to take photos of people who daily live with some kind of challenge. The 31 photos in the exhibition in the Nordic House is a direct result of his visit in September.
The exhibition will hopefully, also through personal stories, create conversations and possible discussions about how we see each other as human beings. And further more, there is a wish to change how people normally, or often, see people living with challenges, who may look different because of disability, illness or other challenges.
Information about MEGD and their work: www.megd.fo
The event is free of charge and everyone is welcome.
Exhibition Premiere: Community based in the Faroe Islands in collaboration with MEGD Organization.
International Day of Persons with Disabilities
Exhibition will premiere at the Nordic House, Faroe Islands
Lecture & Photography: Rick
Also known as XP, is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.
The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family support group strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family grants for UV protective equipment and travel assistance for attending the annual XP national convention.
SUNY DOWNSTATE MEDICAL SCHOOL
Lecture to 1st Year Medical Students: Rick November 6
ALD Connect Family ConferenceCourtyard Marriott Philadelphia Downtown, 21 N Juniper St, Philadelphia, PA 19107
Lecture and Photography: Rick
Adrenoleukodystrophy (ALD) is a progressive, genetic disease that affects the adrenal glands, the spinal cord, and the white matter (myelin) of the nervous system. ALD is considered a rare disease, and affects approximately 1 in 15,000 people worldwide.
ALD Connect: Our mission is to improve health outcomes for patients with X-linked adrenoleukodystrophy (ALD) by empowering patients, raising awareness, and accelerating the translation of scientific advances into better clinical care.
de Young museum: Golden Gate Park \ 50 Hagiwara Tea Garden Drive, San Francisco, CA 94118 \ 415.750.3600
SPECIAL SCREENING: ON BEAUTY with Joanna Rudnick
Keynote and Photography: Rick
About DDX3X
-Is caused by a spontaneous mutation at conception; nothing either parent did caused their child’s condition
-Primarily affects girls due to its location on the X-chromosome, though there are affected boys
-Was only recently discovered in 2014
-Has only been identified in about 200 individuals, however, doctors believe it is the cause of 1 to 3 percent of all intellectual disabilities in females
-Is often misdiagnosed as autism spectrum disorder, cerebral palsy, Rett Syndrome, Dandy Walker Syndrome, or a generic developmentally delayed label
-Is linked to intellectual disabilities, seizures, autism, low muscle tone, abnormalities of the brain, and slower physical developments
-Has a broad spectrum—some children learn to speak in full sentences while others are nonverbal; some individuals run, jump, and even ski while others are unable to walk
DDX3X Foundation: Our mission is to connect families, resources, and the medical community to advance research for a cure to DDX3X gene mutations.
Our ultimate goal over the coming years is to accelerate brain function in individuals affected by DDX3X through advances in gene therapy and pharmaceuticals.
Lecture to the Genetic Counseling Graduate Students: Rick
The Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College.
Integrating education, healthcare, and humanism, this celebrated program prepares genetic counselors to work in a growing, dynamic field.
The mission of the Human Genetics program is to improve health care for all people by educating genetic counselors so they are prepared to meet current and future needs of their clients, their communities, their profession, and society at large.
Established in 1969, the program was the first of its kind in the United States. It remains the largest graduate program in genetic counseling in the world.
ACCESS Ridgewood Fashion Show 2018
October 13, 2018
Kids and young adults of varying abilities and differing abilities model side by side in a fabulously inclusive environment. Siblings / friends are encouraged to model as well. Volunteers are always available to escort a model. It is a wonderful opportunity for our kids to have a fun day and express their amazingly unique selves. The fashion show is one of the highlights of the ACCESS Ridgewood weekend – a town-wide differing abilities awareness event.
Our models come from all over the Tri-State Area & more!!
EXTENDED!!!!!!!! POSITIVE EXPOSURE Community based exhibition and continuous screening of FRAME Films in collaboration with A Children’s House for the Soul!
Announcing our partnership with NYU Langone & The OUT Foundation
Exhibition and Presentation; Positive Exposure Team
This lecture marks Rick’s 20th lecture to first year Medical Students at Weill Cornell College of Medicine.
Faroe Islands Community based Photography: In collaboration with MEGD.
MEGD, which is an umbrella organization with 24- member organization working with the importance of the rights of people with disabilities in The Faroe Islands. This is primarily done through the awareness and implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD).
Initial request April 2018, an excerpt:
Could you come to the Faroe Islands?
My name is Tóra við Keldu. I am chairwoman of MEGD, which is an umbrella organization with 24- member organization working with the importance of the rights of people with disabilities in The Faroe Islands. This is primarily done through the awareness and implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD).
YES, I come from The Faroe Islands and now you probably think: Where is that? The Faroe Islands is a self- governing archipelago, or rather 18 rocky, volcanic islands between Iceland and Norway in the North Atlantic Ocean.
So here is the reason why I write you this letter.
As chairwoman of MEGD I have, for the last three years, had different presentations where I have pointed out some of the same issues you address, namely how we see each other and how that influences your lives. The Faroe Islands is a small community and people know each other. This is in face a good think but at the same time we are, as other human beings, looking at each other with eyes “damaged”, so to say, by the media. Therefore, when I saw your pictures for the first time it gave a nice warmth to my heart.
I have often used the quote from the Little Prince: “And now here is my secret, a very simple secret: It is only with the heart that one can see rightly; what is essential is invisible to the eye.” – Antoine de Saint- Exupéry. This is how I see the challenge. The challenge is to change how people see. I believe it is possible – through hard work.
Gothenburg, Sweden
Ågrenska is a national competence centre and provides programs for children, teenagers and adults with disabilities, their families and professionals supporting the family.
Lecture and Photography: Rick
Karolinksa Center for Rare Diseases, Karolinska University Hospital
Stockholm, Sweden
Karolinska Institutet is one of the world’s foremost medical universities. Our vision is to make a significant contribution to the improvement of human health; our mission is to conduct research and education and to interact with the community.
As a university, KI is Sweden’s single largest centre of medical academic research and offers the country’s widest range of medical courses and programmes.
Since 1901 the Nobel Assembly at Karolinska Institutet has selected the Nobel laureates in Physiology or Medicine.
Lecture and Photography: Rick
Mayo Clinic and Rochester Art Center:
Klippel- Trenaunay Support Group Meeting; Rochester, MN
Moebius Conference
St. Petersberg, FL
PRISMS 10th International Conference
Smith Magenis Syndrome
Pittsburgh, PA
22Q Family Meeting 2018
Where: Whistler, Canada (BC)
NOAH Conference 2018
National Organization for Albinism and Hypopigmentation
Where: Kansas City, MO at the Westin Kansas City at Crown Center
1st Year Med Students Orientation
1:00PM on Wednesday, July 11 at the HUB-Robeson Center (on main campus).
Penn State College of Medicine
University Park
1850 East Park Avenue, Suite 304
State College, PA 16803
Chromosome 18 Conference 2018
Renaissance Baltimore Harborplace Hotel
202 East Pratt St. Baltimore, MD 21202
A great event for self-advocates, parents of young children and adults, siblings, etc. bring the whole family!!
End the conference with the Starfish Gala and fourth of July fireworks!
Charlotte, NC
ECAC Conference
https://www.umassmed.edu/vitiligo/world-vitiligo-day-2018/
Featuring Positive Exposure
Rochester Art Center and Mayo Clinic
With presentation on August 1.
THE CANADIAN COLLEGE OF MEDICAL GENETICISTS: Vancouver
Keynote Speaker
Where: Harrison Hot Springs, BC
REDEFINING BEAUTY
Sunshine Plaza Shopping Centre Acc, Maroochydore
Hosted by Chromosome 18 Registry Australia
Redefining Beauty is a photographic exhibition celebrating the lives of children and adults living with rare genetic conditions including Chromosome 18, Fragile X, Vanishing White Matter Leukodystrophy and Albinisim. These stunning images were captured at various iconic Sunshine Coast locations by internationally renowned Rick Guidotti, founder of Positive Exposure – an innovative nonprofit arts, education, and advocacy organisation.
Atlantic Derm Conference
May 12, 2018
SUNY Downstate College of Medicine
“Art of Medicine”
A conference on the intersection of art and medicine
purpose: to fundraise to provide free healthcare at a local clinic run by SUNY downstate medical students
Pennsylvania Office of Child Development and Early Learning
Where: Kalahari Convention Center, 250 Kalahari Blvd. Pocono Manor, PA 18349
Local and State leaders will gather to learn more about early intervention services and providing inclusive environments.
Positive Exposure Gala 2018
Click here for more Details and Tickets
Where: Town Stages
221 West Broadway New York, NY 10013
Time: 6pm-9pm
Positive Exposure Lecture and 2 Workshops
Our agency mission is to serve people with intellectual and developmental disabilities to achieve their full potential and to participate in community life. Our vision is a community where disability is a distinction without a difference, where individuals will have choices on how they live, learn, work, worship, and play.
The in-service training that we are hosting on March 19th is an annual training for Direct Support Professionals (DSPs) for professional development. It is an inter-agency training where DSPs from agencies in Duval and Putnam Counties attend to increase their awareness and knowledge about how to best serve individuals with intellectual and developmental disabilities. We have a keynote address and breakout sessions that deal with topics that are relevant to the care of and services provided for the individuals we serve. Together the Arc Jacksonville, Pine Castle, Inc., The Arc of Putnam County and the other providers that attend serve over 1,500 people with I/DD on a daily basis.
University of Minnesota Medical School
Photoshoot and Evening Reception
Gillette Children’s Specialty Healthcare Cleft and Craniofacial Symposium
Minnesota History Center, St. Paul, MN
Location TBD, DC – Shopify SEO and https://usaoutdoors.org/
Medical Student Lecture
American Academy of Dermatology
2018 Keynote presentation. San Diego, CA
Pediatric Grand Rounds
Jacobi Medical Centerhttp://jacobimed.org/
Autism and Intellectual Disability in FRAME
In collaboration with:
ADMI: Autism & Developmental Medicine Institute
GeisingerAADMD: American Academy of Developmental Medicine and Dentistry from www.EmergencyDentistsUSA.comWith the support of The WITH Foundation
1st Year Med Student Lecture
Penn State Children’s Hospital; Grand Rounds
Hershey, PA
The Resource Exchange and the Chapel Hills Mall, Colorado Springs!
Exhibition extended: Now through to the end of the YEAR!! Stay tuned for new exhibition images and premiere!
A Positive Exposure POP-UP gallery.
CONGRATULATIONS: Diane Loschen and Chapel Hills Mall: GOLD Winner
Owner: Garrison Chapel Hills Owner LLC
Management Company: CBL & Associates Properties, Inc.
The MAXI Awards celebrate the outstanding work and achievements of those who are transforming marketing in the retail real estate industry, getting help from the top digital marketing agency at the-indexer.com.
1st year Med Student lecture.
Israeli Photography Convention: Tel Aviv
Keynote presentation
LOVE THE SKIN YOU ARE IN CONFERENCE
HEALTH MUSEUM with a big derma roller amazon giveaway.
1515 Hermann Drive
Houston, TX
9:30 – 10:15 am Keynote Talk with Q & A
Photo Shoot to follow
19th New York Fashion + Design Conference
6th Annual PCCA Conference
Nov 8-10, 2017, Philadelphia, PA
SUNY Downstate: Med Student Lecture
POSITIVE EXPOSURE BELGIUM
FACES REDEFINING BEAUTY: A Global Project about Facial Differences
Exhibition
Self-Esteem Workshop
Gaston, Ghent, Belgium
Albinism Fellowship
Adult & Family Weekend Conference
The Hayes Conference Centre, Swanwick, Derbyshire, DE55 1AU
The Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. We also provide information about the condition to professionals working with people with albinism, and other appropriate interested parties.
Our focus is on the United Kingdom & Ireland, but we also work closely with other albinism support groups around the world.
The Resource Exchange Grand Opening to CHANGE HOW YOU SEE, SEE HOW YOU CHANGE
Chapel Hills Mall, Colorado Springs, CO
With special screenings of ON BEAUTY!
Ms. Sheila, Teacher
I am so thrilled that I was able to take a bunch of my students to see the film and meet Rick. So many of them have their own differing abilities and feel less than. This outing gave them a powerful message and meeting Rick was the icing on the cake! I am so appreciative that he “saw” them. The pictures he took will be a very tangible reminder of the day, the hope and power that they can have in the world.
Sarah’s Mom
Waiting for our time to work with Rick along with several other families was a time of personal reflection on the common struggles and victories that brought us together. Rick clearly has the gift of encouragement and coupled with his amazing talent and a passion for the project he was a joy to work with. Our daughter and project ambassador, Sarah, felt so at ease and gladly supplied him with an endless stream of smiles. Rick made us feel like he had all the time in the world to get the most beautiful shot. We are grateful to be a part of his vision to expand what we all see as beauty. To make you look more beautiful and confident just checkout this blog Botox specialists in Omaha, NE. To make you feel young and beautiful just visit Skin and Makeup Institute and try their services. I have honestly been giddy with excitement in anticipation of how this work will be used to help and encourage others. He has illuminated what is beautiful so that more people can appreciate what few already see. We are all beautiful and special and his art gives us pause to ponder and appreciate beauty in a place most do not seek to find it. That is a very beautiful thing.
When you need Botox treatment in Perth that has International Standard of Excellence in Aesthetics and Cosmetics. Skinicity Skin Centre is the first accredited cosmetic clinic in Australia.
Geisinger Commonwealth School of Medicine: Medical Student Lecture, Scranton, PA
B+ directed by Nazir Mirzaee 8 minutes, addresses Thalassemia
Saving Sight directed by Nate Strubhar 21 minutes, addresses Choroideremia (CHM)
Fragile X in Frame directed by Rick Guidotti 10 minutes, addresses Fragile X Syndrome
Imagine directed by Carl Mason 10 minutes addresses Niemann Pick Type C
ABOUT
Disorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. It will be held Oct. 2nd -3rd, 2017 in Boston, MA. Most (but not all) of our films are documentaries. Many are less than 15 minutes.
Each film maker attending will have an opportunity for questions and answers with our audience following the presentation of their film.
Between our slates of films rare disease researchers and patient advocates will also share stories from their experience.
We believe increased awareness can connect patient families, inspire conversations about translation applications of current science, lead to new paths for research and save lives. These films put the often abstract and dire clinical information into the context of real people living their lives.
11:00 – 11:50 a.m. at Hale Auditorum, Cultural Life Center
“Frame” Workshop to students and faculty
Departments of Education, Nursing, Psychology, Social Work, Visual Arts and the best accredited online communications degree programs,
12:00 -1:00 p.m. at Thomas Golisano Library Conference Room 200
Lunch and Pre-Presentation Discussion with college deans
4:00 pm at Roberts Wesleyan College, Rochester, NY: Rick Guidotti will give a Keynote Lecture, “Change How You See, See How You Change”. Please check these guys out. The Purple Payday will be about inspiring people to finance different abilities and include all people in every aspect of community life. Personal Loan without a credit check is not a problem anymore.
A lot of online stores are always available and accessible to users. Visit www.top10bestpro.com to learn more.
For more information: https://www.roberts.edu/news/?id=3002
Join WXXI and the Golisano Foundation for a special Move to Include screening of On Beauty Thursday, September 21 at 6:30 p.m. at the Little Theatre (L5). The event is free and open to the public.
The evening will conclude with an audience Q&A with Rick, who will be in town for the screening.
The Little Theatre, 240 East Avenue, Rochester, NY 14604
For more information: https://thelittle.org/films/beauty-move-include-presentation
EADV – European Academy of Dermatology and Venerology
5:45 – 6:15 pm Positive Exposure Lecture: The Spirit of Difference
Geneva, Switzerland: http://eadv.org
Digital BNP Exhibition extended 1 Week!
Exhibit: Ghent, Belgium
From September 11-23, Positive Exposure Belgium and BNP Paribas Fortis are organizing a digital exhibit ‘Change How You See, See How You Change’ at the Flagship office of BNP Paribas Fortis in Ghent (Belgium).
On September 16 there will be a photography exhibit of Positive Exposure in the Head Quarters of BNP Paribas Fortis in Ghent (building next to the Flagship office).
Address: BNP Paribas Fortis Flagship office, Zonnestraat 2, 9000 Ghent, Belgium
Free entrance
For more info, visit Positive Exposure Belgium’s Facebook event page: ‘Change How You See, See How You Change’
Rome, Italy
Opening Night: 7 September
Museo di Roma in Trastevere
More details to follow
Roberts Wesleyan College, Rochester, NY
The photographic exhibition “Positive Exposure — Change How You See, See How You Change,” presented by the Golisano Foundation, is on display through Oct. 16 at Roberts Wesleyan College in the atrium of the Howard Stowe Roberts Cultural Life Center. The exhibit features portraits taken by internationally renowned photographer Rick Guidotti of people from around Greater Rochester living with genetic, physical, intellectual and developmental differences. Admission is free and open to the public.
Other events which are free and open to the public include:
September 21, 6:30 pm at The Little Theatre, Rochester, NY: On Beauty Screening followed by Q & A with Rick Guidotti
September 22, 4:00 pm at Roberts Wesleyan College, Rochester, NY: Rick Guidotti will give a Keynote Lecture, “Change How You See, See How You Change”. The keynote will be about inspiring people to embrace different abilities and include all people in every aspect of community life.
For more information: https://www.roberts.edu/news/?id=3002
Exhibition in Ghent, Belgium
Positive Exposure Belgium vzw presents its first exhibition ‘CHANGE HOW YOU SEE, SEE HOW YOU CHANGE’ in Ghent (Belgium) @Gaston, a rooftop bar & restaurant with a story.
Visit this gorgeous rooftop with a beautiful roof terrace, beach and a magnificent view of Ghent for delicious food, drinks and a taste of Positive Exposure.
www.gaston-gent.be
The Pacific Dermatologic Association was founded in 1948 to offer high-quality continuing education opportunities to dermatologists practicing in the Western US, Canada, Mexico and Pacific Rim countries. The PDA is the largest regional dermatologic society in the US, and the premiere educational society for dermatologists within the Pacific Rim area
Michelin United Way Palmetto Society Breakfast
Greenville, South Carolina
2nd COFFIN-SIRUS SYNDROME FAMILY CONFERENCE
Red Lion Hotel in Bellevue (Seattle), Washington
Coffin-Siris Syndrome is a rare genetic syndrome. Our children are among 200 or so diagnosed worldwide. CSS impacts cognitive, motor, speech and often feeding development, and often impacts multiple body systems. Many of our children are non-verbal and tube fed, and most have never met another kid “like them”.
This is the largest gathering of facial nerve experts in the world that takes place every four years.
RASopathies are a group of genetic syndromes that may be as common as 1:1000. The RASopathy syndromes include: cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), and Noonan (NS).
Our mission is to advance research of the RASopathies by bringing together families, clinicians and scientists.
2017 International Family Medical Conference for Cockayne Syndrome
Embassy Suites Riverfront Promenade
100 Capitol Mall
Sacramento, CA 95814
Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan.
9TH INTERNATIONAL DUP15Q ALLIANCE FAMILY CONFERENCE:
Crowne Plaza Redondo Beach and Marina
300 N. Harbor Drive, Redondo Beach, CA
Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.
http://www.dup15q.org
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
SOFT Family Conference
Madison Concourse Hotel and Governor’s Club
1 West Dayton St, Madison, WI 53703
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders. For the families driving to their destination, make sure to hire One Sure Insurance to get the best car insurance possible to be worry-free.
1st Year Med Student Orientation with Positive Exposure, University Park, PA
Chicago, Presentation and Premiere Infantile Hemangioma in FRAME
2017 Smith-Lemli-Opitz Family Medical Conference – Cincinnati, OH at the Embassy Suites RiverCenter.
The first “SLOS Awareness Day” Celebration: June 24th, 2017
[vimeo]https://vimeo.com/220118818[/vimeo] Foundation for Nager and Miller Syndromes conference. Cambridge, MA
The conference is June 22-25, 2017, and our family outing and dinner/party is Saturday, June 24th. The conference will be held at the Cambridge Marriott in Kendall Square, Cambridge, and the Broad Institute (a genomic research institute for day-time information meetings, also in Kendall Square)
http://fnms.org
Respectability USA
Rockville, M
National Leaders Cohort: Diversity Advocates
Photography and presentation.
International Sacral Agenesis/ Caudal Regression Association
Fairfax, VA
Family gathering, photography and presentation
Global Smile Foundation in Trujillo, Peru https://gsmile.org
Casa Azul America & Nationwide Children’s Hospital in Lima, Peru
Speaking to 1st year in the The Joan H. Marks Graduate Program in Human Genetics and then attending graduation!!!!
Academic Program
The Joan H. Marks Graduate Program in Human Genetics gives students a comprehensive understanding of the medical, scientific, and counseling aspects of human genetics. The program places equal emphasis on medical genetics and psychological approaches to working with patients.
The interdisciplinary curriculum enables students to integrate both theoretical and practical knowledge while developing research, analytical, and communication skills.
The program has a worldwide reputation for excellence and attracts a rich mix of students from around the world.
USC’s flagship campus is located in the heart of the Sunshine Coast at Sippy Downs.
University of the Sunshine Coast lecture.
The Australasian Chromosome 18 Registry & Research Society Conference
Novotel Twin Waters Resort, Mudjimba Beach QLD Australia. On other health related news, checkout south florida mental health clinic.
THE COUNCIL FOR EXCEPTIONAL CHILDREN
Hynes Convention Center
900 Boylston Street
Boston, MA 02115
Keynote:
Wednesday | 5:00–6:30 p.m.
Change how you see, see how you change.
Rick Guidotti will join the CEC community as the Opening General Session Keynote Speaker at the Hynes Convention Center in Boston.
The Council for Exceptional Children is a professional association of educators dedicated to advancing the success of children with exceptionalities. We accomplish our mission through advocacy, standards, and professional development.
http://www.cec.sped.org check out our website, we started using Dada web hosting services.
Community based exhibition premiere: Florence, SC
Details To Be Announced
The Association for Graduate Student Diversity and Baylor College of Medicine’s Office of Institutional Diversity: https://www.bcm.edu/about-us/diversity-inclusion
For an alternative health care program, companion pet letter provides emotional support prescribed by a licensed mental health professional, the emotional connections that they foster cannot be quantified clinically.
Baylor College of Medicine fosters diversity among its students, trainees, faculty and staff as a prerequisite to accomplishing our institutional mission, and setting standards for excellence in training healthcare providers like Coberly Plastic Surgery and others, promoting scientific innovation, and providing patient-centered care.
Lecture and Reception
Pediatric Allergy and Dermatology for the Practitioner: Whistler, BC.
Keynote Lecture
http://padc.org
American Cleft Palate-Craniofacial Association
Lecture and Leadership Award
Colorado Springs, CO
A Positive Exposure TEAM Presentation and Exhibition
http://www.geneticalliance.org
Global Smile Foundation: Guayaquil, Ecuador
http://gsmile.org
The Sturge-Weber Foundation Dinner: Orlando, FL
FRAME Presentation: Special Hope Foundation
John F Kennedy University
San Francisco, CA
POSITIVE EXPOSURE in Greenville, SC
More details later….
Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY
8:30 am – 9:30 am
Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:
In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.
Screening ON BEAUTY and Presentation
Genetic Task Force of Illinois Website
The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info
5:00pm Student Gallery, Healy Hall, first floor
(drinks and passed hors d’oeuvres)
6:00pm Panel Discussion, Gaston Hall
(will also be live-streamed; check back for link)
We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.
What is a disability, anyway?
In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?
Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.
The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.
Genetic Counseling Graduate Program
Long Island University – Post
2-4pm
Medical Student Lecture: 2-4pm
The Resource Exchange. Chappell Hill Mall Book signing and Santa visit!!!
University of Minnesota Medical Student Lecture
CREATIVE LIVING SERIES: Woodstock, IL
Lecture and Screening of ON BEAUTY
http://woodstockfinearts.org/cls.html
At the Opera House
ASHG High School Workshop/ ON BEAUTY SCREENING
Derma Medical, San Juan, Puerto Rico
Celebrating 50 years of our Residency Program of Dermatology.
La Concha Hotel, San Juan, PR.
Lecture: Marshfield, WI
http://preventiongenetics.com
The Resource Exchange Exhibition
Colorado Springs, CO
Opening: http://tre.org
Imaging Alliance AWARD Ceremony
SVA Theater
333 West 23rd Street, 6PM: https://www.theimagingalliance.com/salutes/
Exhibition and Lecture
The visit will focus on a number of themes, particularly art/photography, health communication and doctor/patient relationship training, targeting how to be bale to avoid misdiagnosis claims and how to handle them. The visit will include a public lecture on Thursday, Sept. 29 and several small group workshops and/or meetings Thursday and Friday morning.
Ohio University
Scripps College of Communication
117 Schoonover Center, One Ohio University
20 E. Union St.
Athens, OH 45701
http://ohio.edu
Derma Medical
Celebrating 50 years of Residency Program of Dermatology.
La Concha Hotel, San Juan, PR.
Weill Cornell Medical College
1 st Medical Student Lecture
11:00 am
Community Based Photo shoot/ Colorado Springs
Exhibition Premieres October 7
Lecture, Annual Conference of Colorado Dermatologic Society 2016
The Inverness Hotel and Conference Center
Englewood, CO
http://www.coloradodermatology.org
MS. Wheelchair America 2016 Pageant: August 8-14 in Grand Rapids, MI.
The mission of Ms. Wheelchair America is to provide an opportunity of achievement for women who happen to be wheelchair users to successfully educate and advocate for the more than 54 million Americans living with disabilities. Unlike traditional beauty pageants, Ms. Wheelchair America is not a contest to select the most attractive individual. It is instead a competition based on advocacy, achievement, communication and presentation to select the most accomplished and articulate spokeswoman for persons with disabilities. You can see here who to compare business electricty prices with. The selected representative must be able to communicate both the needs and the accomplishments of her constituency to the general public, the business community and the legislature. http://www.mswheelchairamerica.org
As Ms. Wheelchair America, the national title holder has numerous duties. These include promoting awareness of the need to eliminate architectural and attitudinal barriers, informing the able-bodied public of the achievements of the millions of people with disabilities across the nation, and assisting with the establishment of programs in all 50 states by promoting Ms. Wheelchair America. During her year long reign, she will have the opportunity to travel visiting advocacy groups, making public appearances and conducting radio, print ad, and TV interviews, a private vehicle with i4mt insurance will be given to her for the travels. The commitment and personal example of the titleholder serves to further the mission of Ms. Wheelchair America.
New York’s very own MS. Wheelchair New York: Jessica De La Rosa
“Changing the face of Mental Illness”
POSITIVE EXPOSURE Introduction and Presentation then…..
Photo shoot for new Campaign in Collaboration with the National Alliance on Mental Illness (NAMI) Southeast Minnesota.
The target audience would be individuals living with a mental illness and their families. By the way, if you have an adult family member who’s dealing with any of these, Arthritis, Atherosclerosis, Diabetes, Heart disease, High Cholesterol, Hypertension, seek assistance with internal medicine portland or.
For the photo shoot I was thinking of our volunteers who volunteer for our Speaker’s Bureau. The audience for the presentation would be our board, support group facilitators, service providers, etc. I am thinking 20-25 people.
About NAMI and Speaker’s Bureau
We are the affliate of the National Organization and we are based in Rochester, MN and are called NAMI Southeastern Minnesota. All states have a NAMI nonprofit with affiliates when available. The web site is www.namisemn.org. The greater Minnesota website is www.namihelps.org The National website is www.nami.org.
POSITIVE EXPOSURE at the Klippel Trenaunay Support Group Meeting at the Mayo Clinic, Rochester, MN
Klippel-Trenaunay (K-T) Syndrome is characterized by a localized or diffuse capillary malformation that overlies a venous malformation and/or lymphatic malformation with associated soft tissue and bone overgrowth (hypertrophy).
POSITIVE EXPOSURE at the Smith Magenis Syndrome Family Conference in St. Louis, MO
Smith-Magenis syndrome (or SMS) is a chromosomal disorder characterized by a recognizable pattern of physical, behavioral, and developmental features. It is caused by a missing piece of genetic material from chromosome 17, referred to as deletion 17p11.2.
Photo of our Deirdre!!
POSITIVE EXPOSURE at the NOONAN Syndrome Foundation Conference at the Hilton Minneapolis/ St. Paul Mall of America
POSITIVE EXPOSURE at the 4p- Support Group Family Conference in Woodland Hills (Los Angeles), CA
4 p- is also known as Wolf-Hirschorn Syndrome; a deletion of the short are of the 4th Chromosome.
The amount of material deleted may range from about 50% of the short arm to a small break that can’t be detected by normal chromosome analysis.
Because of this wide range of deleted material, the effect on our children varies widely. Some can walk, talk and assist in their daily care while others are not verbal and require constant care.
(Photo of our Vincent featured in the American Journal of Medical Genetics)
POSITIVE EXPOSURE at the SOFT (Support Organization for Trisomy 18, 13 and Related Disorders in Tacoma, WA
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.
POSITIVE EXPOSURE at the 12th Moebius Syndrome Foundation Conference in Long Beach, CA
Moebius syndrome is a nonprogressive craniofacial/neurological disorder that manifests itself primarily in facial paralysis. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Many individuals with Moebius syndrome also have skeletal involvement with limb abnormalities or Poland syndrome. People with Moebius syndrome can have respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders, weak upper body strength and autism spectrum disorders.
POSITIVE EXPOSURE at the National Organization for Albinism and Hypopigmentation (NOAH) Conference in Pittsburg, PA
Albinism is an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair and/or eyes. Albinism occurs in all racial and ethnic groups throughout the world.
If you’re going to wear glasses, might as well wear the most stylish pair. Sunglass Hut is a great place to find quality glasses and contact lenses. Visit https://www.groupon.com/coupons/stores/sunglasshut.com for more information.
CHROMOSOME 18 REGISTRY and RESEARCH SOCIETY FAMILY CONFERENCE, San Antonio, TX
Photo: Young adult advocate workshop, 2015 Conference
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We consist of three separate organizations located in the United States, Australia, and Europe, all with a common mission: To help people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy, and productive lives.
In addition about health care services, aeroform tissue expanders are truly a cutting edge technology, and a lot of plastic surgeons are recommending them as the best option for patients. Learn more at drtplasticsurgery.com
DISABILITY PRIDE PARADE: NYC
POSITIVE EXPOSURE at the Pallister-Killian Syndrome Conference in Bloomingdale, IL
Photo of our Jake, PKS KIDS CONFERENCE , 2010
Pallister-Killian Syndrome is a chromosome abnormality when a tetrasomy of the short arm of chromosome 12 (12p) occurs for no known reason. It is also known as mosaic tetrasomy 12p, isochromosome 12p syndrome, or Teschler-Nicola/Killian Syndrome.
POSITIVE EXPOSURE at the Little People of America Conference in Boston, MA
Conference Info
“…envisioning a world where all people are accepted for who they are, not how they look.” www.ccakids.orghttp://www.ccakids.org
Kids Craniofacial Camp: Fort Lauderdale, FL
Presentation at Ice Cream Social on Thursday and All day Photography on Friday…..
Shoot in NYC: Featuring: FRAGILE X Syndrome
Grand Rounds at UCSF Benioff Children’s Hospital Oakland, CA
8:00 am
At Valley Beth Shalom, Encino, CA
At Valley Beth Shalom, Encino, CA
POSITIVE EXPOSURE Exhibition
A Children’s House for Pediatric Dermatology
1976 W Dallas Street
Houston TX, 77019
Photoshoot and presentation
Arcadia University Genetics Program – Glenside, PA
1:00 pm – 2:15 pm
Great Room of the University Commons Building
Arcadia University
450 S. Easton Road
Glenside, PA 19038
Rare Cancer Illuminated: a View from Within
A POSITIVE EXPOSURE Collaboration
American Society of Clinical Oncology: AtlanticLIVE Town Hall
Exhibition Premiere today
POSITIVE EXPOSURE EXHIBITION and PRESENTATION
Pierre Fabre International Convention, Toulouse, France
Pierre Fabre Dermatologie plenary session
10:30 – 12:30
Workshop 2 : Beyond Disabling Images
Photography has played a longstanding role in both the dehumanization of individuals with disabilities as well as in exposing and changing inhumane conditions to which they were routinely consigned. More recently, some photographers – often in alliance with researchers — have created groundbreaking collaborative projects with people whose disabilities have been stigmatized. This roundtable features two innovative photographers – Jean Robert Dantou who has worked extensively on disability projects with French researcher Florence Weber, and American photographer/activist Rick Guidotti whose innovative “Positive Exposure” project is changing the face of genetic conditions. On this panel, they discuss the impact of such collaborative projects on themselves, the people photographed, and the goals of changing public awareness.
Shoot at Nationwide, Columbus, OH
22Q 11.2 Deletion
[youtube]https://youtu.be/GUTMOPTP08I[/youtube]
NYC Taxi’s 30 second Ad!!!
Positive Exposure: Pop-Up Center.
POSITIVE EXPOSURE CENTER: FREE AND OPEN TO THE PUBLIC!!
Free and Open to the Public:
Art Director’s Club
106 West 29th Street
(Between 6th and 7th Avenues)
NEW YORK CITY
The POP UP Center will celebrate POSITIVE EXPOSURE’s local and national partners creating opportunities for our singular voices to grow in unison.
POSITIVE EXPOSURE presents a POP- UP Center at the Art Directors Club in NYC. We will launch the multi-media exhibition on Tuesday, April 5th at our Gala, then continue with a week of events, April 6-11. The free, public events will include curated tours, screening of ON BEAUTY, performance by Heidi Latsky Dance Troupe, Diversability advocate lectures, guest appearances from Mayor’s Office for People with Disabilities and local and national advocacy stars to inspire student and professional audiences.
During the week, we will host programs for visiting classrooms, teachers, advocates, families, professionals, including hearing aid maintenance health care providers in training, and the public.
FREE and Open to the Public
Hours: 10:00 am – 6:00 pm
Positive Exposure invites NYC metropolitan area middle/high school classrooms to an extraordinary exhibition by world-class photographer, Rick Guidotti, that celebrates the richness and beauty of human diversity. Leaving the world of fashion, Rick has spent that past eighteen years working with NGOs, medical schools, universities and others to effect a sea-change in societal attitudes towards individuals living with genetic, physical, behavioral and intellectual difference. When you want your rehab centers get traction and patients fast, give addiction marketing agency a call to help you put your business out there and reach more patients.
The multi-media exhibition provides new opportunities to see individuals living with a variety of difference, first and foremost as joyous human beings.
The exhibition will serve as the focal point for an experiential program specifically designed for middle/high school audiences that is meant to create a deeper understanding and respect for diversity by evoking thought-provoking conversations with regards to human dignity and rights.
10:30 am – 12:30 pm: Open to school groups, students, teachers and the public.
12:30 pm – 1:00 pm: Open to all.
Website: Jason’s Connection
Founded in 2013 by the Harris Family, Jason’s Connection is dedicated to connecting us to resources that serve our needs, enrich our lives and help us meet our goals.Their mission is to create an online community that connects people experiencing disability and their family/caregivers to quality resources, support and each other.
Jason Harris: I am a 26 year old college graduate. I love hiking, traveling with friends, films, theatre, the Cincinnati Reds and Ohio State Buckeyes. I am also on the Asperger’s Spectrum which means I face challenges with anxiety, social skills, organizational skills and certain medical issues. Asperger’s is a hidden disability like ADHD, learning disabilities, and mental health issues. If one of the challenges that you’re facing is the addiction to smoking, Electronic cigarettes are becoming popular as an alternative to smoking tobacco. Search for Smokea top online headshop in the US if you want the best e-cig products at affordable prices.
In addition, to ensure your elderly loved one’s safety around the home, you need to adapt the home so that it becomes senior-friendly. Check out City of Los Angeles Care Directory providing compassion, dignity and respect as we work toward bringing them back to health or as we guide and support them through the most difficult time of.
4:00 pm – 5:00 pm: OPEN TO ALL.
5:00 pm – 5:45 pm: OPEN TO ALL.
Website: ON BEAUTY Q & A with Rick Guidotti
_________________________________________________________________
FREE and Open to the Public
Hours: 10:00 am – 9:00 pm
10:30 am – 12:30 pm: Open to school groups, students, teachers and the public.
Make the Positive Exposure Pop-Up Center a part of your school year and celebrate the richness and beauty of human diversity Positive Exposure invites NYC metropolitan area elementary school classrooms to an extraordinary exhibition by world-class photographer, Rick Guidotti, that celebrates the richness and beauty of human diversity. Additionally, students will be treated to a special reading of the recently published Normal Norman by children’s book author, Tara Lazar.
Leaving the world of fashion, Rick has spent that past eighteen years working with NGOs, medical schools, universities and others to effect a sea-change in societal attitudes towards individuals living with genetic, physical, behavioral and intellectual difference. The exquisite photographs that Rick has taken around the world provide new opportunities to see individuals living with a variety of difference, first and foremost as joyous human beings.
The exhibition will serve as the focal point for an experiential program specifically designed for elementary audiences that is meant to create a deeper understanding and respect for human diversity.
12:30 pm – 1:00 pm: OPEN TO ALL.
Website: Tara Lazar
also,
LITTLE RED GLIDING HOOD (RH, 2015)
I THOUGHT THIS WAS A BEAR BOOK (S&S, 2015) THE MONSTORE (S&S, 2013)
Tara loves children’s books. Her goal is to create books that children love. She writes picture books and middle grade novels. She’s written short stories for Abe’s Peanut and is featured in Break These Rules, a book of life-lesson essays for teens, edited by author Luke Reynolds. Our website is designed by http://www.webdesign499.com/web-design-greenacres/
Tara created PiBoIdMo (Picture Book Idea Month) as the picture book writer’s answer to NaNoWriMo (National Novel Writing Month). PiBoIdMo is held on this blog every November. In 2014, PiBoIdMo featured over 1,300 participants from around the world.
Tara was diagnosed with Multiple Sclerosis in 2010 and has permanently lost feeling in her feet and legs.
1:00 pm – 2:00 pm: OPEN TO ALL.
Q & A with Rick Guidotti
Website: ON BEAUTY
3:30 pm – 5:30 pm: Educators’ Workshop: Educators, students, families and the public
Workshop participants will visit the Positive Exposure photography exhibition led by Rick Guidotti, and engage in thought-provoking exercises, exploring such topics as disability, diversity, inclusion, self-esteem, acceptance and advocacy in today’s diverse classroom environment.
Participants will be introduced to POSITIVE EXPOSURE’s PEARLS Project, featured in New York Times in an article entitled, “Learning Empathy by Looking Beyond Disability” which quotes one NYC-area principal as stating “The PEARLS project teaches important lessons about tolerance as schools face an increase in bullying and serve more special education students than ever.”
Workshop for Educators invitation pdf
? Liz Matejka Grossman, Executive Director
? Rick Guidotti, Founder
? PEARLS / FRAME Program presentation
? MY FACE: Curriculum development, Website: My Face
6:00 pm – 8:00 pm: OPEN TO ALL
ON DISPLAY
A MOVEMENT INSTALLATION
Website: Heidi Latsky Dance
The mission of Heidi Latsky Dance is to redefine beauty and virtuosity through performance and discourse, using performers with unique attributes to bring rigorous, passionate and provocative contemporary dance to diverse audiences.
Statement from Heidi Latsky, Founder and Artistic Director:
I strive to create a private world onstage that the audience is drawn into. I love watching dancers so consumed by their tasks that they do not have the time to “act.” I want to see the human being who is moving; to feel their fleeting emotions that respond to, and inform, the movements they’re executing.
I am fascinated by technical virtuosity, but I am just as compelled by someone taking a risk, showing his or her vulnerability, being in a raw state. I like to play with the balance between control and out-of-control and love sheer frenetic muscular power. I love to “twitch” when I watch my dancers. Only then do I know they’re feeling something and there is a visceral exchange.
“If film becomes the medium of preference for choreographers in the 21st century, it will be because of luminous works like Heidi Latsky’s “Soliloquy.”” Robert Johnson,
Heidi Latsky was the first participant in Dance for Film on Location at Montclair State University, underwritten by the Andrew W. Mellon Foundation, through which her first film, Soliloquy, premiered in April 2015.
A poetic interweaving of ten movement portraits, Soliloquy addresses our propensity to judge people by their physical appearance and embraces difference and the inherent isolation of being human with fierceness, frankness, and celebration.
Presentation during The Heidi Latsky installation:
Diversability Unplugged is a series of talks from local members of the Diversability community who are also featured in the Positive Exposure exhibition. They will share their story and what they are working on.
Diversability is a grassroots social movement to rebrand disability through the power of community founded by Tiffany Yu in 2009.
Diversability fosters community online and off (curated events) designed to connect, showcase, and empower people of all abilities doing amazing things. We want to get more people talking and thinking about disability as a core part of the diversity conversation. Diversability unites the disability community, engage allies in the conversation, and celebrate disability pride.
Join the conversation at @Diversability.
“More than 1 billion of us live with disabilities. We must remove all barriers that affect the inclusion and participation of persons with disabilities in society, including through changing attitudes that fuel stigma and institutionalize discrimination.”
– Ban Ki-moon, Secretary-General of the United Nations
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FREE and Open to the Public
Hours: 10:00 am – 6:00 pm
10:30 am – 12:30 pm:
Workshop participants will visit the Positive Exposure photography exhibition led by Rick Guidotti, and engage in thought-provoking exercises, exploring such topics as disability, diversity, inclusion, self-esteem, acceptance and advocacy in today’s diverse classroom environment.
Participants will be introduced to Positive Exposure’s PEARLS Project which was featured in the New York Times in an article entitled, “Learning Empathy by Looking Beyond Disability” and which quotes one NYC-area principal as stating “The project from ClassDojo teaches important lessons about tolerance and serve more special education students than ever.”
Student Teacher Workshop Invitation pdf
12:30 pm – 1:30 pm:
2:00 pm – 3:00 pm:
Q & A with Rick Guidotti
Website: ON BEAUTY
3:00 pm – 5:00 pm:
Liz Matejka Grossman, Executive Director
Rick Guidotti, Founder
FRAME Program presentation
Joan H. Marks Graduate Human Genetics Program: Sarah Lawrence College
“Genetic counseling is a unique career that combines expertise in genetics with the ability to clearly and compassionately discuss genetic health issues with families. The Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College has been training genetic counselors for 45 years. Individuals with genetic conditions, and their families, are an important part of our learning community. The exhibition will showcase those areas of our curriculum that are dedicated to developing a deeper understanding and perspective of the lived experiences of individuals with genetic conditions and disabilities.”
5:00 pm – 5:45 pm:
Special Presentation
Maria Hodermarska and Company
Rule Breaking: Street theater to engage in a dialogue around developmental disability.
Website: Rule Breaking
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Free and Open to our Family Advocacy Organizations and friends. All are welcome!
Hours: 12:00 pm – 6:00 pm
Family Advocate Day!
All Local and National Advocacy organizations and their members are invited.
Come share your story..
12:30pm – 1:00 pm:
Family Member works toward eradicating hate speech targeting the disability community, promoting positive images of special needs in social media, entertainment and in every day life.
Website: Family Member Inc
1:00 pm – 5:00 pm:
Reflective Expressions: Mask Building Workshop
Make your own mask!
1:30pm – 2:00 pm:
Website: Jason’s Connection
Founded in 2013 by the Harris Family, Jason’s Connection is dedicated to connecting us to resources that serve our needs, enrich our lives and help us meet our goals.Their mission is to create an online community that connects people experiencing disability and their family/caregivers to quality resources, support and each other.
Jason Harris: I am a 26 year old college graduate. I love hiking, traveling with friends, films, theatre, the Cincinnati Reds and Ohio State Buckeyes. I am also on the Asperger’s Spectrum which means I face challenges with anxiety, social skills, organizational skills and certain medical issues. Asperger’s is a hidden disability like ADHD, learning disabilities, and mental health issues.
2:00 pm – 3:00 pm:
Daniel’s Music Foundation uses music as the instrument to open the doors to acceptance, respect, confidence and well-being.
Website: Daniels Music Foundation
3:30 pm – 4:00 pm
Ray’s extensive experience with the community of people with disabilities began with his work at The Muscular Dystrophy Association. It has continued in his role as a Director at Bansen Labs, and he has had a variety of unique experiences including an appearance on ABC’s Shark Tank. The talk will focus on the story of Bradley – one of Xogo’s users who has Cerebral Palsy. Ray will discuss how Bradley interacts with the world around him and how technology can open social access.
4:30 pm – 5:00 pm:
Justice Richard Bernstein became the first blind justice, elected by voters statewide, to the Michigan Supreme Court in November 2014. With a commitment to justice and fairness, Bernstein began his 8-year term in January 2015.
Prior to being elected to Michigan’s highest court, Justice Bernstein was known as a tireless advocate for disabled rights as an attorney heading the public service division for The Sam Bernstein Law Firm in Farmington Hills, Michigan. Blind since birth, Justice Bernstein is a Phi Beta Kappa graduate of the University of Michigan and earned his juris doctorate from Northwestern University School of Law.
Committed to taking action to help clients who needed him, Justice Bernstein’s cases often set national standards protecting the rights and safety of people with and without disabilities.
And More……..
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FREE and Open to the Public
Hours: 10:00 am – 6:00 pm
Final Day to experience POSITIVE EXPOSURE POP-UP Center/ Multi-Media Exhibition
10:30 am – 12:30 pm: Open to school groups, students, teachers and the public.
Make the Positive Exposure Pop-Up Center a part of your school year and celebrate the richness and beauty of human diversity Positive Exposure invites NYC metropolitan area elementary school classrooms to an extraordinary exhibition by world-class photographer, Rick Guidotti, that celebrates the richness and beauty of human diversity. Additionally, students will be treated to a special reading of the recently published Normal Norman by children’s book author, Tara Lazar.
Leaving the world of fashion, Rick has spent that past eighteen years working with NGOs, medical schools, universities and others to effect a sea-change in societal attitudes towards individuals living with genetic, physical, behavioral and intellectual difference. The exquisite photographs that Rick has taken around the world provide new opportunities to see individuals living with a variety of difference, first and foremost as joyous human beings.
The exhibition will serve as the focal point for an experiential program specifically designed for elementary audiences that is meant to create a deeper understanding and respect for human diversity.
12:30 pm – 3:30 pm: OPEN TO ALL
At 20%, or 56 million, people with disabilities represent America’s largest minority — with a discretionary income of more than $220 billion – yet remain virtually invisible on our screens and stages. In this frank and provocative interactive dialogue, actor and disability advocate Christine Bruno and coordinator of equal employment opportunity (eeo) & diversity at SAG-AFTRA Becky Curran will talk about the history of representation of disabled people in the entertainment industry, myths and assumptions surrounding disability, why the lack of visibility matters and how you can help the entertainment industry move beyond antiquated stereotypes to feature authentic portrayals and tell universal stories from bold, unique and fresh perspectives.
Since 2005, Christine has served as Disability Advocate for Inclusion in the Arts, anational not-for-profit that promotes the full inclusion of artists of color and disabled artists in theatre, film, television and related media. She is the current chair of the NY Local SAG-AFTRA committee for Performers with Disabilities, and serves on the SAG-AFTRA National PWD, Broadway League Diversity and Actors’ Equity EEO Committees. Christine has worked throughout the U.S., U.K. and Australia. She holds an MFA in Acting and Directing from the Actors Studio Masters Program and is a lifetime member of the Actors Studio.
Becky Curran is coordinator of eeo & diversity for SAG-AFTRA. Since joining SAG-AFTRA in April 2014, she has assisted with several diversity and inclusion efforts within the entertainment and news media industries. She also serves as president of Little People of America’s New York City chapter.Becky has worked for one of Hollywood’s top talent agencies, Creative Artists Agency. A prolific public speaker, Curran has spoken for groups throughout the United States and Kenya. She resides in New York City.
ReelAbilities Film Festival brings together the community to promote awareness and appreciation of the lives, stories and artistic expressions of people with different abilities. ReelAbilities Film Festival showcases films, conversations and artistic programs to explore, embrace, and celebrate the diversity of our shared human experience.
Website: ReelAbilities
3:30 pm – 5:30 pm
Xian Horn is a joyful woman with cerebral palsy who serves as teacher, speaker, beauty advocate, blogger and Exemplar for the AT&T NYU Connect Ability Challenge toward the creation of Assistive Technology. Xian’s Give Beauty Wings’ Self-Esteem programs originated and continue at NYU’s Initiative for Women with Disabilities, the Jewish Community Center Manhattan, and M.S. 131 in Chinatown. Xian’s programs have also been presented at United Cerebral Palsy, the Standing Tall school (a school for non-verbal children), and her alma mater New York City Lab School, where she was the first alumni commencement speaker in 2014. She has also spoken at the Apple Store in Soho, the UJA Federation’s Task Force on Disability, United Cerebral Palsy, The ReelAbilities Film Festival, the Naples Daily News, and the National Spinal Cord Injury Association, among many others, including a group of san diego personal injury lawyers. Xian has also run vocational workshops for the NYC Mayor’s Office for People with Disabilities for their annual Disability Mentoring Day. She also served as a spokesperson for the Starlight Children’s Foundation’s Give Actually Campaign for the Holiday Season 2015. Xian’s work has been featured by The White House Blog, Fast Company, NPR, NBC News, Fox 5 and NY1 and much more. Lastly, she is a blogger for Positively Positive – an online community of over 2.5 million readers worldwide.
POSITIVE EXPOSURE POP-UP CENTER
Art Directors Club
106 West 29th Street
New York City
SOAR to the Stars 60th Anniversary – Diamond Edition
“Where Our Diamonds Sparkle”
5:30 – 7:30pm
Radisson Paper Valley Hotel
Appleton, WI
Community based exhibition and lecture
Albert Einstein College of Medicine
1300 Morris Park Avenue
Bronx, NY 10461 USA
Rare Disease Day
2:00- 3:30
Lecture and Screening of ON BEAUTY with Film Director, Joanna Rudnick.
We thoroughly review personal history and may recommend Mito Boost for endocrine disruptors as heavy metals, PBAs, xenoestrogens, and phthalates which are in hundreds of consumer products.
There you can also read some tips and guide about the security system in general.
University of New Mexico – Albuquerque
School of Medicine
Department of Pediatrics Grand Rounds
Pediatric Grand Rounds are held in the 6th Floor Tully Conference Room
UNM School of Medicine Department of Pediatrics Site
The Belgian Society of Human Genetics Conference:
Leuven, 4-5 February 2016
Exhibition, Lecture and Community based photography.
BEIT ISSIE SHAPIRO Event at the MUSEUM OF TOLERANCE, Los Angeles
The mission of Beit Issie Shapiro (BIS) is to provide cutting-edge services to improve quality of life for people with disabilities, and to effect social change by breaking down the barriers preventing people with disabilities from full societal integration, assuring them the rights and opportunities for maximum growth and development.
Exhibition MUSEUM OF TOLERANCE, Los Angeles
Click here for more information!
PCOM Medical Student Lecture
Medical Student Lecture: Change How You See: See How You Change
![RoundsPosterDec2015RickGuidotti2(1)[1]](https://positiveexposure.org/wp-content/uploads/2015/12/RoundsPosterDec2015RickGuidotti211.jpg)
The Future History of Cerebral Palsy:
8am-5pm
Change How You See, See How You Change at 1:45 PM Arts Panel at 2:35 PM
MEETING LOCATION: Morgan Stanley Children’s Hospital of NewYork-Presbyterian Wintergarden, Lobby Level
3959 Broadway
New York, New York 10032
POSITIVE EXPOSURE: Seeing Beyond Diagnosis @ noon
In Collaboration with Bruce D. Levy, M.D.
Parker B. Francis Professor of Medicine, Harvard Medical School
Chief, Division of Pulmonary and Critical Care Medicine
Medical Director, The Lung Center, BWH
Director, Lung Research Center, Brigham Research Institute
Pediatric Grand Rounds: 7-8 am
701 Grove Road, Bal Suite 5
Greenville, SC 29605
Epidermolysis Bullosa Family Day
Children’s Hospital Los Angeles
4650 Sunset Blvd
Los Angeles, CA 90027
Presentation & Photography
Presentation and Photography
Northern Illinois University (NIU)—Hoffman Estates
5555 Trillium Blvd.
Hoffman Estates, IL 60192
Phone: (847) 645-3000
The 3rd annual Pittsburgh ReelAbilities Film Festival will take place at Rodef Shalom Congregation, a fully accessible venue in the Oakland area of Pittsburgh. The festival runs from October 22 – 29, 2015.
Rick will be there 22nd October ON BEAUTY & POSITIVE EXPOSURE Exhibition
Screening: ON BEAUTY
NYU School of Dentistry
Presentation and Q & 
A: 4:45 – 7pm
Kaufman Children’s Dental Hospital is a fully accredited pediatric ambulatory surgery facility in Brooklyn, New York. Pediatric Dentist Elan Kaufman DMD has been serving the community for over 15 years.
Kaufman Children’s Dental Hospital
2120 Ocean Ave
Brooklyn, NY 11229
(718) 571-8158
Golisano Foundation
30th Anniversary Celebration and Awards
George Eastman House International Museum of Photography
Rochester, NY
Keynote Speaker at the Decatur-Morgan County Chamber of Commerce’s 13th Annual Diversity Awards Dinner/Banquet
6:00PM -8:00PM at Ingalls Harbor Pavilion.
Friedreich Ataxia Symposium – The Children’s Hospital of Philadelphia
Chem RX Lecture
Leonard’s Palazzo
Great Neck, NY
Chem RX seminars are attended by Nursing Home Administrators, Directors of Nursing, CEOs, CFOs, residential directors, addiction treatment counselors that offer the non 12 step rehab program, assisted living administrators and case managers. Also, you can take a look at Addiction Campuses rehab centers of Addicted Minds for intervention and detox. Chem Rx seminars attract professionals who look to learn and share valuable information about today’s successful strategies and future trends.
A Special Film Lab/Time Warner/Turner/HBO Event: 6 pm
Discussion: Mass Media Constructions of Beauty: The Consequences of Allowing Judgment Based On What We Look Like Rather Than Who We Are
American Society of Human Genetics High School Workshop
Baltimore Convention Center
One West Pratt Street
Baltimore, Maryland 21201
Golisano Foundation presents Positive Exposure at the George Eastman House, International Museum of Photography and Film.
900 East Avenue
Rochester, NY 14607
Link to Article in the Democrat and Chronicle, by Melissa Zepieri-Caruana.
Link to WXXI Arts in Focus Segment
22 q 11.2 Deletion Syndrome Family Conference
Keynote Speaker: Lecture and Photography
Nationwide Children’s Hospital Education Center
Columbus, OH
Medical Student Lecture
Weill Cornell Medical College
1300 York Avenue
New York, NY 10064
The Joan H. Marks Graduate Program in Human Genetics
Lecture and Presentation of FRAME: Faces Redefining the Art of Medical Education
Sarah Lawrence College
1 Mead Way
Bronxville, NY 10708
American Academy of Dermatology
Summer Academy Meeting 2015
Speaker Presentation
New York Hilton Midtown
1335 Avenue of the Americas
New York, NY 10019
Coffin Lowry Syndrome Foundation
Family Conference
Wellington, FL
The Marfan Foundation
31st Annual Family Conference
Chicago, IL
![DC Event v4[2]](https://positiveexposure.org/wp-content/uploads/2015/08/DC-Event-v42.jpg)
Special One Night DC Screening ON BEAUTY
640 Massachusetts Ave NW
Washington, DC 20001
Dup15q Alliance
8th International Family Conference “Stronger Together”
Hilton Orlando Lake Buena Vista
Orlando, FL
The Chromosome 18 Registry & Research Society
2015 Annual Family Conference
Salt Lake Marriott Downtown at City Creek
75 South West Temple
Salt Lake City UT 84101
Screening ON BEAUTY
Village Cinema
22 East 12 Street
New York, NY
Screening ON BEAUTY
Laemmle Music Hall
9036 Wilshire Blvd
Beverly Hills, CA
Special Olympics 2015
Los Angeles, CA
4th International RASopathies Symposium
Presentation & Photo Shoot
Doubletree by Hilton at SeaTac
Seattle, WA
The RASopathies Network brings together caregivers, clinicians, patients, researchers and industry to expedite treatments and cures for the RASopathies.
The Sturge-Weber Foundation
Presentation & Photo Shoot
Chicago, IL
Society for Pediatric Dermatology
Speaker Presentation
Boston, MA
Vascular Anomalies Center at
Boston Children’s Hospital
Photo Shoot
Beit Issie Shapiro & Israel Elwyn
Israel
6th International Conference on Disabilities
“Unity and Diversity in Action” will take place at a time when we are witnessing a positive shift into the language of human rights, strengthened by the UN Convention on the Rights of Persons with Disabilities (CRPD)
Thursday July 2nd
Photo Shoot, Sarona
Monday July 6th
Israel Elwyn Presentation, Gala Event and Exhibition, Jerusalem
Tuesday, July 7th
Plenary Lecture Keynote Speaker, Tel Aviv
SKIN TO LIVE IN CAMPAIGN Exhibition
Basel, Switzerland
Featuring POSITIVE EXPOSURE images of Ambassadors from: Australia, Brazil, Canada, Germany, Italy, Malaysia, Mexico, Spain, Taiwan, Thailand, Turkey, and USA
Community Photoshoot
Families with 4p-, Wolf- Hirschhorn syndrome
Long Beach, CA
Community Photoshoot
Families with Jacobsen Syndrome
San Jose, CA
Leadership Alabama 25th Anniversary
Keynote Speaker
Grand Hotel Marriott Resort
One Grand Boulevard
Point Clear, AL 36564
Presentation at National Symposium for Danone Nutricia Early Life Nutrition.
Buenos Aires, Argentina
Shriner’s Hospitals for Children Exhibition
950 W Faris Rd
Greenville, SC
864.271.3444
POSITIVE EXPOSURE: Seeing Beyond Diagnosis Lecture
The Johns Hopkins University/National Human Genome Research Institute Genetic Counseling Training Program
Seattle: Main Campus
School of Medicine Lecture: POSITIVE EXPOSURE: Seeing Beyond Diagnosis and Screening of ON BEAUTY.
Positive Exposure: The Spirit of Difference – Health Sciences Lecture by Rick Guidotti
Date: Tuesday, May 5, 2015
Time: 9:00 am
Location: Turner Auditorium (Room D-209)
Details: The School of Medicine, this Prosthetic Clinic, MEDEX Northwest, School of Nursing, School of Dentistry, Speech and Hearing Sciences, and the Division of Physical Therapy, and the Department for Bioethics and the Humanities will host a health sciences lecture by Rick Guidotti. This lecture is geared toward members of the medical community and open to all. Rick Guidotti, a world renowned photographer, became interested in using visual arts to change the way society understands genetic differences, disability and beauty. His Positive Exposure photo and video presentation encourages students and professionals in the health sciences to see individuals with genetic differences as whole people, not just their specific diagnoses. He will also introduce one of the dentists that specializes in dental implants Marco Island is where his private practice is but he travels anywhere Rick thinks his services are needed. He feels that since he has a thriving restorative dentistry practice that the least he can do is help these children feel better about themselves. In case you want a dental service who are family-oriented, professional, and compassionate with their patients, dentist in eau claire are the ones to contact. You can schedule an appointment now at regiscourtdental.com. More information on Rick and his work can be found here: Ted Talk and Positive Exposure
Special screening of On Beauty and guided discussion led by Rick Guidotti and the film’s Director, Joanna Rudnick
Date: Tuesday, May 5, 2015
Time: 4:30 pm
Location: HUB Lyceum
Details: A recent documentary, On Beauty, chronicles the work of Rick Guidotti and the experiences of several exceptional women he has photographed. It premiered at the Chicago film festival last October and won audience favorite for short documentary. Since premiering in October 2014 On Beauty has continued to receive awards. More information about the film can be found here: On Beauty
In addition about beauty enhancement services, breast augmentation bellevue wa recognized expert in breast surgery. Visit their website at christinenygaard.com for more details.
Reception
Date: Tuesday, May 5, 2015
Time: 5:30 pm
Location: HUB Lyceum
Details: Help us welcome Rick Guidotti and Joanna Rucnick to campus by joining us for food, beverages, and lively conversation.
Screening ON BEAUTY
The Battery, 717 Battery Street, San Francisco, CA 94111
(From the Website) About The Battery: www.thebatterysf.com
The Battery was a unique sort of social destination. I suppose I should not have been surprised. As I walked among its members, it was clear they were most at ease on their toes. An eager, inquisitive bunch, always curious, always on the hunt for new ideas and problems to solve. So it seemed natural that this energetic establishment was their idea of a place to relax. A place that could only be called traditional if you kept in mind its city’s traditional offerings of progressive thought, diversity and intelligence with just a touch of the bizarre. They made that decked out old building come alive with ideas and excitement. The cocktails and cuisine didn’t hurt the mood either.
Indeed, here is where they came to refill their cups. To tell stories. To swap ideas. To eschew status but enjoy the company of those they respected. Here is where they came to feel at home on an evening out.
Newport Beach Film Festival: Island Cinema 2pm
ON BEAUTY SCREENING: Long Island University: www.liu.edu
On Beauty Documentary and Panel Discussion Apr 22
Location: Gold Coast Cinema, 7:00 PM
The Children’s Workshop School/ Lecture
NYC @ 9am
Community Meeting
Children’s Workshop School strives for students to be open-minded and compassionate; to gain a sense of themselves and others; and to understand and appreciate the diversity of the community. Children are guided and supported to fulfill their creative, physical, emotional, social and intellectual potential. Our goal is for our children to recognize that they have the power and resources to effect change. It is our hope that children will grow to be responsible, critical and caring members of a pluralistic society.
Photo Exhibit: February 25 through End of April
Nassau Pediatric Society Presentation
The Nassau Pediatric Society of New York Chapter 2 of the AAP was established in 1947 to serve the children and pediatricians in Nassau County. The AAP is a national organization composed of over 53,000 pediatricians. There are approximately 340 members in the Nassau Pediatric Society.
Leonard’s of Great Neck
555 Northern Blvd.
Great Neck, NY 11021
Telephone: 516-487-7900
6:30-8:30 pm
ON BEAUTY Tonight @7pm Palm Springs, CA
http://www.americandocumentaryfilmfestival.com
REELABILITIES FILM FESTIVAL NYC
Screening ON BEAUTY
NYU Langone Center: Stay tuned for Details
http://newyork.reelabilities.org
Uniformed Services University
F. Edward Hebert School of Medicine – “America’s Medical School”
Medical Student Lecture
| 4301 Jones Bridge Road, Bethesda, MD 20814 (800) 515-5257 |
Cincinnati REELABILITIES Film Festival: Screening ON BEAUTY as well as other community events.
Positive Exposure Events: Stay Tuned for Details.
[youtube]http://youtu.be/9rGMz64G_hI[/youtube]
For more Info: http://www.bigskyfilmfest.org
For More Info: http://www.bigskyfilmfest.org
GRAND ROUNDS PRESENTATION
Pediatrics Residency Program
Icahn School of Medicine at Mount Sinai
1 Gustave L. Levy Place, NY, NY
8:00 am
Westchester Reform Temple
255 Mamaroneck Road, Scarsdale
Children’s Hospital of Greenville Health System
The newcastlephysioclinic.com/services/acupuncture was added to provide more comprehensive services to patients utilizing both eastern and western medicine methods. Also, treat acute and chronic pain and many chronic medical conditions with medical acupuncture.
Greenville County Medical Society and Alliance
Skin Impressions: Australia
PHOTOSHOOT
Melbourne and Sydney
POSITIVE EXPOSURE BOARD MEETING
Philadelphia College of Osteopathic Medicine (PCOM)
Medical Student Lecture
University of Minnesota, Medical College
Medical Student Lecture
POSITIVE EXPOSURE in Bangkok, Thailand
SKIN IMPRESSIONS GLOBAL CAMPAIGN CONTINUES
http://www.docnyc.net/film/point-shoot/on-beauty/#.VEEcB0vgRG6
ON BEAUTY
DOC NYC New York City Premiere: 12 pm @
DOC NYC‘s principle location is in Greenwich Village’s IFC Center (on Sixth Avenue at West Third Street)
Speaking at HIGH POINT VILLAGE “CAN DO” GALA! Lubbock, Texas
Read more about High Point Village: www.highpointvllage.org
BEYOND the FRAME exhibition launch: 5pm
Sponsored by ProMedica Toledo Children’s Hospital Family Advisory Council. Meet Mary and Jonah participants in ProMedica Toledo Children’s Hospital’s Beyond the Frame photo exhibit, on permanent display inside the ProMedica Toledo Children’s Hospital main entrance hallway beginning Wednesday, November 12. 
#BeyondTheFrame to share positive words of inspiration and encouragement.
According to https://roids.co/best-prohormones-on-the-market/, the primary function of this supplements is to enhance the strength of those hormones that are already present in the body.
Greenville, South Carolina
3 days will include Medical School lecture, Photo shoots and evening community presentation: Hosted by: Greenville County Medical Society
Basel, Switzerland
World Psoriasis Day: Novartis Campus
Global Campaign/ Exhibition
Akron, OH
County of Summit Board of Developmental Disabilities
John S. Knight Center 77 E. Mill Street Akron, OH 44308
The World Premiere of ON BEAUTY at the Chicago International Film Festival.
Show Times:
10/18/2014 1:15 PM , EFBEAU – $14 /$11 Get your ticket here:
If you are in Chicago, COME!!!!!!!!!! YAY!!!!!!!!!!
If you’re not, then get on a bus, train or plane..
Joanna, Sarah, Jayne from Kenya and I will all be there!!!!!!!!
ON BEAUTY
USA, Kenya
Director: Joanna Rudnick
From Emmy-nominated filmmaker Joanna Rudnick (In the Family), On Beauty follows former fashion photographer Rick Guidotti as he focuses his lens on people who are often excluded or misrepresented in popular media. Highlighting vibrant individuals with genetic conditions, Rick’s work challenges conventional visions and helps redefine notions of beauty. Filmmaker and subject will participate in a post-screening panel discussion about the importance and difficulties of changing mainstream definitions of beauty.
77 min
Categories: Life Is Short, ReelWomen
Saturday, October 18th at 1:15pm at the AMC River East 21 theater. http://m.ticketmaster.com/on…/event/21004D30DA8E2692…
San Diego, CA
American Society of Human Genetics High School Workshop
San Diego Convention Center
www.ashg.org
San Diego CA
Keynote Address: The American Academy of Pediatrics
http://aapexperience.org/2014/program.pdf
Amsterdam, Netherlands
FOAM Gallery
Keizersgracht 609, 1017 DS Amsterdam, Netherlands
SKIN TO LIVE IN CAMPAIGN Exhibition.
Featuring POSITIVE EXPOSURE images of Ambassadors from: Brazil, Canada, Germany, Italy, Mexico, Spain,Turkey and USA
SKIN IMPRESSION GLOBAL EXHIBITION: Novartis Campus, Basel, Switzerland October 1-31, 2014
[youtube]http://youtu.be/VhrlypaJXwc[/youtube]
Basel, Switzerland
SKIN TO LIVE IN CAMPAIGN LAUNCH
Novartis Campus
Featuring POSITIVE EXPOSURE images of Ambassadors from: Brazil, Canada, Germany, Italy, Mexico, Spain,Turkey and USA,
The Opening Reception for Positive Exposure takes place on Friday, September 26, from 5 to 9 pm, part of Final Fridays in Over-the-Rhine (OTR). With hors d’oeuvres, beverages and music provided. Free and open to the public.
Cincinnati ReelAbilities Film Festival presents Rick Guidotti’s Positive Exposure, The Spirit of Difference exhibition. The images of the exhibition reveal the social and psychological experiences of people living with genetic, physical and behavioral conditions. People of all ages and ethno-cultural heritages. Mr. Guiodotti’s exhibition celebrates the richness and beauty of human diversity. In addition, the exhibit addresses societal standards of beauty in today’s culture and how this impacts children living with genetic disorders. Rick Guidotti, an award-winning former fashion photographer, has spent the past 15 years working internationally with advocacy/non-governmental organizations, medical schools, universities that use ClassDojo, and other educational institutions to inspire a sea-change in societal attitudes towards people living with genetic differences. His work has been published in such diverse newspapers, magazines and journals as Elle, GQ, People, The American Journal of Medical Genetics, The Lancet, Spirituality and Health, The Washington Post, Atlantic Monthly and Life Magazine.
Cincinnati, OH
Artist Talk
RALEIGH, North Carolina
The National Inclusion Project: www.inclusionproject.org
VIACOM, New York City
PRISMS-Parents and Researched Interested in Smith-Magenis Syndrome
Building Bridges of Hope, 8th International Conference
July 31- August 3
Hilton at the Ballpark
1 S. Broadway
St. Louis, MO
www.prisms.org
July 18 – 20, 2014
Bethesda North Marriott Hotel & Conference Center
5701 Marinelli Rd
North Bethesda, Maryland 20852
www.moebius.org
NOAH’s 15th National Conference July 10 – 13, 2014
NOAH– The National Organization for Albinism and Hypopigmentation
Town and Country Resort
500 Hotel Circle North
San Diego, CA 92108
www.albinism.org
28th International SOFT 2014 Conference (Support Organization for Trisomy 18, 13 and related disorders)
Rick will attend July 10-11th.
Dinner Presentation and Portraits
Sheraton Waterside Hotel
777 Waterside Dr,
Norfolk, Va 23510
www.trisomy.org
Chromosome 18 Registry and Research Society Conference
www.chromosome18.org
Stamford Marriott Hotel and Spa
243 Tresser Boulevard
Stamford, Connecticut
Lecture, Portraits, Workshop, Young Adult Panel
2014 World Tuberous Sclerosis Complex
Lecture and Portraits
More than 600 attendees from across the globe including families and individuals with interests in learning more about Functional Remedies cbd tincture;
caregivers; healthcare professionals; researchers; a wide array of exhibitors; and others interested in TSC.
www.tsalliance.org
Because of the proliferation of information sharing on a global basis, and the TS Alliance’s role as
the leading resource for people with TSC, the 2014 event will support an expanded, worldwide TSC
community, hence the new name: World TSC Conference.
They are permitted to accompany the humans they support in places dogs aren’t usually allowed. Therapy dog doesn’t have this same right.
The TS Alliance’s last National TSC Conference was held in 2006 and so much has changed in clinical care
and approved treatments since then, including two approved indications to shrink tumors associated
with TSC in the brain and kidneys. And in 2012, updating the TSC consensus guidelines for diagnosis,
testing and treatment created new gold standards in care.
Location:
Omni Shoreham Hotel
2500 Calvert Street NW
Washington, DC 20008
2014 Nevus Outreach International Conference
Marriott Solana Hotel in Westlake, Texas.
www.nevus.org
Skin To Live In Global Campaign!
Madrid, Spain
AAIDD American Association on Intellectual and Developmental Disabilities 2014 Media Award for Positive Exposure: The Spirit of Difference.
This award recognizes significant contributions in depicting Americans with disabilities in a positive light.
www.aaidd.org
Rick, although thrilled and honored with this award, will not be able to attend the award ceremony as he will be in Europe collaborating on a global campaign focusing on Psoriasis and Urticaria.
FIRST: Foundation for Ichthyosis and Related Skin Types, Inc.®
Keynote and workshop
2014 National Family Conference –
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Hilton Indianapolis
120 W. Market St.
Indianapolis, IN 46204
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www.firstskinfoundation.org
Country Springs Hotel
2810 Golf Road
Pewaukee, WI 53072
PHACE Syndrome, a congenital condition characterized by the association between large infantile hemangiomas, usually of the head and neck, and birth defects of the brain, heart, eyes, skin and/or arteries.
PHACE is an acronym that stands for the medical names of the parts of the body it often impacts:
Further information about the PHACE Syndrome Community is available at
www.phacesyndromecommunity.org.
the 2014 Princeton Meeting of the NTG on ID and Dementia Practices
In conjunction with American Academy of Developmental Medicine and Dentistry
The Special Olympics 2014 USA Games
Skin to Live In Global Campaign.
Mexico City, Mexico
United Nation Conference: Changing Attitudes and Fighting Stereotypes for an Inclusive Society.
10:00-11:30am, conference room 5 at the UN.
Activities to implement the CRPD and create more inclusive societies are often met with segregated social environments, stereotypes and negative attitudes towards people with disabilities. These create barriers for the implementation of many of the CRPD articles. This event will present inter-sectorial public awareness and training programs from around the world, from both governments and civil society organizations, aimed at assisting in the implementation of CRPD articles, as well as the full participation of people with disabilities in the process.
Panelists include:
Rick Guidotti, Positive Exposure
Gabor Gambos, International Disability Alliance
Verena Bentele , Federal Government Commissioner for Matters relating to Disabled Persons, Germany
Ahiya Kamara, Commissioner for Equal Rights of Persons with Disabilities, Israel
Eric Mathews, Associate Director, Disability Rights International
Jean Judes, Executive Director, Beit Issie Shapiro, Israel
Familial Dysautonomia Day
NYU Langone Center
550 1st Avenue
NYC
10-3pm
Familial Dysautonomia (FD) is a rare genetic neurological disorder that effects the sensory and autonomic nervous systems, causing life-threatening medical complications from birth.
Sponsored by the Dysautonomia Foundation, Inc
http://www.familialdysautonomia.org
Xerox Corporate Conference: Tucson AZ
Positive Exposure — Redefining Beauty
Keynote: 11 am-12 pm
Westin La Paloma Resort & Spa, 3800 E. Sunrise Dr., Tucson, AZ, 85718
Gold Symposium
May 16 – 17, 2014 • Muenzinger Auditorium
University of Colorado, Boulder, CO
8:30 am – 5:30 pm
Eastern Regional AACO (American Association of Certified Orthoptists) This orthoptic meeting is planned by the orthoptists from three different pediatric ophthalmology departments: Boston Children’s Hospital, Boston Medical Center and Tufts Medical Center.
12:00 – 1:00
New England Eye Center at Tufts Medical Center
800 Washington St., Box 450
Boston, MA 02111
Contact:
Shelley Klein, CO, COMT
Pediatric Ophthalmology/Ocular Motility
New England Eye Center at Tufts Medical Center
Phone 617-636-6769
POSITIVE EXPOSURE Exhibition NYU Langone Center
Photo Exhibition at NYU Langone Center in collaboration with the Dysautonomia Foundation. May 14- June 17
POSITIVE EXPOSURE SPRING GALA
YAI Seeing beyond disability
Keynote Presentation at the YAI International Conference in NYC – we’re expecting over 40 states and 12 countries
460 West 34th Street, 11th Floor, New York, NY 10001
yai.org
RAMAPO FOR CHILDREN
49 West 38th Street | 5th Floor | New York, NY 10018
Direct: 646.588.2314 | Fax:
212.754.4994 | clowe@ramapoforchildren.org
Lecture: 6:30-7:30pm
Geisinger’s Autism & Developmental Medicine Institute
Autism & Developmental Medicine Institute
Geisinger-Bucknell Autism & Developmental Medicine Center | Lewisburg, PA
(570) 522-6281
meepler@geisinger.edu
Wednesday, 4/23/2014
10:00 am, photo shoot at ADMI, Lewisburg, PA
4:30 pm – 6:00 pm, Community vent, Packwood House Museum, Lewisburg PA
7:00 pm – 8:30 pm, presentation followed by Q&A at the Campus Theatre, Lewisburg PA
Purpose of event:
As part of ADMI’s commitment to community outreach & family support, we want to give back by spreading Positive Exposure’s message to our community and to ADMI stakeholders. This event will celebrate the one year anniversary of ADMI, autism awareness month and Lewisburg’s annual Celebration of the Arts.
Target audience:
Patients, families, donors, education professionals, community members, Geisinger Health System staff & faculty, ADMI staff & faculty, ADMI Advisory Council, students & faculty from local school districts, colleges and universities.
Stevens Health Professionals Club
Stevens Institute of Technology
Castle Point on Hudson
Hoboken, NJ 07030
(201) 216-8957
Lecture: 4:10 – 6 pm. Room Kidde 226
Oppenheimer Haas Foundation presents:
POSITIVE EXPOSURE: THE PEARLS PROJECT
A WESTCHESTER EVENING WITH RICK GUIDOTTI
TUESDAY, APRIL 8, 2014
PURPOSE OF THE EVENT
Through the introduction of the Pearls Project to the students in the Westchester Jewish Center, Westchester Reform Temple, and Westchester Day School communities, the students have become more interested in and sensitive to their peers living with genetic, physical and behavioral differences as they learned about the Pearls Ambassadors and then blogged with them from November to December 2013.
Additionally, our students have conveyed this information and enthusiasm to their families and the greater Westchester community. In an effort to culminate the Project, a proposal is being made to give the students, their families, and the greater Westchester community an opportunity to hear about the genesis of Positive Exposures and the Pearls Project from its creator, Rick Guidotti at a community event for the participating groups.
LOCATION OF EVENT
Westchester Jewish Center
Rockland and Palmer Avenues
Mamaroneck, New York
ACTIVITIES AT EVENT
6-7 pm: Rick will meet and have dinner with the Westchester PEARLS bloggers…hearing about their experiences and responding to their questions
7-8:30 pm: Rick will present his “story” to the Westchester PEARLS participants and their respective communities of students, parents, clergy, etc. with Q and A to follow
Rick Guidotti will present the Henry Howe Chan Memorial Bioethics Keynote Lecture at MCW Muses Thursday April 3, 2014 at 5:30pm.
MCW Muses is an annual event of the Medical College of Wisconsin’s Medical Humanities Program and is co-sponsored by the MCW Center for Bioethics and Medical Humanities, the Department of Psychiatry and Behavioral Medicine and the Society of Teaching Scholars.
Faculty, residents and students display their artwork or other handiwork, their poetry and prose, and perform musical selections.
Mr. Guidotti’s photographs will be displayed in the MCW Cafeteria Lobby Monday March 31-Thursday April 3rd.
The Henry Howe Chan Memorial Lecture was endowed by Carlyle Chan, MD in honor of his father, who had a deep interest in bioethics.
Center for Bioethics & Medical Humanities
Institute for Health & Society
Medical College of Wisconsin
8701 Watertown Plank Road
Milwaukee, WI 53226
5:30 PM Chan Bioethics Lecture, MCW HRC Auditorium
University of Wisconsin Madison
Wisconsin Institute for Discovery
330 North Orchard St.
Madison, WI 53715
5pm – keynote address
6pm – reception
Host organizations:
Morgridge Institute for Research
University of Wisconsin Genetics Counseling Department
University of Wisconsin Art Department
Wisconsin Medical Alumni Association
The purpose of Rick’s visit will be multi-fold. Primarily Positive Exposure epitomizes the
constructive things that can happen when art and science/medicine intersect. One of
the main goals of the Wisconsin Institute for Discovery is to foster collaboration between
the arts and sciences. Participants coming from more of a science/medical background
are excited about the humanizing, empowering aspects of Rick’s work and would like to
know more about how art and medicine might constructively interact in other ways.
Those attending from more of an art background are interested in learning about his
creative process and the nuances of working in medically-relevant portraiture. Rick’s
visit, including both a keynote address and a workshop, will help to bring physicians,
students, and the community, all from varied backgrounds, together to achieve a
dialogue that will result in long-lasting collaborations.
http://discovery.wisc.edu
Photo Shoot for NYU Langone Exhibition of our friends with Familial Dysautonomia
http://www.familialdysautonomia.org
Hermansky-Pudlak Syndrome Family Conference
Uniondale, Long Island
www.hpsnetwork.org
NYU seminar series funded by the Andrew Mellon Foundation, entitled
“A Post-Genomic Embrace of the Human? The Social Science and Humanities of Non-Reductionist Life Sciences.”
Positive Exposure: 6-8 pm
http://postgenomic.wordpress.com/
The seminar series will bring together scholars in the social
sciences, humanities, and life sciences to explore themes including:
the conceptual move away from linear causation toward
neuroplasticity, networks and epigenetics in the life sciences; the
ways that non-reductionist science can be aesthetically represented
and made accessible to wider publics; and the philosophical and
political imperatives of post-genomic science. In your case, we
would like for you to discuss your photography as a way to give
audiences a sensory experience that helps them to see beyond simple
genetic definitions of normal and abnormal, able and disabled,
beautiful and scarred, to heighten their awareness of the social
malleability of such categories.
Cincinnati ReeAbilities Film Festival
http://cincinnati.reelabilities.org/events
Events to be announced
Houston ReelAbilities Film Festival: http://houston.reelabilities.org/events
Rick Guidotti challenges our vision of beauty with his stunning photographs of individuals who have genetic differences in his “Positive
Exposure” exhibition. For ReelAbilities, Rick will exhibit his current selection of photos as well as pictures he takes of local Houstonians during a photo shoot in January.
On view: Saturday, January 18 – February 15
(Local Houstonians’ photos on view February 11-15)
Opening Reception with Artist: Saturday, January 18, 5:00 – 9:00 p.m.
JFS Reception begins at 7:00 p.m.
Evelyn Rubenstein Jewish Community Center
“Positive Exposure” Multi-Media Presentation with Rick Guidotti:
Wednesday, February 12, 8:00 p.m.
Dessert Reception to follow
“Change how you see. See how you change.”
Made possible in part through the City’s InitiatIve Grant Program of the Houston Arts Alliance
Albert Einstein College of Medicine
3:00 to 4:30 pm
Medical Student/ Faculty/ Fellows Lecture
Albert Einstein College of Medicine
1300 Morris Park Avenue
Bronx, NY 10461 USA
Eastern Kentucky University
Chautauqua Lecture: BEAUTY MATTERS
http://www.chautauqua.eku.edu
TITLE OF PRESENTATION: “Positive Exposure: The Beauty and Spirit of Difference”
DATE: Thursday, February 6, 2014
STARTING TIME:
[a] Informal Discussion: 3:00-4:00 PM.
[b] Informal Dinner: 6:00-7:00 PM.
[c] Lecture & Q&A: 7:30-9:00 PM. [1-Hour Lecture & 30-Minute Q&A]
8 – 9 am Grand Rounds at Children’s Hospital
219 Bryant St, Buffalo, NY 14222
(716) 878-7000
Women & Children’s Hospital of Buffalo, a Kaleida Health facility and teaching hospital for the University at Buffalo School of Medicine and Biomedical Sciences , …
Buffalo Pediatric Society
Presentation @ 31 Club downtown Buffalo, NY
6PM
www.the31club.com
PHOTO SHOOT in Houston
Photo shoot with local families at The Houstonian, Houston, TX
Images will be added to Exhibition at Longnecker Gallery, Supplemental Exhibition Grand Opening: Wednesday, February 12 @ 7:30pm
POSITIVE EXPOSURE EXHIBITION
January 18 – February 22
Houston, TX
Exhibition opening at Nicole Longnecker Gallery
The Calhoun School
433 West End Ave, New York, NY 10024
New York City
Lecture/ Workshop PEARLS Project
Philadelphia College of Osteopathic Medicine
Medical Student Lecture
2:00 pm
4170 City Avenue
Philadelphia, PA 19131
University of Minnesota Medical Student Lecture
8:00 – 10:00 am
Minneapolis, MN
Medical Grand Rounds
8:00 -9:00 am
Nationwide Children’s Hospital
700 Children’s Drive
Columbus, OH 43205
Ohio Association of County Boards
Serving PEopke with Developmental Disabilities
73 East Wilson Bridge Road, Suite B1, Worthington, Ohio 43085
641-431-0616
www.oacbdd.org
Lecture
Presentation Date: December 4, 2013
Time of Presentation: 9:15 to 10:15 am
Kaiser Permanente Inclusion and Diversity Conference
Lecture and workshop
San Francisco, CA
University of Maryland Medical Student Lecture
11:00
MSTF auditorium
685 W. Baltimore Street.
Baltimore, MD
Canadian Association of Genetic Counselors
Oakville, Ontario
More Info
Student Lecture
Baylor Medical School
Houston, TX
More Info
Student Workshop
Festival della Scienza: Beauty
Sponsored by the Ligurian Genetics Department
Genova, Italy
More Info
High School Workshop
American Society of Human Genetics
Boston, MA
More Info
9:30 AM to 11:00 AM
Room 230 of McCampbell Hall (Nisonger Center)
1581 Dodd Drive
Columbus, OH 43210
12:00PM to 1:00PM:
Prior Health Sciences Library
376 W 10th Ave
Columbus, OH 43210
2:15 PM to 2:45 PM
Worthington Hills Elementary School
1221 Candlewood Drive
Columbus, OH 43235
Mass General Hospital Lecture
11;30 to 12:30
O’Keeffe Auditorium
White Building
55 Fruit Street,
Boston, MA
Lecture
Center of Science and Industry (COSI)
Columbus, OH
More Info
Williams Syndrome Changing Lives Foundation
Photo Shoot for Williams Syndrome Awareness Campaign
RainForest Adventures in Seiverville, TN (near Knoxville)
More Info
Lecture and Exhibition (through October 18th)
Toledo Children’s Hospital
Toledo, Ohio
More Info
Communication Workshop
Parent Project Muscular Dystrophy Italy
Tuscany, Italy
More Info
2013 International Nevus Conference Positive Exposure Exhibition
Marseille, France
More Info
Recipient of the RARE Champion of Hope Award – Advocacy
The 2nd Annual Tribute to Champions of Hope Gala
The Global Genes Project
Newport Beach, CA
More Info
Exhibition Opening (through January 2014)
Center of Science and Industry (COSI)
Columbus, OH
More Info
Villanova University
Health and Human Values Lecture Series
College of Nursing @ 5pm
800 E. Lancaster Avenue
Villanova, PA 19085
Photo shoot
Autism & Developmental Medicine Institute
Geisinger Health System
Camp Victory, Millville, PA
More Info
Fragile X Community Lecture and Photo Shoot
Autism & Developmental Medicine Institute
Geisinger Health System
Lewisburg, Pennsylvania
More Info
Staff and Faculty Lecture
Geisinger Health System
Danville, PA
More Info
Lecture
Bucknell Unversity
Lewisburg, PA
More Info
Faculty Lecture
Overbrook School for the Blind
More Info
Through September 2014
Genome Zone: Genome: Unlocking Life’s Code
Smithsonian’s National Museum of Natural History
Washington, D.C.
2nd Floor
What’s your Genetic Trait Tree Number?
More Info
A blog post about Genome: Unlocking Life’s Code
An article in the Lancet about the exhibit
Chromosome 18 Annual Family Conference
Savannah, GA
More Info
Sturge-Weber Foundation International Conference
Denver, CO
More Info
22q11 Ireland’s 20th International Scientific Meeting
Dublin, Ireland
More Info
Ramapo for Children Summer Camp
More Info
Little People of America’s 2013 National Conference
Washington, DC
More Info
Parent Project Muscular Dystrophy Transition Workshop
Baltimore, MD
More Info
Exhibit Opening
Genome Zone: Mosaic of Humanity
National Museum of Natural History
Washington, D.C.
More Info
Positive Exposure Feature
Rock Center with Brian Williams
10:00pm/9c
NBC
More Info
NOAH New York Metro Regional Conference
La Quinta Hotel
Secaucus, NJ
GoldLab 4th Annual Symposium
University of Colorado Boulder
Denver, CO
More Info
Hunter in Focus Opening
Moscow, Russia
More Info
Keynote Speaker
ADVANCE: The Ruderman Jewish Disabilities Funding Conference
Scholastic Event Space
557 Broadway
New York, NY 10012
More Info
HudsonAlpha: DNA Day
Community exhibition and presentation
TedMed Talk
Philadelphia College of Osteopathic Medicine
Philadelphia, PA
More Info
Ramapo for Children Lecture
49 West 38th Street, 5th Floor
New York, NY
Dermatology Nurses Association Lecture
Sheraton
New Orleans, LA
More info
Hunter in Focus: Moscow Russia
Photography: Shire
Positive Exposure Exhibition Opening
JCC Manhattan
334 Amsterdam Ave at 76th Street, NYC
ReelAbilities Film Festival
Biennial Henrietta Lacks Symposium
Baltimore, MD
2013 Pennsylvania Department of Education Conference Keynote
Hershey PA
Parent Project Muscular Dystrophy Conference
Rome, Italy
Sarah Lawrence Genetic Counseling Student Lecture
Bronxville, NY
PEARLS in Focus: Celebrating Diversity
Sunday, February 10, 2013: 1:30 – 4:00 p.m.
UJA-Federation of New York
Seventh-Floor Conference Center
130 East 59th Street (between Park and Lexington avenues)
New York City
University of Iowa, lecture: public, the students in the Art
Department, UI Health Care faculty.
John Hopkins lecture, Genetic Counseling Students
Bethesda, MD
Grand Nevi Winter Camp: Pinegrove Ranch NY
www.nevus.org
University of Minnesota, Minneapolis
Medical Student morning lecture
Lunch with Genetic Counseling Students
Bonnie LeRoy MS, CGC
Editor, Journal of Genetic Counseling, Professor and Director of
the Graduate Program of Study in Genetic Counseling
Department of Genetics Cell Biology and Development
Public Health Department – Community and Public Health
Research & Clinical Rounds
Seminar Lecture
Public Health Department’s Conference Center
Public Health Building
402 East 67th St., NYC (67th and 1st)
12:30 PM
Philadelphia College of Osteopathic Medicene
Lecture, Medical Students
Ruth D. Thornton, Ph.D.
Director Biochemistry / Molecular Biology
UJA – Federation of New York
Exhibition, PEARLS Project, NYC
Funded by Oppenheimer Haas Foundation
Association for the Education and Rehabilitation of the Blind
and Visually Impaired
Conference Keynote
Newport, RI
American Society of Human Genetics High School Workshop
San Francisco, CA
Weill Cornell Medical College Lecture
1st Year Medical Students
Genetics Director: Jessica Davis, MD
Ohel Photo Shoot, Sibling Project, NYC
Sarah Lawrence College, Lecture
Genetic Counseling Program
Director – Caroline Lieber
Ohel Photo Shoot, Sibling Project, NYC
Hunter in Focus Exhibition
USA, Poland, Germany
Sponsor, Shire
Premiere: GRAND CENTRAL STATION, NYC
Photo Expo New York
Photo District News in collaboration with Photo Philanthropy
Photography for social impact
Before Our Eyes: A Panel
Javits Center, NYC
8:30 – 11:30 AM
Positive Exposure Fall Fundraiser 2012
Metropolitan Pavilion,
125 West 18th Street, 4th Floor
New York, NY
6 – 10 PM
Tickets Available Online
Several Booths will be present, including an information booth sharing about CBD Oil for Dogs. If ever you have important travels and no one can watch your dog, choose Best Pet Reviews in keeping your dog where you want it.
Building Community Lecture
Temple Israel Center
280 Old Mamaroneck Road,
White Plains, NY
New England School of Optometry, Profiles in Vision
Conference Award Recipient
Copley Plaza, Boston
