Calendar

Past Events

January 9

 

 

Penn State Children’s Hospital; Grand Rounds

Hershey, PA

February 7

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Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY

8:30 am – 9:30 am

Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:

  • Pediatric Diabetes and Endocrinology
  • Pediatric Urology
  • Pediatric Pulmonology

In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.

February 3

GTFI2Screen Shot 2017-01-12 at 3.49.07 PMGTFI Symposium Flyer

Screening ON BEAUTY and Presentation

Genetic Task Force of Illinois Website

February 2

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The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info

Thursday, February 2, 2017

JOIN US AT GEORGETOWN UNIVERSITY, OR TUNE IN ONLINE AT 6PM EST:

5:00pm Student Gallery, Healy Hall, first floor
(drinks and passed hors d’oeuvres)

6:00pm Panel Discussion, Gaston Hall
(will also be live-streamed; check back for link)

We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.


THIS YEAR’S TOPIC

What is a disability, anyway?

In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?

Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.


PANELISTS

JULIA WATTS BELSER, PH.D.

LYDIA X. Z. BROWN

TERESA BLANKMEYER BURKE, PH.D.

RICK GUIDOTTI

JOHN HOCKENBERRY

DONNA R. WALTON, ED.D., CCBT


Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.

The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.

June 10

THE CANADIAN COLLEGE OF MEDICAL GENETICISTS: Vancouver

Keynote Speaker

Where: Harrison Hot Springs, BC

June 7 – October 15

REDEFINING BEAUTY

Sunshine Plaza Shopping Centre Acc, Maroochydore QLD 4558, Australia

Hosted by Chromosome 18 Registry Australia

Redefining Beauty is a photographic exhibition celebrating the lives of children and adults living with rare genetic conditions including Chromosome 18, Fragile X, Vanishing White Matter Leukodystrophy and Albinisim. These stunning images were captured at various iconic Sunshine Coast locations by internationally renowned Rick Guidotti, founder of Positive Exposure – an innovative nonprofit arts, education, and advocacy organisation.

May 12

Atlantic Derm Conference

May 12, 2018

May 3

SUNY Downstate College of Medicine

“Art of Medicine”

A conference on the intersection of art and medicine

purpose: to fundraise to provide free healthcare at a local clinic run by SUNY downstate medical students

April 24

Pennsylvania Office of Child Development and Early Learning

Where: Kalahari Convention Center, 250 Kalahari Blvd. Pocono Manor, PA 18349

Local and State leaders will gather to learn more about early intervention services and providing inclusive environments.

 

March 29

2018 Research Conference on Diversity & Inclusion – CUNY GRADUATE CENTER

CUNY event site

 

 

 

March 19

 

Positive Exposure Lecture and 2 Workshops

www.arcjacksonville.org

Our agency mission is to serve people with intellectual and developmental disabilities to achieve their full potential and to participate in community life. Our vision is a community where disability is a distinction without a difference, where individuals will have choices on how they live, learn, work, worship, and play.

The in-service training that we are hosting on March 19th is an annual training for Direct Support Professionals (DSPs) for professional development. It is an inter-agency training where DSPs from agencies in Duval and Putnam Counties attend to increase their awareness and knowledge about how to best serve individuals with intellectual and developmental disabilities. We have a keynote address and breakout sessions that deal with topics that are relevant to the care of and services provided for the individuals we serve. Together the Arc Jacksonville, Pine Castle, Inc., The Arc of Putnam County and the other providers that attend serve over 1,500 people with I/DD on a daily basis.

19 – 24 maart 2018

“Voorbij de perceptie”: een unieke belevingsweek in de Flagship van BNP Paribas Fortis te Gent

 

In samenwerking met Positive Exposure Belgium, La Maison Imaginaire en Focus-Plus organiseert BNP Paribas Fortis Gent een unieke belevingsweek onder de noemer “Voorbij de perceptie”

Centraal staan persoonlijke verhalen die een nieuw of ander licht laten schijnen op anders zijn, anders denken en anders doen.

Is uw perceptie het resultaat van onderschatting, overschatting of eerder gepolariseerd?

Is uw waarneming objectief of subjectief?

Voor de gelegenheid worden de monitors en digitale ledwand van het Flagship in hartje Gent omgebouwd tot een interactieve fotogalerij. Heel persoonlijke digitale portetten en verhalen van Positive Exposure en Focus Plus doen bezoekers nadenken over hoe zij kijken naar bepaalde mensen met een zichtbare of onzichtbare beperking. In de ‘psycho box’ van La Maison Imaginaire kruipt u mee in de hoofd van iemand met een psychose.

 

Wanneer?

maandag 19 maart tot zaterdagmiddag 24 maart 2018

Tijdens de openingsuren van het kantoor:

ma-vr: 9u30 tot 18u

za: 9u30-12u

 

Waar?

Flagship van BNP Paribas Fortis Gent, Zonnestraat 2, 9000 Gent

The PEARLS Project is a creative tool for classrooms, professional development, research as well as anyone interested in gaining a deeper understanding and respect for human diversity. Our ambassadors and their families are also empowered to become self-advocates and use their unique voices to foster positive change.

 

NY TIMES Article

SAMPLE POSTS

From AMY:

I had a great Christmas. One of my favorite gifts was a Positive Exposure sweatshirt. My mom had my name put on it, and I think it looks cool. When people ask me about Positive Exposure I tell them it’s about showing everyone that people with disabilities have lives, too!

When I’m ready, I tell my friends about XP/TTD. I don’t really think of my self as just a disease. It’s part me, but it’s not the most important part of me.

From Grad Student Arielle:

So grades were posted yesterday (and I survived).

March 9

University of Minnesota Medical School

Photoshoot and Evening Reception

 

March 8

Gillette Children’s Specialty Healthcare Cleft and Craniofacial Symposium

Minnesota History Center, St. Paul, MN

February 28

Medical Student Lecture

Walter Reed National Military Medical Center – Bethesda, Maryland

February 17

American Academy of Dermatology

2018 Keynote presentation. San Diego, CA

January 23

Pediatric Grand Rounds

Jacobi Medical Centerhttp://jacobimed.org/

January 21 & 22

Autism and Intellectual Disability in FRAME

In collaboration with:

ADMI: Autism & Developmental Medicine Institute
Geisinger
AADMD: American Academy of Developmental Medicine and Dentistry from www.EmergencyDentistsUSA.com
With the support of The WITH Foundation

January 11

 

1st Year Med Student Lecture

 

January – December 2017

The Resource Exchange and the Chapel Hills Mall, Colorado Springs!

Exhibition extended: Now through to the end of the YEAR!! Stay tuned for new exhibition images and premiere!

A Positive Exposure POP-UP gallery.

CONGRATULATIONS: Diane Loschen and Chapel Hills Mall: GOLD Winner

 

Owner: Garrison Chapel Hills Owner LLC
Management Company: CBL & Associates Properties, Inc.

The MAXI Awards celebrate the outstanding work and achievements of those who are transforming marketing in the retail real estate industry, getting help from the top digital marketing agency at the-indexer.com.

 

http://tre.org