Calendar

Featured Events

December 7

First Year Med Student Lecture: Rick

December 3

Come and celebrate the International Day of Persons with Disabilities

MEGD, which is the umbrella organization for 24 member organizations of people with disabilities and chronic diseases, is again celebrating this year’s International Day of Persons with Disabilities. The event will be held in the Nordic House in the Faroe Islands on December the 3rd at 3pm. At the same time this will be the opening of a special photo exhibition.

Information about MEGD: www.megd.fo

The photo exhibition, titled “CHANGE HOW YOU SEE, AND SEE HOW YOU CHANGE”, is a result of the collaboration between MEGD and the renowned and award winning photographer Rick Guidotti, who visited the Faroe Islands in September 2018. The purpose of his visit was to take photos of people who daily live with some kind of challenge. The 31 photos in the exhibition in the Nordic House is a direct result of his visit in September.

The exhibition will hopefully, also through personal stories, create conversations and possible discussions about how we see each other as human beings. And further more, there is a wish to change how people normally, or often, see people living with challenges, who may look different because of disability, illness or other challenges.

Information about MEGD and their work: www.megd.fo

The event is free of charge and everyone is welcome.

Exhibition Premiere: Community based in the Faroe Islands in collaboration with MEGD Organization.

International Day of Persons with Disabilities

Exhibition will premiere at the Nordic House, Faroe Islands

November 9

XP Family Conference: Wichita, KS

Lecture & Photography: Rick

XERODERMA PIGMENTOSUM

Also known as XP, is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.

 

The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family support group strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family grants for UV protective equipment and travel assistance for attending the annual XP national convention.

November 6

SUNY DOWNSTATE MEDICAL SCHOOL

Lecture to 1st Year Medical Students: Rick November 6

November 3

ALD Connect Family Conference

Courtyard Marriott Philadelphia Downtown, 21 N Juniper St, Philadelphia, PA 19107

Lecture and Photography: Rick

What is ALD?

Adrenoleukodystrophy (ALD) is a progressive, genetic disease that affects the adrenal glands, the spinal cord, and the white matter (myelin) of the nervous system. ALD is considered a rare disease, and affects approximately 1 in 15,000 people worldwide.

ALD Connect: Our mission is to improve health outcomes for patients with X-linked adrenoleukodystrophy (ALD) by empowering patients, raising awareness, and accelerating the translation of scientific advances into better clinical care.

November 1

de Young museum: Golden Gate Park \ 50 Hagiwara Tea Garden Drive, San Francisco, CA 94118 \ 415.750.3600

SPECIAL SCREENING: ON BEAUTY with Joanna Rudnick

 

October 26-27

4th Annual DDX3X Family Conference

  • The Science History Institute
    315 Chestnut St, Philadelphia, PA 19106

Keynote and Photography: Rick 

About DDX3X

-Is caused by a spontaneous mutation at conception; nothing either parent did caused their child’s condition
-Primarily affects girls due to its location on the X-chromosome, though there are affected boys
-Was only recently discovered in 2014
-Has only been identified in about 200 individuals, however, doctors believe it is the cause of 1 to 3 percent of all intellectual disabilities in females
-Is often misdiagnosed as autism spectrum disorder, cerebral palsy, Rett Syndrome, Dandy Walker Syndrome, or a generic developmentally delayed label
-Is linked to intellectual disabilities, seizures, autism, low muscle tone, abnormalities of the brain, and slower physical developments
-Has a broad spectrum—some children learn to speak in full sentences while others are nonverbal; some individuals run, jump, and even ski while others are unable to walk

DDX3X Foundation: Our mission is to connect families, resources, and the medical community to advance research for a cure to DDX3X gene mutations.
Our ultimate goal over the coming years is to accelerate brain function in individuals affected by DDX3X through advances in gene therapy and pharmaceuticals.

October 18

Lecture to the Genetic Counseling Graduate Students: Rick

The  Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College.

Integrating education, healthcare, and humanism, this celebrated program prepares genetic counselors to work in a growing, dynamic field.

The mission of the Human Genetics program is to improve health care for all people by educating genetic counselors so they are prepared to meet current and future needs of their clients, their communities, their profession, and society at large.

Established in 1969, the program was the first of its kind in the United States. It remains the largest graduate program in genetic counseling in the world.

October 16

October 16

POSITIVE EXPOSURE’s great friend, Jonathan Hansen, is honoring us on October 16th at his gallery in NYC.
If you’re in town, please come as our guest.
Jonathan writes:
For the final evening at the Ideal Glass Studio on Tuesday October 16th from 6-8pm, I am hosting a private viewing of the Series in honor of POSITIVE EXPOSURE.
Rick and I have been friends for years and the release of my new work became the perfect opportunity for us to explore our mutual interest in the ideas of beauty, freedom, captivity and inclusion.
Hope you can make it…!
x,
Jonathan.
The viewing will take place on Tuesday October 16th from 6-8pm
Ideal Glass Studio
22 East 2nd Street NYC
PLEASE COME AS OUR GUEST:
About Jonathan’s work:
The series of nine works, fabricated from Calacatta marble, industrial resin and mounted on architectonic bronze, transcend categorization, in their blending of vernacular forms of furniture, the permanence of sculpture and topographies of architecture.

October 13, 2018

 

 

ACCESS Ridgewood Fashion Show 2018

October 13, 2018

Kids and young adults of varying abilities and differing abilities model side by side in a fabulously inclusive environment.  Siblings / friends are encouraged to model as well.  Volunteers are always available to escort a model.  It is a wonderful opportunity for our kids to have a fun day and express their amazingly unique selves.  The fashion show is one of the highlights of the ACCESS Ridgewood weekend – a town-wide differing abilities awareness event.

Our models come from all over the Tri-State Area & more!!

 

August 18 – January 11

POSITIVE EXPOSURE Community based exhibition and continuous screening of FRAME Films in collaboration with A Children’s House for the Soul!

 

September 5 – 6, 2018

Gothenburg, Sweden

Ågrenska is a national competence centre and provides programs for children, teenagers and adults with disabilities, their families and professionals supporting the family.

Lecture and Photography: Rick

September 4, 2018

Karolinksa Center for Rare Diseases, Karolinska University Hospital

Stockholm, Sweden

Karolinska Institutet is one of the world’s foremost medical universities. Our vision is to make a significant contribution to the improvement of human health; our mission is to conduct research and education and to interact with the community.

As a university, KI is Sweden’s single largest centre of medical academic research and offers the country’s widest range of medical courses and programmes.

Since 1901 the Nobel Assembly at Karolinska Institutet has selected the Nobel laureates in Physiology or Medicine.

Lecture and Photography: Rick

June 7 – October 15

REDEFINING BEAUTY

Sunshine Plaza Shopping Centre Acc, Maroochydore QLD 4558, Australia

Hosted by Chromosome 18 Registry Australia

Redefining Beauty is a photographic exhibition celebrating the lives of children and adults living with rare genetic conditions including Chromosome 18, Fragile X, Vanishing White Matter Leukodystrophy and Albinisim. These stunning images were captured at various iconic Sunshine Coast locations by internationally renowned Rick Guidotti, founder of Positive Exposure – an innovative nonprofit arts, education, and advocacy organisation.