Coffin-Siris syndrome Family Conference with Alison Graham
2026-07-24 - 2026-07-25
Coffin-Siris syndrome Family Conference with Positive Exposure’s Alison Graham
What is Coffin-Siris Syndrome?
Coffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Dr. Coffin and Dr. Siris to describe individuals with a shortened or underdeveloped fifth digit or fifth digit nail, along with developmental and learning differences, and a variety of organ-system issues.

Austin Halls: DISABILI - TEA Album Launch Concert and Showcase
2026-07-24 17:00 - 20:00 (America/New_York) | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
DISABILI-TEA Album Release Party!
Join us for an evening of live music, art, and Disability Pride as we celebrate the release of Austin Halls’ new dance-pop album, DISABILI-TEA.
We’re bringing together disabled artists, creativity, and community for a night centered on joy, authenticity, and unapologetically taking up space.
Friday, July 24, 5-8PM
83 Maiden Lane, 4th Floor, NYC
Featuring an incredible matcha pop up by Matcha Frequency!
Whether you’re part of the disability community or an ally, we’d love for you to come connect and experience a night where disability is not just represented, but celebrated!
Image Description: On Purple and Blue Neon, a man bathed in blue light in profile, gazing off with his hand touching the back of his hair. There are 4 bold arrows pointing upward on both sides of image.

Remembering the Disability Independence Day March (DIDM) ’93
2026-07-25 14:00 - 17:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
From left to right, activists Marca Bristo, Paul Steven Miller, Judy Heumann, Phyllis Rubenfeld, an unknown person, and Justin Dart walk and roll together. Yoshiko Dart (Justin’s widow) and Kyoko Okubo Yamazaki (proud member of the Darts’ “Lifequality Empowerment Training program”) are behind them, holding a banner with a quote from Dr. Martin Luther King, Jr.: “Injustice anywhere is a threat to justice everywhere.”
Join us to commemorate the ADA’s 36th anniversary!

DIDM ’93 March organizer, Nadina LaSpina, will read from her memoir, Such a Pretty Girl: A Story of Struggle, Empowerment, and Disability Pride.

On View: July 14-August 15, 2026
Gallery Celebration: July 25, 2-5pm
To arrange a visit, please email events@positiveexposure.org.
83 Maiden Lane, 4th Floor, NYC

Image description: A logo for the march that was used for programs and other distributed information. The bust of the Statue of Liberty is above the words “DIDM ’93, Disability Independence Day March.”

Rare Square: A Rare Art Celebration
2026-07-29 17:00 - 20:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
What Does Rare Disease Mean to You? A Rare Community Art Exhibition
Wednesday, July 29, 5-8PM
This showcase is a collaboration with SketchNF, which uses art to share the stories and experiences of children with neurofibromatosis, and Rare Square, which aims to expand this effort to all rare diseases.
Also on view:
The Many Faces of Neurofibromatosis by Rachel Mindrup, also featuring the works of Creighton University medical students and art students.
Micro-Agressions by Wendy Elliott Vandivier, whose autobiographical cartoons focus on attitudinal barriers and stereotypes regarding disabilities.

PRISMS Family Conference: Minneapolis, MN with Rick Guidotti
2026-07-30 08:00 - 2026-08-01 17:00
PRISMS Family Conference: Minneapolis, MN
Smith-Magenis Syndrome
Smith-Magenis Syndrome (SMS) is a rare neurobehavioral disorder characterized by a recognizable pattern of physical, behavioral, and developmental features. It is caused by particular genetic changes on chromosomal region 17p11.2, which contains the gene RAI1.
PRISMS Conference Goals:

To understand the medical, social, developmental, and behavioral aspects of SMS.
To gain knowledge about the most recent advances in diagnosis, management, and potential benefits to persons with SMS.
To develop intervention strategies, treatment, and management plans for persons with SMS.
To recognize the psychosocial aspects impacting SMS families and the role of PRISMS as a network.
To learn about SMS, past, present, and future.
And, most importantly, to share information and guidance with other families.

Disabled in Action August 2026 Meeting
2026-08-02 13:00 - 16:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
DIA is a civil rights organization committed to ending discrimination against people with disabilities – all disabilities. We fight to eliminate the barriers that prevent us from enjoying full equality in American society. Founded in 1970, DIA is a democratic, not-for-profit, tax-exempt, all-volunteer membership organization. DIA consists primarily of and is directed by people with disabilities.
Nothing about us, without us!
Upcoming DIA Meetings at Positive Exposure Gallery

Sunday, August 2, 2026 1:30 pm to 4:00 pm
Sunday, October 4, 2026 1:30 pm to 4:00 pm

All are welcome. Positive Exposure is wheelchair accessible, including the restrooms. If you need a reasonable accommodation such as American Sign Language interpretation or live captioning, please email us at info@disabledinaction.org or call us at 646-504-4342 and leave a message with a callback number at least 10 days before the meeting.
If a meeting is cancelled due to inclement weather, we will have a notice the night before on our phone. Please call DIA at 646-504-4342.

Image description: DIA members and other activists are outside of a building in downtown Manhattan protesting for the right to add elevators for all public transit stops. They are holding signs that say “Stranded by Cuomo” and “Elevator FAIL.”

IDefine: Kleefstra Syndrome Foundation
2026-08-07 - 2026-08-08
Family Conference in Boston.

IDefine is a nonprofit organization that exists to provide a central community for families affected by Kleefstra Syndrome (KS)

United Hands: Health Equity Listening Sessions
2026-08-13 09:00 - 17:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
The Health Equity Listening Sessions will be a full-day, community-centered engagement event designed to bring together Deaf, DeafBlind, Late-Deafened, Hard of Hearing, and other individuals with communication access needs to share their lived experiences directly with representatives from the New York State Department of Health, state and local government agencies, healthcare organizations, managed care plans, and community partners. The purpose of the event is to identify barriers to equitable healthcare access, gather community-driven recommendations, and strengthen collaboration between policymakers, healthcare leaders, and the communities they serve. Rather than a traditional conference, the event is designed as an interactive listening and co-design experience where government agencies listen first and community members lead the conversation
Mission: United Hands Organization (UHO) is an ASL-led nonprofit building accessible systems through universal design, communication access, workforce development, and integrated care. We partner with healthcare providers, government agencies, employers, and community organizations to eliminate communication barriers and improve equitable access to health, social, employment, and community services for Deaf, DeafBlind, Hard of Hearing, Limited English Proficient (LEP), and other underserved communities. By combining lived experience, innovation, technology, and trusted community partnerships, we transform fragmented services into inclusive, person-centered solutions that improve outcomes for everyone.

Disabled In Action: October 2026 Meeting
2026-10-04 13:00 - 16:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
DIA is a civil rights organization committed to ending discrimination against people with disabilities – all disabilities. We fight to eliminate the barriers that prevent us from enjoying full equality in American society. Founded in 1970, DIA is a democratic, not-for-profit, tax-exempt, all-volunteer membership organization. DIA consists primarily of and is directed by people with disabilities.
Nothing about us, without us!
Upcoming DIA Meetings at Positive Exposure Gallery

Sunday, October 4, 2026 1:30 pm to 4:00 pm

All are welcome. Positive Exposure is wheelchair accessible, including the restrooms. If you need a reasonable accommodation such as American Sign Language interpretation or live captioning, please email us at info@disabledinaction.org or call us at 646-504-4342 and leave a message with a callback number at least 10 days before the meeting.
If a meeting is cancelled due to inclement weather, we will have a notice the night before on our phone. Please call DIA at 646-504-4342.

Image description: DIA members and other activists are outside of a building in downtown Manhattan protesting for the right to add elevators for all public transit stops. They are holding signs that say “Stranded by Cuomo” and “Elevator FAIL.”
