Tuesday May 26 2 pm
Lawyer, advocate for people living with albinism & cancer survivor
Wednesday May 27 2 pm
Textile Artist/ Maker/ Designer/ Disability Advocate/ Educator
Thursday May 28 2 pm
Katie Wright │ Director
The VEDS Movement
Charging forward. Saving lives.
The VEDS Movement is the Foundation’s newest division. Learn about Vascular Ehlers-Danlos Syndrome (VEDS)
Friday May 29 11am
Pediatric Dentist in Belgium and also Department of Pediatric Dentistry at NYU College of Dentistry & Director of Positive Exposure Europe.
With photographer & make-up artist, Joseph Boggess
Saturday May 30 11am
Chromosome 18 Registry and Research Society’s Founder and President Jannine Cody with daughters, Catherine Cody Larson, Child psychiatrist and advocate, Elizabeth Cody.
May 19 to May 22
POSITIVE EXPOSURE Connects
May 19-22, 2020
Tuesday, May 19, 2020
“The Hack-Ability Toolkit”
Open Style Lab
Grace Jun, CEO
Kieran O’Brien Kern, Engagement Manager
Discussing the Hackability Toolkit
Established in 2014, Open Style Lab (OSL) is 501(c)(3) organization dedicated
to creating functional, wearable solutions for people of all abilities without
compromising on style.
The OSL Team will demonstrate The Hack-Ability toolkit created to
empower people with disabilities everywhere to strategize and create their own solutions.
Wednesday, May 20, 2020
Becky Curran Kekula, Disability Rights Activist
Brandon Farbstein, Gen Z Activist
Thursday, May 21, 2020
The Wilhelm Foundation
Founders: Helene and Mikk
(A Swedish nonprofit supporting individuals and families that are undiagnosed around the globe.)
Guests also include POSITIVE EXPOSURE PEARLS Ambassador Freya and Ann Nordgren, MD, PhD, from the Karolinska Institute Stockholm.
Friday, May 22, 2020
Beauty tips with Joseph Boggess (make-up artist), Dawn Gallagher (best-selling author and supermodel) and Xian Horn (beauty activist)
May 6, 2020
VIRTUAL PRESENTATIONS: 9am
Pediatric Grand Rounds at Golisano Children’s Hospital at the University of Rochester and Rochester Regional Hospital.
FRAME Workshop Featuring Cerebral Palsy, Cystic Fibrosis, Fragile X syndrome
On behalf of the pediatric residents at the University of Rochester, the chief residents have invited Rick Guidotti to Rochester as the Richard Ham Memorial Lecturer of 2020. This lectureship was established in memory of Richard Ham, a former pediatric resident at the University of Rochester (1963-1965). Dr. Ham became ill the year following his residency with Hodgkin’s disease and died in 1967 during his postdoctoral fellowship. He is remembered as a warm, selfless, caring colleague, devoted learner, and inspiring teacher, and this lectureship is evidence of the high esteem in which he was held by his fellow house officers. Each year, the Ham Memorial speaker is chosen by the pediatric chief residents.