Calendar

November 2018

November 9

XP Family Conference: Wichita, KS

Lecture & Photography: Rick

XERODERMA PIGMENTOSUM

Also known as XP, is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.

 

The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family support group strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family grants for UV protective equipment and travel assistance for attending the annual XP national convention.

November 6

SUNY DOWNSTATE MEDICAL SCHOOL

Lecture to 1st Year Medical Students: Rick November 6

November 3

ALD Connect Family Conference

Courtyard Marriott Philadelphia Downtown, 21 N Juniper St, Philadelphia, PA 19107

Lecture and Photography: Rick

What is ALD?

Adrenoleukodystrophy (ALD) is a progressive, genetic disease that affects the adrenal glands, the spinal cord, and the white matter (myelin) of the nervous system. ALD is considered a rare disease, and affects approximately 1 in 15,000 people worldwide.

ALD Connect: Our mission is to improve health outcomes for patients with X-linked adrenoleukodystrophy (ALD) by empowering patients, raising awareness, and accelerating the translation of scientific advances into better clinical care.

November 1

de Young museum: Golden Gate Park \ 50 Hagiwara Tea Garden Drive, San Francisco, CA 94118 \ 415.750.3600

SPECIAL SCREENING: ON BEAUTY with Joanna Rudnick