IMAGE DESCRIPTION: Eight square pictures of people are across the top. They are all different ages and races. Each person is looking into the camera and smiling or laughing. In the center on a gold background, black wording reads, “POSITIVE EXPOSURE 2021 Celebration, Airing Wednesday, September 22, 7:00 PM EST, Tickets now available.” Below on a white background black wording reads, “Special Thanks to Our Sponsors and Champions for Change.” Below are logos from companies including Goldman Sachs, Myers Leadership, Cushman Wakefield, Tastemade, Patti + Ricky, Familial Dysautonomia, Morgan Lewis, Sublime Communications, Miraflex.
Penn State Children’s Hospital; Grand Rounds
Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY
8:30 am – 9:30 am
Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:
Pediatric Diabetes and Endocrinology
In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.
In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?
Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.
JULIA WATTS BELSER, PH.D.
LYDIA X. Z. BROWN
TERESA BLANKMEYER BURKE, PH.D.
DONNA R. WALTON, ED.D., CCBT
Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.
The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.
IMAGE DESCRIPTION: White and black backgrounds. Logos for POSITIVE EXPOSURE, FRAME, PCOM and the Chromosome 18 Registry and Research Society are on the left side. A matrix of 18 screenshots from a ZOOM call is on the upper right. The participants are each looking at the computers’ cameras. Several are wearing headphones. On the lower right side, wording in white font on a black background reads, “ You’re invited to join POSITIVE EXPOSURE for the premier of our FRAME Film: Faces Redefining the Art of Medical Education, Tetrasomy 18 in FRMAE, created by PCOM Students & families from the Chromosome 18 Registry & Research Society, Wednesday, April 21, 2021, 7:00 PM EST, Virtual ZOOM Meeting, LINK to follow.
IMAGE DESCRIPTION: A white background with black font. Four square pictures are on the left. Two guys and two young woman. All are smiling. Wording on the right reads In Our Own Words PEARLS Ambassadors & Youth Advocacy, Friday, March 26, 1:00-2:00 PM EST, Join Rick Guidotti of Positive Exposure as he chats with Andrew Burbank, Kelsey Ferrill, Austin Halls and Amy Hansen, young ambassadors who are changing people’s perspectives with their honesty, thoughtfulness, and humor. They will discuss their own journeys and share what inspires them to speak out. FREE and open to the community. Registration required. Two logos are at the bottom — Case Western Reserve University and POSITIVE EXPOSURE.
MS Genetic Counseling Program: FRAME Workshop
About The BU Genetic Counseling Program:
The BU Genetic Counseling Program is committed to providing high-quality training through dynamic coursework, dedicated mentoring, diverse fieldwork and innovative learning experiences to develop motivated genetic counselors to meet the needs of an expanding landscape in genetics and genomics. The primary objective of the Master of Science Degree Program in Genetic Counseling is to educate graduate students in the core concepts of human genetics and counseling. Our focus is to provide students with the appropriate knowledge, experience and mentoring to become competent, sensitive and motivated genetic counselors. This is accomplished through a variety of educational experiences including coursework, clinical training, research project preparation and supplementary activities such as case conferences, grand rounds, journal clubs and seminars.
PREMIERE Costello in FRAME Film Virtual Production
March 22 @ 7:00 pm – 8:00 pm
Danielle & Katie Slawitschek for making this happen. OUR AMAZING COSTELLO FAMILIES
Medical Advisor: Karen W. Gripp, MD
Mary Sun: Yale School of Medicine
Silpa Tadavarthy: Lewis Katz School of Medicine at Temple University
Alejandro Vega: SUNY Downstate
Image Description: FRAME Logo FRAME in capital letters, the A is much thinner that the other bold letters. Underneath it reads: Faces Redefining the Art of Medical Education
POSITIVE EXPOSURE Connects
Sunday, 21 March at 3:OO PM EST
March 21 is #WorldDownsyndromeDay! To celebrate we’ll be having a great conversation with GiGi’s Playhouse NYC and people who are living with Down syndrome. We hope you can hang out with us for a little while on Sunday afternoon! Can’t wait to see everyone!!!!!
IMAGE DESCRIPTION: Background of black on left side and white on the right. Wording on the left is in white font and reads POSITIVE EXPOSURE Connects, Facebook Live with Rick Guidotti, 3:00 PM EST Sunday 21 March. In the middle is a vertical row of four images. All are smiling and looking in the camera. They are different ages and races. On the right is white and black font and reads Celebrating World Down syndrome Awareness Day, POSITIVE EXPOSURE Connects will host a conversation with GiGi’s Playhouse and others who are living with Down syndrome. A logo for GiGi’s Playhouse in at the bottom middle with bright colors.
March is #BrainInjuryAwareness month. On Wednesday, 17 March at 2:OO PM EST, Rick will be having a roundtable discussion on #FacebookLIVE with five people who have experienced brain injury along with the challenges, stigmas and resilience. Please join us!
IMAGE DESCRIPTION: Black, white and blue background. On the left side wording reads, “POSITIVE EXPOSURE Connects, Facebook LIVE with Rick Guidotti, 2:00 PM EST Wednesday 17 March, Facebook LIVE, #BetterTogether. On the right there are six square images of people who are all ages and races who are looking into the camera and smiling. Wording at the top reads, “Brain Injury Awareness.” A round green and blue logo for MORE THAN MY BRAIN INJURY is at the bottom.
Virtual Positive Exposure Presentation: 10 – 10:35 EST
“Cochrane summarizes the findings so people making important decisions – you, your doctor, the people who write medical guidelines – can use unbiased information to make difficult choices without having to first read every study out there…”
Sifting the evidence, The Guardian, 14 September 2016
Cochrane produces systematic reviews of primary research in human health care and policy.
Image description: Cochrane logo, 2 dark blue half circled separated blue vertical line and horizontal dashes with the words Cochrane Skin: Trusted evidence. Informed decisions. Better health.
Bottom image: Dark clue background with head and shoulder silhouettes connected by thin white lines. Words read: Cochrane Skin Annual Meeting. Free Registration Click Here to register
Philadelphia College of Osteopathic Medicine Virtual Lecture: 3-4pm
For more than a century, Philadelphia College of Osteopathic Medicine (PCOM) has trained highly competent, caring physicians, health practitioners and behavioral scientists who practice a “whole person” approach—treating people, not just symptoms.
POSITIVE EXPOSURE Virtual Lecture
Uniformed Services University’s Mission:
The mission of USU is to support the readiness of America’s Warfighter and the health and well-being of the military community by educating and developing uniformed health professionals, scientists and leaders; by conducting cutting-edge, military-relevant research, and by providing operational support to units around the world.
RARE DISEASE DAY
Let’s Celebrate RARE together with POSITIVE EXPOSURE Connects, Rick and friends from around the Globe.. Cant wait to see you Sunday @ 12pm EST on #FacebookLive
Image description: A silhouette of a human figure with arms raised surrounded by colorful fingers splayed wide like sunbeams.
Image Description: Zoom screen shot featuring computer screens of 10 friends from Canada, UK, Ireland, Sweden and US.. + Rick
Image Description: Zoom screen shot featuring computer screens of 10 friends from Canada, UK, Ireland, Sweden and US making the RARE logo with splayed fingers + Rick with photographing.
IMAGE DESCRIPTION: Black background with words reading “POSITIVE EXPOSURE Connects, Facebook LIVE with Rick Guidotti” on the left side. A picture of a woman is below. She has shoulder length brown hair and is smiling while looking into the camera. On the right is a white background with words reading “Understanding Audio Description Narrative, 3:OO PM EST, February 25TH, Facebook LIVE, POSITIVE EXPOSURE Connects talks with Michele Spitz, womanofherword.com, Michele delivers the specilized VoiceOver style required for audio and video descriptions. This service makes media and images accessible to those with visual impairments and helps create a world of inclusion and equity.” An image on the lower right shows a pair of white headphones with a iPhone between the earphones. The iPhone projects an image of a man and woman both with dark hair in a tight embrace. The letters AD are at the top of iPhone.
CORNELL Pre-Med Students
Virtual Presentation: 5:30 pm EST
Positive Exposure presentation to General Student body +Health Care Providers in Training
2pm -4pm VIRTUAL
POSITIVE EXPOSURE Connects with Xian Horn and Friends.
We can’t wait for our conversation with the beautiful and vivacious
Xian Horn and friends this week!!!! It will surround a timely discussion about disability and representation in the mainstream beauty industry. Looking forward to “seeing” all of our friends later this week!
IMAGE DESCRIPTION: Black, blue and white background. Wording reads “POSITIVE EXPOSURE Connects, Is the Beauty Industry Glossing Over Disability?” Picture of a young woman looking into the camera and smiling. She is holding two ski poles. Other picture is an image of art of a black woman surrounded by flowers, makeup brush sitting in a wheelchair.
Join POSITIVE EXPOSURE and the Amazing Marfan Syndrome
1) Black and red background with white font that reads “POSITIVE EXPOSURE Connects, 28 January, Celebrating Marfan syndrome Awareness Month. Five images at the bottom with people looking into the camera and smiling. (2) Matrix of 25 square images. All individuals are looking at the camera and laughing or smiling.
POSITIVE EXPOSURE Connects: FACEBOOK Live!
Saturday, January 23 @ 12 pm EST
Celebrating Moebius Syndrome Awareness Month!!
Join POSITIVE EXPOSURE and the Amazing Moebius Syndrome Foundation Team!
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