Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY
8:30 am – 9:30 am
Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:
Pediatric Diabetes and Endocrinology
Pediatric Urology
Pediatric Pulmonology
In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.
The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info
Thursday, February 2, 2017
JOIN US AT GEORGETOWN UNIVERSITY, OR TUNE IN ONLINE AT 6PM EST:
5:00pm Student Gallery, Healy Hall, first floor (drinks and passed hors d’oeuvres)
6:00pm Panel Discussion, Gaston Hall (will also be live-streamed; check back for link)
We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.
In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?
Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.
PANELISTS
JULIA WATTS BELSER, PH.D.
LYDIA X. Z. BROWN
TERESA BLANKMEYER BURKE, PH.D.
RICK GUIDOTTI
JOHN HOCKENBERRY
DONNA R. WALTON, ED.D., CCBT
Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.
The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.
March 19
The James B. Edwards College of Dental Medicine
The James B. Edwards College of Dental Medicine is a strong, academically progressive, financially stable institution with a committed faculty and staff that serves a uniquely talented cohort of students and patients across South Carolina. Through academic excellence, innovation and discovery, and a commitment to serving patients with the highest level of care, we are changing what’s possible in dental education.
Community Based Photography for a Permanent Exhibition on Campus.
Image Description: Large group of students all in white coats, smiling into the camera.
(Image description Photo 1 healthcare providers in OR environment, Photo 2 4 =uniformed service men and women standing in from of an auirforce plane)
March 1
The RFK IDDRC’s Tenth Annual Rare Disease Day Celebration
“POSITIVE EXPOSURE: SPIRIT OF DIFFERENCE”
Photographic presentation by Rick Guidotti
Rick Guidotti is an award-winning former fashion photographer who has turned his talents
to photographing individuals with genetic disorders. His photographs recognize beauty within difference and challenge the way beauty is defined. His non-profit organization, dedicated to this pursuit, is called Positive Exposure.
Please join us for a photographic presentation followed by Q&A on:
TUESDAY, MARCH 1, 2022 6:00 – 7:30 PM
https://einsteinmed.zoom.us/j/98270082150
ASL and closed captioning will be provided
This year Rare Disease Day is being sponsored at Einstein-Montefiore by The Rose F. Kennedy Intellectual & Developmental Disabilities Research Center (RFK IDDRC), The Rose F. Kennedy Children’s Evaluation & Rehabilitation Center (RFK CERC), The Rose F. Kennedy University Center for Excellence in Developmental Disabilities (RFK UCEDD), and the Einstein Student Chapter of the American Academy of Developmental Medicine & Dentistry (AADMD).
5 square portraits on left with blue, gold and white lettering. The text is above.
February 28
RARE Disease Day: POSITIVE EXPOSURE Community wide virtual presentation
February 4
Johns Hopkins University/NIH Genetic Counseling Training Program: Positive Exposure Lecture
Drawing on resources from three outstanding research institutions, the National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI) at the National Institutes of Health (NIH) and the Department of Health, Behavior and Society at the Johns Hopkins University (JHU) Bloomberg School of Public Health have collaborated to develop and support the JHU/NIH Genetic Counseling Training Program (GCTP), a competitive graduate program that addresses the growing need for genetic counseling services.
January 8
HAPPY NEW YEAR!!!!
We will be launching our FRAME Film Premiere this Saturday, 8 January 10-12 ET in 3 separate zoom webinars with Q&A. We will be recording each session and will add edited session Q&A and Meet and Greet to our FRAME platform. So exciting.. Here are the links and details…
Image description: FRAME in bold black letters Faces Redefining the Art of Medical Education underneath in fine black lettering, black lettering. Below, close up portraits of 3 individuals smiling an d looking into the camera, all against a white background.
Epilepsy in our Adult I/DD Community
You are invited to a Zoom webinar.
When: Jan 8, 2022 11:00 AM Eastern Time (US and Canada)
Topic: FRAME Film Premiere: Epilepsy in our Adult I/DD Community
Image description: FRAME in bold black letters Faces Redefining the Art of Medical Education underneath in fine black lettering, black lettering. Below, close up portraits of 6 individuals smiling interacting with each other, all against a white background.
Early Onset Alzheimer’s Disease in Adults Living With Down Syndrome
You are invited to a Zoom webinar.
When: Jan 8, 2022 12:00 PM Eastern Time (US and Canada)
Topic: FRAME Film Premiere: Early Onset Alzheimer’s Disease in Adults Living With Down Syndrome
Image description: FRAME in bold black letters Faces Redefining the Art of Medical Education underneath in fine black lettering, black lettering. Below, close up portraits of 5 individuals smiling interacting with each other, all against a white background.
December 3 – 12
True Colors Film Festival featuring ON BEAUTY!
Image Description: Logo True Colors Film Festival 3-12 December, Perspectives. Below logo s an image back shot of Photographer photographing young woman against a blue and white backdrop looking into the camera. Bottom left: TRUE COLORS FESTIVAL in multicolored blocks, with the words 1 world 1 family. Bottom Right ON BEAUTY directed by Joanna Rudnick.
Yellow Background with TRUE COLORS FILM FESTIVAL 3-12 December 2021 Perspectives on left. n right is a collage of 7 images of excerpts from the featured films.
American Academy of Developmental Medicine and Dentistry
aadmd.org
December 5
About The Consortium
Mission
Organized in 2007, The Consortium provides means by which professionals and key stakeholders involved in arts education for students with disabilities in New York can share perspectives, determine needs, develop ways to meet them, deepen practice and understanding. Our purpose is to bring together constituencies that historically have not had sufficient opportunity to interact with one another, to engage them in meaningful conversation and exploration in order to ascertain barriers to and opportunities for providing quality arts education to special education students. That is, to build capacity, understanding and value, and do so as a whole – School/Arts/Home – community.
December 5th and 6th The Consortium Conference
A Virtual Event
Connecting & Re-Connecting With Our Students, Their Families, Our Partners, Ourselves
Course Overview Course Description The Pulse of Art: Connections Between the History of Art and the History of Medicine is a unique, full-semester course that harnesses the power of significant works of art to increase the observation skills and empathic responses of medical students, physicians, and health-care providers. By organizing the course into thematic topics ranging from plague and ebola to portraiture and prosopagnosia, and recognizing historic contexts for the art and science discussed, students also gain an awareness and understanding of the trajectory of medical understanding and discovery.
Welcome to the 97th Annual Greater New York Dental Meeting! We invite you to participate in one of the largest Dental Congresses in the world. At our 2019 Meeting, we hosted over 52,000 health care professionals at the Jacob K. Javits Convention Center featuring over 1,600 Technical Exhibits which demonstrated the newest technology for the dental profession.
Positive Exposure presentation.
(Image description: Graphic of the head of the Statue of Liberty in white, royal blue, Navy and purple with bold lettering Greater NY Dental Meeting 2021)
Newsletter Summer 2021
This summer, we launched a citywide public art installation with NYC Department of Education’s District 75 students inspired by POSITIVE EXPOSURE’s East Harlem Wall of Love, a four-story mural created in collaboration with artist Marco Santini. The project, entitled “Fill NYC with Love” is composed of over 500 pieces of District 75 student artwork, addressing the theme, “Love, Unity and Inclusion,” complimenting the amazing Wall of Love. The public installations were on East 4TH Street between 1ST and 2ND outside PS751M (Manhattan School of Career Development) and East 120TH Street between Madison and Park at PS79M (Horan School). They were up through August and enjoyed by thousands.
Friday, 24 September 2021, 4:30-5:30 PM ADT
In-person (students, staff, & faculty)
Virtual (unlimited attendance)
This year’s speaker is Rick Guidotti, founder of Positive Exposure. Register for the virtual event.
Time
Starts:
Ends:
Location
Ondaatje Theatre
Marion McCain Arts & Social Sciences Building
6135 University Avenue
Dental Program for the Diagnosis and Treatment of Individuals with Special Health Care Needs
8:30-9:00 am: Welcome
Remarks from Dean Huja and Dr. Michelle Ziegler
9:00-10:00 am: Keynote:
Positive Exposure by Rick Guidotti
10:00-11:00 am: Orthodontic
Treatment Through the Lens of the Parent of your Patient with Intellectual Disabilities by Dr. Marc Ackerman
11:00-11:30 am: Poster:
Identifying Barriers to Access of Dental Care for Special Needs Patients During COVID-19 Pandemic by Rachael Elvis and Alexa Cox
11:30-12:00 pm: Break
12:00-1:00 pm: Welcoming Patients with Special Heath Care Needs into your Practice by Dr. Michelle Ziegler
1:00-2:00 pm: Prevention,
Caries Management and Silver Diamine Fluoride by Dr. Allen Wong
2:00-2:15 pm: Closing Remarks with Dr. Michelle Ziegler
Speaker Biographies
Rick Guidotti Rick Guidotti, an award-winning photographer, has spent the past twenty five
years collaborating internationally with nonprofit organizations, hospitals, medical schools,
educational institutions, museums, galleries, advocacy groups and communities to effect a
change in societal attitudes towards individuals living with genetic, physical, behavioral or
intellectual difference. Rick is the founder and director of POSITIVE EXPOSURE, which has
significantly impacted the field of human rights, mental health, medicine, and education by
providing new opportunities to see each individual as a human being and valued member of our society.
Dr. Ackerman specializes in the orthodontic treatment of children with dentofacial anomalies,
intellectual and physical disabilities and sleep disordered breathing. He received his DMD
from the University of Pennsylvania School of Dental Medicine in and his certificate in
Orthodontics from the University of Rochester-Eastman Dental Center. Dr. Ackerman later
completed his MBA in Executive Leader[1]ship at Jacksonville University Davis College of
Business as well as a Fellowship in Medical Ethics at Harvard Medical School in 2014. Dr. Ackerman
is the Director of Orthodontics at Boston Children’s Hospital and teaches medical students at Harvard
Medical School and dental students/residents from Harvard School of Dental Medicine.
Dr. Ziegler is an Associate Professor in the Department of Oral Rehabilitation, Director of the
Advanced Education in General Dentistry Residency Program and clinical faculty of the newly
opened Special Care Dentistry Clinic at the James B. Edwards College of Dental Medicine
at the Medical University of South Carolina. She graduated from the New York University
College of Dentistry, as well as receiving her BS from Columbia University and an AS in Dental
Hygiene from the University Of Pennsylvania School Of Dental Medicine. Dr. Ziegler’s
postgraduate training includes a two year General Practice Residency at Lutheran Medical
Center in Brooklyn, NY where she was Chief Resident. She was the Director of the General Residency
Program at Lutheran Medical Center and Director of the General Practice Residency Program at Monmouth
Medical Center in New Jersey. Over the last 20 years Dr. Ziegler’s passion has been treating patient with
special needs.
Dr. Allen Wong has taught postdoctoral general dentistry for over 35 years. He currently
teaches at the University of the Pacific Arthur A. Dugoni School of Dentistry as a Professor
in the Department of Diagnostic Sciences as well as maintains a private practice in San
Francisco. He has lectured nationally and internationally in the areas of special care dentistry,
and minimally invasive dentistry. Dr. Wong is the immediate past president of The American
Academy of Developmental Medicine & Dentistry, a non-profit, membership organization of
interdisciplinary health professionals — including primary physicians, medical specialists, dentists, optometrists,
Please join us from 11:00-11:30a for the poster presentation by our 4th Year
Dental Students, Rachel Elvis (L) and Alexa Cox (R).
September 16
BEYOND Limits: Canada’s Conference for Diversity and Accessibility: 7PM EST
September 16
About this event: Canada’s Conference for Diversity and Accessibility
September 16, 5pm – 7pm CDT, 6pm – 8pm EST
We’re ready for our 2021 Fall Kick-Off Virtual Event! Join us as we welcome Rick Guidotti and Maysoon Zayid as they each present in our first virtual event this 2021-2022 year!
IMAGE DESCRIPTION: Eight square pictures of people are across the top. They are all different ages and races. Each person is looking into the camera and smiling or laughing. In the center on a gold background, black wording reads, “POSITIVE EXPOSURE 2021 Celebration, Airing Wednesday, September 22, 7:00 PM EST, Tickets now available.” Below on a white background black wording reads, “Special Thanks to Our Sponsors and Champions for Change.” Below are logos from companies including Goldman Sachs, Myers Leadership, Cushman Wakefield, Tastemade, Patti + Ricky, Familial Dysautonomia, Morgan Lewis, Sublime Communications, Miraflex.
August 7
Biennial Family Conference
Image Description: A family of 4 Mom, Dad & 2 Children, smiling and looking into the camera.
Add Form
Image Description: Man and women photographed at a previous conference, listening to the speaker, off camera.
Registration is now closed. Questions? Email us at info@clovessyndrome.org
Join us on Friday August 6th from 6-8pm EST for our opening keynote speaker and social event and Saturday August 7th from 10am to 3pm EST for our main sessions.
Our conference this year is virtual event, with activities for kids over 8 and programming for families and people with CLOVES.
Tri-sponsored by the Academic Pediatric Association (APA), the American Academy of Pediatrics (AAP), and the Society of Hospital Medicine (SHM), the PHM meeting provides an all-inclusive arrangement of educational and networking opportunities planned specifically for the pediatric hospital medicine professional. APA will be the host society for the 2021 meeting. The meeting will take place virtually from August 4 – 6, 2021. The meeting time zone is Eastern Daylight Time. Scroll down for complete information on the schedule and to register.
Join Drs. Anthony Fauci & and Lee Beers
Thursday, August 5th at 6:30pm EDT
Join the White House’s Chief Medical Adviser, Director of NIAID, and AAP’s President, Medical Director, Community Health and Advocacy of Children’s National, to discuss the importance of vaccinating children and reopening schools safely.
Lee Beers, MD
President
American Academy of Pediatrics
Anthony Fauci, MD
Chief Medical Adviser, Biden Administration
Director, NIAID
Wednesday, August 4th
Leading through Adversity: This is a story of a journey that begins with tragedy and focuses on resiliency, leadership, and perhaps, inspiration
3:00 pm – 4:00 pm EDT
Ilan Alhadeff, MD, MBA, SFHM, CLHM
Assistant Vice President of Medical Services and Care Management
at Boca Raton Regional Hospital
Thursday, August 5th
Structural Racism and Medicine: Moving from Awareness to Action
11:30 am – 12:30 pm EDT
Nathan T. Chomilo, MD
Medical Director for the State of Minnesota’s Medicaid & MinnesotaCare at the Minnesota Department of Human Services
Accelerating Patient Care and Healthcare Workforce Diversity and Inclusion
3:00 pm – 4:00 pm EDT
Julie K. Silver, MD
Associate Professor, Associate Chair
Department of Physical Medicine and Rehabilitation Harvard Medical School
Friday, August 6th
Positive Exposure: Seeing Beyond the Diagnosis
3:00 pm – 4:00 pm EDT
Rick Guidotti
Founder and director of Positive Exposure, an innovative arts, education and advocacy organization working with individuals with genetic difference.
Priya Chandan, MD, PhD, MPH
Assistant Professor in the Division of Physical Medicine & Rehabilitation at the University of Louisville School of Medicine
Corrie Harris, MD
Associate Professor of Pediatrics in the Division of Pediatric Hospitalist Medicine at the University of Louisville School of Medicine
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