National Organization for Albinism and Hypopigmentation (NOAH) family conference with Rick Guidotti: Columbus, OH
2026-07-17 08:00 - 2026-07-19 17:00 (America/New_York)
National Organization for Albinism and Hypopigmentation (NOAH) family conference with Rick Guidotti
Columbus, OH
NOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families, in the United States and Canada, can find acceptance, support and fellowship.

Coffin-Siris syndrome Family Conference with Alison Graham
2026-07-24 - 2026-07-25
Coffin-Siris syndrome Family Conference with Positive Exposure’s Alison Graham
What is Coffin-Siris Syndrome?
Coffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Dr. Coffin and Dr. Siris to describe individuals with a shortened or underdeveloped fifth digit or fifth digit nail, along with developmental and learning differences, and a variety of organ-system issues.

PRISMS Family Conference: Minneapolis, MN with Rick Guidotti
2026-07-30 08:00 - 2026-08-01 17:00
PRISMS Family Conference: Minneapolis, MN
Smith-Magenis Syndrome
Smith-Magenis Syndrome (SMS) is a rare neurobehavioral disorder characterized by a recognizable pattern of physical, behavioral, and developmental features. It is caused by particular genetic changes on chromosomal region 17p11.2, which contains the gene RAI1.
PRISMS Conference Goals:

To understand the medical, social, developmental, and behavioral aspects of SMS.
To gain knowledge about the most recent advances in diagnosis, management, and potential benefits to persons with SMS.
To develop intervention strategies, treatment, and management plans for persons with SMS.
To recognize the psychosocial aspects impacting SMS families and the role of PRISMS as a network.
To learn about SMS, past, present, and future.
And, most importantly, to share information and guidance with other families.

Disabled in Action August 2026 Meeting
2026-08-02 13:00 - 16:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
DIA is a civil rights organization committed to ending discrimination against people with disabilities – all disabilities. We fight to eliminate the barriers that prevent us from enjoying full equality in American society. Founded in 1970, DIA is a democratic, not-for-profit, tax-exempt, all-volunteer membership organization. DIA consists primarily of and is directed by people with disabilities.
Nothing about us, without us!
Upcoming DIA Meetings at Positive Exposure Gallery

Sunday, August 2, 2026 1:30 pm to 4:00 pm
Sunday, October 4, 2026 1:30 pm to 4:00 pm

All are welcome. Positive Exposure is wheelchair accessible, including the restrooms. If you need a reasonable accommodation such as American Sign Language interpretation or live captioning, please email us at info@disabledinaction.org or call us at 646-504-4342 and leave a message with a callback number at least 10 days before the meeting.
If a meeting is cancelled due to inclement weather, we will have a notice the night before on our phone. Please call DIA at 646-504-4342.

Image description: DIA members and other activists are outside of a building in downtown Manhattan protesting for the right to add elevators for all public transit stops. They are holding signs that say “Stranded by Cuomo” and “Elevator FAIL.”

Disabled In Action: October 2026 Meeting
2026-10-04 13:00 - 16:00 | Positive Exposure Gallery, 83 Maiden Lane, New York, NY, 10038
DIA is a civil rights organization committed to ending discrimination against people with disabilities – all disabilities. We fight to eliminate the barriers that prevent us from enjoying full equality in American society. Founded in 1970, DIA is a democratic, not-for-profit, tax-exempt, all-volunteer membership organization. DIA consists primarily of and is directed by people with disabilities.
Nothing about us, without us!
Upcoming DIA Meetings at Positive Exposure Gallery

Sunday, October 4, 2026 1:30 pm to 4:00 pm

All are welcome. Positive Exposure is wheelchair accessible, including the restrooms. If you need a reasonable accommodation such as American Sign Language interpretation or live captioning, please email us at info@disabledinaction.org or call us at 646-504-4342 and leave a message with a callback number at least 10 days before the meeting.
If a meeting is cancelled due to inclement weather, we will have a notice the night before on our phone. Please call DIA at 646-504-4342.

Image description: DIA members and other activists are outside of a building in downtown Manhattan protesting for the right to add elevators for all public transit stops. They are holding signs that say “Stranded by Cuomo” and “Elevator FAIL.”
