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DTSTART;TZID=America/New_York:20260225T080000
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DTSTAMP:20260414T182455
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UID:44243-1772006400-1778864400@positiveexposure.org
SUMMARY:Radboud University Medical Center Nijmegen (836)\, The Netherlands
DESCRIPTION:RARE DISEASE DAY Exhibition     \nThe Undiagnosed Initiative – Photo Exhibition \nThe Undiagnosed Initiative – Photo Exhibition is a collaboration between renowned photographer Rick Guidotti of Positive Exposure and the Wilhelm Foundation. Through the lens of photography\, we invite you to discover the diversity and beauty of people living with a rare condition without a diagnosis. This way\, we celebrate their unique stories and resilience. \nMore than 350 million people worldwide live with a rare condition\, and in the Netherlands\, more than 1 million. For 60% of them\, the underlying genetic cause\, and therefore the diagnosis\, is unknown. \nAt Radboud University Medical Center\, healthcare providers\, researchers\, and patients work daily to improve care for people with rare conditions. With 39 centers of expertise\, specialized teams offer appropriate care\, diagnosis\, and treatment\, and they also collaborate across Europe. \nRadboud University Medical Center focuses on patient care\, research\, and education for rare conditions. Radboudum has 39 centers of expertise for rare diseases\, where specialized teams collaborate to provide the best care\, establish a correct diagnosis\, and provide personalized treatment. \nFrom these centers of expertise\, we also collaborate at the European level to further improve care and conduct more research. \nSome important dates at Radboudumc: \nFebruary 24: Start of the Undiagnosed Initiative photo exhibition \nFebruary 28: Rare Disease Day \nApril 23 and 24: The first Dutch Undiagnosed Hackathon\, featuring various experts (including Larsen\, Data Searchers\, bioinformaticians\, data analysts\, and others) working intensively together for two days to diagnose undiagnosed patients using new genetic data. \nApril 29 is World Undiagnosed Day and the end of the exhibition. \nFor more information \nOriginal Language \nThe Undiagnosed Initiative – foto expositie \nThe Undiagnosed Initiative – foto expositie is een samenwerking van de beroemde fotograaf Rick Guidotti van Positive Exposure en de Wilhelm Foundation. Door de lens van de fotografie nodigen wij u uit om de diversiteit en schoonheid te ontdekken van mensen die leven met een zeldzame aandoening zonder diagnose. \nHiermee vieren we hun unieke verhalen en veerkracht. \nWereldwijd leven ruim 350 miljoen mensen met een zeldzame aandoening\, in Nederland ruim 1 miljoen. Bij 60% van hen is de onderliggende genetische oorzaak en dus de diagnose onbekend. \nIn het Radboudumc zetten zorgverleners\, onderzoekers en patienten zich dageliks in om de zorg voor mensen met zeldzame aandoeningen te verbeteren. Met 39 expertisecentra bieden gespeci-aliseerde teams passende zorg\, diagnostiek en behandeling\, en werken zij ook Europees samen. \n\nHet Radboudume richt zich op patientenzorg\, onderzoek en onderwijs voor zelazame aandoeningen.\nHet Radboudum heeft 39 expertisecentra voor zeldzame aandoeningen\, waar gespecialiseerde teams samenwerken aan de beste zorg\, het stellen van een juiste diagnose en een behandeling op maat.\nVanuit deze expertisecentra werken we ook op Europees niveau samen om de zorg verder te verbeteren en meer onderzoek te kunnen doen\n\nEnkele belangrijke data in het Radboudumc: \n\n24 februari: start foto expositie the Undiagnosed Initiative\n28 februari: zeldzameziektendag\n\n\n23 en 24 april erste Nederlandse Undiagnosed Hackathon\, warbi diverse experts larsen\, Daterzoekers\, bioinformatici\, data analisten\, et) twee dagen intensif samen werken om bil patienten zonder diagnose met nieuwe genetische data alsnog een diagnose te kunen stelen.\n29 april is het wereldwid Undiagnosed day en einde expositie\n\nFor more information \nThe Undiagnosed Initiative – Photo Exhibition \nThe Undiagnosed Initiative – Photo Exhibition is a collaboration between renowned photographer Rick Guidotti of Positive Exposure and the Wilhelm Foundation. Through the lens of photography\, we invite you to discover the diversity and beauty of people living with a rare condition without a diagnosis. This way\, we celebrate their unique stories and resilience. \nMore than 350 million people worldwide live with a rare condition\, and in the Netherlands\, more than 1 million. For 60% of them\, the underlying genetic cause\, and therefore the diagnosis\, is unknown. \nAt Radboud University Medical Center\, healthcare providers\, researchers\, and patients work daily to improve care for people with rare conditions. With 39 centers of expertise\, specialized teams offer appropriate care\, diagnosis\, and treatment\, and they also collaborate across Europe. \nRadboud University Medical Center focuses on patient care\, research\, and education for rare conditions. Radboudum has 39 centers of expertise for rare diseases\, where specialized teams collaborate to provide the best care\, establish a correct diagnosis\, and provide personalized treatment. \nFrom these centers of expertise\, we also collaborate at the European level to further improve care and conduct more research. \nSome important dates at Radboudumc: \nFebruary 24: Start of the Undiagnosed Initiative photo exhibition \nFebruary 28: Rare Disease Day \nApril 23 and 24: The first Dutch Undiagnosed Hackathon\, featuring various experts (including Larsen\, Data Searchers\, bioinformaticians\, data analysts\, and others) working intensively together for two days to diagnose undiagnosed patients using new genetic data. \nApril 29 is World Undiagnosed Day and the end of the exhibition. \nFor more information \n  \n 
URL:https://positiveexposure.org/event/radboud-university-medical-center-nijmegen-836-the-netherlands/
LOCATION:NY
CATEGORIES:Exhibitions
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/02/28153948/2026-02-25_09-45-42_000-2026-02-25T09_21_43.325.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260225T080000
DTEND;TZID=America/New_York:20260515T170000
DTSTAMP:20260414T182455
CREATED:20260228T212114Z
LAST-MODIFIED:20260228T212239Z
UID:44248-1772006400-1778864400@positiveexposure.org
SUMMARY:Dell Medical School. The University of Texas at Austin
DESCRIPTION:RARE DISEASE DAY Exhibition \n  \n \nTHE POSITIVE EXPOSURE PHOTO EXHIBITION \nThe Positive Exposure – Photo Exhibition is presented through a partnership between the Center for Rare Disease at Dell Medical School and the Wilhem Foundation\, in collaboration with the Undiagnosed Disease Network International\, and features the work of renowned photographer Rick Guidotti of Positive Exposure. \nAt Dell Medical School and UT Health Austin\, we celebrate our guiding value of putting patients first by weaving the arts and humanities into our healing environment. Through care\, education and research\, we cultivate curiosity and a deeper understanding of the human experience. \nThis photography exhibit invites you to see the diversity and strength of people living with undiagnosed diseases. Each portrait honors their individuality\, their stories and the remarkable resilience of the human spirit. \nLearn more about the Center for Rare Disease at Dell Medical School: \n  \n 
URL:https://positiveexposure.org/event/dell-medical-school-the-university-of-texas-at-austin/
LOCATION:NY
CATEGORIES:Exhibitions
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/02/28161129/IMG_5959.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260329
DTEND;VALUE=DATE:20260430
DTSTAMP:20260414T182455
CREATED:20260310T204345Z
LAST-MODIFIED:20260318T210913Z
UID:44274-1774742400-1777507199@positiveexposure.org
SUMMARY:Visual Voices: Art of the Spectrum
DESCRIPTION:Visual Voices: Art of the Spectrum\nCurated by Dr. Rosa Martinez\n83 Maiden Lane\, 4th Floor\nMarch 29 – April 29\, 2026\nViewings by appointment: events@positiveexposure.org \n \nVisual Voices: Art of the Spectrum celebrates autistic abilities through the works of four extraordinary artists. Each artist transforms the canvas into a dialogue of color and texture that shapes how they make sense of the world. \nExplore and connect with these works that inspire thoughtfulness and emotional well-being through bold colors\, abstract images\, embedded comments\, and cultural landscapes. \nThe opening event will feature a presentation by Dr. Martinez on the connection between creativity and autism. She will explore the distinction between autism and savantism\, highlighting their unique features. \nDr. Martinez is the President and founder of Strokes of Genius\, Inc.\, a non-profit organization that empowers the artistic voices of neurodivergent individuals\, aiming to increase understanding and acceptance of the autistic community worldwide. Martinez curates exhibitions in the United States and beyond that feature the art of autistic savants. She has worked with world-renowned artists Donna Williams\, Stephen Wiltshire\, George Widener\, Gregory Blackstock\, Ping Lian Yeak\, and many others\, including the engineering genius Temple Grandin\, to create awareness and exposure of their abilities.
URL:https://positiveexposure.org/event/visual-voices-art-of-the-spectrum-2/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/10151538/Visual-Voices-Opening.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260425
DTEND;VALUE=DATE:20260606
DTSTAMP:20260414T182455
CREATED:20260311T025802Z
LAST-MODIFIED:20260311T210250Z
UID:44275-1777075200-1780703999@positiveexposure.org
SUMMARY:ART 75: NYC's District 75 Student Art Exhibition
DESCRIPTION:ART 75 \, District 75’s student art exhibition\, is designed to showcase talent and elevate voice; giving students a platform to share their stories through artistic expression\, while celebrating human diversity. ART 75 is hosted annually\, in partnership\, with Positive Exposure. \nStay Turned for more details \nART 75 Events:  \nOpening Celebration: April 25 @ 11 am – 2 pm  \nArt Organization Fair: May 16 @ 11 am – 1 pm & 1 pm – 3 pm  \nField trips and Artist workshops throughout run of show!
URL:https://positiveexposure.org/event/art-75-nycs-district-75-student-art-exhibition/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/03/10224857/Image75.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260425T110000
DTEND;TZID=America/New_York:20260425T140000
DTSTAMP:20260414T182455
CREATED:20260311T030921Z
LAST-MODIFIED:20260311T030944Z
UID:44277-1777114800-1777125600@positiveexposure.org
SUMMARY:Opening Celebration: ART 75\, NYC"S District 75 Student Art Exhibition
DESCRIPTION:ART 75 Events: Opening Celebration April 25 @ 11 am – 2 pm  \nART 75 \, District 75’s annual art exhibition\, is hosted in partnership with Positive Exposure. District 75’s Student Art Exhibition \nART 75 \, District 75’s student art exhibition\, is designed to showcase talent and elevate voice; giving students a platform to share their stories through artistic expression\, while celebrating human diversity. ART 75 is hosted annually\, in partnership\, with Positive Exposure. \nField Trips and Artists workshops scheduled throughout run of show.
URL:https://positiveexposure.org/event/art-75-nycs-district-75-student-art-exhibition-2/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/03/10224857/Image75.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260601
DTSTAMP:20260414T182455
CREATED:20260311T204819Z
LAST-MODIFIED:20260311T210324Z
UID:44278-1777593600-1780271999@positiveexposure.org
SUMMARY:Celina Leroy: Portraits Celebrating Vascular Birthmark Awareness Month
DESCRIPTION:Stay tuned for details and activities… \nMAY 1 – 31\, 2026\, Vascular Birthmark Awareness Month \nOpening Celebration: Vascular Birthmark Awareness Day\,  May 15th @ 5-8 pm \n 
URL:https://positiveexposure.org/event/celina-leroy-portraits-celebrating-vascular-birthmark-awareness-month/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/03/11165141/Celina-Exhibition.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260503T130000
DTEND;TZID=America/New_York:20260503T160000
DTSTAMP:20260414T182455
CREATED:20260406T173739Z
LAST-MODIFIED:20260409T195213Z
UID:44352-1777813200-1777824000@positiveexposure.org
SUMMARY:Disabled in Action: May 2026 Meeting
DESCRIPTION:DIA is a civil rights organization committed to ending discrimination against people with disabilities – all disabilities. We fight to eliminate the barriers that prevent us from enjoying full equality in American society. Founded in 1970\, DIA is a democratic\, not-for-profit\, tax-exempt\, all-volunteer membership organization. DIA consists primarily of and is directed by people with disabilities.\nNothing about us\, without us!\nUpcoming DIA Meetings at Positive Exposure Gallery\n\n\nSunday\, May 3\, 2026 1:30 pm to 4:00 pm\nSunday\, June 7\, 2026 1:30 pm to 4:00 pm\nSunday\, August 2\, 2026 1:30 pm to 4:00 pm\nSunday\, October 4\, 2026 1:30 pm to 4:00 pm\n\nAll are welcome. Positive Exposure is wheelchair accessible\, including the restrooms. If you need a reasonable accommodation such as American Sign Language interpretation or live captioning\, please email us at info@disabledinaction.org or call us at 646-504-4342 and leave a message with a callback number at least 10 days before the meeting. \nIf a meeting is cancelled due to inclement weather\, we will have a notice the night before on our phone. Please call DIA at 646-504-4342. \n\n\n Image description: DIA members and other activists are outside of a building in downtown Manhattan protesting for the right to add elevators for all public transit stops. They are holding signs that say “Stranded by Cuomo” and “Elevator FAIL.”
URL:https://positiveexposure.org/event/disabled-in-action-may-2026-meeting/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/04/06133119/Screenshot-2026-04-06-at-1.25.30-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260514
DTEND;VALUE=DATE:20260521
DTSTAMP:20260414T182455
CREATED:20260311T214744Z
LAST-MODIFIED:20260311T215125Z
UID:44284-1778716800-1779321599@positiveexposure.org
SUMMARY:NYCxDESIGN Festival
DESCRIPTION:NYCxDesign Festival: The Official New York City Design week\nSave the date: May 14-20\nStay tuned for Positive Exposure Gallery Activities!\nAt the heart of NYCxDESIGN is the NYCxDESIGN Festival\, an annual\, citywide celebration that highlights hundreds of events – from exhibits and trade shows to talks and tours – drawing design enthusiasts from around the globe. As the city’s most influential design event\, the festival provides a dynamic platform for diverse voices in design.\n\n NYCxDESIGN highlights community\, inclusivity\, and the vast array of design disciplines:\n→  Architecture\n→  Interior Design\n→  Industrial & Product Design\n→  Graphic Design\n→  Landscape Architecture\n→  Urban Design\n→  Technology x Design\n→  Art x Design\n→  Entertainment x Design
URL:https://positiveexposure.org/event/nycxdesign-festival/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/03/11175040/NYCxDesign-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260515T170000
DTEND;TZID=America/New_York:20260515T200000
DTSTAMP:20260414T182455
CREATED:20260311T205946Z
LAST-MODIFIED:20260311T205959Z
UID:44282-1778864400-1778875200@positiveexposure.org
SUMMARY:Opening Celebration: Celina Leroy Portraits Celebrating Vascular Birthmark Awareness Day/ Month
DESCRIPTION:Stay tuned for details and activities! \n \n 
URL:https://positiveexposure.org/event/opening-celebration-celina-leroy-portraits-celebrating-vascular-birthmark-awareness-day-month/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/03/11165141/Celina-Exhibition.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260516
DTEND;VALUE=DATE:20260616
DTSTAMP:20260414T182455
CREATED:20260319T000719Z
LAST-MODIFIED:20260406T190939Z
UID:44312-1778889600-1781567999@positiveexposure.org
SUMMARY:Visiting Artist: Scott Hovis\, Unfiltered Signal
DESCRIPTION:In recognition of Tourette’s Awareness Month \n(May 15 – June 15) \nThis exhibition explores neurodiversity through raw abstraction and fragmented figuration-transforming lived experience into visual language. \nA preliminary exhibition and discussion celebrating Art\, Humanity and Advocacy. Saturday May 16th 5-8pm \nScott Hovis II is not only an artist — he’s an activist hoping to raise awareness about the power of creativity on helping with mental and physical struggles. \nHis abstract art is his way of making “beauty through pain.” Hovis has lived with Tourette Syndrome (TS)\, a condition of the nervous system. While it’s most well known for symptoms causing involuntary word repetition\, it can also cause twitches and ticks. \n \n \n \n  \n 
URL:https://positiveexposure.org/event/visiting-artist-scott-hovis-tourettes-syndrome-awareness/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/18202117/Screenshot-2026-03-18-at-8.20.18-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T080000
DTEND;TZID=America/New_York:20260605T170000
DTSTAMP:20260414T182455
CREATED:20260312T224933Z
LAST-MODIFIED:20260312T225003Z
UID:44295-1780473600-1780678800@positiveexposure.org
SUMMARY:The Arc of New York Annual Meeting
DESCRIPTION:The Arc of New York:\nMission: To provide people with intellectual\, developmental and other disabilities the ordinary and extraordinary opportunities of life.\nStay tuned for details.
URL:https://positiveexposure.org/event/the-arc-of-new-york-annual-meeting/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/12184737/Screenshot-2026-03-12-at-6.45.24-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260605T080000
DTEND;TZID=America/New_York:20260707T170000
DTSTAMP:20260414T182455
CREATED:20260312T230455Z
LAST-MODIFIED:20260312T230455Z
UID:44297-1780646400-1783443600@positiveexposure.org
SUMMARY:HEROES WITHIN
DESCRIPTION:HEROES WITHIN: Stay Tuned fgor more exciting details… \nAn Art + Storytelling Project featuring LGBTQ+ Youth and a global League of Extraordinary Artists \nEXHIBIT OVERVIEW \nHeroes Within is a new and affirming exhibit of unique superheroes created by LGBTQ+ youth and designed by artists from around the world. \nAn initiative of The Superhero Project\, 40 LGBTQ+ kids\, teens and young adults (including youth of color\, youth living with disabilities\, and youth impacted by mental health concerns) were invited to take part in this positive social emotional experience that centers their voices\, celebrates their strengths\, and supports healing through art and storytelling.
URL:https://positiveexposure.org/event/heroes-within/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/12190405/Screenshot-2026-03-12-at-7.00.14-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260607T130000
DTEND;TZID=America/New_York:20260607T160000
DTSTAMP:20260414T182455
CREATED:20260406T173912Z
LAST-MODIFIED:20260409T195225Z
UID:44353-1780837200-1780848000@positiveexposure.org
SUMMARY:Diabled in Action: June 2026 Meeting
DESCRIPTION:DIA is a civil rights organization committed to ending discrimination against people with disabilities – all disabilities. We fight to eliminate the barriers that prevent us from enjoying full equality in American society. Founded in 1970\, DIA is a democratic\, not-for-profit\, tax-exempt\, all-volunteer membership organization. DIA consists primarily of and is directed by people with disabilities.\nNothing about us\, without us!\nUpcoming DIA Meetings at Positive Exposure Gallery\n\n\nSunday\, June 7\, 2026 1:30 pm to 4:00 pm\nSunday\, August 2\, 2026 1:30 pm to 4:00 pm\nSunday\, October 4\, 2026 1:30 pm to 4:00 pm\n\nAll are welcome. Positive Exposure is wheelchair accessible\, including the restrooms. If you need a reasonable accommodation such as American Sign Language interpretation or live captioning\, please email us at info@disabledinaction.org or call us at 646-504-4342 and leave a message with a callback number at least 10 days before the meeting. \nIf a meeting is cancelled due to inclement weather\, we will have a notice the night before on our phone. Please call DIA at 646-504-4342. \n\n\n Image description: DIA members and other activists are outside of a building in downtown Manhattan protesting for the right to add elevators for all public transit stops. They are holding signs that say “Stranded by Cuomo” and “Elevator FAIL.”
URL:https://positiveexposure.org/event/diabled-in-action-june-2026-meeting/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/04/06133119/Screenshot-2026-04-06-at-1.25.30-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260701
DTEND;VALUE=DATE:20260801
DTSTAMP:20260414T182455
CREATED:20260316T225535Z
LAST-MODIFIED:20260316T225653Z
UID:44301-1782864000-1785542399@positiveexposure.org
SUMMARY:Rare Square and Sketch NF Art Showcase: Disability Awareness Month
DESCRIPTION:Stay tuned for Details:  \nThis showcase is a collaboration between Positive Exposure with SketchNF (https://www.sketchnf.org) and Rare Square (https://www.raresquare.org/). SketchNF uses art to share the stories and experiences of children with neurofibromatosis. Rare Square aims to expand this effort to all rare diseases.
URL:https://positiveexposure.org/event/rare-square-and-sketch-nf-art-showcase-disability-awareness-month/
LOCATION:NY
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/16185359/Screenshot-2026-03-16-at-6.51.22-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260710
DTEND;VALUE=DATE:20260713
DTSTAMP:20260414T182455
CREATED:20260228T025830Z
LAST-MODIFIED:20260228T030141Z
UID:44229-1783641600-1783900799@positiveexposure.org
SUMMARY:Cockayne Syndrome Family Conference with Alison Graham: Minneapolis\, MN
DESCRIPTION:Family conference portraits with Positive Exposure’s Alison Graham \nFeaturing: Cockayne Syndrome (CS) \, Trichothiodystrophy (TTD)\, and  Xeroderma Pigmentoseum (XP) overlaps. All of these conditions are related due to the type of DNA repair disorder they have called nucleotide excision repair (NER) \nCockayne syndrome is a rare autosomal recessive genetic disorder resulting from a DNA repair defect\, leading to heightened sensitivity of cells in affected individuals to the lethal effects of UV light.
URL:https://positiveexposure.org/event/cockayne-syndrome-family-conference-with-alison-graham-minneapolis-mn/
LOCATION:NY
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/02/27215759/3K6A9400.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260710T080000
DTEND;TZID=America/New_York:20260712T170000
DTSTAMP:20260414T182455
CREATED:20260228T031131Z
LAST-MODIFIED:20260228T031137Z
UID:44231-1783670400-1783875600@positiveexposure.org
SUMMARY:Klippel-Trenaunay Syndrome family conference with Rick Guidotti: Rochester\, MN
DESCRIPTION:K-T Support Group’s 40th Anniversary Conference\nKlippel-Trenaunay Syndrome\nKlippel-Trenaunay (K-T) Syndrome is characterized by a localized or diffuse capillary malformation that overlies a venous malformation and/or lymphatic malformation with associated soft tissue and bone overgrowth (hypertrophy).
URL:https://positiveexposure.org/event/klippel-trenaunay-syndrome-family-conference-with-rick-guidotti-rochester-mn/
LOCATION:NY
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/02/27221044/3K6A7569.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260714
DTEND;VALUE=DATE:20260716
DTSTAMP:20260414T182455
CREATED:20260228T031937Z
LAST-MODIFIED:20260228T031956Z
UID:44233-1783987200-1784159999@positiveexposure.org
SUMMARY:Chromosome 18 Registry and Research Society Family Conference with Rick Guidotti: San Antonio\, TX
DESCRIPTION:Chromosome 18 Registry and Research Society Family Conference with Rick Guidotti: San Antonio\, TX \nAt the core of Chromosome 18’s mission are three main pillars: nurturing a compassionate community\, enhancing education\, and driving innovative research.
URL:https://positiveexposure.org/event/chromosome-18-registry-and-research-society-family-conference-with-rick-guidotti-san-antonio-tx/
LOCATION:NY
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27221827/Screenshot-2026-02-27-at-10.17.06-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260717T080000
DTEND;TZID=America/New_York:20260719T170000
DTSTAMP:20260414T182455
CREATED:20260228T032812Z
LAST-MODIFIED:20260228T032812Z
UID:44236-1784275200-1784480400@positiveexposure.org
SUMMARY:National Organization for Albinism and Hypopigmentation (NOAH) family conference with Rick Guidotti: Columbus\, OH
DESCRIPTION:National Organization for Albinism and Hypopigmentation (NOAH) family conference with Rick Guidotti \nColumbus\, OH \nNOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families\, in the United States and Canada\, can find acceptance\, support and fellowship.
URL:https://positiveexposure.org/event/national-organization-for-albinism-and-hypopigmentation-noah-family-conference-with-rick-guidotti-columbus-oh/
LOCATION:NY
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27222658/Screenshot-2026-02-27-at-10.23.41-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260724
DTEND;VALUE=DATE:20260726
DTSTAMP:20260414T182455
CREATED:20260228T043625Z
LAST-MODIFIED:20260228T043637Z
UID:44238-1784851200-1785023999@positiveexposure.org
SUMMARY:Coffin-Siris syndrome Family Conference with Alison Graham
DESCRIPTION:Coffin-Siris syndrome Family Conference with Positive Exposure’s Alison Graham \nWhat is Coffin-Siris Syndrome?\nCoffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Dr. Coffin and Dr. Siris to describe individuals with a shortened or underdeveloped fifth digit or fifth digit nail\, along with developmental and learning differences\, and a variety of organ-system issues.
URL:https://positiveexposure.org/event/coffin-siris-syndrome-family-conference-with-alison-graham/
LOCATION:NY
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27233419/Screenshot-2026-02-27-at-10.31.02-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260730T080000
DTEND;TZID=America/New_York:20260801T170000
DTSTAMP:20260414T182455
CREATED:20260228T044206Z
LAST-MODIFIED:20260301T022219Z
UID:44240-1785398400-1785603600@positiveexposure.org
SUMMARY:PRISMS Family Conference: Minneapolis\, MN with Rick Guidotti
DESCRIPTION:PRISMS Family Conference: Minneapolis\, MN\nSmith-Magenis Syndrome\nSmith-Magenis Syndrome (SMS) is a rare neurobehavioral disorder characterized by a recognizable pattern of physical\, behavioral\, and developmental features. It is caused by particular genetic changes on chromosomal region 17p11.2\, which contains the gene RAI1. \nPRISMS Conference Goals:\n\nTo understand the medical\, social\, developmental\, and behavioral aspects of SMS.\nTo gain knowledge about the most recent advances in diagnosis\, management\, and potential benefits to persons with SMS.\nTo develop intervention strategies\, treatment\, and management plans for persons with SMS.\nTo recognize the psychosocial aspects impacting SMS families and the role of PRISMS as a network.\nTo learn about SMS\, past\, present\, and future.\nAnd\, most importantly\, to share information and guidance with other families.
URL:https://positiveexposure.org/event/prisms-family-conference-minneapolis-mn/
LOCATION:NY
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27234046/Screenshot-2026-02-27-at-11.40.09-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260802T130000
DTEND;TZID=America/New_York:20260802T160000
DTSTAMP:20260414T182455
CREATED:20260406T174040Z
LAST-MODIFIED:20260409T195238Z
UID:44354-1785675600-1785686400@positiveexposure.org
SUMMARY:Disabled in Action August 2026 Meeting
DESCRIPTION:DIA is a civil rights organization committed to ending discrimination against people with disabilities – all disabilities. We fight to eliminate the barriers that prevent us from enjoying full equality in American society. Founded in 1970\, DIA is a democratic\, not-for-profit\, tax-exempt\, all-volunteer membership organization. DIA consists primarily of and is directed by people with disabilities.\nNothing about us\, without us!\nUpcoming DIA Meetings at Positive Exposure Gallery\n\n\nSunday\, August 2\, 2026 1:30 pm to 4:00 pm\nSunday\, October 4\, 2026 1:30 pm to 4:00 pm\n\nAll are welcome. Positive Exposure is wheelchair accessible\, including the restrooms. If you need a reasonable accommodation such as American Sign Language interpretation or live captioning\, please email us at info@disabledinaction.org or call us at 646-504-4342 and leave a message with a callback number at least 10 days before the meeting. \nIf a meeting is cancelled due to inclement weather\, we will have a notice the night before on our phone. Please call DIA at 646-504-4342. \n\n\n Image description: DIA members and other activists are outside of a building in downtown Manhattan protesting for the right to add elevators for all public transit stops. They are holding signs that say “Stranded by Cuomo” and “Elevator FAIL.”
URL:https://positiveexposure.org/event/disabled-in-actrion-august-2026-meeting/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/04/06133119/Screenshot-2026-04-06-at-1.25.30-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261004T130000
DTEND;TZID=America/New_York:20261004T160000
DTSTAMP:20260414T182455
CREATED:20260406T174329Z
LAST-MODIFIED:20260409T195252Z
UID:44356-1791118800-1791129600@positiveexposure.org
SUMMARY:Disabled In Action: October 2026 Meeting
DESCRIPTION:DIA is a civil rights organization committed to ending discrimination against people with disabilities – all disabilities. We fight to eliminate the barriers that prevent us from enjoying full equality in American society. Founded in 1970\, DIA is a democratic\, not-for-profit\, tax-exempt\, all-volunteer membership organization. DIA consists primarily of and is directed by people with disabilities.\nNothing about us\, without us!\nUpcoming DIA Meetings at Positive Exposure Gallery\n\n\nSunday\, October 4\, 2026 1:30 pm to 4:00 pm\n\nAll are welcome. Positive Exposure is wheelchair accessible\, including the restrooms. If you need a reasonable accommodation such as American Sign Language interpretation or live captioning\, please email us at info@disabledinaction.org or call us at 646-504-4342 and leave a message with a callback number at least 10 days before the meeting. \nIf a meeting is cancelled due to inclement weather\, we will have a notice the night before on our phone. Please call DIA at 646-504-4342. \n\n\n Image description: DIA members and other activists are outside of a building in downtown Manhattan protesting for the right to add elevators for all public transit stops. They are holding signs that say “Stranded by Cuomo” and “Elevator FAIL.”
URL:https://positiveexposure.org/event/disabled-in-action-october-2026-meeting/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/04/06133119/Screenshot-2026-04-06-at-1.25.30-PM.png
END:VEVENT
END:VCALENDAR