June 23 – June 28

The International 22q11.2 Family Meeting

Hosted by the 22q11.2 Society

Le Méridien Lav Hotel in Split, Croatia – On the Dalmacijan Coast

June 26 – June 28, 2022

22q Family Program

22q Family Program

June 21- 23

CCD Smiles: Conference Salt Lake City

Improving the lives of people with cleidocranial dysplasia through Connections, Awareness, Research, Education and Support.

Cleidocranial Dysplasia (CCD) is a rare condition that primarily affects the development of bones and teeth.

June 11

Virtual Presentation: 10:30 EST

Overview:

Pitt Dental Medicine, in recognition of the 30th anniversary of the American Disabilities Act, and building on more than half a century of caring for individuals with special care needs, presents a three part continuing education webinar series. The course will consist of 9 hours of accredited CE Credit. This course features speakers from multiple disciplines, promoting the incorporation of special care dentistry into your practice and to highlight available community resources.

Objectives:

The objective of the course is to promote increased access to dental care for patients with disabilities through the education of practicing dental clinicians.

May 22 – June 10

At the Gallery: Call for an appointment

 

June 4

AADMD Annual Conference

Orlando, Florida + The Grand Opening toe the Special Olympic Games..

On the cover: Amanda Harrinauth is a Special Olympic Athlete, self-advocate and poet. Amanda will welcome everyone back on Day 2 and will deliver her latest poem.

(Image Description:  Beautiful young woman with brown hair and brown skin with red lipstick, closely cropped, is smiling and looking off to the right of the camera.)

Message from AADMD President, Allen Wong:

“Let me win, But if I cannot win, let me be Brave in the attempt” is the Motto of the Special Olympics Athletes.  If you read it again, it is more than just a motto but a philosophical way of thinking.  It reminds us that we should be hopeful and courageous in our lives.

As President of AADMD, I intend to bring the spirit of the Athletes of Special Olympics in being hopeful and courageous in our organization’s attempt to educate, advocate, collaborate and propagate the attitude of inclusion and improved health care for all people.  Injustice is wrong but not being courageous to help make improvements is worse.  We cannot mend all the wrongs in life but we can certainly do our part individually and collectively.

AADMD was formed to help improve interdisciplinary healthcare, improve access to care, and help end disparity of care for people with intellectual and developmental disabilities. We invite like-minded people and organizations to join us in our cause.

Conference Agenda

May 19

Michigan Oral Health Coalition Conference, Lansing Michigan

Conference Information

Description:

The Michigan Oral Health Coalition annual conference is the place to find the latest information on oral health in Michigan. The 2022 Conference will be held May 19 and 20 at the Marriott in East Lansing. The first day, sponsored by the Delta Dental Foundation, will feature national speakers sharing best practices on dental care for people with disabilities. The second day will focus on the value of the Medicaid dental benefit to overall health as well as many innovations in oral health care.


Objectives:

  • Identify 3 barriers to people with disabilities accessing dental care.
  • Name 5 ways that people with disabilities can be supported to access oral health care.
  • List 3 reasons why Medicaid Adult Dental Care is important to population health.
  • Identify 3 actions that you can take to advocate for the proposed Michigan Medicaid Dental Restructure.
  • Describe 5 Oral Health Care Innovations.

What to Expect:

The opportunity to learn the latest in oral health care innovation and a change to network and collaborate with Oral Health Advocates from across the state.

Positive Exposure presentation:

Conference Link

May 10

Grand Rounds with Rick Guidotti May 10 @ 12 pm & Exhibition thru June 10 @ Dartmouth Hitchcock Medical Center

(Image Description) Photograph of a gallery with images hanging on a wall, captions reads: “We are honored to host this empowering exhibit to help foster conversations that work to address stigma and ethical challenges surrounding people with genetic differences.”)

Photography exhibition at Dartmouth Hitchcock Medical Center highlights beauty of people with physical differences

Lebanon, NH – A photography exhibition highlighting the beauty of people who live with physical differences due to genetic variations is currently on display at Dartmouth Hitchcock Medical Center (DHMC). “The New Faces of Genetics and Beyond” is a portrait collection from Positive Exposure, a New York-based nonprofit organization that promotes a more inclusive world through award-winning photography, films, exhibitions, lectures and educational programs. Comprised of dozens of images hanging in the main mall of DHMC, the creators of this gallery hope to contribute to creating a more compassionate, understanding, and respectful community.

“The New Faces of Genetics and Beyond” has traveled to numerous hospitals around the United States and the world, including the Mayo Clinic in Rochester, MN, Brigham and Women’s Hospital in Boston and NYU Langone in New York City. The exhibition was brought to DHMC by Marianne L. Barthel, director of the Dartmouth Health arts and humanities program, working with William A. Nelson, PhD, MDiv, professor and director of the Ethics and Human Values program at the Geisel School of Medicine at Dartmouth, and Eleonore B. Baughan, a student at Geisel.

“Art can evoke many emotions, from joy to sadness,” Barthel said. “It can also be a tool to have uncomfortable conversations and break down stigma. Photos can give a new perspective on how we view our fellow humans. We are honored to host this empowering exhibit to help foster conversations that work to address stigma and ethical challenges surrounding people with genetic differences. Positive Exposure founder Rick Guidotti’s spectacular photography on display as part of ‘The New Faces of Genetics and Beyond’ celebrates beauty in all its diverse, magnificent forms and reminds us of our common connection: we are all human.”

The organizers have also created a series of educational events surrounding the exhibition. Some of these events include an upcoming Grand Rounds presentation with Guidotti, and a self-guided narrative medicine experience at the exhibition site developed by Kathryn B. Kirkland, MD, section chief and director of palliative care at DHMC.

“The New Faces of Genetics and Beyond” is on display at DHMC until June 10. For more information, contact Barthel at Marianne.L.Barthel@hitchcock.org or visit https://positiveexposure.org/gallery/.

Photo Caption: “The New Faces of Genetics and Beyond,” a portrait collection from Positive Exposure, is on display at Dartmouth Hitchcock Medical Center through June 10.

 

###

 

Dartmouth Health, New Hampshire’s only academic health system and the state’s largest private employer, serves patients across northern New England. Dartmouth Health provides access to more than 2,000 providers in almost every area of medicine, delivering care at its flagship hospital, Dartmouth Hitchcock Medical Center (DHMC) in Lebanon, NH, as well as across its wide network of hospitals, clinics and care facilities. DHMC is consistently named the #1 hospital in New Hampshire by U.S. News & World Report, and is recognized for high performance in numerous clinical specialties and procedures. Dartmouth Health includes Dartmouth Cancer Center, one of only 51 National Cancer Institute-designated Comprehensive Cancer Centers in the nation, and the only such center in northern New England; Dartmouth Health Children’s, which includes the state’s only children’s hospital and multiple locations around the region; member hospitals in Lebanon, Keene and New London, NH, and Windsor, VT; and Visiting Nurse and Hospice for Vermont and New Hampshire; and more than 24 clinics that provide ambulatory and specialty services across New Hampshire and Vermont. Through its historical partnership with Dartmouth and the Geisel School of Medicine, Dartmouth Health trains nearly 400 medical residents and fellows annually, and performs cutting-edge research and clinical trials recognized across the globe with Geisel and the White River Junction VA Medical Center in White River Junction, VT. Dartmouth Health and its more than 13,000 employees are deeply committed to serving the healthcare needs of everyone in our communities, and to providing each of our patients with exceptional, personal care.

 

April 29

Undiagnosed Day 2022

Image Description:  A young boy against a green column, smiling into the camera.

Image DescriptionL Collage of images of young people with the words Welcome to the worldwide webinar to celebrate Undiagnosed Day April 29

Image Description: Image of 3 boys, tightly cropped on faces smiling. Caption reads: The Undiagnosed Inititiative. Aliou

Aliou is 16-year-old young man from a small village in Mali. He is a happy and kind creating lot of great energy around him. He loves breeding and playing with his goats.

June 26-28

Split, Croatia

22Q COnference

April 5

NYU College of Dentistry will host its second AHEAD Symposium — Achieving Health Equity through Access for All with Disabilities — focused on changes in policy and practice. The event will take place virtually on Tuesday, April 5, 2022, from 9:00 am to 12:00 noon EDT, and will bring together experts in the areas of health care advocacy, access, and funding at the state and federal levels for people with disabilities.
COVID-19 created new access issues in health care, but people with disabilities have faced significant barriers to receiving care long before the pandemic. To see a dentist, people with disabilities may need to find a practice with an accessible office and a provider who is willing and prepared to see patients with disabilities. Payment can also be a barrier: while more than 10 million people with disabilities are eligible for Medicaid, many dentists do not accept it due to low reimbursement rates.
“Ensuring people with disabilities have access to compassionate, comprehensive oral health care is an important health equity goal, and we need policymakers and the oral health community at the table for these conversations,” said Charles N. Bertolami, DDS, DMedSc, the Herman Robert Fox Dean of NYU Dentistry. “We’re pleased to reconvene for our second AHEAD symposium to discuss how to both increase access for this patient population and prepare the next generation of dentists to care for them.”

March 19

The James B. Edwards College of Dental Medicine

The James B. Edwards College of Dental Medicine is a strong, academically progressive, financially stable institution with a committed faculty and staff that serves a uniquely talented cohort of students and patients across South Carolina. Through academic excellence, innovation and discovery, and a commitment to serving patients with the highest level of care, we are changing what’s possible in dental education.

Community Based Photography for a Permanent Exhibition on Campus.

Image Description: Large group of students all in white coats, smiling into the camera.

March 18

University of Louisville School of Medicine

VIRTUAL LECTURE 8-9 AM EST

March 9

UNIFORMED SERVICES UNIVERSITY OF THE HEALTH SCIENCES

LECTURE

(Image description Photo 1 healthcare providers in OR environment, Photo 2 4 =uniformed service men and women standing in from of an auirforce plane)

March 1

The RFK IDDRC’s Tenth Annual Rare Disease Day Celebration

“POSITIVE EXPOSURE: SPIRIT OF DIFFERENCE”

Photographic presentation by Rick Guidotti

Rick Guidotti is an award-winning former fashion photographer who has turned his talents
to photographing individuals with genetic disorders. His photographs recognize beauty within difference and challenge the way beauty is defined. His non-profit organization, dedicated to this pursuit, is called Positive Exposure.

Please join us for a photographic presentation followed by Q&A on:

TUESDAY, MARCH 1, 2022 6:00 – 7:30 PM

https://einsteinmed.zoom.us/j/98270082150

ASL and closed captioning will be provided

This year Rare Disease Day is being sponsored at Einstein-Montefiore by The Rose F. Kennedy Intellectual & Developmental Disabilities Research Center (RFK IDDRC), The Rose F. Kennedy Children’s Evaluation & Rehabilitation Center (RFK CERC), The Rose F. Kennedy University Center for Excellence in Developmental Disabilities (RFK UCEDD), and the Einstein Student Chapter of the American Academy of Developmental Medicine & Dentistry (AADMD).

5 square  portraits on left with blue, gold and white lettering. The text is above.

February 28

RARE Disease Day: POSITIVE EXPOSURE Community wide virtual presentation

February 4

Drawing on resources from three outstanding research institutions, the National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI) at the National Institutes of Health (NIH) and the Department of Health, Behavior and Society at the Johns Hopkins University (JHU) Bloomberg School of Public Health have collaborated to develop and support the JHU/NIH Genetic Counseling Training Program (GCTP), a competitive graduate program that addresses the growing need for genetic counseling services.

January 8

HAPPY NEW YEAR!!!!
 
We will be launching our FRAME Film Premiere this Saturday, 8 January 10-12 ET in 3 separate zoom webinars with Q&A. We will be recording each session and will add edited session Q&A and Meet and Greet to our FRAME platform. So exciting.. Here are the links and details
 
Thrilled to be invited to submit Proposal. YAY!!
 
 
Saturday, January 8 Film FRAME Film Premiere
10:00-10:40 am EST
Film run time: 13 minutes, followed by Q&A
11:00-11:40 pm EST
Film run time: 14:00, followed by Q&A
12:00- 12:40 pm EST
Film run time: 11 minutes, followed by Q&A
Supported Decision Making
You are invited to a Zoom webinar.
When: Jan 8, 2022 10:00 AM Eastern Time (US and Canada)
Topic: FRAME Film Premiere Supported Decision Making
Register in advance for this webinar:
After registering, you will receive a confirmation email containing information about joining the webinar.
Image description: FRAME in bold black letters Faces Redefining the Art of Medical Education underneath in fine black lettering, black lettering. Below, close up portraits of 3 individuals smiling an d looking into the camera, all against a white background.
Epilepsy in our Adult I/DD Community
You are invited to a Zoom webinar.
When: Jan 8, 2022 11:00 AM Eastern Time (US and Canada)
Topic: FRAME Film Premiere: Epilepsy in our Adult I/DD Community
Register in advance for this webinar:
After registering, you will receive a confirmation email containing information about joining the webinar.
Image description: FRAME in bold black letters Faces Redefining the Art of Medical Education underneath in fine black lettering, black lettering. Below, close up portraits of 6 individuals smiling interacting with each other, all against a white background.
Early Onset Alzheimer’s Disease in Adults Living With Down Syndrome
You are invited to a Zoom webinar.
When: Jan 8, 2022 12:00 PM Eastern Time (US and Canada)
Topic: FRAME Film Premiere: Early Onset Alzheimer’s Disease in Adults  Living With Down Syndrome
Register in advance for this webinar:
After registering, you will receive a confirmation email containing information about joining the webinar.
Image description: FRAME in bold black letters Faces Redefining the Art of Medical Education underneath in fine black lettering, black lettering. Below, close up portraits of 5 individuals smiling interacting with each other, all against a white background.

December 3 – 12

True Colors Film Festival featuring ON BEAUTY!

Image Description: Logo True Colors Film Festival 3-12 December, Perspectives. Below logo s an image back shot of Photographer photographing young woman against a blue and white backdrop looking into the camera. Bottom left: TRUE COLORS FESTIVAL in multicolored blocks, with the words 1 world 1 family. Bottom Right ON BEAUTY directed by Joanna Rudnick.

Yellow Background with TRUE COLORS FILM FESTIVAL 3-12 December 2021 Perspectives on left. n right is a collage of 7 images of excerpts from the featured films.

Official On Beauty Trailer.

True Colors Film Festival Trailer

Website Link

Check out this conversation:

 

 

 

December 5

About The Consortium

Mission

Organized in 2007, The Consortium provides means by which professionals and key stakeholders involved in arts education for students with disabilities in New York can share perspectives, determine needs, develop ways to meet them, deepen practice and understanding. Our purpose is to bring together constituencies that historically have not had sufficient opportunity to interact with one another, to engage them in meaningful conversation and exploration in order to ascertain barriers to and opportunities for providing quality arts education to special education students. That is, to build capacity, understanding and value, and do so as a whole – School/Arts/Home – community.

December 5th and 6th
The Consortium Conference
A Virtual Event

Connecting & Re-Connecting
With
Our Students, Their Families, Our Partners, Ourselves

REGISTER NOW! 

SCHOLARSHIPS AVAILABLE!

November 30

POSITIVE EXPOSURE Presentation: 5 pm EST

The Pulse of Art:

Course Overview Course Description The Pulse of Art: Connections Between the History of Art and the History of Medicine is a unique, full-semester course that harnesses the power of significant works of art to increase the observation skills and empathic responses of medical students, physicians, and health-care providers. By organizing the course into thematic topics ranging from plague and ebola to portraiture and prosopagnosia, and recognizing historic contexts for the art and science discussed, students also gain an awareness and understanding of the trajectory of medical understanding and discovery.