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DTSTART;TZID=America/New_York:20260225T080000
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UID:44243-1772006400-1778864400@positiveexposure.org
SUMMARY:Radboud University Medical Center Nijmegen (836)\, The Netherlands
DESCRIPTION:RARE DISEASE DAY Exhibition     \nThe Undiagnosed Initiative – Photo Exhibition \nThe Undiagnosed Initiative – Photo Exhibition is a collaboration between renowned photographer Rick Guidotti of Positive Exposure and the Wilhelm Foundation. Through the lens of photography\, we invite you to discover the diversity and beauty of people living with a rare condition without a diagnosis. This way\, we celebrate their unique stories and resilience. \nMore than 350 million people worldwide live with a rare condition\, and in the Netherlands\, more than 1 million. For 60% of them\, the underlying genetic cause\, and therefore the diagnosis\, is unknown. \nAt Radboud University Medical Center\, healthcare providers\, researchers\, and patients work daily to improve care for people with rare conditions. With 39 centers of expertise\, specialized teams offer appropriate care\, diagnosis\, and treatment\, and they also collaborate across Europe. \nRadboud University Medical Center focuses on patient care\, research\, and education for rare conditions. Radboudum has 39 centers of expertise for rare diseases\, where specialized teams collaborate to provide the best care\, establish a correct diagnosis\, and provide personalized treatment. \nFrom these centers of expertise\, we also collaborate at the European level to further improve care and conduct more research. \nSome important dates at Radboudumc: \nFebruary 24: Start of the Undiagnosed Initiative photo exhibition \nFebruary 28: Rare Disease Day \nApril 23 and 24: The first Dutch Undiagnosed Hackathon\, featuring various experts (including Larsen\, Data Searchers\, bioinformaticians\, data analysts\, and others) working intensively together for two days to diagnose undiagnosed patients using new genetic data. \nApril 29 is World Undiagnosed Day and the end of the exhibition. \nFor more information \nOriginal Language \nThe Undiagnosed Initiative – foto expositie \nThe Undiagnosed Initiative – foto expositie is een samenwerking van de beroemde fotograaf Rick Guidotti van Positive Exposure en de Wilhelm Foundation. Door de lens van de fotografie nodigen wij u uit om de diversiteit en schoonheid te ontdekken van mensen die leven met een zeldzame aandoening zonder diagnose. \nHiermee vieren we hun unieke verhalen en veerkracht. \nWereldwijd leven ruim 350 miljoen mensen met een zeldzame aandoening\, in Nederland ruim 1 miljoen. Bij 60% van hen is de onderliggende genetische oorzaak en dus de diagnose onbekend. \nIn het Radboudumc zetten zorgverleners\, onderzoekers en patienten zich dageliks in om de zorg voor mensen met zeldzame aandoeningen te verbeteren. Met 39 expertisecentra bieden gespeci-aliseerde teams passende zorg\, diagnostiek en behandeling\, en werken zij ook Europees samen. \n\nHet Radboudume richt zich op patientenzorg\, onderzoek en onderwijs voor zelazame aandoeningen.\nHet Radboudum heeft 39 expertisecentra voor zeldzame aandoeningen\, waar gespecialiseerde teams samenwerken aan de beste zorg\, het stellen van een juiste diagnose en een behandeling op maat.\nVanuit deze expertisecentra werken we ook op Europees niveau samen om de zorg verder te verbeteren en meer onderzoek te kunnen doen\n\nEnkele belangrijke data in het Radboudumc: \n\n24 februari: start foto expositie the Undiagnosed Initiative\n28 februari: zeldzameziektendag\n\n\n23 en 24 april erste Nederlandse Undiagnosed Hackathon\, warbi diverse experts larsen\, Daterzoekers\, bioinformatici\, data analisten\, et) twee dagen intensif samen werken om bil patienten zonder diagnose met nieuwe genetische data alsnog een diagnose te kunen stelen.\n29 april is het wereldwid Undiagnosed day en einde expositie\n\nFor more information \nThe Undiagnosed Initiative – Photo Exhibition \nThe Undiagnosed Initiative – Photo Exhibition is a collaboration between renowned photographer Rick Guidotti of Positive Exposure and the Wilhelm Foundation. Through the lens of photography\, we invite you to discover the diversity and beauty of people living with a rare condition without a diagnosis. This way\, we celebrate their unique stories and resilience. \nMore than 350 million people worldwide live with a rare condition\, and in the Netherlands\, more than 1 million. For 60% of them\, the underlying genetic cause\, and therefore the diagnosis\, is unknown. \nAt Radboud University Medical Center\, healthcare providers\, researchers\, and patients work daily to improve care for people with rare conditions. With 39 centers of expertise\, specialized teams offer appropriate care\, diagnosis\, and treatment\, and they also collaborate across Europe. \nRadboud University Medical Center focuses on patient care\, research\, and education for rare conditions. Radboudum has 39 centers of expertise for rare diseases\, where specialized teams collaborate to provide the best care\, establish a correct diagnosis\, and provide personalized treatment. \nFrom these centers of expertise\, we also collaborate at the European level to further improve care and conduct more research. \nSome important dates at Radboudumc: \nFebruary 24: Start of the Undiagnosed Initiative photo exhibition \nFebruary 28: Rare Disease Day \nApril 23 and 24: The first Dutch Undiagnosed Hackathon\, featuring various experts (including Larsen\, Data Searchers\, bioinformaticians\, data analysts\, and others) working intensively together for two days to diagnose undiagnosed patients using new genetic data. \nApril 29 is World Undiagnosed Day and the end of the exhibition. \nFor more information \n  \n 
URL:https://positiveexposure.org/event/radboud-university-medical-center-nijmegen-836-the-netherlands/
LOCATION:NY
CATEGORIES:Exhibitions
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DTSTART;TZID=America/New_York:20260225T080000
DTEND;TZID=America/New_York:20260515T170000
DTSTAMP:20260415T194307
CREATED:20260228T212114Z
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SUMMARY:Dell Medical School. The University of Texas at Austin
DESCRIPTION:RARE DISEASE DAY Exhibition \n  \n \nTHE POSITIVE EXPOSURE PHOTO EXHIBITION \nThe Positive Exposure – Photo Exhibition is presented through a partnership between the Center for Rare Disease at Dell Medical School and the Wilhem Foundation\, in collaboration with the Undiagnosed Disease Network International\, and features the work of renowned photographer Rick Guidotti of Positive Exposure. \nAt Dell Medical School and UT Health Austin\, we celebrate our guiding value of putting patients first by weaving the arts and humanities into our healing environment. Through care\, education and research\, we cultivate curiosity and a deeper understanding of the human experience. \nThis photography exhibit invites you to see the diversity and strength of people living with undiagnosed diseases. Each portrait honors their individuality\, their stories and the remarkable resilience of the human spirit. \nLearn more about the Center for Rare Disease at Dell Medical School: \n  \n 
URL:https://positiveexposure.org/event/dell-medical-school-the-university-of-texas-at-austin/
LOCATION:NY
CATEGORIES:Exhibitions
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DTSTART;VALUE=DATE:20260323
DTEND;VALUE=DATE:20260324
DTSTAMP:20260415T194307
CREATED:20260318T232147Z
LAST-MODIFIED:20260318T232823Z
UID:44307-1774224000-1774310399@positiveexposure.org
SUMMARY:World Down Syndrome Day at the United Nations
DESCRIPTION:Positive Exposure to photograph the 15th World Down Syndrome Day Conference at the United Nations Headquarters in New York City.\nWatch Online: The whole event will be streamed LIVE for you to watch from wherever you are. Note that there are different links for the morning and afternoon sessions. \n \nThe 2026 World Down Syndrome Day theme\, “Together Against Loneliness\,” focuses on raising awareness of how loneliness disproportionately affects people with Down syndrome and other intellectual disabilities\, as well as their families. \nIt highlights that loneliness is not just an emotional feeling but a serious health issue that can lead to anxiety\, depression\, and physical harm\, often linked to social exclusion and stigma. \nThe campaign calls for real inclusion in schools\, workplaces\, and communities\, emphasizing that being present does not equate to being included or truly connected. It stresses that everyone – individuals\, families\, organizations\, schools\, employers\, and governments – has a role in creating welcoming spaces and meaningful relationships to help people feel they belong. \nUltimately\, the theme frames loneliness as a human rights issue\, urging collective action to turn the UN Convention on the Rights of Persons with Disabilities into concrete change that ends isolation and promotes full participation in society. \nDown syndrome occurs when an individual has an extra partial (or whole) copy of chromosome 21. It is not yet know why this syndrome occurs\, but Down syndrome has always been a part of the human condition. It exists in all regions across the globe and commonly results in variable effects on learning styles\, physical characteristics and health. \nAdequate access to health care\, to early intervention programmes\, and to inclusive education\, as well as appropriate research\, are vital to the growth and development of the individual. \nIn December 2011\, the General Assembly declared 21 March as World Down Syndrome Day (A/RES/66/149). The General Assembly decided\, with effect from 2012\, to observe World Down Syndrome Day on 21 March each year. In order to raise public awareness of Down syndrome\, the General Assembly invites all Member States\, relevant organizations of the United Nations system and other international organizations\, as well as civil society\, including non-governmental organizations and the private sector\, to observe World Down Syndrome Day in an appropriate manner. \nOn March 19 and 21\, there will be a number of events at the United Nations in Geneva to mark World Down Syndrome Day.
URL:https://positiveexposure.org/event/world-down-syndrome-day-at-the-united-nations/
LOCATION:NY
CATEGORIES:Photography and Film
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