April 26
Positive Exposure Events
Past Events
January 9
Penn State Children’s Hospital; Grand Rounds
Hershey, PA
February 7
Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY
8:30 am – 9:30 am
Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:
- Pediatric Diabetes and Endocrinology
- Pediatric Urology
- Pediatric Pulmonology
In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.
February 3
Screening ON BEAUTY and Presentation
Genetic Task Force of Illinois Website
February 2
The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info
Thursday, February 2, 2017
JOIN US AT GEORGETOWN UNIVERSITY, OR TUNE IN ONLINE AT 6PM EST:
5:00pm Student Gallery, Healy Hall, first floor
(drinks and passed hors d’oeuvres)
6:00pm Panel Discussion, Gaston Hall
(will also be live-streamed; check back for link)
We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.
THIS YEAR’S TOPIC
What is a disability, anyway?
In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?
Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.
PANELISTS
JULIA WATTS BELSER, PH.D.
LYDIA X. Z. BROWN
TERESA BLANKMEYER BURKE, PH.D.
RICK GUIDOTTI
JOHN HOCKENBERRY
DONNA R. WALTON, ED.D., CCBT
Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.
The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.
November 17
PHOTOVILLE An Educator Lab Workshop
Disability Visibility
10am – 4pm
Dumbo Brooklyn
November 10
Alexander Richman, MD and Charlotte Yudell, MD Lecture Series
on Humanism and Ethics in Medicine
Lecture Series on Humanism and Ethics in Medicine
Positive Exposure Seeing Beyond Diagnosis
Thursday, November 10 6-730pm
Guggenheim Pavilion East, Hatch Auditorium 1468 Madison Avenue
October 18
Oregon Resource Association Conference: Eugene, OR
Positive Exposure Keynote and Workshop: oregonresource.org
Eugene, OR
Image Description: Multicolor Logo with the letters ORA above a photo of a man with a mustache laughing and looking into the camera.
October 11
Joan H. Marks Graduate Program in Human Genetics
Sarah Lawrence College @ Positive Exposure GalleryDescription: RIck speaking to students at the Gallery.
October 12
Join us October 11-12 in Philadelphia for the ANCC Nursing Continuing Professional Development (NCPD) Summit! This inspiring and fun-filled event will be held just before the 2022 National Magnet Conference® and Pathway to Excellence Conference®.
NCPD is the catalyst to motivate nurses to fuel their professional practice and cultivate innovation. You will leave feeling empowered, engaged, and energized as part of a practice community that uses professional development to prepare nurses to drive change and achieve key results.
Image description: Shades of purple make up the background with gears fitting together.
NCPR Summit
Gold Feather Here
ANCC Accreditation
Text: Leading. Learning.
October 11-12, 2022
ANCC: American Nurses Credentialing Center
NCPD: Nurses Continuing Professional Development
September 22
We are very excited to announce our newest exhibit to celebrate our shared humanity.
Please join us, and Rick Guidotti, at a special opening event for participants and their families on Thursday September 22nd from 4:30-6pm. There will be space to ask questions and share stories about the experience working on this project together. Feel free to share your own photos and videos of the evening using the hashtags below.
The exhibit will remain installed after Thursday for the larger community to visit until December 14th. Please tell friends, families and your communities about this project via email and social media.
#Whatsyourthing
#PositiveExposure
#prisma
When? Wednesday, September 22nd- December 14th, 2022
Where? Brown Medical Education Building; 222 Richmond Street, Providence, RI
The gallery is open to the public Monday-Friday 8:30- 5pm. No reservations or tickets necessary.
We are very excited about this community collaboration to raise awareness about the importance of diverse perspectives and celebrate individuality.
___________________________
PRISMA & Positive Exposure
https://www.precisionmedicineinautism.org/community
____________________________________________________________________________________________________________________________________________________________________________________________________________________________
Estamos muy emocionados de anunciar nuestra mas reciente exhibición de fotos con el fin de celebrar nuestra humanidad compartida.
Únete a nosotros y a Rick Guidotti en un evento especial de apertura de la exhibición de fotos para los participantes y sus familias el jueves 22 de septiembre de 4:30 pm a 6:00 pm. Tendremos un espacio para poder hacer preguntas y compartir historias sobre la experiencia de trabajar juntos en este proyecto. Siéntete libre de tomar sus fotos y videos durante toda la noche, y compartirlas en tus medios sociales usando los hastags abajo.
La exhibición permanecerá instalada después del jueves para que la comunidad en general pueda visitarla hasta el 14 de Diciembre. Dile a tus amigos, familiares y tu comunidad sobre este proyecto por correo electrónico y redes sociales.
#Whatsyourthing
September 14
Philadelphia College of Osteopathic Medicine
Lecture to 1st Year Medical Students
1-2pm
September 13
22nd Lecture to 1st Year Medical Students at Weill Cornell Medical College. 22 Years!!
11am-12pm
September 6
Oregon Health & Science University
Department of Dermatology: Virtual Presentation
11:45 PST
September 6-7
Achieving Equitable Oral Health for those with Intellectual and Developmental Disabilities: A Promise, A Pledge, A Plan
University of the Pacific, Arthur A. Dugoni School of Medicine
September 8
California Dental Association
Simply Brilliant Art and Science of Dentistry
September 8-10
Image Description: Bright purple, green and orange logo over a woman smiling and dancing.
August 24
Lecture: TOURO University
“Diverse Perspectives on Developmental Medicine” (Virtual)
Rick Guidotti will share his journey as a fashion photographer disenchanted with the narrow parameters of the beauty standards to forming Positive Exposure, a non profit that celebrates the beauty and richness of our shared humanity.
Moebius Sundrome Foundation National Conference
Atlanta, Georgia
July 15-17, 2022
Positive Exposure July 16th All day
July 14-17
The National Organization for Albinism and Hypopigmentation, NOAH
Experience the Magic!NOAH’s 19th National Conference
Orlando FL July 14-17 2022
July 7-9
2022 Chromosome 18 Decoded Conference San Antonio, TX
June 23 – June 28
The International 22q11.2 Family Meeting
Hosted by the 22q11.2 Society
Le Méridien Lav Hotel in Split, Croatia – On the Dalmacijan Coast
June 26 – June 28, 2022
June 21- 23
CCD Smiles: Conference Salt Lake City
Improving the lives of people with cleidocranial dysplasia through Connections, Awareness, Research, Education and Support.
Cleidocranial Dysplasia (CCD) is a rare condition that primarily affects the development of bones and teeth.
June 11
Virtual Presentation: 10:30 EST
Overview:
Pitt Dental Medicine, in recognition of the 30th anniversary of the American Disabilities Act, and building on more than half a century of caring for individuals with special care needs, presents a three part continuing education webinar series. The course will consist of 9 hours of accredited CE Credit. This course features speakers from multiple disciplines, promoting the incorporation of special care dentistry into your practice and to highlight available community resources.
Objectives:
The objective of the course is to promote increased access to dental care for patients with disabilities through the education of practicing dental clinicians.
May 22 – June 10
At the Gallery: Call for an appointment
June 4
AADMD Annual Conference
Orlando, Florida + The Grand Opening toe the Special Olympic Games..
On the cover: Amanda Harrinauth is a Special Olympic Athlete, self-advocate and poet. Amanda will welcome everyone back on Day 2 and will deliver her latest poem.
(Image Description: Beautiful young woman with brown hair and brown skin with red lipstick, closely cropped, is smiling and looking off to the right of the camera.)
Message from AADMD President, Allen Wong:
“Let me win, But if I cannot win, let me be Brave in the attempt” is the Motto of the Special Olympics Athletes. If you read it again, it is more than just a motto but a philosophical way of thinking. It reminds us that we should be hopeful and courageous in our lives.
As President of AADMD, I intend to bring the spirit of the Athletes of Special Olympics in being hopeful and courageous in our organization’s attempt to educate, advocate, collaborate and propagate the attitude of inclusion and improved health care for all people. Injustice is wrong but not being courageous to help make improvements is worse. We cannot mend all the wrongs in life but we can certainly do our part individually and collectively.
AADMD was formed to help improve interdisciplinary healthcare, improve access to care, and help end disparity of care for people with intellectual and developmental disabilities. We invite like-minded people and organizations to join us in our cause.