Positive Exposure

Philadelphia College of Osteopathic Medicine (PCOM) Workshop #2
2023-09-06 13:00 - 15:00 (America/New_York) | PCOM Philadelphia
1st Year Student Lecture and Workshop 2 of 3
MISSION AND COMMITMENTS
Philadelphia College of Osteopathic Medicine (PCOM) is dedicated to the education of students in medicine, health and behavioral sciences.
OUR MISSION
Educating health professionals to care for the whole person and advance the health of diverse communities.

Philadelphia College of Osteopathic Medicine (PCOM) Workshop #1
2023-08-30 13:00 - 15:00 | PCOM Philadelphia
1st Year Student Lecture and Workshop 1 of 3
MISSION AND COMMITMENTS
Philadelphia College of Osteopathic Medicine (PCOM) is dedicated to the education of students in medicine, health and behavioral sciences.
OUR MISSION
Educating health professionals to care for the whole person and advance the health of diverse communities.

Touro College of Osteopathic Medicine AADMD Chapter
2023-08-29 12:00 - 13:00
American Academy of Developmental Medicine and Dentistry Chapter lecture. (Virtual)

Virtual FRAME Film Screening with Einstein AADMD
2023-08-22 18:30 - 20:00 | Virtual
You are invited to a virtual screening of our latest FRAME films! There will be time for discussion and feedback during each session.
Each film addresses the importance of representation of race, ethnicity, and cultural diversity in medical training materials and resources.
SESSION 2: Tuesday, August 22 at 6:30 PM EST
Films will include: Genetics, Sickle Cell Disease, and Representation & Dermatology
Please register to receive the Zoom link!
Special thanks to the Mother Cabrini Health Foundation!

Virtual FRAME Film Screening with Einstein AADMD
2023-08-15 18:30 - 20:00 | Virtual
You are invited to a virtual screening of our latest FRAME films! There will be time for discussion and feedback during each session.
Each film addresses the importance of representation of race, ethnicity, and cultural diversity in medical training materials and resources.
SESSION 1: Tuesday, August 15 at 6:30 PM EST
Films will include: Aging, Judy Heumann, and Dental & Oral Healthcare
Please register to receive the Zoom link!
Special thanks to the Mother Cabrini Health Foundation!

Drama Workshop
2023-07-30 14:00 - 15:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
Workshop for Youth with. facial Difference, Ages 10-14
Free Drama Therapy Workshop
Sunday July 30,
2-3pm
Positive Exposure Gallery
14 East 109th Street
Facilitated by Patricia Contreras
Participants will decorate a mask and tell a story about it.
All art supplies will be provided.
myFace
Drama Therapy Workshop-July 30, 2023

2023 Fragile X Family Conference: Cincinnati, OH
2023-07-22 08:00 - 17:00
Get ready for a day of inspiration and learning!
Award-winning photographer Rick Guidotti will kick off the morning with a captivating talk on FXS Positive Exposure.
Directly after, Dr. Craig Erickson will provide exciting updates on the latest clinical trials in FXS research.
Following lunch, you won’t want to miss Dr. Marsha Mailick’s much-anticipated presentation on premutation carriers in relation to medicine, mental health, and cognitive impact.

University of Michigan School of Dentistry
2023-07-18 12:00 - 13:00 | Virtual
Featuring POSITIVE EXPOSURE
Virtual Presentation: OHS-MS student talk
A summer series of talks to incoming Master students about possibilities of research. Speakers from many different areas, including arts, social justice, anti-racism workshops, sustainability and climate change education.

Coffin-Siris Syndrome Foundation Family Conference
2023-07-15 | Boston, MA
What is Coffin-Siris Syndrome? Coffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Drs. Coffin and Siris to describe individuals with a shortened or underdeveloped fifth digit or fifth digit nail, along with developmental and learning differences, and a variety of organ-system issues. For many years, the diagnosis was made solely on clinical features; in 2013, the first genes associated with CSS were discovered. As more individuals with CSS are being diagnosed, the clinical picture has broadened; we are finding that not all individuals have the classic fifth digit finding, and that the extent of learning, developmental, and growth differences vary among children. Other terms that have been proposed for the syndrome include ‘BAFopathies’ and ‘SWI-SNF related disorders.’

Chromosome 18 Family Summit
2023-07-10 - 2023-07-12
Excited to see all of our Friends & Families at the Chromosome 18 Party!!!!

The Undiagnosed Initiative: Seoul, South Korea
2023-07-02 - 2023-07-09 | Rare Disease Center, Department of Genomic Medicine Department of Neurology Seoul National University Hospital,
Image above from Mali, West Africa 2020!
SO excited to be on the road again with the Undiagnosed Project, traveling around the globe and joining Centers of Excellence for individuals that are undiagnosed.
Building Community!
So far, we have traveled to Australia, India, Mali, Netherlands & Sweden. Next stop Seoul, South Korea
In collaboration with the Wilhelm Foundation, Karolinska Institute, Mayo Clinic and National Institutes of Health (NIH)

Parent Project Muscular Dystrophy
2023-06-29 - 2023-07-01 | Sheraton Hotel, Dallas, TX
We are so excited to host PPMD’s 29th Annual Conference, June 29 – July 1, 2023 at The Sheraton Dallas Hotel in Dallas, Texas!
PPMD’s Annual Conference is recognized worldwide as the largest, most comprehensive annual meeting focused entirely on Duchenne and Becker muscular dystrophy. Families, physicians, researchers, caregivers, industry partners, and those living with Duchenne, Becker, and carriers gather to connect, share information, and learn the latest progress in the fight to end Duchenne.

Family Crest & Framing Workshops
2023-06-27 10:30 - 13:00

Cleft Lip and Palate Family Conference
2023-06-23 | Nationwide Children’s Hospital, Columbus, OH
Logo for Nationwide Children’s Hospital. Colorful butterflies alongside the words “When your child needs a hospital, everything matters”
Our inaugural Cleft Lip and Palate Family Conference, Building Hope and Dreams, is designed for your entire family. There will be inspirational and educational sessions for parents and caregivers, concurrent activities for kids, and combined experiences for all. The program will allow you to learn and to network with other families while allowing children and teens make new friends, learn new things, and embrace the understanding that their future is truly limitless.
Conference Dates
Friday, June 23, 10 a.m. to 9 p.m. Saturday, June 24, 9 a.m. to 4 p.m.

Story as Medicine: Multimedia Photography Exhibit & Workshop Series
2023-06-03 08:00 - 2023-06-26 17:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
Register Here!

Saturday, June 3rd 7-9:30 pm Sunday June 4th 4-6:30 pm
Workshop: Embodied Inclusion Led by Andrew Golibersuch and Carl Sigmond Saturday, June 3, 1-3:45pm Sunday, June 4, 12:30-3:15pm
Authentic Relating: The Exploration and Celebration of the Art of Being Led by Rachel Yardeni Sunday, June 11 Doors at 2:30pm, Workshop 3-5:30pm
Bringing Narrative Medicine into Focus Led by Derek McCracken and Sara Kohrt Saturday, June 24, 2-3:30 pm A 90-minute introduction to the applied methodologies of Narrative Medicine and its importance in furthering the expression and understanding of people living within a medical context.

“From Inaccessibility to Pathologized Mobility in NYC”
2023-05-23 17:30 - 19:30
ID: On a yellow background with pastel-colored text boxes is the following text: “From Inaccessibility to Pathologized Mobility in NYC: Finding Affordances in a Pandemic”. Join us for a presentation of the postdoctoral research of Yan Grenier (Center for Disability Studies of New York University). Led during the pandemic, this interview-based research first explored the pre-pandemic mobility experiences of disabled people in NYC in relation to the transportation infrastructure. The research then inquired about the impacts of the pandemic on people’s mobility habits, and how they found new affordances and strategies to inhabit the world during the lockdowns. The presentation will be accompanied by an audio-textual exhibit featuring the stories of some of the research participants. Monday, May 22: 5:30-7:30pm: Exhibit open house. Tuesday, May 23: 5:30-7:30pm: Presentation by Yan Grenier. Positive Exposure, 14 E. 109th St, New York, NY. This project was made possible with the generous support of the Fonds de recherche du Québec – Société et culture.

Improving Healthcare with Interprofessional Continuing Education
2023-05-15 08:00 - 17:00
Improving Healthcare with Interprofessional Continuing Education (IPCE)
We jointly accredit institutions that promote collaboration, teamwork, and interprofessional continuing education for health professionals.
ACCME Accredits Organizations Providing CME for Physicians
The ACCME sets standards for CME that reflect the values of the educator and ensure that accredited CME is designed to be relevant to clinicians’ needs, evidence-based, evaluated for its effectiveness, and independent of commercial influence.
Keynote and Exhibition
JOINT ACCREDITATION
INTERPROFESSIONAL CONTINUING EDUCATION

Joint Accreditation
2023-05-15
ACCME Accredits Organizations Providing CME for Physicians
The ACCME sets standards for CME that reflect the values of the educator and ensure that accredited CME is designed to be relevant to clinicians’ needs, evidence-based, evaluated for its effectiveness, and independent of commercial influence.
Keynote and Exhibition

AADMD Global Health Panel with Seth Keller, MD
2023-05-06 08:00 - 17:00
AADMD Global Health Panel with Seth Keller, MD
Denver, CO

UC Irvine Illuminations Lecture Series
2023-05-04 08:00 - 17:00
Illuminations Lecture Series
University of California, Irvine

Delta Dental Exhibition at Michigan State Capital
2023-04-11 08:00 - 17:00
Exhibition at the State Capital Building, Lansing MI.

Rare Disease Day with Einstein AADMD
2023-02-26 11:00 - 14:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
RSVP is required: Link to RSVP

Join Einstein’s AADMD Student Chapter for a film viewing at the Positive Exposure gallery @
14 East 109th Street, NYC!
In celebration of Rare Disease Day, the Einstein AADMD chapter will be collaborating with Rick Guidotti and Positive Exposure to hold screenings of multiple educational and beautiful short films, including the award-winning documentary short “Holding Moses: Motherhood in the face of disability”.
There will be time for a Q&A discussion with advocates and families living with rare diseases.
ID: Join Einstein’s AADMD Student Chapter Sunday February 26th 11-2pm.
9 square blocks 3 across and 3 down featuring 4 images at each corner. Portraits. Canter CHANGE HOW YOU SEE, SEE HOW YOU CHANGE
Explore the Positive Exposure Gallery
View screenings of short films, including Holding Moses
Meet Advocates with Rare Diseases!
Enjoy lunch with fellow medical professionals.

The Many Faces of NF: Gallery Opening & Live Drawing by the Artist
2023-02-25 10:00 - 14:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
The Many Faces of Neurofibromatosis with Rachel Mindrup
New York State Council on the Arts
Saturday February 25 at Positive Exposure 14 East 109
10am – 2 pm Live Portrait Drawings with the Artist of the NF and Positive Exposure Communities.
2pm -4pm Gallery Reception
Image: On a pale yellow square background is a grid of 12 multicolored paintings, each a portrait of people of various ages, genders and skin tones.

University of Michigan
2023-02-09
Delta Dental Integrated Special Care Clinic

Permanent Installation: University of Michigan

PPMD Healthcare Professionals Summit
2023-01-18 08:00 - 2023-01-20 17:00
PPMD DUCHENNE HEALTHCARE
(Parent Project Muscular Dystrophy)
PROFESSIONALS SUMMIT

JANUARY 18–20, 2023

InterContinental New York Times Square New York City, New York
Join the Fight End Duchenne
Positive Exposure Presentation: 2:30-3:00 ET
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Duchenne_Summit_Agenda_2023

NAPSEC Annual Leadership Conference
2023-01-15 08:00 - 2023-01-18 17:00
NAPSEC Annual Leadership Conference
January 15-18, 2023
The Hotel Monteleone New Orleans, LA

National Association of Private Special Education Centers
Keynote presentation.
About NAPSEC

Image Description: Bright red trolly car with signs presenting 2023 and Canal in the middle of busy city street, with cars and lamppost banners that feature butterflies and the the word FLY.

Vascular Birthmark Portrait Show
2023-01-14 14:00 - 16:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
Celina Leroy Vascular Birthmark EXHIBITION – Press Release
Reducing Stigma and Promoting Awareness Through Art
Positive Exposure Presents: Vascular Birthmark Portrait Show
by Celina Leroy
I create paintings of faces and bodies with vascular birthmarks such as Port Wine Stain Birthmarks, Venous Malformations, Sturge-Weber Syndrome, and Klippel-Trenaunay Syndrome.
I was born with a Port Wine Stain Birthmark (PWS) on my chin, lip and cheek. A PWS is a congenital, cutaneous and progressive vascular malformation and appears as a reddish pink to dark purple mark on the skin. An estimated 3 out of 1,000 babies are born with a PWS birthmark.
Since most of the malformations occur on the face, it can have devastating psychological and physical effects such as bullying, social exclusion, and low self esteem. I personally faced bullying many times in my life and hope to use my artwork to end the stigma surrounding facial differences.
I was inspired to begin this project after joining the Vascular Birthmark Foundation (VBF) and connected with people from around the world; New York, Miami, Texas, Florida, the UK, Brazil etc. We were all so different but our shared experience joined us. To me their birthmarks were like beautiful maps and islands of colors across their skin. I was inspired to do an art project not just about myself but them too. After posting to social media, I was flooded with requests from people and families to paint their portraits. I loved seeing their joyful reaction to the work. Along with the art I asked a series of questions to capture their voice and story, which can be seen in the bios and videos surrounding the portraits.
If you have any type of physical difference, remember you are not alone. I urge you to join a group, like VBF and be a part of the community.

Warren Alpert Medical School of Brown University
2022-09-22 - 2022-12-14
Celebrating Our Shared Humanity
An exhibition exploring Co-Occurring Mental Health Challengers and Intellectual and Developmental Disabilities.

Support from the With Foundation

Images from Opening: September 22, 2023
