October 3-5

January 9

Penn State Children’s Hospital; Grand Rounds

Hershey, PA

February 7

Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY

8:30 am – 9:30 am

Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:

• Pediatric Diabetes and Endocrinology
• Pediatric Urology
• Pediatric Pulmonology

In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.

February 3

GTFI Symposium Flyer

Screening ON BEAUTY and Presentation

Genetic Task Force of Illinois Website

February 2

The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info

Thursday, February 2, 2017

JOIN US AT GEORGETOWN UNIVERSITY, OR TUNE IN ONLINE AT 6PM EST:

5:00pm Student Gallery, Healy Hall, first floor
(drinks and passed hors d’oeuvres)

6:00pm Panel Discussion, Gaston Hall
(will also be live-streamed; check back for link)

We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.

THIS YEAR’S TOPIC

What is a disability, anyway?

In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?

Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.

PANELISTS

JULIA WATTS BELSER, PH.D.

LYDIA X. Z. BROWN

TERESA BLANKMEYER BURKE, PH.D.

RICK GUIDOTTI

JOHN HOCKENBERRY

DONNA R. WALTON, ED.D., CCBT

Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.

The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.

April 12 & 13

Dallas, TX

PRESENTATION and PHOTOSHOOT!!

To Learn More about HealtheVoices

Social media shapes the way people make decisions about healthcare, and onlinehealth advocates are at the forefront of this movement. In an effort to connect, support and further empower the online health advocate community, Janssen created HealtheVoices™ – a groundbreaking leadership conference created exclusively for those using social platforms to advocate for themselves and their communities. Now in its fifth year, the annual HealtheVoices Conference will take place April 12-14, 2019 in Dallas, Texas.

April 14

POSITIVE EXPOSURE in Collaboration with Geisinger presents Autism in FRAME. Funded by the WITH Foundation and filmed on location at Friendship House. All involved families in this production attended the red carpet global premiere of AUTISM in FRAME!

The Paparazzi was there!!!!!

Venue: Berwick Theater and Center for Community Arts (110 E Front St, Berwick, PA 18603)

April 27 & 28

University of Minnesota’s Pediatric Dermatology department applied for a grant to collaborate with POSITIVE EXPOSURE to create a community based exhibition that will be a permanent exhibition at their new beautiful Pediatric Dermatology Clinic.

AND IT WAS SUCCESSFUL!!!!! We will be in Minneapolis photographing April 27 & 28 with the exhibition installation projected to follow asap!!!

Stay tuned for pics…

April 12-13

Keynote Presentation and Photography

About HealtheVoices: Website

Social media continues to shape the way patients and caregivers make decisions about their healthcare, and online patient advocates are at the forefront of this movement. Patient advocates are driven by a passion to help others, but it is evident that there is a lack of emotional, financial and technical resources available to help sustain their efforts and communities over time.

To fill this gap and elevate the ever-important role of online health advocates, Janssen created HealtheVoices in 2015. Since then, HealtheVoices continues to provide tools, resources and inspiration to empower online patient advocates, improve their online communities and expand their critical reach. At HealtheVoices, attendees have the opportunity to connect and collaborate with other online health advocates and learn from experts in the fields of health, social media and advocacy.

Designed by patients for patients, HealtheVoices is an industry-first event. Each year, HealtheVoices works closely with an Advisory Panel of online patient advocates to determine the agenda, develop the content and cultivate a unique experience that meets the needs of attendees and brings value to their communities.

This year’s advisory board includes:

• HIV Advocate, Jesus Guillen – Facebook and Twitter
• Mental Health Advocate, Gabe Nathan – Facebook, Instagram, Twitter, and YouTube
• IBD Advocate, Shawn Bethea – Instagram, Twitter, YouTube, and Facebook
• Diabetes & Congestive Heart Failure Advocate, Mike Durbin – mydiabetecheart.com, Twitter, Instagram and Facebook, Twitter, Instagram and Facebook
• Stroke & Rare Disease Advocate, Lisa Deck – lisadeck.com, Facebook, Twitter and Instagram
• Lupus & Chronic Illness Advocate, Hetlena Johnson – Facebook, Twitter, Instagram, YouTube
• Breast Cancer & Mental Health Advocate, Ann Marie Otis – stupiddumbbreastcancer.com,  Facebook, Twitter, Instagram
• Cancer Advocate, Rick Davis – Twitter and Facebook

POSITIVE EXPOSURE Building Campaign

DONATE NOW

April 2

Speaking to students during their Disability Awareness Week @ Kingsborough Community College!

March 31

March 20 – 26

Delhi, India

Ill be in Delhi 20-26 March working in collaboration with the Wilhelm Foundation and The Institute of Medical Genetics & Genomics, Sir Ganga Ram Hospital, photographing local families that have undiagnosed conditions. This global  initiative will create community among the undiagnosed families so they dont feel so isolated and alone. There will be an International Undiagnosed Disease conference in Delhi in May and these community-based images will be exhibited then.

POSITIVE EXPOSURE 109

February 28

RARE DISEASE DAY @ PFIZER NYC

Lecture and Exhibition

February 27

Presenting to 3rd Year Medical Students at Uniformed Services University Health Sciences in Bethesda, MD

February 8

The Johns Hopkins University/National Human Genome Research Institute Genetic Counseling Training Program

Positive Exposure Presentation

Medical Students are AWESOME!

January 16

Lecture to 1st Year medical Students: Philadelphia, PA

January 11-13

Rick and the film team are traveling to Houston this weekend to create: A FRAME Film

The Psychological and Social impact of living with a skin condition like Alopecia, Vitiligo, Ichthyosis etc..

In collaboration with the Children’s House for the Soul and The Health Museum.

We will be working with our ambassadors featured in Houston’s Health Museum Positive Exposure Exhibition

January 11-13

FRAME shoot in Houston, TX

The Psychological and Social impact of living with a skin condition like Alopecia, Vitiligo, Ichthyosis etc..

In collaboration with the Children’s House for the Soul and The Health Museum.

January 4

On my way to Minneapolis today to speak to 0ver 100 Orthodontists and over 300 staff. A 2.5 hour presentation of POSITIVE EXPOSURE, FRAME and PEARLS with a dental twist!!!!!

January 4

The Minnesota Association of Orthodontists (MAO) is comprised of members of the American Association of Orthodontists (AAO), the Midwestern Society of Orthodontists (MSO), and the MAO who reside in the state of Minnesota.

More Info

December 7

First Year Med Student Lecture: Rick

University of MN

Heading to Minneapolis now. 

Fun wild day tomorrow: 

University of MN

8:30 Genetic Counseling student lecture

10:15: Med student lecture with grad student & Pearls ambassador Rachel. (Register for Pearls and Check out Rachel’s blog) 

11:45: Shoot with new Pearls ambassador

12:30: Adobe Corp Presentation 

Stay tuned for lots of pics!!