Past Events
April 26
January 9
Penn State Children’s Hospital; Grand Rounds
Hershey, PA
February 7
Pediatric Grand Rounds: Children’s Medical Center @ Winthrop-University Hospital – Long Island, NY
8:30 am – 9:30 am
Winthrop’s Children’s Medical Center has been named to U.S. News & World Report’s 2016-17 Best Children’s Hospitals rankings for demonstrating excellence in the specialties of:
- Pediatric Diabetes and Endocrinology
- Pediatric Urology
- Pediatric Pulmonology
In connection with this temporary relief, users should consult with a medical professional if tingling and nerve pain continue over a long period of time as this may be an indication of diabetes. Monitoring the blood sugar level is essential and Nerve Pain Away is not manufactured to address this serious condition. Visit https://neuropathycure.org/nervestra-review/ for more information.
February 3
GTFI Symposium Flyer
Screening ON BEAUTY and Presentation
Genetic Task Force of Illinois Website
February 2
The Kennedy Institute of Ethics at Georgetown University will host its fourth annual “Conversations in Bioethics” program on February 2, 2017 on the topic of “disability.” Event info
Thursday, February 2, 2017
JOIN US AT GEORGETOWN UNIVERSITY, OR TUNE IN ONLINE AT 6PM EST:
5:00pm Student Gallery, Healy Hall, first floor
(drinks and passed hors d’oeuvres)
6:00pm Panel Discussion, Gaston Hall
(will also be live-streamed; check back for link)
We hope to see you there! Stay up to date on this year’s conversation by joining the Institute’s mailing list.
THIS YEAR’S TOPIC
What is a disability, anyway?
In an era of ever-growing pharmaceutical enhancement, what counts as intellectually disabled, and why would that matter? How does the way we define disability (and normalcy) impact the just distribution of resources in society — and the way society treats those who happen to fall outside the norm? How are foundational concepts in ethics like dignity or autonomy complicated by reflection on the many ways we are dependent on others in the course of any “normal” human lifespan?
Each year, the Kennedy Institute of Ethics convenes a wide-ranging and personal conversation among expert panelists, preceded and informed by student work on the same topic. We can’t wait to share this year’s conversation, complicating the very notion of “disability.” Join us this February, in-person at Georgetown University, or digitally via live-stream, as our team goes deep on this thought-provoking and deeply important issue.
PANELISTS
JULIA WATTS BELSER, PH.D.
LYDIA X. Z. BROWN
TERESA BLANKMEYER BURKE, PH.D.
RICK GUIDOTTI
JOHN HOCKENBERRY
DONNA R. WALTON, ED.D., CCBT
Did you know? This year’s topic celebrates one of the issues at the heart of the KIE story: disability.
The Institute was founded in 1971 with support from the Rose and Joseph Kennedy Foundation, inspired in large part by the Foundation’s ongoing commitment to advancing the rights of the disabled. This year’s topic celebrates that founding vision of a world where the voices of the powerless are made powerful through thoughtful reflection and theory-driven advocacy, and it dives deep into some of the most complicated and interesting questions in disability ethics today.
May 19 to May 22
POSITIVE EXPOSURE Connects
May 19-22, 2020
Tuesday, May 19, 2020
2:30pm (EST)
“The Hack-Ability Toolkit”
Open Style Lab
Grace Jun, CEO
Kieran O’Brien Kern, Engagement Manager
www.openstylelab.org
Discussing the Hackability Toolkit
Established in 2014, Open Style Lab (OSL) is 501(c)(3) organization dedicated
to creating functional, wearable solutions for people of all abilities without
compromising on style.
The OSL Team will demonstrate The Hack-Ability toolkit created to
empower people with disabilities everywhere to strategize and create their own solutions.
Wednesday, May 20, 2020
4:00pm (EST)
“Disability Rights”
Becky Curran Kekula, Disability Rights Activist
Brandon Farbstein, Gen Z Activist
Thursday, May 21, 2020
10am (EST)
“Undiagnosed Diseases”
The Wilhelm Foundation
Founders: Helene and Mikk
(A Swedish nonprofit supporting individuals and families that are undiagnosed around the globe.)
Guests also include POSITIVE EXPOSURE PEARLS Ambassador Freya and Ann Nordgren, MD, PhD, from the Karolinska Institute Stockholm.
Friday, May 22, 2020
2:00pm (EST)
“Beauty Tips”
Beauty tips with Joseph Boggess (make-up artist), Dawn Gallagher (best-selling author and supermodel) and Xian Horn (beauty activist)
May 12-16
Positive Expo Website Calendar 05.12.2020 PDF
May 8
PE Virtual Calendar 05.05-05.08.2020 PDF 
May 6, 2020
VIRTUAL PRESENTATIONS: 9am
Pediatric Grand Rounds at Golisano Children’s Hospital at the University of Rochester and Rochester Regional Hospital.
VIRTUAL PRESENTATION:12pm
FRAME Workshop Featuring Cerebral Palsy, Cystic Fibrosis, Fragile X syndrome
On behalf of the pediatric residents at the University of Rochester, the chief residents have invited Rick Guidotti to Rochester as the Richard Ham Memorial Lecturer of 2020. This lectureship was established in memory of Richard Ham, a former pediatric resident at the University of Rochester (1963-1965). Dr. Ham became ill the year following his residency with Hodgkin’s disease and died in 1967 during his postdoctoral fellowship. He is remembered as a warm, selfless, caring colleague, devoted learner, and inspiring teacher, and this lectureship is evidence of the high esteem in which he was held by his fellow house officers. Each year, the Ham Memorial speaker is chosen by the pediatric chief residents.
Blogs, Bloggers & Positive Exposure!
Janice Hansen, PhD, serves as director of undergraduate programs at University of California, Irvine’s School of Education. She has also served as a lecturer for both the undergraduate Bachelor of Arts in Education Sciences and the Master of Arts in Teaching/Credential programs at UCI, as well as an undergraduate course lecturer at California State University, Long Beach.
As a mother of a daughter living with a rare disease, Dr. Janice Hansen — along with her daughter — are ardent advocates for rare disease research, legislation and positive change.
We are delighted to share with you this fun, interactive learning activity, developed by Dr. Janice Hansen, to be used in conjunction with Positive Exposure’s PEARLS Project. Click on the link to learn more:
PE Blogs Bloggers Pearls 04.09.2020
April 16, 2020
Virtual Positive Exposure Presentation and FRAME (Faces Redefining the Art of Medical Education)
March 6, 2020
Hosting Syracuse University’s 
In collaboration with
February 27, 2020
Positive Exposure Grand Rounds
February 26, 2020
“Change How You See, See How You Change” presentation to 3rd medical students at Uniformed Services University of the Health Sciences.
February 19, 2019
Positive Exposure Lecture to First Year Medical Students
February 16 – 18, 2020
BEYOND THE WHITE COAT uses photography and written narrative to celebrate physicians in reflective and personal moments outside the hospital helping to prevent physician burnout.
The South Carolina Medical Association Alliance (SCMAA) educates, advocates and supports the physician family of South Carolina and is proud to present this project and the photography exhibition throughout the state beginning in spring 2020.
• Photo Shoot Dates
February 11 – 16, 2020
• Locations
Charleston, Columbia, Greenville,
Spartanburg and others
• Photographer
Rick Guidotti
Positive Exposure, Founder & CEO
• Information
Suzanne Manning
SCMAA, President 2019-20
(864) 630.6845
scmaalliancepresident@gmail.com
February 7, 2020
The Beauty of Our Shared Humanity
Talk and Photo Presentation
Rick Guidotti
Photographer, Founder, and Director
POSTIVE EXPOSURE
Keynote:
2:00pm – 3:30pm
Webb Auditorium (1350 Booth Hall)
Reception & Book Signing:
3:30pm – 4:30pm
Bruce and Nora James Atrium, Thomas Gosnell Hall
Speaker Bio:
Rick Guidotti, an award-winning photographer, has spent the past twenty years collaborating internationally with nonprofit organizations, hospitals, medical schools, educational institutions, advocacy groups and communities to promote a more inclusive and compassionate world where ALL differences are understood and celebrated; his work has been published in newspapers, magazines and journals as diverse as Elle, GQ, People, the American Journal of Medical Genetics, The Lancet, Spirituality and Health, the Washington Post, New York Times, Atlantic Monthly and LIFE Magazine.
Rick is the founder and director of POSITIVE EXPOSURE, an innovative arts, advocacy, and education organization which utilizes the visual arts to celebrate human diversity, inclusive of ethnicity, religion, age, ability, learning style, gender identity, gender expression and sexual orientation.
Books will be available for purchase with a book signing at a reception following the presentation.
Intended Audience:
No background knowledge needed. All are welcome.
Event Snapshot
When and Where
Who
Open to the Public
Interpreter Requested
Yes
January 10 – 13, 2020
A very unique opportunity at PE109. Be part of the Positive Exposure discussion about Stigma and celebration of our shared humanity. Positive Exposure focuses our lens on Heidi Latsky Dance company.
Open rehearsal for Heidi Latsky Dance, workshop and discussion with choreographer and performers.
Heidi Latsky Dance workshop about Disrupting Space, Dismantling Normal, and Redefining Beauty?
Please visit Positive Exposure 109 (14 East 109th @ 5th Avenue) Jan 10 – 13 to experience Open Rehearsal with the Heidi Latsky Dance Company! This creative exploration is certain to elicit conversation, shift perceptions, and spark new ideas. It might even get you dancing!
HLD is a New York-based modern dance company committed to making relevant, striking work across multiple disciplines. Since its inception in 2001, the company has received numerous commissions and residencies: Abrons Arts Center, Baryshnikov Arts Center, Danspace Project, JCC Manhattan, Joyce Theater, Peak Performances at Montclair State University, New York University.
Friday, Jan 10: 12 – 4 pm rehearsal
Saturday, Jan 11: 1 – 4 pm rehearsal; 5 pm run through
Sunday, Jan 12: 1 – 4 pm rehearsal; 5 pm run through
Monday, Jan 13: 12 pm rehearsal; 1 pm run through
More about Heidi Latsky Dance: http://heidilatskydance.org
January 15-25, 2020
Photography: Netherlands and Mali (West Africa)
December 6, 7, 13
Metropolitan Hospital Community Photography/ Book/ Exhibition
Photoshoots: December 6, 7 & 13.
November 5
SUNY Downstate Medical College: Med student lecture
October 24-27
PRADER-WILLI SYNDROME ASSOCIATION (USA)
Conference: Caribe Royale, Orlando, Florida
Prader-Willi syndrome (PWS) is the most common known genetic cause of life-threatening obesity in children. Although the cause is complex, it results from an abnormality on the 15th chromosome. It occurrs in males and females equally and in all races. Prevalence estimates have ranged from 1:8,000 to 1:25,000 with the most likely figure being 1:15,000.
Website
October 18
https://www.ashg.org/press/201907-Advocacy-Award.shtml
October 15
11th Annual Current Topics in Neonatal Nutrition and Advances in Neonatal Care Neonatology conference sponsored by The Children’s Hospital at the Albany Medical Center in New York on October 15 and 16, 2019.
