Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY
8:30 am – 9:30 am
Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:
Pediatric Diabetes and Endocrinology
Pediatric Urology
Pediatric Pulmonology
In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.
The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info
Thursday, February 2, 2017
JOIN US AT GEORGETOWN UNIVERSITY, OR TUNE IN ONLINE AT 6PM EST:
5:00pm Student Gallery, Healy Hall, first floor (drinks and passed hors d’oeuvres)
6:00pm Panel Discussion, Gaston Hall (will also be live-streamed; check back for link)
We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.
In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?
Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.
PANELISTS
JULIA WATTS BELSER, PH.D.
LYDIA X. Z. BROWN
TERESA BLANKMEYER BURKE, PH.D.
RICK GUIDOTTI
JOHN HOCKENBERRY
DONNA R. WALTON, ED.D., CCBT
Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.
The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.
POSITIVE EXPOSURE Connects August 26
We are BEYOND excited to have a conversation with internationally-renowned artist, David Marchi, tomorrow on #FacebookLIVE at 2:00 PM EST!!!!!
David’s passion for painting was the direct result of a broken back from a boating accident in 2015.
Prior to this, David never painted.
In 2019, he was diagnosed by Dr. Darold Treffert with Acquired Savant Syndrome. This is where dormant savant skills emerge after a spinal or brain injury or disease in previously non-disabled persons.
Today, David’s life is his painting.
He is currently studying under Larry Poons and Peter Bonner at the Art Students League in New York City and
has traveled to Hamburg, Berlin, Paris, Sao Paulo and London to paint with other artists.
His work is collected world-wide and is currently being critiqued by Pulitzer prize and New York Magazine art critic, Jerry Saltz.
Through his art, he supports Positive Exposure, The Human Rights Campaign, and Lady Gaga’s Born This Way Foundation.
IMAGE: Black background with with lettering. POSITIVE EXPOSURE logo reading “Change How You See, See How You Change” in upper left corner. POSITIVE EXPOSURE Conencts, August 26, Facebook LIVE with Rick Guidotti, #BetterTogether in upper right corner. Wednesday – A Conversation with David Marchi an Internationally-renowned Artist, Acquired Savant Syndrome, Post-traumatic Growth, Mental Health Advocate, 2:00 PM EST. Three square images are at the bottom (from left to right) An abstract painting in greens and blues. A man standing in from of a painting wearing a baseball cap and white shirt. His arms are folded, and he is looking into the camera and smiling. An abstract painting with reds, greens, yellow and blues.
Mem Nahadr (pronounced mem na-HAHD), also known as M. Nahadr and simply “M”, is an American performance artist and multi-octave vocalist best known for the performance of the song “Butterfly”, composed by Yoko Kanno and lyricized by Chris Mosdell for Cowboy Bebop. She is also an author, composer, poet, filmmaker, and human rights activist.
OFFICIAL MUSIC VIDEO From the Opera: “FEMME FRACTALE”, by critically acclaimed Performance Artist MEM NAHADR. “Passage” Co-written by C.J.Wright. http://ctwjmusicproduction.com/
Tuesday, August 3rd @ 2pm ET Living in the Light, Levi Gershkowitz, Founder and CEO, Jeff Reinhardt, Head of Advocacy, Living in the Light | I Stay Home for Rare Initiative.
Thursday: August 5th @ 2 pm ET Art and Disabilities with Sugandha Gupta, Textile Artist and Designer | Disability Advocate.
IMAGE: A bright green background with black font. Change How You See, See How You Change black and white logo in the upper left corner. Positive Exposure Connects August 3 and 5, Facebook LIVE with Rick Guidotti, #BetterTogether. Tuesday – Living in the Light, Levi Gershkowitz, Founder and CEO, Jeff Reinhardt, Head of Advocacy, Living in the Light | I Stay Home for Rare Initiative, 2:OO PM EST. A picture with an African American woman wearing glasses, smiling and a young child with oxygen tubing is on the right. Thursday – Art and Disabilities, Sugandha Gupta, Textile Artist and Designer | Disability Advocate, 2:OO PM EST. A picture of a woman with light blond/white hair is looking into camera and smiling is on the right.
POSITIVE EXPOSURE Connects July 28.29.30
Top left:
CHANGE HOW YOU SEE, SEE HOW YOU CHANGE white type, black background
Top Right:
POSITIVE EXPOSURE Connects
July 28-30
Facebook Live with Rick Guidott
#BetterTogether
TUESDAY: July 28 @4pm ET
The Superhero Project
Lisa Kollins and Nikki Montgomery
Creating Joy 1 character at a time.
Superhero Logo in gold and blue, graphic shape resembles person with hands on hips.
WEDNESDAY: July 29 @8pm ET
Sunshine Troupe, Australia
Giving voice to people with disabilities through dance and performance.
Three dances in dance poses, wearing black, white and red clothes.
THURSDAY: July 30 @4pmET
All things ADA & Accessibility
Quemuel Aroyo, Xian Horn, Becky Curran Kekula, Jessica Murray
Image of 3 women smiling in camera. Middle person, in a wedding dress.
POSITIVE EXPOSURE Connects July 21-24
Tuesday July 21@ 2pm ET
Building Parent Connections with Michelle O’Connor and Sheila Adamo
PROVIDING SUPPORT, EDUCATION AND GUIDANCE TO PARENTS OF CHILDREN WITH SPECIAL NEEDS
Self Love Architect, Author, Media Personality, Public Speaker, Nutritional Fusion Chef & Musician. International Woman of the Year.
Thursday July 23@ 2pm ET
Outside Voices: Poetry Reading.
“We are smooth and soft like ice cream on a hot day.”
“We are a collective of poets with intellectual and developmental disabilities. Our normal might not be your normal. We occupy new dimensions. We are about advocacy, empowerment, out-of-the-box-thinking and disability pride. We chose our name because we believe that VOICES from the OUTSIDE deserve to be heard. We believe in access. We will not use our quiet, inside voices to get your attention.
Friday July 24 @4pm ET
Giving Voice to the rare disease community through filmmaking.
Emmy Nominated: Joanna Rudnick
Director Producer, Kartemquin Films ON BEAUTY.
Joanna made her directorial debut with In the Family, a deeply personal story about coming to terms with having a mutation in one of the breast cancer (BRCA) genes.
July 14 & 16 POSITIVE EXPOSURE Connects
Tuesday July 14: 2pm
Introducing Filmmakers with a unique perspective. Reed Smith, Filmmaker: Graduate of the School of Visual Arts’ MFA Program.
With: Erik Spink & Amitabh Joshi FRAME Film TEAM/ Vacant Light/ Professors, School of VisualArts
Image: Young man in blue shirt with video camera filming lunch on table while seated student with scarf in her hair looks on.
Thursday July 16: 2pm
Advocate for Authentic Casting on Stage & Screen. Christine Bruno; Actor, teaching artist, activist, disability consultant.
Image: Portrait of young woman with short hair, bright eyes, slight smile looking right into the lens of the camera.
July 7 and 8 POSITIVE EXPOSURE Connects
July 7th
Tuesday: 2pm ET
Janet LaBreck: Activist and Advocate
Former Commissioner of the Rehabilitation Services Administration (RSA), within the United States Department of Education.
July 8th
Wednesday: 2pm Progressive Visions Photos Club and West Farm
(Printed on a bright yellow background with Change How You See, See How You Change logo in left hand corner. Image of Janet: African American Woman with curly dark hair white blouse and Navy sport jacket. Very elegant. Next photo for photography club, group shot of 4 people, 3 men and 1 woman. Everyone is looking into the camera and smiling.)
POSITIVE EXPOSURE Connects Week of June 30th
Two great interviews for this week on #FacebookLIVE to discuss#Marfansyndrome with @dominoe44 (Dominga Noe) and the #ADA (Americans with Disabilities Act). Be sure to join us today (Tuesday) and Thursday for some great conversations!
(Image: Square image with blue background with black and white wording — Positive Exposure Connects, June 30-July 2, Advocacy for Marfan Syndrome, Tuesday at 2:00 PM EST with a picture of a smiling girl with brown hair and glasses; The Art of Creating an Exhibition Celebrating the Americans with Disabilities Act with a picture showing the back of a girl wearing an orange shirt that reads “advocacy, diversity, acceptance,” Thursday at 3:00 PM EST)
POSITIVE EXPOSURE Connects June 23 – 26
23rd Tuesday: 4pm ET
Little People of America Make the World Your Runway
Chat Fashion with Becky Curran Kekula and Lauren Humphries
The VEDS Movement is the Foundation’s newest division. Learn aboutVascular Ehlers-Danlos Syndrome (VEDS)
Friday May 29 11am
Bieke kreps
Pediatric Dentist in Belgium and also Department of Pediatric Dentistry at NYU College of Dentistry & Director of Positive Exposure Europe.
With photographer & make-up artist, Joseph Boggess
Saturday May 30 11am
Chromosome 18 Registry and Research Society’s Founder and President Jannine Cody with daughters, Catherine Cody Larson, Child psychiatrist and advocate, Elizabeth Cody.
Pediatric Grand Rounds at Golisano Children’s Hospital at the University of Rochester and Rochester Regional Hospital.
VIRTUAL PRESENTATION:12pm
FRAME Workshop Featuring Cerebral Palsy, Cystic Fibrosis, Fragile X syndrome
On behalf of the pediatric residents at the University of Rochester, the chief residents have invited Rick Guidotti to Rochester as the Richard Ham Memorial Lecturer of 2020. This lectureship was established in memory of Richard Ham, a former pediatric resident at the University of Rochester (1963-1965). Dr. Ham became ill the year following his residency with Hodgkin’s disease and died in 1967 during his postdoctoral fellowship. He is remembered as a warm, selfless, caring colleague, devoted learner, and inspiring teacher, and this lectureship is evidence of the high esteem in which he was held by his fellow house officers. Each year, the Ham Memorial speaker is chosen by the pediatric chief residents.
Blogs, Bloggers & Positive Exposure!
Janice Hansen, PhD, serves as director of undergraduate programs at University of California, Irvine’s School of Education. She has also served as a lecturer for both the undergraduate Bachelor of Arts in Education Sciences and the Master of Arts in Teaching/Credential programs at UCI, as well as an undergraduate course lecturer at California State University, Long Beach.
As a mother of a daughter living with a rare disease, Dr. Janice Hansen — along with her daughter — are ardent advocates for rare disease research, legislation and positive change.
We are delighted to share with you this fun, interactive learning activity, developed by Dr. Janice Hansen, to be used in conjunction with Positive Exposure’s PEARLS Project. Click on the link to learn more:
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