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X-WR-CALDESC:Events for Positive Exposure
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DTSTAMP:20240221T222643Z
CREATED:20240215T175809Z
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UID:35740-1709377200-1709388000@positiveexposure.org
SUMMARY:Rare Disease Day Workshop with the Undiagnosed Initiative
DESCRIPTION:Meet the founders of this global initiative to build a community and network of health care providers devoted to seeking a diagnosis for individuals and families living without a diagnosis. \nThis workshop will explore the history of the Undiagnosed Initiative\, as well as its current projects\, goals\, and strategies.  \nPlease RSVP at the Register button above. \nThe Wilhelm Foundation drives the Undiagnosed Diseases Network International\, a strategic partner of the Chan Zuckerberg Initiative’s Rare As One Project\, and the pioneer behind the Undiagnosed Hackathon. \nThe Wilhelm Foundation was recently featured in Katie Couric Media: “Helene Cederroth hopes that her story and her advocacy work can help save other children\, even if doctors couldn’t help hers.” \n \nImage Description: On a pale green background is a collage of portraits overlaid with the word “Undiagnosed\,” in bold\, capital letters. On blue\, green\, and red backgrounds is the following text: “Positive Exposure Gallery\, Rare Disease Day Workshop\, The Undiagnosed Initiative\, With the founders of the Wilhelm Foundation. Made possible by the New York State Council on the Arts. Meet the founders of this global initiative to build a community and a network of researchers\, patients\, and healthcare providers devoted to finding answers for individuals and families living without a diagnosis. This workshop will explore the history of the Undiagnosed Initiative\, as well as its current projects\, goals\, and strategies. Saturday\, March 2\, 11am-2pm. 14 East 109th Street\, New York\, New York. Contact 212-420-1931 or events@positiveexposure.org.”
URL:https://positiveexposure.org/event/rare-disease-day-workshop-with-the-undiagnosed-initiative/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2024/02/07231819/March-2-RDD-Workshop.jpg
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