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X-WR-CALDESC:Events for Positive Exposure
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DTSTART;TZID=America/New_York:20260717T080000
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DTSTAMP:20260406T091505
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UID:44236-1784275200-1784480400@positiveexposure.org
SUMMARY:National Organization for Albinism and Hypopigmentation (NOAH) family conference with Rick Guidotti: Columbus\, OH
DESCRIPTION:National Organization for Albinism and Hypopigmentation (NOAH) family conference with Rick Guidotti \nColumbus\, OH \nNOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families\, in the United States and Canada\, can find acceptance\, support and fellowship.
URL:https://positiveexposure.org/event/national-organization-for-albinism-and-hypopigmentation-noah-family-conference-with-rick-guidotti-columbus-oh/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27222658/Screenshot-2026-02-27-at-10.23.41-PM.png
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DTSTART;VALUE=DATE:20260724
DTEND;VALUE=DATE:20260726
DTSTAMP:20260406T091505
CREATED:20260228T043625Z
LAST-MODIFIED:20260228T043637Z
UID:44238-1784851200-1785023999@positiveexposure.org
SUMMARY:Coffin-Siris syndrome Family Conference with Alison Graham
DESCRIPTION:Coffin-Siris syndrome Family Conference with Positive Exposure’s Alison Graham \nWhat is Coffin-Siris Syndrome?\nCoffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Dr. Coffin and Dr. Siris to describe individuals with a shortened or underdeveloped fifth digit or fifth digit nail\, along with developmental and learning differences\, and a variety of organ-system issues.
URL:https://positiveexposure.org/event/coffin-siris-syndrome-family-conference-with-alison-graham/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27233419/Screenshot-2026-02-27-at-10.31.02-PM.png
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DTSTART;TZID=America/New_York:20260730T080000
DTEND;TZID=America/New_York:20260801T170000
DTSTAMP:20260406T091505
CREATED:20260228T044206Z
LAST-MODIFIED:20260301T022219Z
UID:44240-1785398400-1785603600@positiveexposure.org
SUMMARY:PRISMS Family Conference: Minneapolis\, MN with Rick Guidotti
DESCRIPTION:PRISMS Family Conference: Minneapolis\, MN\nSmith-Magenis Syndrome\nSmith-Magenis Syndrome (SMS) is a rare neurobehavioral disorder characterized by a recognizable pattern of physical\, behavioral\, and developmental features. It is caused by particular genetic changes on chromosomal region 17p11.2\, which contains the gene RAI1. \nPRISMS Conference Goals:\n\nTo understand the medical\, social\, developmental\, and behavioral aspects of SMS.\nTo gain knowledge about the most recent advances in diagnosis\, management\, and potential benefits to persons with SMS.\nTo develop intervention strategies\, treatment\, and management plans for persons with SMS.\nTo recognize the psychosocial aspects impacting SMS families and the role of PRISMS as a network.\nTo learn about SMS\, past\, present\, and future.\nAnd\, most importantly\, to share information and guidance with other families.
URL:https://positiveexposure.org/event/prisms-family-conference-minneapolis-mn/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2026/02/27234046/Screenshot-2026-02-27-at-11.40.09-PM.png
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