Positive Exposure Events

May 2020

May 26-30

Tuesday May 26 2 pm

 Christie Falco

Lawyer, advocate for people living with albinism & cancer survivor

Wednesday May 27 2 pm

Sugandha Gupta

Textile Artist/ Maker/ Designer/ Disability Advocate/ Educator

W: https://sugandhainhere.wixsite.com/website

I: https://www.instagram.com/sugandha.in.here/

Thursday May 28 2 pm

Katie Wright │ Director

The VEDS Movement

Charging forward. Saving lives.


The VEDS Movement is the Foundation’s newest division. Learn about Vascular Ehlers-Danlos Syndrome (VEDS)

Friday May 29 11am

Bieke kreps

Pediatric Dentist in Belgium and also Department of Pediatric Dentistry at NYU College of Dentistry & Director of Positive Exposure Europe.

With photographer & make-up artist, Joseph Boggess

Saturday May 30 11am

Chromosome 18 Registry and Research Society’s Founder and President Jannine Cody with daughters, Catherine Cody Larson, Child psychiatrist and advocate, Elizabeth Cody.


May 19 to May 22


May 19-22, 2020

Tuesday, May 19, 2020

2:30pm (EST)

“The Hack-Ability Toolkit”

Open Style Lab

Grace Jun, CEO

Kieran O’Brien Kern, Engagement Manager


Discussing the Hackability Toolkit

Established in 2014, Open Style Lab (OSL) is 501(c)(3) organization dedicated

to creating functional, wearable solutions for people of all abilities without

compromising on style.

The OSL Team will demonstrate The Hack-Ability toolkit created to

empower people with disabilities everywhere to strategize and create their own solutions.

Wednesday, May 20, 2020

4:00pm (EST)

“Disability Rights”

Becky Curran Kekula, Disability Rights Activist

Brandon Farbstein, Gen Z Activist

Thursday, May 21, 2020

10am (EST)

“Undiagnosed Diseases”

The Wilhelm Foundation

Founders: Helene and Mikk

(A Swedish nonprofit supporting individuals and families that are undiagnosed around the globe.)

Guests also include POSITIVE EXPOSURE PEARLS Ambassador Freya and Ann Nordgren, MD, PhD, from the Karolinska Institute Stockholm.

Friday, May 22, 2020

2:00pm (EST)

“Beauty Tips”

Beauty tips with Joseph Boggess (make-up artist), Dawn Gallagher (best-selling author and supermodel) and Xian Horn (beauty activist)

May 6, 2020


Pediatric Grand Rounds at Golisano Children’s Hospital at the University of Rochester and Rochester Regional Hospital.


FRAME Workshop Featuring Cerebral Palsy, Cystic Fibrosis, Fragile X syndrome

On behalf of the pediatric residents at the University of Rochester, the chief residents have invited Rick Guidotti to Rochester as the Richard Ham Memorial Lecturer of 2020. This lectureship was established in memory of Richard Ham, a former pediatric resident at the University of Rochester (1963-1965). Dr. Ham became ill the year following his residency with Hodgkin’s disease and died in 1967 during his postdoctoral fellowship. He is remembered as a warm, selfless, caring colleague, devoted learner, and inspiring teacher, and this lectureship is evidence of the high esteem in which he was held by his fellow house officers. Each year, the Ham Memorial speaker is chosen by the pediatric chief residents.