April 26
Positive Exposure Events
Past Events
January 9
Penn State Children’s Hospital; Grand Rounds
Hershey, PA
February 7
Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY
8:30 am – 9:30 am
Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:
- Pediatric Diabetes and Endocrinology
- Pediatric Urology
- Pediatric Pulmonology
In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.
February 3
Screening ON BEAUTY and Presentation
Genetic Task Force of Illinois Website
February 2
The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info
Thursday, February 2, 2017
JOIN US AT GEORGETOWN UNIVERSITY, OR TUNE IN ONLINE AT 6PM EST:
5:00pm Student Gallery, Healy Hall, first floor
(drinks and passed hors d’oeuvres)
6:00pm Panel Discussion, Gaston Hall
(will also be live-streamed; check back for link)
We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.
THIS YEAR’S TOPIC
What is a disability, anyway?
In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?
Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.
PANELISTS
JULIA WATTS BELSER, PH.D.
LYDIA X. Z. BROWN
TERESA BLANKMEYER BURKE, PH.D.
RICK GUIDOTTI
JOHN HOCKENBERRY
DONNA R. WALTON, ED.D., CCBT
Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.
The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.
January 28
POSITIVE EXPOSURE Connects: FACEBOOK Live!
LUNCH and LEARN!
LUNCH and LEARN!
Thursday, January 28 @ 12 pm EST
Celebrating Marfan Syndrome Awareness Month!! http://marfan.org
Join POSITIVE EXPOSURE and the Amazing Marfan Syndrome
Image description:
1) Black and red background with white font that reads “POSITIVE EXPOSURE Connects, 28 January, Celebrating Marfan syndrome Awareness Month. Five images at the bottom with people looking into the camera and smiling. (2) Matrix of 25 square images. All individuals are looking at the camera and laughing or smiling.
January 23
POSITIVE EXPOSURE Connects: FACEBOOK Live!
Saturday, January 23 @ 12 pm EST
Celebrating Moebius Syndrome Awareness Month!!
Join POSITIVE EXPOSURE and the Amazing Moebius Syndrome Foundation Team!
Image description: A matrix of 25 portraits 5 by 5 square of friends from our Moebius syndrome community!
January 20
Center for Persons with Disabilities Presentation Series and VIRTUAL POSITIVE EXPOSURE Wednesday, January 20th at 5:30-7:00pm
POSITIVE EXPOSURE’s Wall of Love
In collaboration with the Church of St. Edward the Martyr and Artist, Marco Santini, we present POSITIVE EXPOSURE’s East Harlem Wall of Love.
Stay tuned for our VALENTINE’s Day 2021 Citywide Launch!
March 18
POSITIVE EXPOSURE: Virtual Keynote
The Group aims to accept for review any aspect of skin disease management which it feels will be of value to professionals or to lay people with an interest in skin disease. It will thus accept all randomized controlled trials of interventions relevant to the prevention of skin disease, the treatment and management of established skin disease, and the prevention of complications of skin diseases. This includes alternative/complementary treatments.
March 3
POSITIVE EXPOSURE Lecture/ Workshop: Uniformed Services University Bethesda, MD
The F. Edward Hébert School of Medicine is traditional in many ways, but it has unique tenets that make it a special place. Among its singular features is a curriculum that places special emphasis on military and public health medicine. This foundation prepares students for the important roles they will take on as uniformed physicians. Our program melds the study of basic science, the clinical practice of medicine and military leadership training to produce innovative doctors. This signature blend of education and training distinguishes USU as a leader among institutions of learning.
Their motto, “Learning to Care for Those in Harm’s Way.”
February 10
MS Genetic Counseling Program:
POSITIVE EXPOSURE Presentation + launch of PEARLS ambassadors initiative
Mission Statement and Objective
The BU Genetic Counseling Program is committed to providing high-quality training through dynamic coursework, dedicated mentoring, diverse fieldwork and innovative learning experiences to develop motivated genetic counselors to meet the needs of an expanding landscape in genetics and genomics. The primary objective of the Master of Science Degree Program in Genetic Counseling is to educate graduate students in the core concepts of human genetics and counseling. Our focus is to provide students with the appropriate knowledge, experience and mentoring to become competent, sensitive and motivated genetic counselors. This is accomplished through a variety of educational experiences including coursework, clinical training, research project preparation and supplementary activities such as case conferences, grand rounds, journal clubs and seminars.
January 20
The NEW Center for Persons with Disabilities
POSITIVE EXPOSURE virtual presentation: 5:30 – 7:30 pm
The Care Center for Persons with Disabilities is a one-of-a-kind enterprise dedicated to improving the quality of life for people with all forms of disability. World-wide, people of all ages live with physical or intellectual disabilities either developmental or acquired as they age. Their quality of life is lower by virtue of the lack of well-trained dental practitioners as well as a shortage of facilities capable of delivering necessary care.
Approximately 3,500-square-feet on the second floor of the School’s Robert Schattner Center has been allocated to create the Center, a space that is specifically designed for patients with disabilities. The Personalized Care Suite, the patient care portion of the Center, features 12 operatories, all of which accommodate wheelchairs. There is also a room outfitted with hover dental chairs and at least one room accommodates patients on a gurney. In addition, a stimulation room with low lighting and sound baffling will serve patients with sensory sensitivities. All students will gain direct experience treating patients in the Center and will be expertly trained to handle the unique needs of people with sensory impairments, behavioral problems, psychosocial issues, and other conditions requiring sensitive and comprehensive handling.
Myself My World Interactive Gallery and Student Work Submission Coming Soon!
MYSELF My World!!
MYSELF MY WORLD: NYC’s District 75 Program for all schools.
I feel happy and I want people to feel surprised and happy when they see my art.
Come see the world though my eyes.
Image descriptions: Collage of artwork, brightly colored and beautiful.
Stay tuned for more information!
December 3
Aptima: Corporate presentation. 12:00 (noon) – 1:00pm VIRTUAL
For 25 years, Aptima’s mission has been to improve and optimize performance in mission-critical, technology-intensive settings. We apply deep expertise in how humans think, learn, and perform to today’s challenges. Whether for fighter pilots functioning in the cockpit, medical staff in the ICU, or teams collaborating across distributed networks, our solutions help measure, assess, inform, and augment human performance in defense, intel, aviation, law enforcement, and healthcare.
Aptima’s capabilities:
- Ensure the synergy of humans operating within complex organizations
- Enhance productivity and insight through human-AI teaming, unobtrusive measurement, data analytics, and intelligent interfaces
- Accelerate learning, training, and readiness for the mission at hand—and what’s next
Image description: APTIMA Logo with Human Centered Engineering
Silhouette of head in profile with 2 round gears in groove on dark blue with the words THE HUMAN is the last frontier for innovation in the age of technology.
November 28
IMAGE DESCRIPTION: Black background. POSITIVE EXPOSURE logo in upper left corner. Wording reads POSITIVE EXPOSURE Connects, November 28, Facebook LIVE. A Conversation with Kieran O’Brien Kern: Diversability Project Manager, Writer, Speaker
Saturday 11:00 am EST
2 circular images with Kieran and her 2 daughters, diversability Logo joins the Images.
Image 1 Kieran in purple and white print top and daughters are in maroon tops
Image 2: Kieran in dark grey and purple printed top and daughters wearing pink solid and printed sweaters.
November 21
Join us on #FacebookLIVE tomorrow (Saturday, 21 November) at 11:00 AM EST for a conversation with our great friend
Aine Lawlor who lives in Dublin, Ireland. We’ll be talking about #22q and celebrating #22qAwareness Month.
Image Descriptions: 1) A girl with brown hair and eyes is looking into the camera and smiling. She is wearing a blue shirt. 2) Logo for 22q Awareness Month in gray, white and red. 3) Positive Exposure Connects image with black background and white wording which reads Celebrating 22q Awareness Month, A conversation with Aine Lawlor, Dublin, Ireland, 11:00 AM EST.
November 17
Virtual presentation to Neurogene
Neurogene is accelerating development of new genetic medicines to people with neurological diseases and their families.
November 14
We can’t wait for our next POSITIVE EXPOSURE Connects which will take place this Saturday, November 14 at 10:00 AM EST on #FacebookLIVE! Don’t miss this incredibly cool project and display of art!!!!! 10:00 am EST
IMAGE DESCRIPTION: Black background. POSITIVE EXPOSURE logo in upper left corner. Wording reads POSITIVE EXPOSURE Connects, November 14, Facebook LIVE. The Bigger Plans Project, 10:00 AM EST, Starring Zazel. Image of black women at the bottom smiling and looking up.
November 4
Philadelphia College of Osteopathic Medicine: 3 Day Student Elective
DAY 3
October 7, 2020
October 21, 2020
November 4, 2020
Department of Medical Humanities
POSITIVE EXPOSURE Elective:
Positive Exposure (PE) and its film program, FRAME (Faces Redefining the Art of Medical Education) weaves critical medical information, with personal and lived experiences, for healthcare professionals in training, clinicians, families and communities. Each film, 8-12 minutes in length, provides a greater understanding of the most commonly seen diagnoses by demonstrating hallmark characteristics of a particular condition, while modeling an attitude of respect for the humanity of the patients.
This elective will provide students with the opportunity to participate in the creation of a Positive Exposure FRAME (Faces Redefining the Art of Medical Education) film. In Phase 1, Students will explore partnerships with specialists and advocacy organizations, the research process, prompt development and interview techniques. In Phase 2, students will participate in a virtual forum that will enable students to ask questions of specialists and an advocacy group, as well as interview individuals and families living with a particular genetic condition. In Phase 3, students will examine transcripts and a rough film edit of virtual interviews, and discuss the pertinent details to be included in the final film.
November 2
Joan H. Marks Graduate Program in Human Genetics: Positive Exposure Lecture
10:30am
October 31
POSITIVE EXPOSURE Connects:
This will be an amazing and lively conversation with our friends from
A Children’s House for the Soul, Inc.
on #FacebookLIVE this Saturday, October 31 at 11:OO AM EST. A Children’s House for the Soul works with kids and their families that have skin diseases or birthmarks and by providing social, emotional and spiritual support.
Can’t wait to “see” everyone on Saturday!!!!!
IMAGE DESCRIPTION: Square photo with black background. POSITIVE EXPOSURE in the upper left corner. Wording reads POSITIVE EXPOSURE Connects, October 31. A Children’s House for the Soul, 11:OO AM EST. Three square images are at the bottom — from left to right: A young African American boy wearing an orange shirt, logo for A Children’s House for the Soul, a young girl is smiling and looking into the camera. She is wearing a blue tank top.
October 29
PDF: Oct-29-2020-Grand-Rounds-Rick-Guidotti
University of Saskatchewan College of Medicine
DEPARTMENT OF PEDIATRICS
GRAND ROUNDS Thursday, Oct 29th, 2020 12:00-1:00 p.m.
Rick Guidotti
Presents
Seeing Beyond Diagnosis
Rick Guidotti, an award winning photographer, has spent the past twenty years collaborating internationally with non profit organizations, hospitals, medical schools, educational institutions, advocacy groups and communities to promote a more inclusive and compassionate world where ALL differences are understood and celebrated. Guidotti’s work has been published in newspapers, magazines, and journals as diverse as Elle, GQ, People, the American Journal of Medical Genetics, The Lancet, Spirituality and Health, the Washington Post, New York Times, Atlantic Monthly and LIFE Magazine. Rick is the founder and director of POSTIVE EXPOSURE, an innovative arts, advocacy, and education organization which utilizes the visual arts to celebrate human diversity, inclusive of ethnicity, religion, age, ability, learning style, gender identity, gender expression and sexual orientation. POSTIVE EXPOSURE has significantly
impacted the field of human rights, mental health, medicine, and education by providing new opportunities to see each individual as a human being and valued member of our society.
Objectives
- Describe the social and psychological experiences of people of all ages and ethno cultural heritages living with genetic, physical, behavioral and cognitive conditions.
- Discuss ways to best meet the needs of children and families with, or at risk for a genetic disorder.
- Explore opportunities to see each individual living with a genetic difference first and foremost as a human being with his/her own special needs, rather than as a specific diagnosis/disease entity.
October 28
Lecture to Osteopathic Medicine (DO) program.
About Touro California: Touro California is a graduate institution under the Touro Colleges and Universities System. Our campus is located in Vallejo, California on Mare Island, which is historically the site of the first Navy installation on the West Coast. Our school offers professional programs in the fields of Health Sciences, Public Health, and Education. The many graduate programs include Osteopathic Medicine, Pharmacy, Physician’s Assistant, and Nursing.
