Image Descriptions: 1) A girl with brown hair and eyes is looking into the camera and smiling. She is wearing a blue shirt. 2) Logo for 22q Awareness Month in gray, white and red. 3) Positive Exposure Connects image with black background and white wording which reads Celebrating 22q Awareness Month, A conversation with Aine Lawlor, Dublin, Ireland, 11:00 AM EST.
November 17
Virtual presentation to Neurogene
Neurogene is accelerating development of new genetic medicines to people with neurological diseases and their families.
November 14
We can’t wait for our next POSITIVE EXPOSURE Connects which will take place this Saturday, November 14 at 10:00 AM EST on #FacebookLIVE! Don’t miss this incredibly cool project and display of art!!!!! 10:00 am EST
IMAGE DESCRIPTION: Black background. POSITIVE EXPOSURE logo in upper left corner. Wording reads POSITIVE EXPOSURE Connects, November 14, Facebook LIVE. The Bigger Plans Project, 10:00 AM EST, Starring Zazel. Image of black women at the bottom smiling and looking up.
November 4
Philadelphia College of Osteopathic Medicine: 3 Day Student Elective
DAY 3
October 7, 2020
October 21, 2020
November 4, 2020
Department of Medical Humanities
POSITIVE EXPOSURE Elective:
Positive Exposure (PE) and its film program, FRAME (Faces Redefining the Art of Medical Education) weaves critical medical information, with personal and lived experiences, for healthcare professionals in training, clinicians, families and communities. Each film, 8-12 minutes in length, provides a greater understanding of the most commonly seen diagnoses by demonstrating hallmark characteristics of a particular condition, while modeling an attitude of respect for the humanity of the patients.
This elective will provide students with the opportunity to participate in the creation of a Positive Exposure FRAME (Faces Redefining the Art of Medical Education) film. In Phase 1, Students will explore partnerships with specialists and advocacy organizations, the research process, prompt development and interview techniques. In Phase 2, students will participate in a virtual forum that will enable students to ask questions of specialists and an advocacy group, as well as interview individuals and families living with a particular genetic condition. In Phase 3, students will examine transcripts and a rough film edit of virtual interviews, and discuss the pertinent details to be included in the final film.
November 2
Joan H. Marks Graduate Program in Human Genetics: Positive Exposure Lecture
10:30am
October 31
POSITIVE EXPOSURE Connects:
This will be an amazing and lively conversation with our friends from
A Children’s House for the Soul, Inc.
on #FacebookLIVE this Saturday, October 31 at 11:OO AM EST. A Children’s House for the Soul works with kids and their families that have skin diseases or birthmarks and by providing social, emotional and spiritual support.
Can’t wait to “see” everyone on Saturday!!!!!
IMAGE DESCRIPTION: Square photo with black background. POSITIVE EXPOSURE in the upper left corner. Wording reads POSITIVE EXPOSURE Connects, October 31. A Children’s House for the Soul, 11:OO AM EST. Three square images are at the bottom — from left to right: A young African American boy wearing an orange shirt, logo for A Children’s House for the Soul, a young girl is smiling and looking into the camera. She is wearing a blue tank top.
GRAND ROUNDS Thursday, Oct 29th, 2020 12:00-1:00 p.m.
Rick Guidotti
Presents
Seeing Beyond Diagnosis
Rick Guidotti, an award winning photographer, has spent the past twenty years collaborating internationally with non profit organizations, hospitals, medical schools, educational institutions, advocacy groups and communities to promote a more inclusive and compassionate world where ALL differences are understood and celebrated. Guidotti’s work has been published in newspapers, magazines, and journals as diverse as Elle, GQ, People, the American Journal of Medical Genetics, The Lancet, Spirituality and Health, the Washington Post, New York Times, Atlantic Monthly and LIFE Magazine. Rick is the founder and director of POSTIVE EXPOSURE, an innovative arts, advocacy, and education organization which utilizes the visual arts to celebrate human diversity, inclusive of ethnicity, religion, age, ability, learning style, gender identity, gender expression and sexual orientation. POSTIVE EXPOSURE has significantly
impacted the field of human rights, mental health, medicine, and education by providing new opportunities to see each individual as a human being and valued member of our society.
Objectives
Describe the social and psychological experiences of people of all ages and ethno cultural heritages living with genetic, physical, behavioral and cognitive conditions.
Discuss ways to best meet the needs of children and families with, or at risk for a genetic disorder.
Explore opportunities to see each individual living with a genetic difference first and foremost as a human being with his/her own special needs, rather than as a specific diagnosis/disease entity.
October 28
Lecture to Osteopathic Medicine (DO) program.
About Touro California: Touro California is a graduate institution under the Touro Colleges and Universities System. Our campus is located in Vallejo, California on Mare Island, which is historically the site of the first Navy installation on the West Coast. Our school offers professional programs in the fields of Health Sciences, Public Health, and Education. The many graduate programs include Osteopathic Medicine, Pharmacy, Physician’s Assistant, and Nursing.
October 26
Virtual Lecture at the Museum Of Tolerance Professional Development for California Educators
Masterclass: Empowering Students Living with Disabilities in the Classroom
Self Acceptance = Self Esteem = Self Advocacy
6pm ET / 3pm PT –
October 21
DAY 2
October 7, 2020
October 21, 2020
November 4, 2020
Department of Medical Humanities
POSITIVE EXPOSURE Elective:
Positive Exposure (PE) and its film program, FRAME (Faces Redefining the Art of Medical Education) weaves critical medical information, with personal and lived experiences, for healthcare professionals in training, clinicians, families and communities. Each film, 8-12 minutes in length, provides a greater understanding of the most commonly seen diagnoses by demonstrating hallmark characteristics of a particular condition, while modeling an attitude of respect for the humanity of the patients.
This elective will provide students with the opportunity to participate in the creation of a Positive Exposure FRAME (Faces Redefining the Art of Medical Education) film. In Phase 1, Students will explore partnerships with specialists and advocacy organizations, the research process, prompt development and interview techniques. In Phase 2, students will participate in a virtual forum that will enable students to ask questions of specialists and an advocacy group, as well as interview individuals and families living with a particular genetic condition. In Phase 3, students will examine transcripts and a rough film edit of virtual interviews, and discuss the pertinent details to be included in the final film.
October 22
POSITIVE EXPOSURE Connects
You won’t want to miss our conversation tomorrow (Thursday, October 22) at 2:00 PM EST on #FacebookLIVE with our great friend Marco Santini! We’ll also have an exciting reveal of the amazing gift he has created for our community that is beyond beautiful!!! Can’t wait to “see” everyone tomorrow!
IMAGE DESCRIPTION: Square image with a black background. White and yellow lettering. POSITIVE EXPOSURE logo in upper left corner. Wording reads: POSITIVE EXPOSURE Connects, October 22, Love Displayed Through Art, Marco Santini, 2:00 PM EST. Image on lower right of a man who has dark hair and is looking into the camera. He is sitting on scaffolding next to a painted wall.
Award-winning NYC-based artist, fashion designer, photographer and inventor who draws inspiration from inclusion, positivity and language.
Have you ever wanted to explore hand stitching and felt nervous picking up that needle? Did you ever wonder if you could explore stitching in a non-traditional way? This is an introductory workshop on hand sewing in which we will just learn one or two stitches and explore the endless possibilities they can offer. Working with needles and threads can seem hard or out of reach but together we can make it easy and within reach.
Join me for this workshop to explore non-traditional ways of exploring stitching to create something interesting or simply engage with your hands and connect with our beautiful and rich community.
Image Description: Portrait of young woman with pale skin and light blond/white hair with nose ring and red lipstick, smiling into the camera. She is wrapped in light beige and almost white textiles around her neck and shoulders.
October 15
IMAGE DESCRIPTION: Black Background with white font. POSITIVE EXPOSURE logo is in the upper left corner. POSITIVE EXPOSURE Connects, October 15. Facebook Live with Rick Guidotti. A Conversation with Wheelchair Traveling. 2:00 PM EST. Three square images below. Each image shows a girl in a wheelchair smiling in different outdoor or city locations.
October 13
Corporate Presentation:
Enterprise Diversity & Inclusion
October 7
Philadelphia College of Osteopathic Medicine: 3 Day Student Elective
October 7, 2020
October 21, 2020
November 4, 2020
Department of Medical Humanities
POSITIVE EXPOSURE Elective:
Positive Exposure (PE) and its film program, FRAME (Faces Redefining the Art of Medical Education) weaves critical medical information, with personal and lived experiences, for healthcare professionals in training, clinicians, families and communities. Each film, 8-12 minutes in length, provides a greater understanding of the most commonly seen diagnoses by demonstrating hallmark characteristics of a particular condition, while modeling an attitude of respect for the humanity of the patients.
This elective will provide students with the opportunity to participate in the creation of a Positive Exposure FRAME (Faces Redefining the Art of Medical Education) film. In Phase 1, Students will explore partnerships with specialists and advocacy organizations, the research process, prompt development and interview techniques. In Phase 2, students will participate in a virtual forum that will enable students to ask questions of specialists and an advocacy group, as well as interview individuals and families living with a particular genetic condition. In Phase 3, students will examine transcripts and a rough film edit of virtual interviews, and discuss the pertinent details to be included in the final film.
September 29
Cornell University: Cameradery Photography Club Lecture: Cameradery
POSITIVE EXPOSURE 2020 GALA September 24 @ 7PM EST
SAVE THE DATE! September 24TH, 2O2O, at 7:OO PM EST
POSITIVE EXPOSURE’s Virtual Gala will take place on September 24, 2O2O, at 7PM EST. We are so excited! Make your plans now to join us and a lot of our great friends from around the globe!
We’ll be honoring Judith Heumann with the POSITIVE EXPOSURE “Spirit of Change” Award, and there will be some other incredible surprises! It will be an AMAZING evening!!!!!
Be sure we have your email so you can receive invites and reminders! To send us your information, click on the LINK: positiveexposure.org/connect-with-us/
Special thanks to our sponsors — Netflix, Travelers Insurance, Third Eye Motion Picture Company, Vacant Light and Betsy Myers – Myers Leadership
IMAGE: Black background with white and gold lettering. Five pictures of our friends looking in the camera and smiling with the words Change How You See written on each picture. Wording: Save the Date. Virtual Gala. 7PM EST September 24th, 2O2O. Gala Chair – Beth Edwards Harris, Honoree – Judith Heumann, international disability rights activist, author of BEING HEUMANN, featured in Netflix film CRIP CAMP. We need your email – To receive an invite and participate in our event, we need your email. Click to connect with us. For registration, sponsorship, or other information, please contact Lisa Johnson, Director of Development at Positive Exposure, 914.420.6283, lisa@positiveexposure.org. Sponsored by Netflix, Travelers Insurance, Third Eye Motion Picture Company, Vacant Light, Myers Leadership. Positive Exposure 2O2O Gala.
September 19
The Doctor’s Role in Improving Healthcare for Adults with Intellectual and Developmental Disabilities:
A Virtual Conference for Saskatchewan Physicians
Saturday, Sept. 19th, 2020, 10:00 AM – 12:15 PM
Virtual Presentation: Panel
Saskatchewan Family Medicine Conference
The panelists will be introduced in the following order:
We are BEYOND excited to have a conversation with internationally-renowned artist, David Marchi, tomorrow on #FacebookLIVE at 2:00 PM EST!!!!!
David’s passion for painting was the direct result of a broken back from a boating accident in 2015.
Prior to this, David never painted.
In 2019, he was diagnosed by Dr. Darold Treffert with Acquired Savant Syndrome. This is where dormant savant skills emerge after a spinal or brain injury or disease in previously non-disabled persons.
Today, David’s life is his painting.
He is currently studying under Larry Poons and Peter Bonner at the Art Students League in New York City and
has traveled to Hamburg, Berlin, Paris, Sao Paulo and London to paint with other artists.
His work is collected world-wide and is currently being critiqued by Pulitzer prize and New York Magazine art critic, Jerry Saltz.
Through his art, he supports Positive Exposure, The Human Rights Campaign, and Lady Gaga’s Born This Way Foundation.
IMAGE: Black background with with lettering. POSITIVE EXPOSURE logo reading “Change How You See, See How You Change” in upper left corner. POSITIVE EXPOSURE Conencts, August 26, Facebook LIVE with Rick Guidotti, #BetterTogether in upper right corner. Wednesday – A Conversation with David Marchi an Internationally-renowned Artist, Acquired Savant Syndrome, Post-traumatic Growth, Mental Health Advocate, 2:00 PM EST. Three square images are at the bottom (from left to right) An abstract painting in greens and blues. A man standing in from of a painting wearing a baseball cap and white shirt. His arms are folded, and he is looking into the camera and smiling. An abstract painting with reds, greens, yellow and blues.
Tuesday, August 3rd @ 2pm ET Living in the Light, Levi Gershkowitz, Founder and CEO, Jeff Reinhardt, Head of Advocacy, Living in the Light | I Stay Home for Rare Initiative.
Thursday: August 5th @ 2 pm ET Art and Disabilities with Sugandha Gupta, Textile Artist and Designer | Disability Advocate.
IMAGE: A bright green background with black font. Change How You See, See How You Change black and white logo in the upper left corner. Positive Exposure Connects August 3 and 5, Facebook LIVE with Rick Guidotti, #BetterTogether. Tuesday – Living in the Light, Levi Gershkowitz, Founder and CEO, Jeff Reinhardt, Head of Advocacy, Living in the Light | I Stay Home for Rare Initiative, 2:OO PM EST. A picture with an African American woman wearing glasses, smiling and a young child with oxygen tubing is on the right. Thursday – Art and Disabilities, Sugandha Gupta, Textile Artist and Designer | Disability Advocate, 2:OO PM EST. A picture of a woman with light blond/white hair is looking into camera and smiling is on the right.
POSITIVE EXPOSURE Connects July 28.29.30
Top left:
CHANGE HOW YOU SEE, SEE HOW YOU CHANGE white type, black background
Top Right:
POSITIVE EXPOSURE Connects
July 28-30
Facebook Live with Rick Guidott
#BetterTogether
TUESDAY: July 28 @4pm ET
The Superhero Project
Lisa Kollins and Nikki Montgomery
Creating Joy 1 character at a time.
Superhero Logo in gold and blue, graphic shape resembles person with hands on hips.
WEDNESDAY: July 29 @8pm ET
Sunshine Troupe, Australia
Giving voice to people with disabilities through dance and performance.
Three dances in dance poses, wearing black, white and red clothes.
THURSDAY: July 30 @4pmET
All things ADA & Accessibility
Quemuel Aroyo, Xian Horn, Becky Curran Kekula, Jessica Murray
Image of 3 women smiling in camera. Middle person, in a wedding dress.
POSITIVE EXPOSURE Connects July 21-24
Tuesday July 21@ 2pm ET
Building Parent Connections with Michelle O’Connor and Sheila Adamo
PROVIDING SUPPORT, EDUCATION AND GUIDANCE TO PARENTS OF CHILDREN WITH SPECIAL NEEDS
Self Love Architect, Author, Media Personality, Public Speaker, Nutritional Fusion Chef & Musician. International Woman of the Year.
Thursday July 23@ 2pm ET
Outside Voices: Poetry Reading.
“We are smooth and soft like ice cream on a hot day.”
“We are a collective of poets with intellectual and developmental disabilities. Our normal might not be your normal. We occupy new dimensions. We are about advocacy, empowerment, out-of-the-box-thinking and disability pride. We chose our name because we believe that VOICES from the OUTSIDE deserve to be heard. We believe in access. We will not use our quiet, inside voices to get your attention.
Friday July 24 @4pm ET
Giving Voice to the rare disease community through filmmaking.
Emmy Nominated: Joanna Rudnick
Director Producer, Kartemquin Films ON BEAUTY.
Joanna made her directorial debut with In the Family, a deeply personal story about coming to terms with having a mutation in one of the breast cancer (BRCA) genes.
July 14 & 16 POSITIVE EXPOSURE Connects
Tuesday July 14: 2pm
Introducing Filmmakers with a unique perspective. Reed Smith, Filmmaker: Graduate of the School of Visual Arts’ MFA Program.
With: Erik Spink & Amitabh Joshi FRAME Film TEAM/ Vacant Light/ Professors, School of VisualArts
Image: Young man in blue shirt with video camera filming lunch on table while seated student with scarf in her hair looks on.
Thursday July 16: 2pm
Advocate for Authentic Casting on Stage & Screen. Christine Bruno; Actor, teaching artist, activist, disability consultant.
Image: Portrait of young woman with short hair, bright eyes, slight smile looking right into the lens of the camera.
July 7 and 8 POSITIVE EXPOSURE Connects
July 7th
Tuesday: 2pm ET
Janet LaBreck: Activist and Advocate
Former Commissioner of the Rehabilitation Services Administration (RSA), within the United States Department of Education.
July 8th
Wednesday: 2pm Progressive Visions Photos Club and West Farm
(Printed on a bright yellow background with Change How You See, See How You Change logo in left hand corner. Image of Janet: African American Woman with curly dark hair white blouse and Navy sport jacket. Very elegant. Next photo for photography club, group shot of 4 people, 3 men and 1 woman. Everyone is looking into the camera and smiling.)
POSITIVE EXPOSURE Connects Week of June 30th
Two great interviews for this week on #FacebookLIVE to discuss#Marfansyndrome with @dominoe44 (Dominga Noe) and the #ADA (Americans with Disabilities Act). Be sure to join us today (Tuesday) and Thursday for some great conversations!
(Image: Square image with blue background with black and white wording — Positive Exposure Connects, June 30-July 2, Advocacy for Marfan Syndrome, Tuesday at 2:00 PM EST with a picture of a smiling girl with brown hair and glasses; The Art of Creating an Exhibition Celebrating the Americans with Disabilities Act with a picture showing the back of a girl wearing an orange shirt that reads “advocacy, diversity, acceptance,” Thursday at 3:00 PM EST)
POSITIVE EXPOSURE Connects June 23 – 26
23rd Tuesday: 4pm ET
Little People of America Make the World Your Runway
Chat Fashion with Becky Curran Kekula and Lauren Humphries
The VEDS Movement is the Foundation’s newest division. Learn aboutVascular Ehlers-Danlos Syndrome (VEDS)
Friday May 29 11am
Bieke kreps
Pediatric Dentist in Belgium and also Department of Pediatric Dentistry at NYU College of Dentistry & Director of Positive Exposure Europe.
With photographer & make-up artist, Joseph Boggess
Saturday May 30 11am
Chromosome 18 Registry and Research Society’s Founder and President Jannine Cody with daughters, Catherine Cody Larson, Child psychiatrist and advocate, Elizabeth Cody.
Pediatric Grand Rounds at Golisano Children’s Hospital at the University of Rochester and Rochester Regional Hospital.
VIRTUAL PRESENTATION:12pm
FRAME Workshop Featuring Cerebral Palsy, Cystic Fibrosis, Fragile X syndrome
On behalf of the pediatric residents at the University of Rochester, the chief residents have invited Rick Guidotti to Rochester as the Richard Ham Memorial Lecturer of 2020. This lectureship was established in memory of Richard Ham, a former pediatric resident at the University of Rochester (1963-1965). Dr. Ham became ill the year following his residency with Hodgkin’s disease and died in 1967 during his postdoctoral fellowship. He is remembered as a warm, selfless, caring colleague, devoted learner, and inspiring teacher, and this lectureship is evidence of the high esteem in which he was held by his fellow house officers. Each year, the Ham Memorial speaker is chosen by the pediatric chief residents.
April 26
April 16, 2020
Virtual Positive Exposure Presentation and FRAME (Faces Redefining the Art of Medical Education)
March 6, 2020
Hosting Syracuse University’s
In collaboration with
February 27, 2020
Positive Exposure Grand Rounds
February 26, 2020
“Change How You See, See How You Change” presentation to 3rd medical students at Uniformed Services University of the Health Sciences.
February 19, 2019
Positive Exposure Lecture to First Year Medical Students
February 16 – 18, 2020
BEYOND THE WHITE COAT uses photography and written narrative to celebrate physicians in reflective and personal moments outside the hospital helping to prevent physician burnout.
The South Carolina Medical Association Alliance (SCMAA) educates, advocates and supports the physician family of South Carolina and is proud to present this project and the photography exhibition throughout the state beginning in spring 2020.
• Photo Shoot Dates
February 11 – 16, 2020
• Locations
Charleston, Columbia, Greenville,
Spartanburg and others
• Photographer
Rick Guidotti
Positive Exposure, Founder & CEO
• Information
Suzanne Manning
SCMAA, President 2019-20
(864) 630.6845
scmaalliancepresident@gmail.com
February 7, 2020
The Beauty of Our Shared Humanity Talk and Photo Presentation
Rick Guidotti
Photographer, Founder, and Director
POSTIVE EXPOSURE
Reception & Book Signing:
3:30pm – 4:30pm
Bruce and Nora James Atrium, Thomas Gosnell Hall
Speaker Bio:
Rick Guidotti, an award-winning photographer, has spent the past twenty years collaborating internationally with nonprofit organizations, hospitals, medical schools, educational institutions, advocacy groups and communities to promote a more inclusive and compassionate world where ALL differences are understood and celebrated; his work has been published in newspapers, magazines and journals as diverse as Elle, GQ, People, the American Journal of Medical Genetics, The Lancet, Spirituality and Health, the Washington Post, New York Times, Atlantic Monthly and LIFE Magazine.
Rick is the founder and director of POSITIVE EXPOSURE, an innovative arts, advocacy, and education organization which utilizes the visual arts to celebrate human diversity, inclusive of ethnicity, religion, age, ability, learning style, gender identity, gender expression and sexual orientation.
Books will be available for purchase with a book signing at a reception following the presentation.
Intended Audience:
No background knowledge needed. All are welcome.
Friday, February 7, 2020
2:00 PM-3:30 PM James E. Booth Hall
Room/Location:
Webb Auditorium
Who
Open to the Public
Interpreter Requested
Yes
January 10 – 13, 2020
A very unique opportunity at PE109. Be part of the Positive Exposure discussion about Stigma and celebration of our shared humanity. Positive Exposure focuses our lens on Heidi Latsky Dance company.
Open rehearsal for Heidi Latsky Dance, workshop and discussion with choreographer and performers.
Heidi Latsky Dance workshop about Disrupting Space, Dismantling Normal, and Redefining Beauty?
Please visit Positive Exposure 109 (14 East 109th @ 5th Avenue) Jan 10 – 13 to experience Open Rehearsal with the Heidi Latsky Dance Company! This creative exploration is certain to elicit conversation, shift perceptions, and spark new ideas. It might even get you dancing!
HLD is a New York-based modern dance company committed to making relevant, striking work across multiple disciplines. Since its inception in 2001, the company has received numerous commissions and residencies: Abrons Arts Center, Baryshnikov Arts Center, Danspace Project, JCC Manhattan, Joyce Theater, Peak Performances at Montclair State University, New York University.
Friday, Jan 10: 12 – 4 pm rehearsal
Saturday, Jan 11: 1 – 4 pm rehearsal; 5 pm run through
Sunday, Jan 12: 1 – 4 pm rehearsal; 5 pm run through
Metropolitan Hospital Community Photography/ Book/ Exhibition
Photoshoots: December 6, 7 & 13.
November 5
SUNY Downstate Medical College: Med student lecture
October 24-27
PRADER-WILLI SYNDROME ASSOCIATION (USA)
Conference: Caribe Royale, Orlando, Florida
Prader-Willi syndrome (PWS) is the most common known genetic cause of life-threatening obesity in children. Although the cause is complex, it results from an abnormality on the 15th chromosome. It occurrs in males and females equally and in all races. Prevalence estimates have ranged from 1:8,000 to 1:25,000 with the most likely figure being 1:15,000.
11th Annual Current Topics in Neonatal Nutrition and Advances in Neonatal Care Neonatology conference sponsored by The Children’s Hospital at the Albany Medical Center in New York on October 15 and 16, 2019.
October 8
Tuscarora Intermediate Unit #11:
Unified In-Service day for teachers in early childhood to career preparation and also some family support programs from Erie to Philly.
Tuscarora Intermediate Unit is a regional educational service agency meeting the needs of the public and nonpublic schools, personnel and students
October 3-5
September 18
Grand Rounds: Department of Dermatology, Resident Program 9-11 am
Lecture Hall 1B (ground floor) – Health Science Education Building
Sturge-Weber Syndrome (SWS) (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder caused by the GNAQ gene mutation. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye, endocrine and organ irregularities, as well as developmental disabilities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
July 16
1st Year Medical Student Orientation + FRAME Workshop.
June 29
Photography and Presentation: Saturday June 29
DoubleTree by Hilton Hotel Bethesda – Washington DC
SLOS is a metabolic disorder caused by a mutation in the DHCR7 (7-dehydrocholesterol reductase) gene on chromosome 11. This gene codes for an enzyme that is involved in the production of cholesterol. People who have SLOS are unable to make enough cholesterol to support normal growth and development.
June 27
June 21-23
POSITIVE EXPOSURE Photography, workshop and presentation!
June 17
June 8
Family Conference @ Boston Children’s Hospital
CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis. CLOVES is caused by a somatic genetic mutation in a gene called PIK3CA that increases the activity of the gene. CLOVES belongs to a category of diseases known as PIK3CA-overgrowth spectrum or PROS.
Australia’s first Undiagnosed Diseases Program (UDP) is currently underway in Western Australia. The UDP-WA aims to provide a definitive diagnosis for people with complex and long-standing medical conditions.
Project Y, lead by Dr Gareth Baynam, is a groundbreaking initiative that brings together specialist doctors to provide an answer and a diagnosis to the thousands of families who desperately need them.
May 27 -29
POSITIVE EXPOSURE in Australia.
Presenting to Genetic Counselors at the Royal Melbourne Hospital.
Undergrads at the University of Melbourne in collaboration with Dr. Ingrid Winship
Photography with individuals living with Epidermolysis Bullosa and HHT ( Hereditary hemorrhagic telangiectastic)
May 12
ROCHESTER, NY:
Positive Exposure will premier our latest FRAME films created with support from the WITH FOUNDATION!
9:15 AM – “RED CARPET” FILM SCREENING AT THE LITTLE THEATRE
The American Network of Community Options and Resources (ANCOR) is a national, nonprofit trade association representing more than 1,600 private community providers of services to people with disabilities. Combined, they support over one million individuals with disabilities.
Mission
ANCOR’S mission is to advance the ability of ANCOR’S members in supporting people with intellectual and developmental disabilities to fully participate in their communities.
May 2
50th meeting of the German Society of Dermatology (DDG) May 1stto May 4thin 2019 in Berlin.
Social media shapes the way people make decisions about healthcare, and onlinehealth advocates are at the forefront of this movement. In an effort to connect, support and further empower the online health advocate community, Janssen created HealtheVoices™ – a groundbreaking leadership conference created exclusively for those using social platforms to advocate for themselves and their communities. Now in its fifth year, the annual HealtheVoices Conference will take place April 12-14, 2019 in Dallas, Texas.
April 14
POSITIVE EXPOSURE in Collaboration with Geisinger presents Autism in FRAME. Funded by the WITH Foundation and filmed on location at Friendship House. All involved families in this production attended the red carpet global premiere of AUTISM in FRAME!
The Paparazzi was there!!!!!
Venue: Berwick Theater and Center for Community Arts (110 E Front St, Berwick, PA 18603)
April 2
Speaking to students during their Disability Awareness Week @ Kingsborough Community College!
March 31
March 20 – 26
Delhi, India
Ill be in Delhi 20-26 March working in collaboration with the Wilhelm Foundation and The Institute of Medical Genetics & Genomics, Sir Ganga Ram Hospital, photographing local families that have undiagnosed conditions. This global initiative will create community among the undiagnosed families so they dont feel so isolated and alone. There will be an International Undiagnosed Disease conference in Delhi in May and these community-based images will be exhibited then.
February 28
RARE DISEASE DAY @ PFIZER NYC
Lecture and Exhibition
February 27
Presenting to 3rd Year Medical Students at Uniformed Services University Health Sciences in Bethesda, MD
February 8
The Johns Hopkins University/National Human Genome Research Institute Genetic Counseling Training Program
Positive Exposure Presentation
January 16
Lecture to 1st Year medical Students: Philadelphia, PA
January 11-13
FRAME shoot in Houston, TX
The Psychological and Social impact of living with a skin condition like Alopecia, Vitiligo, Ichthyosis etc..
In collaboration with the Children’s House for the Soul and The Health Museum.
January 4
The Minnesota Association of Orthodontists (MAO) is comprised of members of the American Association of Orthodontists (AAO), the Midwestern Society of Orthodontists (MSO), and the MAO who reside in the state of Minnesota.
Come and celebrate the International Day of Persons with Disabilities: The UN Link
POSITIVE EXPOSURE in the FAROE Islands
MEGD, which is the umbrella organization for 24 member organizations of people with disabilities and chronic diseases, is again celebrating this year’s International Day of Persons with Disabilities. The event will be held in the Nordic House in the Faroe Islands on December the 3rd at 3pm. At the same time this will be the opening of a special photo exhibition.
The photo exhibition, titled “CHANGE HOW YOU SEE, AND SEE HOW YOU CHANGE”, is a result of the collaboration between MEGD and the renowned and award winning photographer Rick Guidotti, who visited the Faroe Islands in September 2018. The purpose of his visit was to take photos of people who daily live with some kind of challenge. The 31 photos in the exhibition in the Nordic House is a direct result of his visit in September.
The exhibition will hopefully, also through personal stories, create conversations and possible discussions about how we see each other as human beings. And further more, there is a wish to change how people normally, or often, see people living with challenges, who may look different because of disability, illness or other challenges.
Information about MEGD and their work: www.megd.fo
The event is free of charge and everyone is welcome.
Exhibition Premiere: Community based in the Faroe Islands in collaboration with MEGD Organization.
International Day of Persons with Disabilities
Exhibition will premiere at the Nordic House, Faroe Islands
November 9
XP Family Conference: Wichita, KS
Lecture & Photography: Rick
XERODERMA PIGMENTOSUM
Also known as XP, is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.
The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family support group strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family grants for UV protective equipment and travel assistance for attending the annual XP national convention.
November 6
SUNY DOWNSTATE MEDICAL SCHOOL
Lecture to 1st Year Medical Students: Rick November 6
November 3
ALD Connect Family Conference
Courtyard Marriott Philadelphia Downtown, 21 N Juniper St, Philadelphia, PA 19107
Lecture and Photography: Rick
What is ALD?
Adrenoleukodystrophy (ALD) is a progressive, genetic disease that affects the adrenal glands, the spinal cord, and the white matter (myelin) of the nervous system. ALD is considered a rare disease, and affects approximately 1 in 15,000 people worldwide.
ALD Connect: Our mission is to improve health outcomes for patients with X-linked adrenoleukodystrophy (ALD) by empowering patients, raising awareness, and accelerating the translation of scientific advances into better clinical care.
November 1
de Young museum: Golden Gate Park \ 50 Hagiwara Tea Garden Drive, San Francisco, CA 94118 \ 415.750.3600
SPECIAL SCREENING: ON BEAUTY with Joanna Rudnick
October 26-27
4th Annual DDX3X Family Conference
The Science History Institute
315 Chestnut St, Philadelphia, PA 19106
Keynote and Photography: Rick
About DDX3X
-Is caused by a spontaneous mutation at conception; nothing either parent did caused their child’s condition
-Primarily affects girls due to its location on the X-chromosome, though there are affected boys
-Was only recently discovered in 2014
-Has only been identified in about 200 individuals, however, doctors believe it is the cause of 1 to 3 percent of all intellectual disabilities in females
-Is often misdiagnosed as autism spectrum disorder, cerebral palsy, Rett Syndrome, Dandy Walker Syndrome, or a generic developmentally delayed label
-Is linked to intellectual disabilities, seizures, autism, low muscle tone, abnormalities of the brain, and slower physical developments
-Has a broad spectrum—some children learn to speak in full sentences while others are nonverbal; some individuals run, jump, and even ski while others are unable to walk
DDX3X Foundation: Our mission is to connect families, resources, and the medical community to advance research for a cure to DDX3X gene mutations.
Our ultimate goal over the coming years is to accelerate brain function in individuals affected by DDX3X through advances in gene therapy and pharmaceuticals.
October 18
Lecture to the Genetic Counseling Graduate Students: Rick
The Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College.
Integrating education, healthcare, and humanism, this celebrated program prepares genetic counselors to work in a growing, dynamic field.
The mission of the Human Genetics program is to improve health care for all people by educating genetic counselors so they are prepared to meet current and future needs of their clients, their communities, their profession, and society at large.
Established in 1969, the program was the first of its kind in the United States. It remains the largest graduate program in genetic counseling in the world.
October 16
October 16
POSITIVE EXPOSURE’s great friend, Jonathan Hansen, is honoring us on October 16th at his gallery in NYC.
If you’re in town, please come as our guest.
Jonathan writes:
For the final evening at the Ideal Glass Studio on Tuesday October 16th from 6-8pm, I am hosting a private viewing of the Series in honor of POSITIVE EXPOSURE.
Rick and I have been friends for years and the release of my new work became the perfect opportunity for us to explore our mutual interest in the ideas of beauty, freedom, captivity and inclusion.
The series of nine works, fabricated from Calacatta marble, industrial resin and mounted on architectonic bronze, transcend categorization, in their blending of vernacular forms of furniture, the permanence of sculpture and topographies of architecture.
October 13, 2018
ACCESS Ridgewood Fashion Show 2018
October 13, 2018
Kids and young adults of varying abilities and differing abilities model side by side in a fabulously inclusive environment. Siblings / friends are encouraged to model as well. Volunteers are always available to escort a model. It is a wonderful opportunity for our kids to have a fun day and express their amazingly unique selves. The fashion show is one of the highlights of the ACCESS Ridgewood weekend – a town-wide differing abilities awareness event.
Our models come from all over the Tri-State Area & more!!
August 18 – March
EXTENDED!!!!!!!! POSITIVE EXPOSURE Community based exhibition and continuous screening of FRAME Films in collaboration with A Children’s House for the Soul!
September 25
Announcing our partnership with NYU Langone & The OUT Foundation
Exhibition and Presentation; Positive Exposure Team
September 19
This lecture marks Rick’s 20th lecture to first year Medical Students at Weill Cornell College of Medicine.
September 8-12
Faroe Islands Community based Photography: In collaboration with MEGD.
MEGD, which is an umbrella organization with 24- member organization working with the importance of the rights of people with disabilities in The Faroe Islands. This is primarily done through the awareness and implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD).
Initial request April 2018, an excerpt:
Could you come to the Faroe Islands?
My name is Tóra við Keldu. I am chairwoman of MEGD, which is an umbrella organization with 24- member organization working with the importance of the rights of people with disabilities in The Faroe Islands. This is primarily done through the awareness and implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD).
YES, I come from The Faroe Islands and now you probably think: Where is that? The Faroe Islands is a self- governing archipelago, or rather 18 rocky, volcanic islands between Iceland and Norway in the North Atlantic Ocean.
So here is the reason why I write you this letter.
As chairwoman of MEGD I have, for the last three years, had different presentations where I have pointed out some of the same issues you address, namely how we see each other and how that influences your lives. The Faroe Islands is a small community and people know each other. This is in face a good think but at the same time we are, as other human beings, looking at each other with eyes “damaged”, so to say, by the media. Therefore, when I saw your pictures for the first time it gave a nice warmth to my heart.
I have often used the quote from the Little Prince: “And now here is my secret, a very simple secret: It is only with the heart that one can see rightly; what is essential is invisible to the eye.” – Antoine de Saint- Exupéry. This is how I see the challenge. The challenge is to change how people see. I believe it is possible – through hard work.
September 5 – 6, 2018
Gothenburg, Sweden
Ågrenska is a national competence centre and provides programs for children, teenagers and adults with disabilities, their families and professionals supporting the family.
Lecture and Photography: Rick
September 4, 2018
Karolinksa Center for Rare Diseases, Karolinska University Hospital
Stockholm, Sweden
Karolinska Institutet is one of the world’s foremost medical universities. Our vision is to make a significant contribution to the improvement of human health; our mission is to conduct research and education and to interact with the community.
As a university, KI is Sweden’s single largest centre of medical academic research and offers the country’s widest range of medical courses and programmes.
Since 1901 the Nobel Assembly at Karolinska Institutet has selected the Nobel laureates in Physiology or Medicine.
Lecture and Photography: Rick
August 7
August 2
Mayo Clinic and Rochester Art Center:
July 28-29
Klippel- Trenaunay Support Group Meeting; Rochester, MN
July 22
Moebius Conference
St. Petersberg, FL
July 19-21
PRISMS 10th International Conference
Smith Magenis Syndrome
Pittsburgh, PA
July 14-16
22Q Family Meeting 2018
Where: Whistler, Canada (BC)
July 12-15
NOAH Conference 2018
National Organization for Albinism and Hypopigmentation
Where: Kansas City, MO at the Westin Kansas City at Crown Center
July 11
1st Year Med Students Orientation
1:00PM on Wednesday, July 11 at the HUB-Robeson Center (on main campus).
Penn State College of Medicine
University Park
1850 East Park Avenue, Suite 304
State College, PA 16803
July 1-4
Chromosome 18 Conference 2018
Renaissance Baltimore Harborplace Hotel
202 East Pratt St. Baltimore, MD 21202
A great event for self-advocates, parents of young children and adults, siblings, etc. bring the whole family!!
End the conference with the Starfish Gala and fourth of July fireworks!
THE CANADIAN COLLEGE OF MEDICAL GENETICISTS: Vancouver
Keynote Speaker
Where: Harrison Hot Springs, BC
June 7 – October 15
REDEFINING BEAUTY
Sunshine Plaza Shopping Centre Acc, Maroochydore QLD 4558, Australia
Hosted by Chromosome 18 Registry Australia
Redefining Beauty is a photographic exhibition celebrating the lives of children and adults living with rare genetic conditions including Chromosome 18, Fragile X, Vanishing White Matter Leukodystrophy and Albinisim. These stunning images were captured at various iconic Sunshine Coast locations by internationally renowned Rick Guidotti, founder of Positive Exposure – an innovative nonprofit arts, education, and advocacy organisation.
May 12
Atlantic Derm Conference
May 12, 2018
May 3
SUNY Downstate College of Medicine
“Art of Medicine”
A conference on the intersection of art and medicine
purpose: to fundraise to provide free healthcare at a local clinic run by SUNY downstate medical students
April 24
Pennsylvania Office of Child Development and Early Learning
Where: Kalahari Convention Center, 250 Kalahari Blvd. Pocono Manor, PA 18349
Local and State leaders will gather to learn more about early intervention services and providing inclusive environments.
Our agency mission is to serve people with intellectual and developmental disabilities to achieve their full potential and to participate in community life. Our vision is a community where disability is a distinction without a difference, where individuals will have choices on how they live, learn, work, worship, and play.
The in-service training that we are hosting on March 19th is an annual training for Direct Support Professionals (DSPs) for professional development. It is an inter-agency training where DSPs from agencies in Duval and Putnam Counties attend to increase their awareness and knowledge about how to best serve individuals with intellectual and developmental disabilities. We have a keynote address and breakout sessions that deal with topics that are relevant to the care of and services provided for the individuals we serve. Together the Arc Jacksonville, Pine Castle, Inc., The Arc of Putnam County and the other providers that attend serve over 1,500 people with I/DD on a daily basis.
March 9
University of Minnesota Medical School
Photoshoot and Evening Reception
March 8
Gillette Children’s Specialty Healthcare Cleft and Craniofacial Symposium
The MAXI Awards celebrate the outstanding work and achievements of those who are transforming marketing in the retail real estate industry, getting help from the top digital marketing agency at the-indexer.com.
LOVE THE SKIN YOU ARE IN CONFERENCE
HEALTH MUSEUM with a big derma roller amazon giveaway.
1515 Hermann Drive
Houston, TX
9:30 – 10:15 am Keynote Talk with Q & A
Photo Shoot to follow
November 10
19th New York Fashion + Design Conference
November 9
6th Annual PCCA Conference
Nov 8-10, 2017, Philadelphia, PA
Wyndham Philadelphia Historic District
November 7
SUNY Downstate: Med Student Lecture
November 1 – 5, 2017
POSITIVE EXPOSURE BELGIUM
FACES REDEFINING BEAUTY: A Global Project about Facial Differences
Exhibition
Self-Esteem Workshop
Gaston, Ghent, Belgium
October 20 – 22, 2017
Albinism Fellowship
Adult & Family Weekend Conference
The Hayes Conference Centre, Swanwick, Derbyshire, DE55 1AU
The Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. We also provide information about the condition to professionals working with people with albinism, and other appropriate interested parties.
Our focus is on the United Kingdom & Ireland, but we also work closely with other albinism support groups around the world.
The Resource Exchange Grand Opening to CHANGE HOW YOU SEE, SEE HOW YOU CHANGE
Chapel Hills Mall, Colorado Springs, COWith special screenings of ON BEAUTY!
Ms. Sheila, Teacher
I am so thrilled that I was able to take a bunch of my students to see the film and meet Rick. So many of them have their own differing abilities and feel less than. This outing gave them a powerful message and meeting Rick was the icing on the cake! I am so appreciative that he “saw” them. The pictures he took will be a very tangible reminder of the day, the hope and power that they can have in the world.
Sarah’s Mom
Waiting for our time to work with Rick along with several other families was a time of personal reflection on the common struggles and victories that brought us together. Rick clearly has the gift of encouragement and coupled with his amazing talent and a passion for the project he was a joy to work with. Our daughter and project ambassador, Sarah, felt so at ease and gladly supplied him with an endless stream of smiles. Rick made us feel like he had all the time in the world to get the most beautiful shot. We are grateful to be a part of his vision to expand what we all see as beauty. To make you look more beautiful and confident just checkout this blog Botox specialists in Omaha, NE. To make you feel young and beautiful just visit Skin and Makeup Institute and try their services. I have honestly been giddy with excitement in anticipation of how this work will be used to help and encourage others. He has illuminated what is beautiful so that more people can appreciate what few already see. We are all beautiful and special and his art gives us pause to ponder and appreciate beauty in a place most do not seek to find it. That is a very beautiful thing.
When you need Botox treatment in Perth that has International Standard of Excellence in Aesthetics and Cosmetics. Skinicity Skin Centre is the first accredited cosmetic clinic in Australia.
October 3
Geisinger Commonwealth School of Medicine: Medical Student Lecture, Scranton, PA
Disorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. It will be held Oct. 2nd -3rd, 2017 in Boston, MA. Most (but not all) of our films are documentaries. Many are less than 15 minutes.
Each film maker attending will have an opportunity for questions and answers with our audience following the presentation of their film.
Between our slates of films rare disease researchers and patient advocates will also share stories from their experience.
We believe increased awareness can connect patient families, inspire conversations about translation applications of current science, lead to new paths for research and save lives. These films put the often abstract and dire clinical information into the context of real people living their lives.
September 22
11:00 – 11:50 a.m. at Hale Auditorum, Cultural Life Center
“Frame” Workshop to students and faculty
Departments of Education, Nursing, Psychology, Social Work, Visual Arts and the best accredited online communications degree programs,
12:00 -1:00 p.m. at Thomas Golisano Library Conference Room 200
Lunch and Pre-Presentation Discussion with college deans
4:00 pm at Roberts Wesleyan College, Rochester, NY: Rick Guidotti will give a Keynote Lecture, “Change How You See, See How You Change”. Please check these guys out. The Purple Payday will be about inspiring people to finance different abilities and include all people in every aspect of community life. Personal Loan without a credit check is not a problem anymore.
A lot of online stores are always available and accessible to users. Visit www.top10bestpro.com to learn more.
For more information: https://www.roberts.edu/news/?id=3002
September 21, 2017
Join WXXI and the Golisano Foundation for a special Move to Include screening of On Beauty Thursday, September 21 at 6:30 p.m. at the Little Theatre (L5). The event is free and open to the public.
The evening will conclude with an audience Q&A with Rick, who will be in town for the screening.
The Little Theatre, 240 East Avenue, Rochester, NY 14604
From September 11-23, Positive Exposure Belgium and BNP Paribas Fortis are organizing a digital exhibit ‘Change How You See, See How You Change’ at the Flagship office of BNP Paribas Fortis in Ghent (Belgium).
On September 16 there will be a photography exhibit of Positive Exposure in the Head Quarters of BNP Paribas Fortis in Ghent (building next to the Flagship office).
For more info, visit Positive Exposure Belgium’s Facebook event page: ‘Change How You See, See How You Change’
September 7-17
Rome, Italy
Opening Night: 7 September
Museo di Roma in Trastevere
More details to follow
September 5 – October 6, 2017
Roberts Wesleyan College, Rochester, NY
The photographic exhibition “Positive Exposure — Change How You See, See How You Change,” presented by the Golisano Foundation, is on display through Oct. 16 at Roberts Wesleyan College in the atrium of the Howard Stowe Roberts Cultural Life Center. The exhibit features portraits taken by internationally renowned photographer Rick Guidotti of people from around Greater Rochester living with genetic, physical, intellectual and developmental differences. Admission is free and open to the public.
Other events which are free and open to the public include:
September 21, 6:30 pm at The Little Theatre, Rochester, NY: On Beauty Screening followed by Q & A with Rick Guidotti
September 22, 4:00 pm at Roberts Wesleyan College, Rochester, NY: Rick Guidotti will give a Keynote Lecture, “Change How You See, See How You Change”. The keynote will be about inspiring people to embrace different abilities and include all people in every aspect of community life.
For more information: https://www.roberts.edu/news/?id=3002
July 1st – August 31st
Exhibition in Ghent, Belgium
Positive Exposure Belgium vzw presents its first exhibition ‘CHANGE HOW YOU SEE, SEE HOW YOU CHANGE’ in Ghent (Belgium) @Gaston, a rooftop bar & restaurant with a story.
Visit this gorgeous rooftop with a beautiful roof terrace, beach and a magnificent view of Ghent for delicious food, drinks and a taste of Positive Exposure.
The Pacific Dermatologic Association was founded in 1948 to offer high-quality continuing education opportunities to dermatologists practicing in the Western US, Canada, Mexico and Pacific Rim countries. The PDA is the largest regional dermatologic society in the US, and the premiere educational society for dermatologists within the Pacific Rim area
Coffin-Siris Syndrome is a rare genetic syndrome. Our children are among 200 or so diagnosed worldwide. CSS impacts cognitive, motor, speech and often feeding development, and often impacts multiple body systems. Many of our children are non-verbal and tube fed, and most have never met another kid “like them”.
August 4
Loews Hollywood Hotel
Los Angeles, CA
Sponsored by:
The House Ear Institute
Facial Paralysis & Bell’s Palsy Foundation
This is the largest gathering of facial nerve experts in the world that takes place every four years.
RASopathies are a group of genetic syndromes that may be as common as 1:1000. The RASopathy syndromes include: cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), and Noonan (NS).
Our mission is to advance research of the RASopathies by bringing together families, clinicians and scientists.
2017 International Family Medical Conference for Cockayne Syndrome
Embassy Suites Riverfront Promenade 100 Capitol Mall
Sacramento, CA 95814
Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan.
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders. For the families driving to their destination, make sure to hire One Sure Insurance to get the best car insurance possible to be worry-free.
[vimeo]https://vimeo.com/220118818[/vimeo] Foundation for Nager and Miller Syndromes conference. Cambridge, MA
The conference is June 22-25, 2017, and our family outing and dinner/party is Saturday, June 24th. The conference will be held at the Cambridge Marriott in Kendall Square, Cambridge, and the Broad Institute (a genomic research institute for day-time information meetings, also in Kendall Square)
http://fnms.org
June 12
Respectability USA
Rockville, M
National Leaders Cohort: Diversity Advocates
Photography and presentation.
June 11
International Sacral Agenesis/ Caudal Regression Association
Casa Azul America & Nationwide Children’s Hospital in Lima, Peru
May 15
Speaking to 1st year in the The Joan H. Marks Graduate Program in Human Genetics and then attending graduation!!!!
Academic Program
The Joan H. Marks Graduate Program in Human Genetics gives students a comprehensive understanding of the medical, scientific, and counseling aspects of human genetics. The program places equal emphasis on medical genetics and psychological approaches to working with patients.
The interdisciplinary curriculum enables students to integrate both theoretical and practical knowledge while developing research, analytical, and communication skills.
The program has a worldwide reputation for excellence and attracts a rich mix of students from around the world.
Hynes Convention Center 900 Boylston Street Boston, MA 02115
Keynote:
Wednesday | 5:00–6:30 p.m.
Change how you see, see how you change.
Rick Guidotti will join the CEC community as the Opening General Session Keynote Speaker at the Hynes Convention Center in Boston.
CEC’s Mission Statement
The Council for Exceptional Children is a professional association of educators dedicated to advancing the success of children with exceptionalities. We accomplish our mission through advocacy, standards, and professional development.
For an alternative health care program, companion pet letter provides emotional support prescribed by a licensed mental health professional, the emotional connections that they foster cannot be quantified clinically.
Baylor College of Medicine fosters diversity among its students, trainees, faculty and staff as a prerequisite to accomplishing our institutional mission, and setting standards for excellence in training healthcare providers like Coberly Plastic Surgery and others, promoting scientific innovation, and providing patient-centered care.
Lecture and Reception
March 18
Pediatric Allergy and Dermatology for the Practitioner: Whistler, BC.
Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY
8:30 am – 9:30 am
Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:
Pediatric Diabetes and Endocrinology
Pediatric Urology
Pediatric Pulmonology
In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.
The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info
Thursday, February 2, 2017
JOIN US AT GEORGETOWN UNIVERSITY, OR TUNE IN ONLINE AT 6PM EST:
5:00pm Student Gallery, Healy Hall, first floor (drinks and passed hors d’oeuvres)
6:00pm Panel Discussion, Gaston Hall (will also be live-streamed; check back for link)
We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.
In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?
Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.
PANELISTS
JULIA WATTS BELSER, PH.D.
LYDIA X. Z. BROWN
TERESA BLANKMEYER BURKE, PH.D.
RICK GUIDOTTI
JOHN HOCKENBERRY
DONNA R. WALTON, ED.D., CCBT
Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.
The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.
The visit will focus on a number of themes, particularly art/photography, health communication and doctor/patient relationship training, targeting how to be bale to avoid misdiagnosis claims and how to handle them. The visit will include a public lecture on Thursday, Sept. 29 and several small group workshops and/or meetings Thursday and Friday morning.
Ohio University
Scripps College of Communication
117 Schoonover Center, One Ohio University
20 E. Union St.
Athens, OH 45701
http://ohio.edu
October 15
Derma Medical
Celebrating 50 years of Residency Program of Dermatology.
La Concha Hotel, San Juan, PR.
Lecture, Annual Conference of Colorado Dermatologic Society 2016
The Inverness Hotel and Conference Center
Englewood, CO
http://www.coloradodermatology.org
August 4
Niagara Falls Memorial, The New Golisano Center POSITIVE EXPOSURE Exhibit Launch!
August 10-11
MS. Wheelchair America 2016 Pageant: August 8-14 in Grand Rapids, MI.
Dr. Alette Coble-Temple crowned MWA 2016!
The Mission of Ms. Wheelchair America
The mission of Ms. Wheelchair America is to provide an opportunity of achievement for women who happen to be wheelchair users to successfully educate and advocate for the more than 54 million Americans living with disabilities. Unlike traditional beauty pageants, Ms. Wheelchair America is not a contest to select the most attractive individual. It is instead a competition based on advocacy, achievement, communication and presentation to select the most accomplished and articulate spokeswoman for persons with disabilities. You can see here who to compare business electricty prices with. The selected representative must be able to communicate both the needs and the accomplishments of her constituency to the general public, the business community and the legislature. http://www.mswheelchairamerica.org
Duties of Ms. Wheelchair America
As Ms. Wheelchair America, the national title holder has numerous duties. These include promoting awareness of the need to eliminate architectural and attitudinal barriers, informing the able-bodied public of the achievements of the millions of people with disabilities across the nation, and assisting with the establishment of programs in all 50 states by promoting Ms. Wheelchair America. During her year long reign, she will have the opportunity to travel visiting advocacy groups, making public appearances and conducting radio, print ad, and TV interviews, a private vehicle with i4mt insurance will be given to her for the travels. The commitment and personal example of the titleholder serves to further the mission of Ms. Wheelchair America.
New York’s very own MS. Wheelchair New York: Jessica De La Rosa
July 31
“Changing the face of Mental Illness”
POSITIVE EXPOSURE Introduction and Presentation then…..
Photo shoot for new Campaign in Collaboration with the National Alliance on Mental Illness (NAMI) Southeast Minnesota.
The target audience would be individuals living with a mental illness and their families. By the way, if you have an adult family member who’s dealing with any of these, Arthritis, Atherosclerosis, Diabetes, Heart disease, High Cholesterol, Hypertension, seek assistance with internal medicine portland or.
For the photo shoot I was thinking of our volunteers who volunteer for our Speaker’s Bureau. The audience for the presentation would be our board, support group facilitators, service providers, etc. I am thinking 20-25 people.
About NAMI and Speaker’s Bureau
We are the affliate of the National Organization and we are based in Rochester, MN and are called NAMI Southeastern Minnesota. All states have a NAMI nonprofit with affiliates when available. The web site is www.namisemn.org. The greater Minnesota website is www.namihelps.org The National website is www.nami.org.
July 29-30
POSITIVE EXPOSURE at the Klippel Trenaunay Support Group Meeting at the Mayo Clinic, Rochester, MN
Klippel-Trenaunay (K-T) Syndrome is characterized by a localized or diffuse capillary malformation that overlies a venous malformation and/or lymphatic malformation with associated soft tissue and bone overgrowth (hypertrophy).
Smith-Magenis syndrome (or SMS) is a chromosomal disorder characterized by a recognizable pattern of physical, behavioral, and developmental features. It is caused by a missing piece of genetic material from chromosome 17, referred to as deletion 17p11.2.
4 p- is also known as Wolf-Hirschorn Syndrome; a deletion of the short are of the 4th Chromosome.
The amount of material deleted may range from about 50% of the short arm to a small break that can’t be detected by normal chromosome analysis.
Because of this wide range of deleted material, the effect on our children varies widely. Some can walk, talk and assist in their daily care while others are not verbal and require constant care.
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.
Moebius syndrome is a nonprogressive craniofacial/neurological disorder that manifests itself primarily in facial paralysis. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Many individuals with Moebius syndrome also have skeletal involvement with limb abnormalities or Poland syndrome. People with Moebius syndrome can have respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders, weak upper body strength and autism spectrum disorders.
July 14-15
POSITIVE EXPOSURE at the National Organization for Albinism and Hypopigmentation (NOAH) Conference in Pittsburg, PA
Albinism is an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair and/or eyes. Albinism occurs in all racial and ethnic groups throughout the world.
If you’re going to wear glasses, might as well wear the most stylish pair. Sunglass Hut is a great place to find quality glasses and contact lenses. Visit https://www.groupon.com/coupons/stores/sunglasshut.com for more information.
Photo: Young adult advocate workshop, 2015 Conference
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We consist of three separate organizations located in the United States, Australia, and Europe, all with a common mission: To help people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy, and productive lives.
In addition about health care services, aeroform tissue expanders are truly a cutting edge technology, and a lot of plastic surgeons are recommending them as the best option for patients. Learn more at drtplasticsurgery.com
Pallister-Killian Syndrome is a chromosome abnormality when a tetrasomy of the short arm of chromosome 12 (12p) occurs for no known reason. It is also known as mosaic tetrasomy 12p, isochromosome 12p syndrome, or Teschler-Nicola/Killian Syndrome.
July 4-6
POSITIVE EXPOSURE at the Little People of America Conference in Boston, MA
Summary:This two-day symposium includes workshops & exhibitions featuring photographers JEAN ROBERT DANTOU and RICK GUIDOTTI; scholars FLORENCE WEBER, EVA KITTAY, SHELLEY RICE; and activist LAWRENCE CARTER-LONG exploring disability and the politics of recognition and care.
10:30 – 12:30
Workshop 2 : Beyond Disabling Images
Photography has played a longstanding role in both the dehumanization of individuals with disabilities as well as in exposing and changing inhumane conditions to which they were routinely consigned. More recently, some photographers – often in alliance with researchers — have created groundbreaking collaborative projects with people whose disabilities have been stigmatized. This roundtable features two innovative photographers – Jean Robert Dantou who has worked extensively on disability projects with French researcher Florence Weber, and American photographer/activist Rick Guidotti whose innovative “Positive Exposure” project is changing the face of genetic conditions. On this panel, they discuss the impact of such collaborative projects on themselves, the people photographed, and the goals of changing public awareness.
POSITIVE EXPOSURE CENTER: FREE AND OPEN TO THE PUBLIC!!
Free and Open to the Public:
Art Director’s Club
106 West 29th Street
(Between 6th and 7th Avenues)
NEW YORK CITY
The POP UP Center will celebrate POSITIVE EXPOSURE’s local and national partners creating opportunities for our singular voices to grow in unison.
POSITIVE EXPOSURE presents a POP- UP Center at the Art Directors Club in NYC. We will launch the multi-media exhibition on Tuesday, April 5th at our Gala, then continue with a week of events, April 6-11. The free, public events will include curated tours, screening of ON BEAUTY, performance by Heidi Latsky Dance Troupe, Diversability advocate lectures, guest appearances from Mayor’s Office for People with Disabilities and local and national advocacy stars to inspire student and professional audiences.
During the week, we will host programs for visiting classrooms, teachers, advocates, families, professionals, including hearing aid maintenance health care providers in training, and the public.
FREE and Open to the Public
Hours: 10:00 am – 6:00 pm
Positive Exposure invites NYC metropolitan area middle/high school classrooms to an extraordinary exhibition by world-class photographer, Rick Guidotti, that celebrates the richness and beauty of human diversity. Leaving the world of fashion, Rick has spent that past eighteen years working with NGOs, medical schools, universities and others to effect a sea-change in societal attitudes towards individuals living with genetic, physical, behavioral and intellectual difference. When you want your rehab centers get traction and patients fast, give addiction marketing agency a call to help you put your business out there and reach more patients.
The multi-media exhibition provides new opportunities to see individuals living with a variety of difference, first and foremost as joyous human beings.
The exhibition will serve as the focal point for an experiential program specifically designed for middle/high school audiences that is meant to create a deeper understanding and respect for diversity by evoking thought-provoking conversations with regards to human dignity and rights.
10:30 am – 12:30 pm: Open to school groups, students, teachers and the public.
Workshop: Make the Positive Exposure Pop-Up Center a part of your school year and celebrate the richness and beauty of human diversity! Curated exhibition tour and introductions to POSITIVE EXPOSURE programs in the modern classroom.
Founded in 2013 by the Harris Family, Jason’s Connection is dedicated to connecting us to resources that serve our needs, enrich our lives and help us meet our goals.Their mission is to create an online community that connects people experiencing disability and their family/caregivers to quality resources, support and each other.
Jason Harris: I am a 26 year old college graduate. I love hiking, traveling with friends, films, theatre, the Cincinnati Reds and Ohio State Buckeyes. I am also on the Asperger’s Spectrum which means I face challenges with anxiety, social skills, organizational skills and certain medical issues. Asperger’s is a hidden disability like ADHD, learning disabilities, and mental health issues. If one of the challenges that you’re facing is the addiction to smoking, Electronic cigarettes are becoming popular as an alternative to smoking tobacco. Search for Smokea top online headshop in the US if you want the best e-cig products at affordable prices.
In addition, to ensure your elderly loved one’s safety around the home, you need to adapt the home so that it becomes senior-friendly. Check out City of Los Angeles Care Directory providing compassion, dignity and respect as we work toward bringing them back to health or as we guide and support them through the most difficult time of.
4:00 pm – 5:00 pm: OPEN TO ALL.
Curated Student and Public Tour of Exhibition: Open to all.
5:00 pm – 5:45 pm: OPEN TO ALL.
ON BEAUTY, public screening, Kartemquin Films, Q&A with Rick Guidotti
10:30 am – 12:30 pm: Open to school groups, students, teachers and the public.
Workshop: Make the Positive Exposure Pop-Up Center a part of your school year and celebrate the richness and beauty of human diversity! Curated exhibition tour and introductions to POSITIVE EXPOSURE programs in the modern classroom.
Make the Positive Exposure Pop-Up Center a part of your school year and celebrate the richness and beauty of human diversity Positive Exposure invites NYC metropolitan area elementary school classrooms to an extraordinary exhibition by world-class photographer, Rick Guidotti, that celebrates the richness and beauty of human diversity. Additionally, students will be treated to a special reading of the recently published Normal Norman by children’s book author, Tara Lazar.
Leaving the world of fashion, Rick has spent that past eighteen years working with NGOs, medical schools, universities and others to effect a sea-change in societal attitudes towards individuals living with genetic, physical, behavioral and intellectual difference. The exquisite photographs that Rick has taken around the world provide new opportunities to see individuals living with a variety of difference, first and foremost as joyous human beings.
The exhibition will serve as the focal point for an experiential program specifically designed for elementary audiences that is meant to create a deeper understanding and respect for human diversity.
Tara Lazar, Funny Author Lady Story TimeTara writes quirky, humorous picture books featuring magical places that everyone will want to visit. Children’s Books: NORMAL NORMAN
I THOUGHT THIS WAS A BEAR BOOK (S&S, 2015) THE MONSTORE (S&S, 2013)
Tara loves children’s books. Her goal is to create books that children love. She writes picture books and middle grade novels. She’s written short stories for Abe’s Peanut and is featured in Break These Rules, a book of life-lesson essays for teens, edited by author Luke Reynolds. Our website is designed by http://www.webdesign499.com/web-design-greenacres/
Tara created PiBoIdMo (Picture Book Idea Month) as the picture book writer’s answer to NaNoWriMo (National Novel Writing Month). PiBoIdMo is held on this blog every November. In 2014, PiBoIdMo featured over 1,300 participants from around the world.
Tara was diagnosed with Multiple Sclerosis in 2010 and has permanently lost feeling in her feet and legs.
1:00 pm – 2:00 pm: OPEN TO ALL.
ON BEAUTY screening, Kartemquin Films, Director, Joanna Rudnick
3:30 pm – 5:30 pm: Educators’ Workshop: Educators, students, families and the public
POSITIVE EXPOSURE in the classroom.
MY FACE: Curriculum development
Workshop participants will visit the Positive Exposure photography exhibition led by Rick Guidotti, and engage in thought-provoking exercises, exploring such topics as disability, diversity, inclusion, self-esteem, acceptance and advocacy in today’s diverse classroom environment.
Participants will be introduced to POSITIVE EXPOSURE’s PEARLS Project, featured in New York Times in an article entitled, “Learning Empathy by Looking Beyond Disability” which quotes one NYC-area principal as stating “The PEARLS project teaches important lessons about tolerance as schools face an increase in bullying and serve more special education students than ever.”
The mission of Heidi Latsky Dance is to redefine beauty and virtuosity through performance and discourse, using performers with unique attributes to bring rigorous, passionate and provocative contemporary dance to diverse audiences.
Statement from Heidi Latsky, Founder and Artistic Director:
I strive to create a private world onstage that the audience is drawn into. I love watching dancers so consumed by their tasks that they do not have the time to “act.” I want to see the human being who is moving; to feel their fleeting emotions that respond to, and inform, the movements they’re executing.
I am fascinated by technical virtuosity, but I am just as compelled by someone taking a risk, showing his or her vulnerability, being in a raw state. I like to play with the balance between control and out-of-control and love sheer frenetic muscular power. I love to “twitch” when I watch my dancers. Only then do I know they’re feeling something and there is a visceral exchange.
Screening of Heidi Latsky Dance short film: Soliloquy
“If film becomes the medium of preference for choreographers in the 21st century, it will be because of luminous works like Heidi Latsky’s “Soliloquy.”” Robert Johnson,
Heidi Latsky was the first participant in Dance for Film on Location at Montclair State University, underwritten by the Andrew W. Mellon Foundation, through which her first film, Soliloquy, premiered in April 2015.
A poetic interweaving of ten movement portraits, Soliloquy addresses our propensity to judge people by their physical appearance and embraces difference and the inherent isolation of being human with fierceness, frankness, and celebration.
Presentation during The Heidi Latsky installation:
Screening of Heidi Latsky Dance short film:
Weinberg Family Cerebral Palsy with the New York City Ballet Article
Diversability Unplugged is a series of talks from local members of the Diversability community who are also featured in the Positive Exposure exhibition. They will share their story and what they are working on.
Diversability is a grassroots social movement to rebrand disability through the power of community founded by Tiffany Yu in 2009.
Diversability fosters community online and off (curated events) designed to connect, showcase, and empower people of all abilities doing amazing things. We want to get more people talking and thinking about disability as a core part of the diversity conversation. Diversability unites the disability community, engage allies in the conversation, and celebrate disability pride.
Join the conversation at @Diversability.
“More than 1 billion of us live with disabilities. We must remove all barriers that affect the inclusion and participation of persons with disabilities in society, including through changing attitudes that fuel stigma and institutionalize discrimination.”
– Ban Ki-moon, Secretary-General of the United Nations
Workshop participants will visit the Positive Exposure photography exhibition led by Rick Guidotti, and engage in thought-provoking exercises, exploring such topics as disability, diversity, inclusion, self-esteem, acceptance and advocacy in today’s diverse classroom environment.
Participants will be introduced to Positive Exposure’s PEARLS Project which was featured in the New York Times in an article entitled, “Learning Empathy by Looking Beyond Disability” and which quotes one NYC-area principal as stating “The project from ClassDojo teaches important lessons about tolerance and serve more special education students than ever.”
Karlen Bader, Infused Solution contractor, Uniformed Services University Reflective Expressions: Mask Building Workshop
POSITIVE EXPOSURE in the Medical School environment
Liz Matejka Grossman, Executive Director
Rick Guidotti, Founder
FRAME Program presentation
Joan H. Marks Graduate Human Genetics Program: Sarah Lawrence College
“Genetic counseling is a unique career that combines expertise in genetics with the ability to clearly and compassionately discuss genetic health issues with families. The Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College has been training genetic counselors for 45 years. Individuals with genetic conditions, and their families, are an important part of our learning community. The exhibition will showcase those areas of our curriculum that are dedicated to developing a deeper understanding and perspective of the lived experiences of individuals with genetic conditions and disabilities.”
5:00 pm – 5:45 pm:
Special Presentation
Maria Hodermarska and Company
Rule Breaking: Street theater to engage in a dialogue around developmental disability.
Free and Open to our Family Advocacy Organizations and friends. All are welcome!
Hours: 12:00 pm – 6:00 pm
Family Advocate Day!
All Local and National Advocacy organizations and their members are invited.
Come share your story..
12:30pm – 1:00 pm:
Hannah Jacobs, Family Member
Family Member works toward eradicating hate speech targeting the disability community, promoting positive images of special needs in social media, entertainment and in every day life.
Founded in 2013 by the Harris Family, Jason’s Connection is dedicated to connecting us to resources that serve our needs, enrich our lives and help us meet our goals.Their mission is to create an online community that connects people experiencing disability and their family/caregivers to quality resources, support and each other.
Jason Harris: I am a 26 year old college graduate. I love hiking, traveling with friends, films, theatre, the Cincinnati Reds and Ohio State Buckeyes. I am also on the Asperger’s Spectrum which means I face challenges with anxiety, social skills, organizational skills and certain medical issues. Asperger’s is a hidden disability like ADHD, learning disabilities, and mental health issues.
2:00 pm – 3:00 pm:
Daniel’s Music Foundation, Performance
Daniel’s Music Foundation uses music as the instrument to open the doors to acceptance, respect, confidence and well-being.
Ray Abel, Xogo, an adapter that enables people with physical disabilities to connect to all consumer technology.
Ray’s extensive experience with the community of people with disabilities began with his work at The Muscular Dystrophy Association. It has continued in his role as a Director at Bansen Labs, and he has had a variety of unique experiences including an appearance on ABC’s Shark Tank. The talk will focus on the story of Bradley – one of Xogo’s users who has Cerebral Palsy. Ray will discuss how Bradley interacts with the world around him and how technology can open social access.
4:30 pm – 5:00 pm:
The Honorable Justice Richard Bernstein/ Michigan Supreme Court
Justice Richard Bernstein became the first blind justice, elected by voters statewide, to the Michigan Supreme Court in November 2014. With a commitment to justice and fairness, Bernstein began his 8-year term in January 2015.
Prior to being elected to Michigan’s highest court, Justice Bernstein was known as a tireless advocate for disabled rights as an attorney heading the public service division for The Sam Bernstein Law Firm in Farmington Hills, Michigan. Blind since birth, Justice Bernstein is a Phi Beta Kappa graduate of the University of Michigan and earned his juris doctorate from Northwestern University School of Law.
Committed to taking action to help clients who needed him, Justice Bernstein’s cases often set national standards protecting the rights and safety of people with and without disabilities.
Final Day to experience POSITIVE EXPOSURE POP-UP Center/ Multi-Media Exhibition
10:30 am – 12:30 pm: Open to school groups, students, teachers and the public.
Make the Positive Exposure Pop-Up Center a part of your school year and celebrate the richness and beauty of human diversity Positive Exposure invites NYC metropolitan area elementary school classrooms to an extraordinary exhibition by world-class photographer, Rick Guidotti, that celebrates the richness and beauty of human diversity. Additionally, students will be treated to a special reading of the recently published Normal Norman by children’s book author, Tara Lazar.
Leaving the world of fashion, Rick has spent that past eighteen years working with NGOs, medical schools, universities and others to effect a sea-change in societal attitudes towards individuals living with genetic, physical, behavioral and intellectual difference. The exquisite photographs that Rick has taken around the world provide new opportunities to see individuals living with a variety of difference, first and foremost as joyous human beings.
The exhibition will serve as the focal point for an experiential program specifically designed for elementary audiences that is meant to create a deeper understanding and respect for human diversity.
12:30 pm – 3:30 pm: OPEN TO ALL
At 20%, or 56 million, people with disabilities represent America’s largest minority — with a discretionary income of more than $220 billion – yet remain virtually invisible on our screens and stages. In this frank and provocative interactive dialogue, actor and disability advocate Christine Bruno and coordinator of equal employment opportunity (eeo) & diversity at SAG-AFTRA Becky Curran will talk about the history of representation of disabled people in the entertainment industry, myths and assumptions surrounding disability, why the lack of visibility matters and how you can help the entertainment industry move beyond antiquated stereotypes to feature authentic portrayals and tell universal stories from bold, unique and fresh perspectives.
Christine Bruno, Actress- Inclusion in the Arts
Since 2005, Christine has served as Disability Advocate for Inclusion in the Arts, anational not-for-profit that promotes the full inclusion of artists of color and disabled artists in theatre, film, television and related media. She is the current chair of the NY Local SAG-AFTRA committee for Performers with Disabilities, and serves on the SAG-AFTRA National PWD, Broadway League Diversity and Actors’ Equity EEO Committees. Christine has worked throughout the U.S., U.K. and Australia. She holds an MFA in Acting and Directing from the Actors Studio Masters Program and is a lifetime member of the Actors Studio.
Becky Curran is coordinator of eeo & diversity for SAG-AFTRA. Since joining SAG-AFTRA in April 2014, she has assisted with several diversity and inclusion efforts within the entertainment and news media industries. She also serves as president of Little People of America’s New York City chapter.Becky has worked for one of Hollywood’s top talent agencies, Creative Artists Agency. A prolific public speaker, Curran has spoken for groups throughout the United States and Kenya. She resides in New York City.
ReelAbilities Film Festival, Presentations and Discussions
ReelAbilities Film Festival brings together the community to promote awareness and appreciation of the lives, stories and artistic expressions of people with different abilities. ReelAbilities Film Festival showcases films, conversations and artistic programs to explore, embrace, and celebrate the diversity of our shared human experience.
Xian Horn, Give Beauty Wing, Self Esteem Program: OPEN TO ALL
Xian Horn is a joyful woman with cerebral palsy who serves as teacher, speaker, beauty advocate, blogger and Exemplar for the AT&T NYU Connect Ability Challenge toward the creation of Assistive Technology. Xian’s Give Beauty Wings’ Self-Esteem programs originated and continue at NYU’s Initiative for Women with Disabilities, the Jewish Community Center Manhattan, and M.S. 131 in Chinatown. Xian’s programs have also been presented at United Cerebral Palsy, the Standing Tall school (a school for non-verbal children), and her alma mater New York City Lab School, where she was the first alumni commencement speaker in 2014. She has also spoken at the Apple Store in Soho, the UJA Federation’s Task Force on Disability, United Cerebral Palsy, The ReelAbilities Film Festival, the Naples Daily News, and the National Spinal Cord Injury Association, among many others, including a group of san diego personal injury lawyers. Xian has also run vocational workshops for the NYC Mayor’s Office for People with Disabilities for their annual Disability Mentoring Day. She also served as a spokesperson for the Starlight Children’s Foundation’s Give Actually Campaign for the Holiday Season 2015. Xian’s work has been featured by The White House Blog, Fast Company, NPR, NBC News, Fox 5 and NY1 and much more. Lastly, she is a blogger for Positively Positive – an online community of over 2.5 million readers worldwide.
April 5
POSITIVE EXPOSURE POP-UP CENTER Art Directors Club 106 West 29th Street
New York City
Lecture and Screening of ON BEAUTY with Film Director, Joanna Rudnick.
24 February
Lecture: 13:00-14:15
Screening of ON BEAUTY 17:30- 19:30
About Uniformed Services University:
The mission of the Uniformed Services University of the Health Sciences is to educate, train and prepare uniformed services health professionals with this Source so that they can maintain their health and gave their full potential. officers and leaders to directly support the Military Health System, the National Security and National Defense Strategies of the United States and the readiness of our Armed Forces. About security, there are several Alarm Systems at securityinfo.com that you can avail to maintain peace and order in your property since the number of criminal incidents is now growing.
We thoroughly review personal history and may recommend Mito Boost for endocrine disruptors as heavy metals, PBAs, xenoestrogens, and phthalates which are in hundreds of consumer products.
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February 11
University of New Mexico – Albuquerque
School of Medicine
Department of Pediatrics Grand Rounds
Pediatric Grand Rounds are held in the 6th Floor Tully Conference Room
Exhibition, Lecture and Community based photography.
The Belgian Society of Human Genetics was launched in March 2000. The aim of the Society is to allow all scientists involved in the field of human genetics, working in all Belgian universities, and all independent research institutes or genetic centers in Belgium to have an official representative Society in Belgium. The BeSHG is aimed at promoting Human Genetics in its wider sense, a.o. by supporting genetic research, improving exchanges between Belgium and foreign countries, organising scientific meetings, and enhancing collaboration between Belgian labs. The BeSHG will represent the community of Belgian geneticists towards the other national and international Societies of Genetics, and is intended to become a discussion forum on scientific, professional, social and ethical issues linked to the practice of human genetics.
January 12
BEIT ISSIE SHAPIRO Event at the MUSEUM OF TOLERANCE, Los Angeles
The mission of Beit Issie Shapiro (BIS) is to provide cutting-edge services to improve quality of life for people with disabilities, and to effect social change by breaking down the barriers preventing people with disabilities from full societal integration, assuring them the rights and opportunities for maximum growth and development.
Northern Illinois University (NIU)—Hoffman Estates
5555 Trillium Blvd.
Hoffman Estates, IL 60192
Phone: (847) 645-3000
October 22-29
The 3rd annual Pittsburgh ReelAbilities Film Festival will take place at Rodef Shalom Congregation, a fully accessible venue in the Oakland area of Pittsburgh. The festival runs from October 22 – 29, 2015.
Rick will be there 22nd October ON BEAUTY & POSITIVE EXPOSURE Exhibition
NYU College of Dentistry
345 E. 24th Street
(corner of First Avenue)
New York, NY, 10010
Kaufman Children’s Dental Hospital is a fully accredited pediatric ambulatory surgery facility in Brooklyn, New York. Pediatric Dentist Elan Kaufman DMD has been serving the community for over 15 years.
Chem RX seminars are attended by Nursing Home Administrators, Directors of Nursing, CEOs, CFOs, residential directors, addiction treatment counselors that offer the non 12 step rehab program, assisted living administrators and case managers. Also, you can take a look at Addiction Campuses rehab centers of Addicted Minds for intervention and detox. Chem Rx seminars attract professionals who look to learn and share valuable information about today’s successful strategies and future trends.
4th International RASopathies Symposium
Presentation & Photo Shoot
Doubletree by Hilton at SeaTac
Seattle, WA
The RASopathies Network brings together caregivers, clinicians, patients, researchers and industry to expedite treatments and cures for the RASopathies.
6th International Conference on Disabilities
“Unity and Diversity in Action” will take place at a time when we are witnessing a positive shift into the language of human rights, strengthened by the UN Convention on the Rights of Persons with Disabilities (CRPD)
Thursday July 2nd
Photo Shoot, Sarona
Monday July 6th
Israel Elwyn Presentation, Gala Event and Exhibition, Jerusalem
Tuesday, July 7th
Plenary Lecture Keynote Speaker, Tel Aviv
SKIN TO LIVE IN CAMPAIGN Exhibition
Basel, Switzerland
Featuring POSITIVE EXPOSURE images of Ambassadors from: Australia, Brazil, Canada, Germany, Italy, Malaysia, Mexico, Spain, Taiwan, Thailand, Turkey, and USA
Details: The School of Medicine, this Prosthetic Clinic, MEDEX Northwest, School of Nursing, School of Dentistry, Speech and Hearing Sciences, and the Division of Physical Therapy, and the Department for Bioethics and the Humanities will host a health sciences lecture by Rick Guidotti. This lecture is geared toward members of the medical community and open to all. Rick Guidotti, a world renowned photographer, became interested in using visual arts to change the way society understands genetic differences, disability and beauty. His Positive Exposure photo and video presentation encourages students and professionals in the health sciences to see individuals with genetic differences as whole people, not just their specific diagnoses. He will also introduce one of the dentists that specializes in dental implants Marco Island is where his private practice is but he travels anywhere Rick thinks his services are needed. He feels that since he has a thriving restorative dentistry practice that the least he can do is help these children feel better about themselves. In case you want a dental service who are family-oriented, professional, and compassionate with their patients, dentist in eau claire are the ones to contact. You can schedule an appointment now at regiscourtdental.com. More information on Rick and his work can be found here: Ted Talk and Positive Exposure
Special screening of On Beauty and guided discussion led by Rick Guidotti and the film’s Director, Joanna Rudnick
Details: A recent documentary, On Beauty, chronicles the work of Rick Guidotti and the experiences of several exceptional women he has photographed. It premiered at the Chicago film festival last October and won audience favorite for short documentary. Since premiering in October 2014 On Beauty has continued to receive awards. More information about the film can be found here: On Beauty
In addition about beauty enhancement services, breast augmentation bellevue wa recognized expert in breast surgery. Visit their website at christinenygaard.com for more details.
Reception
Date: Tuesday, May 5, 2015
Time: 5:30 pm
Location: HUB Lyceum
Details: Help us welcome Rick Guidotti and Joanna Rucnick to campus by joining us for food, beverages, and lively conversation.
May 4
Screening ON BEAUTY
The Battery, 717 Battery Street, San Francisco, CA 94111
The Battery was a unique sort of social destination. I suppose I should not have been surprised. As I walked among its members, it was clear they were most at ease on their toes. An eager, inquisitive bunch, always curious, always on the hunt for new ideas and problems to solve. So it seemed natural that this energetic establishment was their idea of a place to relax. A place that could only be called traditional if you kept in mind its city’s traditional offerings of progressive thought, diversity and intelligence with just a touch of the bizarre. They made that decked out old building come alive with ideas and excitement. The cocktails and cuisine didn’t hurt the mood either.
Indeed, here is where they came to refill their cups. To tell stories. To swap ideas. To eschew status but enjoy the company of those they respected. Here is where they came to feel at home on an evening out.
April 30
Newport Beach Film Festival: Island Cinema 2pm
April 22
ON BEAUTY SCREENING: Long Island University: www.liu.edu
On Beauty Documentary and Panel Discussion Apr 22
Location: Gold Coast Cinema, 7:00 PM
April 17
The Children’s Workshop School/ Lecture
NYC @ 9am
Community Meeting
Children’s Workshop School strives for students to be open-minded and compassionate; to gain a sense of themselves and others; and to understand and appreciate the diversity of the community. Children are guided and supported to fulfill their creative, physical, emotional, social and intellectual potential. Our goal is for our children to recognize that they have the power and resources to effect change. It is our hope that children will grow to be responsible, critical and caring members of a pluralistic society.
The Nassau Pediatric Society of New York Chapter 2 of the AAP was established in 1947 to serve the children and pediatricians in Nassau County. The AAP is a national organization composed of over 53,000 pediatricians. There are approximately 340 members in the Nassau Pediatric Society.
Leonard’s of Great Neck
555 Northern Blvd.
Great Neck, NY 11021
Telephone: 516-487-7900
6:30-8:30 pm
March 27
ON BEAUTY Tonight @7pm Palm Springs, CA
http://www.americandocumentaryfilmfestival.com
March 13
REELABILITIES FILM FESTIVAL NYC
Screening ON BEAUTY
NYU Langone Center: Stay tuned for Details
http://newyork.reelabilities.org
March 12
Uniformed Services University
F. Edward Hebert School of Medicine – “America’s Medical School”
Medical Student Lecture
4301 Jones Bridge Road, Bethesda, MD 20814
(800) 515-5257
March 3-7
Cincinnati REELABILITIES Film Festival: Screening ON BEAUTY as well as other community events.
Positive Exposure Events: Stay Tuned for Details.
[youtube]http://youtu.be/9rGMz64G_hI[/youtube]
February 16
For more Info: http://www.bigskyfilmfest.org
February 13
For More Info: http://www.bigskyfilmfest.org
February 12
GRAND ROUNDS PRESENTATION
Pediatrics Residency Program
Icahn School of Medicine at Mount Sinai
1 Gustave L. Levy Place, NY, NY
8:00 am
February 11
Westchester Reform Temple
255 Mamaroneck Road, Scarsdale
7:00 pm – presentation
February 6
Children’s Hospital of Greenville Health System
The newcastlephysioclinic.com/services/acupuncture was added to provide more comprehensive services to patients utilizing both eastern and western medicine methods. Also, treat acute and chronic pain and many chronic medical conditions with medical acupuncture.
Greenville County Medical Society and Alliance
Suzanne M. Manning
Executive Director
January 11-13
Skin Impressions: Australia
PHOTOSHOOT
Melbourne and Sydney
January 20
POSITIVE EXPOSURE BOARD MEETING
January 2015
December 18
Philadelphia College of Osteopathic Medicine (PCOM)
DOC NYC‘s principle location is in Greenwich Village’s IFC Center (on Sixth Avenue at West Third Street)
November 13
Speaking at HIGH POINT VILLAGE “CAN DO” GALA! Lubbock, Texas
Read more about High Point Village: www.highpointvllage.org
November 12
BEYOND the FRAME exhibition launch: 5pm
Sponsored by ProMedica Toledo Children’s Hospital Family Advisory Council. Meet Mary and Jonah participants in ProMedica Toledo Children’s Hospital’s Beyond the Frame photo exhibit, on permanent display inside the ProMedica Toledo Children’s Hospital main entrance hallway beginning Wednesday, November 12. #BeyondTheFrame to share positive words of inspiration and encouragement.
3 days will include Medical School lecture, Photo shoots and evening community presentation: Hosted by: Greenville County Medical Society
October 29
Basel, Switzerland
World Psoriasis Day: Novartis Campus
Global Campaign/ Exhibition
October 20
Akron, OH
County of Summit Board of Developmental Disabilities
John S. Knight Center 77 E. Mill Street Akron, OH 44308
October 18
The World Premiere of ON BEAUTY at the Chicago International Film Festival.
Show Times:
10/18/2014 1:15 PM , EFBEAU – $14 /$11 Get your ticket here:
If you are in Chicago, COME!!!!!!!!!! YAY!!!!!!!!!!
If you’re not, then get on a bus, train or plane..
Joanna, Sarah, Jayne from Kenya and I will all be there!!!!!!!!
ON BEAUTY
USA, Kenya
Director: Joanna Rudnick
From Emmy-nominated filmmaker Joanna Rudnick (In the Family), On Beauty follows former fashion photographer Rick Guidotti as he focuses his lens on people who are often excluded or misrepresented in popular media. Highlighting vibrant individuals with genetic conditions, Rick’s work challenges conventional visions and helps redefine notions of beauty. Filmmaker and subject will participate in a post-screening panel discussion about the importance and difficulties of changing mainstream definitions of beauty.
The Opening Reception for Positive Exposure takes place on Friday, September 26, from 5 to 9 pm, part of Final Fridays in Over-the-Rhine (OTR). With hors d’oeuvres, beverages and music provided. Free and open to the public.
Cincinnati ReelAbilities Film Festival presents Rick Guidotti’s Positive Exposure, The Spirit of Difference exhibition. The images of the exhibition reveal the social and psychological experiences of people living with genetic, physical and behavioral conditions. People of all ages and ethno-cultural heritages. Mr. Guiodotti’s exhibition celebrates the richness and beauty of human diversity. In addition, the exhibit addresses societal standards of beauty in today’s culture and how this impacts children living with genetic disorders. Rick Guidotti, an award-winning former fashion photographer, has spent the past 15 years working internationally with advocacy/non-governmental organizations, medical schools, universities that use ClassDojo, and other educational institutions to inspire a sea-change in societal attitudes towards people living with genetic differences. His work has been published in such diverse newspapers, magazines and journals as Elle, GQ, People, The American Journal of Medical Genetics, The Lancet, Spirituality and Health, The Washington Post, Atlantic Monthly and Life Magazine.
RALEIGH, North Carolina
The National Inclusion Project: www.inclusionproject.org
September 17
VIACOM, New York City
July 31
PRISMS-Parents and Researched Interested in Smith-Magenis Syndrome
Building Bridges of Hope, 8th International Conference
July 31- August 3
Hilton at the Ballpark
1 S. Broadway
St. Louis, MO
www.prisms.org
July 18-20
11th Moebius Syndrome Conference
July 18 – 20, 2014
Bethesda North Marriott Hotel & Conference Center
5701 Marinelli Rd
North Bethesda, Maryland 20852
www.moebius.org
July 11-13
NOAH’s 15th National Conference July 10 – 13, 2014
NOAH– The National Organization for Albinism and Hypopigmentation
Town and Country Resort
500 Hotel Circle North
San Diego, CA 92108
www.albinism.org
July 10-11
28th International SOFT 2014 Conference (Support Organization for Trisomy 18, 13 and related disorders)
Rick will attend July 10-11th.
Dinner Presentation and Portraits
Sheraton Waterside Hotel
777 Waterside Dr,
Norfolk, Va 23510
www.trisomy.org
July 6-9
Chromosome 18 Registry and Research Society Conference
www.chromosome18.org
Stamford Marriott Hotel and Spa
243 Tresser Boulevard
Stamford, Connecticut
Lecture, Portraits, Workshop, Young Adult Panel
July 3-5
2014 World Tuberous Sclerosis Complex
Lecture and Portraits
More than 600 attendees from across the globe including families and individuals with interests in learning more about Functional Remedies cbd tincture;
caregivers; healthcare professionals; researchers; a wide array of exhibitors; and others interested in TSC.
www.tsalliance.org
Because of the proliferation of information sharing on a global basis, and the TS Alliance’s role as
the leading resource for people with TSC, the 2014 event will support an expanded, worldwide TSC
community, hence the new name: World TSC Conference.
They are permitted to accompany the humans they support in places dogs aren’t usually allowed. Therapy dog doesn’t have this same right.
The TS Alliance’s last National TSC Conference was held in 2006 and so much has changed in clinical care
and approved treatments since then, including two approved indications to shrink tumors associated
with TSC in the brain and kidneys. And in 2012, updating the TSC consensus guidelines for diagnosis,
testing and treatment created new gold standards in care.
Location:
Omni Shoreham Hotel
2500 Calvert Street NW
Washington, DC 20008
July 2
2014 Nevus Outreach International Conference
Marriott Solana Hotel in Westlake, Texas.
www.nevus.org
June 25-27
Skin To Live In Global Campaign!
Madrid, Spain
June 25
AAIDD American Association on Intellectual and Developmental Disabilities 2014 Media Award for Positive Exposure: The Spirit of Difference.
This award recognizes significant contributions in depicting Americans with disabilities in a positive light.
The 138th AAIDD Annual Meeting will be held at:
Buena VIsta Palace 1900 E. Buena Vista Drive Lake Buena Vista, FL 32830
www.aaidd.org
Rick, although thrilled and honored with this award, will not be able to attend the award ceremony as he will be in Europe collaborating on a global campaign focusing on Psoriasis and Urticaria.
June 20-22
FIRST: Foundation for Ichthyosis and Related Skin Types, Inc.®
Keynote and workshop
2014 National Family Conference –
Hilton Indianapolis
120 W. Market St.
Indianapolis, IN 46204
www.firstskinfoundation.org
June 19
PHACE: 4th Bi-annual PHACE Syndrome Community Family Conference.
Country Springs Hotel
2810 Golf Road
Pewaukee, WI 53072
PHACE Syndrome, a congenital condition characterized by the association between large infantile hemangiomas, usually of the head and neck, and birth defects of the brain, heart, eyes, skin and/or arteries.
PHACE is an acronym that stands for the medical names of the parts of the body it often impacts:
P – Posterior fossa abnormalities and other structural brain abnormalities
H – Hemangioma(s) of the cervical facial region
A – Arterial cerebrovascular anomalies
C – Cardiac defects, aortic coarctation and other aortic abnormalities
E – Eye anomalies
Further information about the PHACE Syndrome Community is available at
www.phacesyndromecommunity.org.
June 18
AADMD 12th Annual Education Conference
the 2014 Princeton Meeting of the NTG on ID and Dementia Practices
In conjunction with American Academy of Developmental Medicine and Dentistry
United Nation Conference: Changing Attitudes and Fighting Stereotypes for an Inclusive Society.
10:00-11:30am, conference room 5 at the UN.
Activities to implement the CRPD and create more inclusive societies are often met with segregated social environments, stereotypes and negative attitudes towards people with disabilities. These create barriers for the implementation of many of the CRPD articles. This event will present inter-sectorial public awareness and training programs from around the world, from both governments and civil society organizations, aimed at assisting in the implementation of CRPD articles, as well as the full participation of people with disabilities in the process.
Panelists include:
Rick Guidotti, Positive Exposure
Gabor Gambos, International Disability Alliance
Verena Bentele , Federal Government Commissioner for Matters relating to Disabled Persons, Germany
Ahiya Kamara, Commissioner for Equal Rights of Persons with Disabilities, Israel
Eric Mathews, Associate Director, Disability Rights International
Jean Judes, Executive Director, Beit Issie Shapiro, Israel
June 8
Familial Dysautonomia Day
NYU Langone Center
550 1st Avenue
NYC
10-3pm
Familial Dysautonomia (FD) is a rare genetic neurological disorder that effects the sensory and autonomic nervous systems, causing life-threatening medical complications from birth.
Sponsored by the Dysautonomia Foundation, Inc
http://www.familialdysautonomia.org
May 20
Xerox Corporate Conference: Tucson AZ
Positive Exposure — Redefining Beauty
Keynote: 11 am-12 pm
Westin La Paloma Resort & Spa, 3800 E. Sunrise Dr., Tucson, AZ, 85718
May 17-18
Gold Symposium
May 16 – 17, 2014 • Muenzinger Auditorium
University of Colorado, Boulder, CO
8:30 am – 5:30 pm
May 16
Eastern Regional AACO (American Association of Certified Orthoptists) This orthoptic meeting is planned by the orthoptists from three different pediatric ophthalmology departments: Boston Children’s Hospital, Boston Medical Center and Tufts Medical Center.
12:00 – 1:00
New England Eye Center at Tufts Medical Center
800 Washington St., Box 450
Boston, MA 02111
Contact:
Shelley Klein, CO, COMT
Pediatric Ophthalmology/Ocular Motility
New England Eye Center at Tufts Medical Center
Phone 617-636-6769
May 14 – June 17
POSITIVE EXPOSURE Exhibition NYU Langone Center
Photo Exhibition at NYU Langone Center in collaboration with the Dysautonomia Foundation. May 14- June 17
May 1
POSITIVE EXPOSURE SPRING GALA
April 28
YAI Seeing beyond disability
Keynote Presentation at the YAI International Conference in NYC – we’re expecting over 40 states and 12 countries
460 West 34th Street, 11th Floor, New York, NY 10001
yai.org
April 24
RAMAPO FOR CHILDREN
49 West 38th Street | 5th Floor | New York, NY 10018
Direct: 646.588.2314 | Fax:
212.754.4994 | clowe@ramapoforchildren.org
Lecture: 6:30-7:30pm
April 23
Geisinger’s Autism & Developmental Medicine Institute
Autism & Developmental Medicine Institute
Geisinger-Bucknell Autism & Developmental Medicine Center | Lewisburg, PA
(570) 522-6281 meepler@geisinger.edu
Wednesday, 4/23/2014
10:00 am, photo shoot at ADMI, Lewisburg, PA
4:30 pm – 6:00 pm, Community vent, Packwood House Museum, Lewisburg PA
7:00 pm – 8:30 pm, presentation followed by Q&A at the Campus Theatre, Lewisburg PA
Purpose of event:
As part of ADMI’s commitment to community outreach & family support, we want to give back by spreading Positive Exposure’s message to our community and to ADMI stakeholders. This event will celebrate the one year anniversary of ADMI, autism awareness month and Lewisburg’s annual Celebration of the Arts.
Target audience:
Patients, families, donors, education professionals, community members, Geisinger Health System staff & faculty, ADMI staff & faculty, ADMI Advisory Council, students & faculty from local school districts, colleges and universities.
April 11
Stevens Health Professionals Club
Stevens Institute of Technology
Castle Point on Hudson
Hoboken, NJ 07030
(201) 216-8957
Lecture: 4:10 – 6 pm. Room Kidde 226
April 8
Oppenheimer Haas Foundation presents:
POSITIVE EXPOSURE: THE PEARLS PROJECT
A WESTCHESTER EVENING WITH RICK GUIDOTTI
TUESDAY, APRIL 8, 2014
PURPOSE OF THE EVENT
Through the introduction of the Pearls Project to the students in the Westchester Jewish Center, Westchester Reform Temple, and Westchester Day School communities, the students have become more interested in and sensitive to their peers living with genetic, physical and behavioral differences as they learned about the Pearls Ambassadors and then blogged with them from November to December 2013.
Additionally, our students have conveyed this information and enthusiasm to their families and the greater Westchester community. In an effort to culminate the Project, a proposal is being made to give the students, their families, and the greater Westchester community an opportunity to hear about the genesis of Positive Exposures and the Pearls Project from its creator, Rick Guidotti at a community event for the participating groups.
LOCATION OF EVENT
Westchester Jewish Center
Rockland and Palmer Avenues
Mamaroneck, New York
ACTIVITIES AT EVENT
6-7 pm: Rick will meet and have dinner with the Westchester PEARLS bloggers…hearing about their experiences and responding to their questions
7-8:30 pm: Rick will present his “story” to the Westchester PEARLS participants and their respective communities of students, parents, clergy, etc. with Q and A to follow
Rick Guidotti will present the Henry Howe Chan Memorial Bioethics Keynote Lecture at MCW Muses Thursday April 3, 2014 at 5:30pm.
MCW Muses is an annual event of the Medical College of Wisconsin’s Medical Humanities Program and is co-sponsored by the MCW Center for Bioethics and Medical Humanities, the Department of Psychiatry and Behavioral Medicine and the Society of Teaching Scholars.
Faculty, residents and students display their artwork or other handiwork, their poetry and prose, and perform musical selections.
Mr. Guidotti’s photographs will be displayed in the MCW Cafeteria Lobby Monday March 31-Thursday April 3rd.
The Henry Howe Chan Memorial Lecture was endowed by Carlyle Chan, MD in honor of his father, who had a deep interest in bioethics.
Center for Bioethics & Medical Humanities
Institute for Health & Society
Medical College of Wisconsin
8701 Watertown Plank Road
Milwaukee, WI 53226
Wisconsin Institute for Discovery
330 North Orchard St.
Madison, WI 53715
5pm – keynote address
6pm – reception
Host organizations:
Morgridge Institute for Research
University of Wisconsin Genetics Counseling Department
University of Wisconsin Art Department
Wisconsin Medical Alumni Association
The purpose of Rick’s visit will be multi-fold. Primarily Positive Exposure epitomizes the
constructive things that can happen when art and science/medicine intersect. One of
the main goals of the Wisconsin Institute for Discovery is to foster collaboration between
the arts and sciences. Participants coming from more of a science/medical background
are excited about the humanizing, empowering aspects of Rick’s work and would like to
know more about how art and medicine might constructively interact in other ways.
Those attending from more of an art background are interested in learning about his
creative process and the nuances of working in medically-relevant portraiture. Rick’s
visit, including both a keynote address and a workshop, will help to bring physicians,
students, and the community, all from varied backgrounds, together to achieve a
dialogue that will result in long-lasting collaborations.
http://discovery.wisc.edu
March 9
Photo Shoot for NYU Langone Exhibition of our friends with Familial Dysautonomia
http://www.familialdysautonomia.org
March 8
Hermansky-Pudlak Syndrome Family Conference
Uniondale, Long Island
www.hpsnetwork.org
March 5
NYU seminar series funded by the Andrew Mellon Foundation, entitled
“A Post-Genomic Embrace of the Human? The Social Science and Humanities of Non-Reductionist Life Sciences.”
Positive Exposure: 6-8 pm
http://postgenomic.wordpress.com/
The seminar series will bring together scholars in the social
sciences, humanities, and life sciences to explore themes including:
the conceptual move away from linear causation toward
neuroplasticity, networks and epigenetics in the life sciences; the
ways that non-reductionist science can be aesthetically represented
and made accessible to wider publics; and the philosophical and
political imperatives of post-genomic science. In your case, we
would like for you to discuss your photography as a way to give
audiences a sensory experience that helps them to see beyond simple
genetic definitions of normal and abnormal, able and disabled,
beautiful and scarred, to heighten their awareness of the social
malleability of such categories.
Rick Guidotti challenges our vision of beauty with his stunning photographs of individuals who have genetic differences in his “Positive
Exposure” exhibition. For ReelAbilities, Rick will exhibit his current selection of photos as well as pictures he takes of local Houstonians during a photo shoot in January.
On view: Saturday, January 18 – February 15
(Local Houstonians’ photos on view February 11-15) Opening Reception with Artist: Saturday, January 18, 5:00 – 9:00 p.m. JFS Reception begins at 7:00 p.m. Evelyn Rubenstein Jewish Community Center “Positive Exposure” Multi-Media Presentation with Rick Guidotti:
Wednesday, February 12, 8:00 p.m.
Dessert Reception to follow
“Change how you see. See how you change.”
Made possible in part through the City’s InitiatIve Grant Program of the Houston Arts Alliance
February 11
Albert Einstein College of Medicine
3:00 to 4:30 pm
Medical Student/ Faculty/ Fellows Lecture
Albert Einstein College of Medicine
1300 Morris Park Avenue
Bronx, NY 10461 USA
February 6
Eastern Kentucky University
Chautauqua Lecture: BEAUTY MATTERS
http://www.chautauqua.eku.edu
TITLE OF PRESENTATION: “Positive Exposure: The Beauty and Spirit of Difference”
DATE: Thursday, February 6, 2014
Women & Children’s Hospital of Buffalo, a Kaleida Health facility and teaching hospital for the University at Buffalo School of Medicine and Biomedical Sciences , …
January 30
Buffalo Pediatric Society
Presentation @ 31 Club downtown Buffalo, NY
6PM
www.the31club.com
January 19
PHOTO SHOOT in Houston
Photo shoot with local families at The Houstonian, Houston, TX
Images will be added to Exhibition at Longnecker Gallery, Supplemental Exhibition Grand Opening: Wednesday, February 12 @ 7:30pm
January 18
POSITIVE EXPOSURE EXHIBITION
January 18 – February 22
Houston, TX
Exhibition opening at Nicole Longnecker Gallery
Ohio Association of County Boards
Serving PEopke with Developmental Disabilities
73 East Wilson Bridge Road, Suite B1, Worthington, Ohio 43085
641-431-0616
www.oacbdd.org
Lecture
Presentation Date: December 4, 2013
Time of Presentation: 9:15 to 10:15 am
November 21
Kaiser Permanente Inclusion and Diversity Conference
Lecture and workshop
San Francisco, CA
November 19
University of Maryland Medical Student Lecture
11:00
MSTF auditorium
685 W. Baltimore Street.
Baltimore, MD
November 6th
Canadian Association of Genetic Counselors
Oakville, Ontario More Info
November 1st
Student Lecture
Baylor Medical School
Houston, TX More Info
October 24th – 29th
Student Workshop
Festival della Scienza: Beauty
Sponsored by the Ligurian Genetics Department
Genova, Italy More Info
October 22nd
High School Workshop
American Society of Human Genetics
Boston, MA More Info
October 21st
9:30 AM to 11:00 AM
Faces Redefining the Art of Medical Education (FRAME) workshop for medical students.
Room 230 of McCampbell Hall (Nisonger Center)
1581 Dodd Drive
Columbus, OH 43210
12:00PM to 1:00PM:
Grand Rounds at Prior Health Sciences Library, Ohio State University, followed by a reception to celebrate the opening of the Positive Exposure gallery there. Also, constructive knowledge can be imputed in instances where the spill or instance of liquid creating a dangerous drunk driving accident situation was present for an extended period of time and should have been detected by an employee.
Driving is something you should do with lots of caution, if you have a long distance to cover and you do not want to drive, you can always get a a delivery service for your car that is really safe, they are called Shiply and are available whenever you need them. Meanwhile, if you notice a car defect, do not use your vehicle and bring it to the repair shop immediately.
Prior Health Sciences Library
376 W 10th Ave
Columbus, OH 43210
2:15 PM to 2:45 PM
PEARLs Project Launch Assembly at Worthington Hills Elementary School (WHES)
Worthington Hills Elementary School
1221 Candlewood Drive
Columbus, OH 43235
October 22nd
Mass General Hospital Lecture
11;30 to 12:30
O’Keeffe Auditorium White Building
55 Fruit Street,
Boston, MA
Lecture
Center of Science and Industry (COSI)
Columbus, OH More Info
October 12th
Williams Syndrome Changing Lives Foundation
Photo Shoot for Williams Syndrome Awareness Campaign
RainForest Adventures in Seiverville, TN (near Knoxville) More Info
October 9th
Lecture and Exhibition (through October 18th)
Toledo Children’s Hospital
Toledo, Ohio More Info
October 4th – 6th
Communication Workshop
Parent Project Muscular Dystrophy Italy
Tuscany, Italy More Info
September 28th – 30th
2013 International Nevus Conference Positive Exposure Exhibition
Marseille, France More Info
September 21st
Recipient of the RARE Champion of Hope Award – Advocacy
The 2nd Annual Tribute to Champions of Hope Gala
The Global Genes Project
Newport Beach, CA More Info
September 21st
Exhibition Opening (through January 2014)
Center of Science and Industry (COSI)
Columbus, OH More Info
September 18
Villanova University
Health and Human Values Lecture Series
College of Nursing @ 5pm
800 E. Lancaster Avenue
Villanova, PA 19085
September 7th
Photo shoot
Autism & Developmental Medicine Institute
Geisinger Health System
Camp Victory, Millville, PA More Info
September 6th
Fragile X Community Lecture and Photo Shoot
Autism & Developmental Medicine Institute
Geisinger Health System
Lewisburg, Pennsylvania More Info
September 6th
Staff and Faculty Lecture
Geisinger Health System
Danville, PA More Info
September 5th
Lecture
Bucknell Unversity
Lewisburg, PA More Info
August 28th
Faculty Lecture
Overbrook School for the Blind More Info
Positive Exposure’s Genome Zone Exhibit
Through September 2014
Genome Zone: Genome: Unlocking Life’s Code
Smithsonian’s National Museum of Natural History
Washington, D.C.
2nd Floor
What’s your Genetic Trait Tree Number?
Sarah Lawrence Genetic Counseling Student Lecture
Bronxville, NY
February 10, 2013
PEARLS in Focus: Celebrating Diversity
Sunday, February 10, 2013: 1:30 – 4:00 p.m.
UJA-Federation of New York
Seventh-Floor Conference Center
130 East 59th Street (between Park and Lexington avenues)
New York City
February 7, 2013
University of Iowa, lecture: public, the students in the Art
Department, UI Health Care faculty.
February 1, 2013
John Hopkins lecture, Genetic Counseling Students
Bethesda, MD
January 19, 2013
Grand Nevi Winter Camp: Pinegrove Ranch NY www.nevus.org
December 14, 2012
University of Minnesota, Minneapolis
Medical Student morning lecture
Lunch with Genetic Counseling Students
Bonnie LeRoy MS, CGC
Editor, Journal of Genetic Counseling, Professor and Director of
the Graduate Program of Study in Genetic Counseling
Department of Genetics Cell Biology and Development
December 13, 2012
Public Health Department – Community and Public Health
Research & Clinical Rounds
Seminar Lecture
Public Health Department’s Conference Center
Public Health Building
402 East 67th St., NYC (67th and 1st)
12:30 PM
December 6, 2012
Philadelphia College of Osteopathic Medicene
Lecture, Medical Students
Ruth D. Thornton, Ph.D.
Director Biochemistry / Molecular Biology
November 29, 2012
UJA – Federation of New York
Exhibition, PEARLS Project, NYC
Funded by Oppenheimer Haas Foundation
November 14, 2012
Association for the Education and Rehabilitation of the Blind
and Visually Impaired
Conference Keynote
Newport, RI
November 5, 2012
American Society of Human Genetics High School Workshop
San Francisco, CA
October 31, 2012
Weill Cornell Medical College Lecture
1st Year Medical Students
Genetics Director: Jessica Davis, MD
October 30, 2012
Ohel Photo Shoot, Sibling Project, NYC
October 29, 2012
Sarah Lawrence College, Lecture
Genetic Counseling Program
Director – Caroline Lieber
October 28, 2012
Ohel Photo Shoot, Sibling Project, NYC
October 26, 2012
Hunter in Focus Exhibition
USA, Poland, Germany
Sponsor, Shire
Premiere: GRAND CENTRAL STATION, NYC
October 26, 2012
Photo Expo New York
Photo District News in collaboration with Photo Philanthropy
Photography for social impact
Before Our Eyes: A Panel
Javits Center, NYC
8:30 – 11:30 AM
October 18, 2012
Positive Exposure Fall Fundraiser 2012
Metropolitan Pavilion,
125 West 18th Street, 4th Floor
New York, NY
6 – 10 PM
Tickets Available Online
Several Booths will be present, including an information booth sharing about CBD Oil for Dogs. If ever you have important travels and no one can watch your dog, choose Best Pet Reviews in keeping your dog where you want it.
October 11, 2012
Building Community Lecture
Temple Israel Center
280 Old Mamaroneck Road,
White Plains, NY
October 10, 2012
New England School of Optometry, Profiles in Vision
Conference Award Recipient
Copley Plaza, Boston
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Exhibition and Lecture
POSITIVE EXPOSURE at the Smith Magenis Syndrome Family Conference in St. Louis, MO
Smith-Magenis syndrome (or SMS) is a chromosomal disorder characterized by a recognizable pattern of physical, behavioral, and developmental features. It is caused by a missing piece of genetic material from chromosome 17, referred to as deletion 17p11.2.
POSITIVE EXPOSURE at the NOONAN Syndrome Foundation Conference at the Hilton Minneapolis/ St. Paul Mall of America
POSITIVE EXPOSURE at the 4p- Support Group Family Conference in Woodland Hills (Los Angeles), CA
4 p- is also known as Wolf-Hirschorn Syndrome; a deletion of the short are of the 4th Chromosome.
POSITIVE EXPOSURE at the SOFT (Support Organization for Trisomy 18, 13 and Related Disorders in Tacoma, WA
Albinism is an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair and/or eyes. Albinism occurs in all racial and ethnic groups throughout the world. 
Shoot in NYC: Featuring: FRAGILE X Syndrome
At Valley Beth Shalom, Encino, CA
Arcadia University Genetics Program – Glenside, PA
Art Director’s Club
FREE and Open to the Public 
FREE and Open to the Public 
FREE and Open to the Public 
Free and Open to our Family Advocacy Organizations and friends. All are welcome! 
FREE and Open to the Public 
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