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X-ORIGINAL-URL:https://positiveexposure.org
X-WR-CALDESC:Events for Positive Exposure
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240201T180000
DTEND;TZID=America/New_York:20240201T193000
DTSTAMP:20260704T042936
CREATED:20240126T165003Z
LAST-MODIFIED:20240126T165107Z
UID:35622-1706810400-1706815800@positiveexposure.org
SUMMARY:PETER SONENSHEIN: BEHIND THE CURTAIN Gallery Opening **Virtual Attendance**
DESCRIPTION:In honor of Rare Disease Month\, we are proud to announce our February exhibition featuring the work of Peter Sonenshein\, a Philadelphia artist living with familial dysautonomia. \nOn Thursday\, February 1st\, tune in at 6:00PM EST in celebration of Peter’s “VISIONS FROM BEHIND THE CURTAIN\,” a body of work made\, in part\, behind the hospital curtain. \nPlease register to receive the Zoom link! \n \nPeter Sonenshein\, born in 1984\, has lived his entire life with familial dysautonomia (FD). FD is a rare neurological condition that causes Peter physical and psychological suffering\, but also gives a unique expression to his work. Painting and drawing help Peter to deal with the uncertainty and anxiety caused by FD. \nPeter has lived in suburban Philadelphia all his life. The seeds for his interest in art were sown as a student in a progressive elementary school where he was exposed to a variety of art classes. In 2012\, Peter began private art lessons at The Oasis Art Center in Philadelphia. Beside discovering a talent for and a joy in painting\, he found that the sense of community helped to alleviate some of the isolation that resulted from his illness. Peter considers himself a fighter who never gives up when unpredictable bouts of illness strike. He enjoys the sense of accomplishment in completing each piece of art. \nPlease RSVP at the “Register” button above. We look forward to seeing you in celebration of Pete’s extraordinary work! \nTo learn more about familial dysautonomia\, click here to watch our FRAME film. \n  \nFeatured Image Details \nTitle: “The Spiketator\,” 2022 \nMedia: Oil pastel on paper \nSize: 12″ x 16″ \nThis piece features a moment in basketball history during which a potentially important shot is being taken\, but the image hones in not on the unnamed player or even the game\, but the famous spectator in the audience (Spike Lee). \nPeter has an interest in the awkward and/or underdog moments in sports\, and this image has particular resonance with him as his own role of spectator in most sports due to his illness inhibiting participation. \n\nImage Description: On a light blue background with purple\, red\, and dark blue accents is the following text: POSITIVE EXPOSURE GALLERY\, In Honor of Rare Disease Month We are Proud to Present PETER SONENSHEIN VISIONS FROM BEHIND THE CURTAIN. NEW YORK STATE OF OPPORTUNITY Council on the Arts. IN COLLABORATION WITH THE FAMILIAL DYSAUTONOMIA FOUNDATION. OPENING CELEBRATION Thursday\, February 1\, 6-8pm. 14 E. 109th Street\, New York\, NY. Viewings by appointment through February 29\, 2024. Contact 212-420-1931 or events@positiveexposure.org. On top of the text is an image of a bright\, colorful drawing of spectators watching basketball.
URL:https://positiveexposure.org/event/peter-sonenshein-behind-the-curtain-gallery-opening-virtual-attendance/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240201T180000
DTEND;TZID=America/New_York:20240201T200000
DTSTAMP:20260704T042936
CREATED:20240103T060527Z
LAST-MODIFIED:20240131T165224Z
UID:35506-1706810400-1706817600@positiveexposure.org
SUMMARY:PETER SONENSHEIN: BEHIND THE CURTAIN Gallery Opening Celebration!
DESCRIPTION:In honor of Rare Disease Month\, we are proud to announce our February exhibition featuring the work of Peter Sonenshein\, a Philadelphia artist living with familial dysautonomia. \nOn Thursday\, February 1st\, from 6-8pm\, join us in celebration of Peter’s “Visions from behind the Curtain\,” a body of work made\, in part\, behind the hospital curtain. \n \nPeter Sonenshein\, born in 1984\, has lived his entire life with familial dysautonomia (FD). FD is a rare neurological condition that causes Peter physical and psychological suffering\, but also gives a unique expression to his work. Painting and drawing help Peter to deal with the uncertainty and anxiety caused by FD. \nPeter has lived in suburban Philadelphia all his life. The seeds for his interest in art were sown as a student in a progressive elementary school where he was exposed to a variety of art classes. In 2012\, Peter began private art lessons at The Oasis Art Center in Philadelphia. \nBeside discovering a talent for and a joy in painting\, he found that the sense of community helped to alleviate some of the isolation that resulted from his illness. Peter considers himself a fighter who never gives up when unpredictable bouts of illness strike. He enjoys the sense of accomplishment in completing each piece of art. \nPlease RSVP at the “Register” button above. We look forward to seeing you at our gallery in celebration of Pete’s extraordinary work! \n14 East 109th Street\, NYC. \nTo learn more about familial dysautonomia\, click here to watch our FRAME film. \nFeatured Image Details \nTitle: “The Spiketator\,” 2022 \nMedia: Oil pastel on paper \nSize: 12″ x 16″ \nThis piece features a moment in basketball history during which a potentially important shot is being taken\, but the image hones in not on the unnamed player or even the game\, but the famous spectator in the audience (Spike Lee). \nPeter has an interest in the awkward and/or underdog moments in sports\, and this image has particular resonance with him as his own role of spectator in most sports due to his illness inhibiting participation. \nImage Description: On a light blue background with purple\, red\, and dark blue accents is the following text: POSITIVE EXPOSURE GALLERY\, In Honor of Rare Disease Month We are Proud to Present PETER SONENSHEIN VISIONS FROM BEHIND THE CURTAIN. NEW YORK STATE OF OPPORTUNITY Council on the Arts. IN COLLABORATION WITH THE FAMILIAL DYSAUTONOMIA FOUNDATION. OPENING CELEBRATION Thursday\, February 1\, 6-8pm. 14 E. 109th Street\, New York\, NY. Viewings by appointment through February 29\, 2024. Contact 212-420-1931 or events@positiveexposure.org. On top of the text is an image of a bright\, colorful drawing of spectators watching basketball.
URL:https://positiveexposure.org/event/rare-disease-month-gallery-opening-peter-sonenshein/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2024/01/07231907/1-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240205T180000
DTEND;TZID=America/New_York:20240205T200000
DTSTAMP:20260704T042936
CREATED:20240129T202612Z
LAST-MODIFIED:20240129T211403Z
UID:35661-1707156000-1707163200@positiveexposure.org
SUMMARY:A Celebration of Us! University of Buffalo
DESCRIPTION:University of Buffalo: School of Dental Medicine \nEvent: Positive Exposure: A Celebration of Us \nSpeaker: Mr. Rick Guidotti \nDate: February 5\, 2024 \nTime: 6-8pm \nLocation: UB South Campus – specific room will be announced closer to event \nThis event is being sponsored by the SDM Office of Equity\, Diversity and Inclusion as a part of our Inclusive Excellence Seminar Series.
URL:https://positiveexposure.org/event/a-celebration-of-us-university-of-buffalo/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2024/01/07231833/image003.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240217
DTEND;VALUE=DATE:20240218
DTSTAMP:20260704T042936
CREATED:20240217T160434Z
LAST-MODIFIED:20240217T161803Z
UID:35771-1708128000-1708214399@positiveexposure.org
SUMMARY:Photoshoot for The Undiagnosed Initiative
DESCRIPTION:Here at Penn Medicine in Philadelphia\, photographing for our Undiagnosed Initiative. See you st the opening on the 29th of February. Rare Disease Day! \n  \n  \n  \n  \n  \n  \n  \n  \n  \nShooting here with a backdrop of Positive Exposure images.
URL:https://positiveexposure.org/event/photoshoot-for-the-undiagnosed-initiative/
CATEGORIES:Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2024/02/07231815/Screen-Shot-2024-02-17-at-10.59.40-AM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240218
DTEND;VALUE=DATE:20240219
DTSTAMP:20260704T042936
CREATED:20240217T161140Z
LAST-MODIFIED:20240217T161652Z
UID:35775-1708214400-1708300799@positiveexposure.org
SUMMARY:Cri du Chat Day @ Positive Exposure
DESCRIPTION:So excited to be photographing many families living with 5p- or Cri du Chat syndrome here at Positive Exposure. \nHere is a photo of Brielle with her mom and dad. \n \n  \n  \n 
URL:https://positiveexposure.org/event/cri-du-chat-day-positive-exposure/
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2024/02/07231814/3K6A0464.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240220T080000
DTEND;TZID=America/New_York:20240220T100000
DTSTAMP:20260704T042936
CREATED:20240218T171123Z
LAST-MODIFIED:20240218T173218Z
UID:35781-1708416000-1708423200@positiveexposure.org
SUMMARY:Public Health and Human Rights: Rare Diseases\, Disabilities\, and Global Advocacy\, Brazil
DESCRIPTION:Representations of Diversity Through Photography\nVirtual Presentation\n\nEvent Link\n\nSaúde Pública e\nDireitos Humanos:\ndoenças raras\,\ndeficiências e\nadvocacy global\nDia 20/2 a 5 3\, terças\,\ndas 10h00 às 12h\nR$35 / R$17\,50 R$10\,50\nOnline\nRecursos de acessibilidade devem ser solicitados até\n48h antes do início do curso no momento da inscrição\npelo e-mail centrodepesquisa.cpf@sescsp.org.br\n\n\nAccessibility features must be requested by\n48 hours before the start of the course at the time of registration\nvia email at centrodepesquisa.cpf@sescsp.org.\nSesc\nDireito e acesso à saúde por\npessoas com doenças raras.\nCom Marise Basso Amaral\,\nRick Guidotti (EUA)\, Welton\nCorreia Alves e Wilson Follador.\nMediação: Claudio Cordovil\nOliveira. \n\n\n\nRight and access to health for\npeople with rare diseases.\nWith Marise Basso Amaral\,\nRick Guidotti (USA)\, Welton\nCorreia Alves and Wilson Follador.\nMediation: Claudio Cordovil\nOliveira.\nInscrições:sescsp.org.br/cpf\nR. Dr. Plínio Barreto\, 285\, 4° andar\nBela Vista – São Paulo\, SP
URL:https://positiveexposure.org/event/public-health-and-human-rights-rare-diseases-disabilities-and-global-advocacy-brazil/
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2024/02/07231812/Screen-Shot-2024-02-18-at-11.33.23-AM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240220T163000
DTEND;TZID=America/New_York:20240220T180000
DTSTAMP:20260704T042936
CREATED:20240218T172935Z
LAST-MODIFIED:20240218T172935Z
UID:35785-1708446600-1708452000@positiveexposure.org
SUMMARY:Genetic Counseling Graduate Program Vagelos College of Physicians and Surgeons Columbia University
DESCRIPTION:Lecture: Genetic Counseling Program
URL:https://positiveexposure.org/event/genetic-counseling-graduate-program-vagelos-college-of-physicians-and-surgeons-columbia-university/
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2024/02/07231811/Screen-Shot-2024-02-18-at-12.24.34-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240222T160000
DTEND;TZID=America/New_York:20240222T180000
DTSTAMP:20260704T042936
CREATED:20240218T183659Z
LAST-MODIFIED:20240218T193435Z
UID:35791-1708617600-1708624800@positiveexposure.org
SUMMARY:Duke University/ UNC Dermatology Event
DESCRIPTION:DUKE UNIVERSITY SCHOOL OF MEDICINE/ UNIVERSITY NORTH CAROLINA: Dermatology Event \n 
URL:https://positiveexposure.org/event/35791/
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2024/02/07231809/Talia.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240229T110000
DTEND;TZID=America/New_York:20240229T130000
DTSTAMP:20260704T042936
CREATED:20240215T203922Z
LAST-MODIFIED:20240215T210323Z
UID:35765-1709204400-1709211600@positiveexposure.org
SUMMARY:Rare Disease Day Celebration with NORD
DESCRIPTION:On Thursday February 29\, join the National Organization for Rare Disorders (NORD) to celebrate Rare Disease Day and #Show YourStripes in support of those living with a rare disease. Refreshments will be served\, and zebra striped clothes are encouraged! \nPlease register here: https://www.surveymonkey.com/r/KN73P98 \n \nImage Description: Beneath three close-up portraits\, on a dark blue background\, is the following text: “Positive Exposure Gallery and the Wilhelm Foundation present The Undiagnosed Initiative. Featuring portraits from Australia\, India\, Mali\, the Netherlands\, South Korea\, Sweden\, and the U.S. On Thursday February 29\, join the National Organization for Rare Disorders (NORD) at Positive Exposure Gallery to celebrate Rare Disease Day and #Show YourStripes in support of those living with a rare disease. Refreshments will be served\, and zebra striped clothes are encouraged! DATE: February 29\, 2024. TIME: 11am-1pm. LOCATION: Positive Exposure Gallery\, 14 E 109th Street\, New York\, NY 10029. CONTACT: action@rarediseases.org.”
URL:https://positiveexposure.org/event/rare-disease-day-celebration-with-nord/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2024/02/07231816/Poster-for-Positive-Exposure-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240229T180000
DTEND;TZID=America/New_York:20240229T200000
DTSTAMP:20260704T042936
CREATED:20240215T181535Z
LAST-MODIFIED:20240221T222522Z
UID:35753-1709229600-1709236800@positiveexposure.org
SUMMARY:Rare Disease Day Gallery Opening: The Undiagnosed Initiative
DESCRIPTION:Join us on Thursday\, February 29th\, from 6-8pm\, for a Rare Disease Day celebration of The Wilhelm Foundation’s Undiagnosed Initiative. Featuring portraits by Rick Guidotti from Australia\, India\, Mali\, the Netherlands\, South Korea\, Sweden\, and the U.S. \nWe hope to see you there! Please RSVP at the Register button above. \nThe Wilhelm Foundation\, which is supported by the Chan Zuckerberg Initiative\, was recently featured in Katie Couric Media: “Helene Cederroth hopes that her story and her advocacy work can help save other children\, even if doctors couldn’t help hers.” \n \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nImage Description: On a pale green background are three close-up portraits of children\, and one group photo of a family. On purple\, red\, and green backgrounds is the following text: “Positive Exposure Gallery\, Rare Disease Day Celebration\, The Undiagnosed Initiative. In collaboration with the Wilhelm Foundation. Made possible by the New York State Council on the Arts. Featuring portraits from Australia\, India\, Mali\, the Netherlands\, South Korea\, Sweden\, and the U.S. Thursday\, February 29\, 6-8pm. 14 East 109th Street\, New York\, New York. Contact 212-420-1931 or events@positiveexposure.org.”\n  \n  \n 
URL:https://positiveexposure.org/event/35753/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2024/02/07231817/Feb-29-RDD-Gallery-Opening-1.jpg
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