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X-WR-CALNAME:Positive Exposure
X-ORIGINAL-URL:https://positiveexposure.org
X-WR-CALDESC:Events for Positive Exposure
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260514T080000
DTEND;TZID=America/New_York:20260519T170000
DTSTAMP:20260406T011233
CREATED:20260319T000719Z
LAST-MODIFIED:20260319T002239Z
UID:44312-1778745600-1779210000@positiveexposure.org
SUMMARY:Visiting Artist: Scott Hovis\, Tourette's Syndrome Awareness
DESCRIPTION:A preliminary exhibition and discussion celebrating Art\, Humanity and Advocacy. Stay tuned for details… \nScott Hovis II is not only an artist — he’s an activist hoping to raise awareness about the power of creativity on helping with mental and physical struggles. \nHis abstract art is his way of making “beauty through pain.” Hovis has lived with Tourette Syndrome (TS)\, a condition of the nervous system. While it’s most well known for symptoms causing involuntary word repetition\, it can also cause twitches and ticks. \n \n \n  \n 
URL:https://positiveexposure.org/event/visiting-artist-scott-hovis-tourettes-syndrome-awareness/
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/18202117/Screenshot-2026-03-18-at-8.20.18-PM.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260515T170000
DTEND;TZID=America/New_York:20260515T200000
DTSTAMP:20260406T011233
CREATED:20260311T205946Z
LAST-MODIFIED:20260311T205959Z
UID:44282-1778864400-1778875200@positiveexposure.org
SUMMARY:Opening Celebration: Celina Leroy Portraits Celebrating Vascular Birthmark Awareness Day/ Month
DESCRIPTION:Stay tuned for details and activities! \n \n 
URL:https://positiveexposure.org/event/opening-celebration-celina-leroy-portraits-celebrating-vascular-birthmark-awareness-day-month/
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/03/11165141/Celina-Exhibition.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T080000
DTEND;TZID=America/New_York:20260605T170000
DTSTAMP:20260406T011233
CREATED:20260312T224933Z
LAST-MODIFIED:20260312T225003Z
UID:44295-1780473600-1780678800@positiveexposure.org
SUMMARY:The Arc of New York Annual Meeting
DESCRIPTION:The Arc of New York:\nMission: To provide people with intellectual\, developmental and other disabilities the ordinary and extraordinary opportunities of life.\nStay tuned for details.
URL:https://positiveexposure.org/event/the-arc-of-new-york-annual-meeting/
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/12184737/Screenshot-2026-03-12-at-6.45.24-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260605T080000
DTEND;TZID=America/New_York:20260707T170000
DTSTAMP:20260406T011233
CREATED:20260312T230455Z
LAST-MODIFIED:20260312T230455Z
UID:44297-1780646400-1783443600@positiveexposure.org
SUMMARY:HEROES WITHIN
DESCRIPTION:HEROES WITHIN: Stay Tuned fgor more exciting details… \nAn Art + Storytelling Project featuring LGBTQ+ Youth and a global League of Extraordinary Artists \nEXHIBIT OVERVIEW \nHeroes Within is a new and affirming exhibit of unique superheroes created by LGBTQ+ youth and designed by artists from around the world. \nAn initiative of The Superhero Project\, 40 LGBTQ+ kids\, teens and young adults (including youth of color\, youth living with disabilities\, and youth impacted by mental health concerns) were invited to take part in this positive social emotional experience that centers their voices\, celebrates their strengths\, and supports healing through art and storytelling.
URL:https://positiveexposure.org/event/heroes-within/
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/12190405/Screenshot-2026-03-12-at-7.00.14-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260701
DTEND;VALUE=DATE:20260801
DTSTAMP:20260406T011233
CREATED:20260316T225535Z
LAST-MODIFIED:20260316T225653Z
UID:44301-1782864000-1785542399@positiveexposure.org
SUMMARY:Rare Square and Sketch NF Art Showcase: Disability Awareness Month
DESCRIPTION:Stay tuned for Details:  \nThis showcase is a collaboration between Positive Exposure with SketchNF (https://www.sketchnf.org) and Rare Square (https://www.raresquare.org/). SketchNF uses art to share the stories and experiences of children with neurofibromatosis. Rare Square aims to expand this effort to all rare diseases.
URL:https://positiveexposure.org/event/rare-square-and-sketch-nf-art-showcase-disability-awareness-month/
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/03/16185359/Screenshot-2026-03-16-at-6.51.22-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260710
DTEND;VALUE=DATE:20260713
DTSTAMP:20260406T011233
CREATED:20260228T025830Z
LAST-MODIFIED:20260228T030141Z
UID:44229-1783641600-1783900799@positiveexposure.org
SUMMARY:Cockayne Syndrome Family Conference with Alison Graham: Minneapolis\, MN
DESCRIPTION:Family conference portraits with Positive Exposure’s Alison Graham \nFeaturing: Cockayne Syndrome (CS) \, Trichothiodystrophy (TTD)\, and  Xeroderma Pigmentoseum (XP) overlaps. All of these conditions are related due to the type of DNA repair disorder they have called nucleotide excision repair (NER) \nCockayne syndrome is a rare autosomal recessive genetic disorder resulting from a DNA repair defect\, leading to heightened sensitivity of cells in affected individuals to the lethal effects of UV light.
URL:https://positiveexposure.org/event/cockayne-syndrome-family-conference-with-alison-graham-minneapolis-mn/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/02/27215759/3K6A9400.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260710T080000
DTEND;TZID=America/New_York:20260712T170000
DTSTAMP:20260406T011233
CREATED:20260228T031131Z
LAST-MODIFIED:20260228T031137Z
UID:44231-1783670400-1783875600@positiveexposure.org
SUMMARY:Klippel-Trenaunay Syndrome family conference with Rick Guidotti: Rochester\, MN
DESCRIPTION:K-T Support Group’s 40th Anniversary Conference\nKlippel-Trenaunay Syndrome\nKlippel-Trenaunay (K-T) Syndrome is characterized by a localized or diffuse capillary malformation that overlies a venous malformation and/or lymphatic malformation with associated soft tissue and bone overgrowth (hypertrophy).
URL:https://positiveexposure.org/event/klippel-trenaunay-syndrome-family-conference-with-rick-guidotti-rochester-mn/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2026/02/27221044/3K6A7569.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260714
DTEND;VALUE=DATE:20260716
DTSTAMP:20260406T011233
CREATED:20260228T031937Z
LAST-MODIFIED:20260228T031956Z
UID:44233-1783987200-1784159999@positiveexposure.org
SUMMARY:Chromosome 18 Registry and Research Society Family Conference with Rick Guidotti: San Antonio\, TX
DESCRIPTION:Chromosome 18 Registry and Research Society Family Conference with Rick Guidotti: San Antonio\, TX \nAt the core of Chromosome 18’s mission are three main pillars: nurturing a compassionate community\, enhancing education\, and driving innovative research.
URL:https://positiveexposure.org/event/chromosome-18-registry-and-research-society-family-conference-with-rick-guidotti-san-antonio-tx/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27221827/Screenshot-2026-02-27-at-10.17.06-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260717T080000
DTEND;TZID=America/New_York:20260719T170000
DTSTAMP:20260406T011233
CREATED:20260228T032812Z
LAST-MODIFIED:20260228T032812Z
UID:44236-1784275200-1784480400@positiveexposure.org
SUMMARY:National Organization for Albinism and Hypopigmentation (NOAH) family conference with Rick Guidotti: Columbus\, OH
DESCRIPTION:National Organization for Albinism and Hypopigmentation (NOAH) family conference with Rick Guidotti \nColumbus\, OH \nNOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families\, in the United States and Canada\, can find acceptance\, support and fellowship.
URL:https://positiveexposure.org/event/national-organization-for-albinism-and-hypopigmentation-noah-family-conference-with-rick-guidotti-columbus-oh/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27222658/Screenshot-2026-02-27-at-10.23.41-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260724
DTEND;VALUE=DATE:20260726
DTSTAMP:20260406T011233
CREATED:20260228T043625Z
LAST-MODIFIED:20260228T043637Z
UID:44238-1784851200-1785023999@positiveexposure.org
SUMMARY:Coffin-Siris syndrome Family Conference with Alison Graham
DESCRIPTION:Coffin-Siris syndrome Family Conference with Positive Exposure’s Alison Graham \nWhat is Coffin-Siris Syndrome?\nCoffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Dr. Coffin and Dr. Siris to describe individuals with a shortened or underdeveloped fifth digit or fifth digit nail\, along with developmental and learning differences\, and a variety of organ-system issues.
URL:https://positiveexposure.org/event/coffin-siris-syndrome-family-conference-with-alison-graham/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27233419/Screenshot-2026-02-27-at-10.31.02-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260730T080000
DTEND;TZID=America/New_York:20260801T170000
DTSTAMP:20260406T011233
CREATED:20260228T044206Z
LAST-MODIFIED:20260301T022219Z
UID:44240-1785398400-1785603600@positiveexposure.org
SUMMARY:PRISMS Family Conference: Minneapolis\, MN with Rick Guidotti
DESCRIPTION:PRISMS Family Conference: Minneapolis\, MN\nSmith-Magenis Syndrome\nSmith-Magenis Syndrome (SMS) is a rare neurobehavioral disorder characterized by a recognizable pattern of physical\, behavioral\, and developmental features. It is caused by particular genetic changes on chromosomal region 17p11.2\, which contains the gene RAI1. \nPRISMS Conference Goals:\n\nTo understand the medical\, social\, developmental\, and behavioral aspects of SMS.\nTo gain knowledge about the most recent advances in diagnosis\, management\, and potential benefits to persons with SMS.\nTo develop intervention strategies\, treatment\, and management plans for persons with SMS.\nTo recognize the psychosocial aspects impacting SMS families and the role of PRISMS as a network.\nTo learn about SMS\, past\, present\, and future.\nAnd\, most importantly\, to share information and guidance with other families.
URL:https://positiveexposure.org/event/prisms-family-conference-minneapolis-mn/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27234046/Screenshot-2026-02-27-at-11.40.09-PM.png
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