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X-WR-CALDESC:Events for Positive Exposure
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230629
DTEND;VALUE=DATE:20230702
DTSTAMP:20260616T192855
CREATED:20230618T231543Z
LAST-MODIFIED:20230620T185450Z
UID:32308-1687996800-1688255999@positiveexposure.org
SUMMARY:Parent Project Muscular Dystrophy
DESCRIPTION:We are so excited to host PPMD’s 29th Annual Conference\, June 29 – July 1\, 2023 at The Sheraton Dallas Hotel in Dallas\, Texas! \nPPMD’s Annual Conference is recognized worldwide as the largest\, most comprehensive annual meeting focused entirely on Duchenne and Becker muscular dystrophy. Families\, physicians\, researchers\, caregivers\, industry partners\, and those living with Duchenne\, Becker\, and carriers gather to connect\, share information\, and learn the latest progress in the fight to end Duchenne.
URL:https://positiveexposure.org/event/parent-project-muscular-dystrophy/
LOCATION:Sheraton Hotel\, Dallas\, TX
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2023/06/07232934/Screen-Shot-2023-06-18-at-7.07.51-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230702
DTEND;VALUE=DATE:20230710
DTSTAMP:20260616T192855
CREATED:20230620T112440Z
LAST-MODIFIED:20230628T102400Z
UID:32333-1688256000-1688947199@positiveexposure.org
SUMMARY:The Undiagnosed Initiative: Seoul\, South Korea
DESCRIPTION:Image above from Mali\, West Africa 2020! \nSO excited to be on the road again with the Undiagnosed Project\, traveling around the globe and joining Centers of Excellence for individuals that are undiagnosed. \nBuilding Community! \nSo far\, we have traveled to Australia\, India\, Mali\, Netherlands & Sweden. Next stop Seoul\, South Korea \nIn collaboration with the Wilhelm Foundation\, Karolinska Institute\, Mayo Clinic and National Institutes of Health (NIH)
URL:https://positiveexposure.org/event/the-undiagnosed-initiative-seoul-south-korea/
LOCATION:Rare Disease Center\, Department of Genomic Medicine Department of Neurology Seoul National University Hospital\,
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2023/06/07232930/Undiagnosed1a.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230710
DTEND;VALUE=DATE:20230713
DTSTAMP:20260616T192855
CREATED:20230621T171855Z
LAST-MODIFIED:20230621T172923Z
UID:32377-1688947200-1689206399@positiveexposure.org
SUMMARY:Chromosome 18 Family Summit
DESCRIPTION:Excited to see all of our Friends & Families at the Chromosome 18 Party!!!! \n 
URL:https://positiveexposure.org/event/chromosome-18-family-summit/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2023/06/07232923/Screen-Shot-2023-06-21-at-1.10.54-PM.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230715
DTEND;VALUE=DATE:20230716
DTSTAMP:20260616T192855
CREATED:20230621T205111Z
LAST-MODIFIED:20260306T185236Z
UID:32395-1689379200-1689465599@positiveexposure.org
SUMMARY:Coffin-Siris Syndrome Foundation Family Conference
DESCRIPTION:What is Coffin-Siris Syndrome? Coffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Drs. Coffin and Siris to describe individuals with a shortened or underdeveloped fifth digit or fifth digit nail\, along with developmental and learning differences\, and a variety of organ-system issues. For many years\, the diagnosis was made solely on clinical features; in 2013\, the first genes associated with CSS were discovered. As more individuals with CSS are being diagnosed\, the clinical picture has broadened; we are finding that not all individuals have the classic fifth digit finding\, and that the extent of learning\, developmental\, and growth differences vary among children. Other terms that have been proposed for the syndrome include ‘BAFopathies’ and ‘SWI-SNF related disorders.’
URL:https://positiveexposure.org/event/coffin-sirus-syndrome-foundation-family-conference/
LOCATION:Boston\,  MA
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2023/06/07232917/Screen-Shot-2023-06-21-at-5.07.28-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230718T120000
DTEND;TZID=America/New_York:20230718T130000
DTSTAMP:20260616T192855
CREATED:20230621T214544Z
LAST-MODIFIED:20230621T215111Z
UID:32408-1689681600-1689685200@positiveexposure.org
SUMMARY:University of Michigan School of Dentistry
DESCRIPTION:Featuring POSITIVE EXPOSURE \nVirtual Presentation: OHS-MS student talk \nA summer series of talks to incoming Master students about possibilities of research. Speakers from many different areas\, including arts\,  social justice\, anti-racism workshops\, sustainability and climate change education.
URL:https://positiveexposure.org/event/university-of-michigan-school-of-dentistry/
LOCATION:Virtual
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2023/06/07232915/Screen-Shot-2023-06-21-at-5.39.13-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230722T080000
DTEND;TZID=America/New_York:20230722T170000
DTSTAMP:20260616T192855
CREATED:20230624T193130Z
LAST-MODIFIED:20230716T145019Z
UID:32474-1690012800-1690045200@positiveexposure.org
SUMMARY:2023 Fragile X Family Conference:  Cincinnati\, OH
DESCRIPTION:Get ready for a day of inspiration and learning! \nAward-winning photographer Rick Guidotti will kick off the morning with a captivating talk on FXS Positive Exposure. \nDirectly after\, Dr. Craig Erickson will provide exciting updates on the latest clinical trials in FXS research. \nFollowing lunch\, you won’t want to miss Dr. Marsha Mailick’s much-anticipated presentation on premutation carriers in relation to medicine\, mental health\, and cognitive impact.
URL:https://positiveexposure.org/event/2023-fragile-x-family-conference-cincinnati-oh/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2022/12/08090147/Lukas-and-dad-Fragile-X.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230730T140000
DTEND;TZID=America/New_York:20230730T150000
DTSTAMP:20260616T192855
CREATED:20230724T123943Z
LAST-MODIFIED:20231026T192139Z
UID:34174-1690725600-1690729200@positiveexposure.org
SUMMARY:Drama Workshop
DESCRIPTION:Workshop for Youth with. facial Difference\, Ages 10-14 \nFree Drama Therapy Workshop \nSunday July 30\, \n2-3pm \nPositive Exposure Gallery \n14 East 109th Street \nFacilitated by Patricia Contreras \nParticipants will decorate a mask and tell a story about it. \nAll art supplies will be provided. \nmyFace \nDrama Therapy Workshop-July 30\, 2023
URL:https://positiveexposure.org/event/drame-workshop/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2023/07/07232444/Screen-Shot-2023-07-24-at-8.34.39-AM.png
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