BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Positive Exposure - ECPv6.16.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://positiveexposure.org
X-WR-CALDESC:Events for Positive Exposure
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240911
DTEND;VALUE=DATE:20240912
DTSTAMP:20260626T034659
CREATED:20240909T175756Z
LAST-MODIFIED:20240909T192138Z
UID:41067-1726012800-1726099199@positiveexposure.org
SUMMARY:NYS IDD/DD Nurse Association 2024 Annual Conference
DESCRIPTION:The NYS ID/DD Nurses Association (NYSIDDDNA) will be hosting the NYSIDDDNA 2024 Annual Conference September 9-11\, 2024 at the Queensbury Hotel in Glens Falls\, New York. \nHosting the Annual Conference provides the Association with the opportunity to meet its primary purpose\, which is to promote the professional development of nurses who support people with intellectual and/or developmental disabilities. \nThis conference will provide nurses and other interested health care professionals working in the ID/DD field with educational programs addressing a variety of contemporary issues for ID/DD supports with a host of esteemed presenters. The conference provides an opportunity for nurses to enhance and reflect on their own practice and/or network with colleagues throughout the state. \nThe Planning Committee has worked collaboratively throughout the winter/spring to select topics and speakers. The committee reviewed feedback and recommendations from past attendees and clinicians who work in the ID/DD field to bring you the most contemporary and engaging sessions. \nCapstone Presentation: Positive Exposure: Seeing Beyond Diagnosis \nGlen Falls\, NY
URL:https://positiveexposure.org/event/nys-idd-dd-nurse-association-2024-annual-conference/
LOCATION:The Queensbury Hotel\, Glen Falls\, NY
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2024/09/07225502/Screenshot-2024-09-09-at-1.34.46%E2%80%AFPM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240914T140000
DTEND;TZID=America/New_York:20240914T170000
DTSTAMP:20260626T034659
CREATED:20240826T212017Z
LAST-MODIFIED:20240915T055650Z
UID:40976-1726322400-1726333200@positiveexposure.org
SUMMARY:NEUROGRAPHICA: My Brain\, Dysautonomia\, and Football
DESCRIPTION:Please join us on Saturday\, September 14 from 2-5pm for the opening celebration of NEUROGRAPHICA\, a collection of drawings and poems by Hank Bjorklund: former New York Jet\, lawyer\, educator\, and now poet\, singer\, and artist. Presentation and Q&A at 3pm. \n \nTranscription of the poem written within the drawing above: “Been wonderin’\, askin’ a few years or so – never get an answer\, I just don’t know. Say\, where’d all the good people go? Been to every city\, checked in every town. Loaded up the trailer\, drove it all around. Looked in all the corners\, opened every box. Rattled all the doors\, picked at all the locks. Never met a soul\, never heard a sound\, ‘cept echos of lies stompin’ truth to ground. Say\, I wonder\, maybe you would know – where’d all the good people go?”\nIn 2016\, Bjorklund’s active and dynamic life was turned upside down when he was rushed to the hospital after collapsing at the gym. Even after countless tests\, doctors were perplexed. Eventually\, FDG-PET scans showed widespread reduction of  glucose uptake in his brain. Doctors said these findings indicated an atypical neurodegenerative syndrome such as progressive supranuclear palsy\, multiple system atrophy\, fronto-temporal dementia\, or autoimmune encephalopathy.  \nIn 2017\, two world-famous neurologists specializing in disorders of the autonomic nervous system (dysautonomia) advised that they had no explanation other than Chronic Traumatic Encephalopathy (CTE)\, stemming from Bjorklund’s 16 years of football\, from Pop Warner to the N.Y. Jets. \nRecent research from the Boston University UNITE Brain Bank and the Concussion Legacy Foundation show that the risk of CTE increases with every year of tackle football played. Development of CTE is correlated with number of years played\, number of sub-concussive hits received\, and the force of each hit. CTE can only be diagnosed by autopsy; Bjorklund is among those participating in clinical trials seeking a way to diagnose CTE during life.  \n“If I have CTE\, it’s an atypical form. While my executive functioning is not what it was\, I do not exhibit the significant cognitive decline or erratic behavior typically associated with CTE.   All of my former teammates or other NFL colleagues who have died and had their brains autopsied at the Brain Bank have been found to have had CTE.” Bjorklund believes that more medical practitioners need to understand CTE\, now that it has been diagnosed in the brains of military veterans\, victims of domestic violence\, and athletes of all ages. \n“There was a time when I needed a wheelchair; my unstable blood pressure\, lack of heart response\, and vestibular malfunctions wouldn’t allow me to stand or walk. But now I’ve improved dramatically\, both in my exercise capacity and in my functional fitness. And poetry\, singing\, and artistic expression have been magical healers encouraged by my wonderful wife\, my physical and neuro-psychological therapists\, and my cardiologists.” \nWhen asked how he began to draw in 2023\, Hank explained that it was a suggestion from the teacher of a local poetry class\, Evelyn Kandel. “Evelyn is the former Poet Laureate of Nassau County. One of her prompts was to draw a free-form figure on paper and then to write a poem within the spaces that you created. I became instantly hooked. I just can’t stop doing it–it’s very meditative. I did this for myself. I never thought this would lead to me showing it to other people.” \nVictoria and Hank Bjorklund have been married for 52 years. “Hank is a guy who only ever sang in the shower\, who can’t read music\, who hadn’t written poetry since high school\, and has such significant brain challenges\,” says Victoria. “But now in 2024\, he’s published a book of poetry and essays\, does public readings and songfests\, and has studio-recorded eight of his poems into songs with his talented musical friends\, Diane Menzel and Helen Kotzky.”  \n“It was just a few years ago\, when his neuropsychologist was urging him on and his neuro-physical therapist was teaching him to walk again\, that he’d go outside\, even in winter\, to practice with his hiking poles. The neighbors and I would watch as he walked around the patio in circles\, reciting and sometimes singing at the top of his lungs his mantra poems that he wrote to encourage himself to keep on living. Now look at what he has done in poetry\, music\, and art\, as well as his physical recovery. It’s amazing.”  \n \nThis poem was selected by producers from Morning Edition on National Public Radio in celebration of National Poetry Month\, and in April of 2021 and again in 2024\, Bjorklund recited it on the air. \nIn his book\, Head Hits I Remember\, Bjorklund shares vignettes from his life and essays on the toll that repetitive head hits can have on the brains of those who play contact sports. His poems and prose discuss coping with chronic life-altering brain conditions\, including dysautonomia and encephalopathy. He aims to inspire hope in those seeking the strength to persevere for one more day or to find a path toward a new normal. \nImage Description: On a blue background is the following text: in a white title\, “POSITIVE EXPOSURE GALLERY OPENING CELEBRATION Saturday\, September 14\, 2-5pm; On view September 14 – October 1\, 2024” and in yellow text\, “NEUROGRAPHICA: My Brain\, Dysautonomia\, and Football. Hank Bjorklund.” In the center is a drawing by Hank containing an abstract\, round shape outlined in black and colored in with blues\, yellow\, pink\, orange\, black\, and greens. Toward the top of the drawing is a poem in blue text on a white background reading: “Been wonderin’\, askin’ a few years or so – never get an answer\, I just don’t know. Say\, where’d all the good people go? Been to every city\, checked in every town. Loaded up the trailer\, drove it all around. Looked in all the corners\, opened every box. Rattled all the doors\, picked at all the locks. Never met a soul\, never heard a sound\, ‘cept echos of lies stompin’ truth to ground. Say\, I wonder\, maybe you would know – where’d all the good people go?” Beneath the image is the NYSCA logo and the following text\, in white: “OPENING CELEBRATION\, Saturday\, September 14\, 2-5 pm\, On view September 14 – October 1\, 2024. Contact: 212-420-1931. 14 East 109th Street\, NYC.”
URL:https://positiveexposure.org/event/neurographica/
LOCATION:Positive Exposure Gallery\, 83 Maiden Lane\, New York\, NY\, 10038
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2024/08/07225514/Neuro-Thumbnail-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240917
DTEND;VALUE=DATE:20240918
DTSTAMP:20260626T034659
CREATED:20240916T132131Z
LAST-MODIFIED:20240917T002904Z
UID:41096-1726531200-1726617599@positiveexposure.org
SUMMARY:Northeast Regional Sickle Cell Collaborative (SiNERGe)
DESCRIPTION:Northeast Regional Sickle Cell Collaborative (SiNERGe) \nInaugural CBO Leadership Summit \nheld as part of the 6th Annual Johns Hopkins Sickle Cell Symposium \nSeptember 15 – 17\, 2024 \nHilton BWI Airport Hotel\, Baltimore \nPositive Exposure will screen: The Strength To Fight: FRAME Film on Sickle Cell. \n \nAbout SiNERGe and the SiNERGe CBOs \nSickle Cell Improvement in the Northeast Region through Educa:on (SiNERGe) is a HRSA-funded \ncollabora:ve of 46 non-profit\, community-based organiza:ons and medical providers in the \nNortheast U.S. The Northeast Region accounts for approximately one-third of the U.S.’s \nes:mated popula:on of sickle cell warriors (Hassell\, 2010). \nThe SiNERGe Community-Based Organiza:ons (CBOs) are working toward longer\, healthier lives \nfor individuals with sickle cell disease. Their mission is to gather momentum in the fight against \nsickle cell disease by promo:ng ongoing collabora:on among the organiza:ons\, providing \naccess to capacity-building exper:se and resources. The 30 CBOs share best prac:ces through \nthe Project ECHO peer-to-peer learning plaWorm\, coordinate the annual Shine the Light on \nSickle Cell awareness campaign\, and develop strategies for reaching and engaging unaffiliated pa8ents \nthroughout the region.
URL:https://positiveexposure.org/event/northeast-regional-sickle-cell-collaborative-sinerge/
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2024/09/07225455/Screenshot-2024-09-16-at-9.14.32%E2%80%AFAM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240925T140000
DTEND;TZID=America/New_York:20240925T150000
DTSTAMP:20260626T034659
CREATED:20240925T174406Z
LAST-MODIFIED:20240925T175151Z
UID:41142-1727272800-1727276400@positiveexposure.org
SUMMARY:About Face: Craniofacial Awareness Month
DESCRIPTION:Cranial Facial Acceptance MonthSeptember 25 @2pm Image of Rick in black sweater and the Logo of Positive Exposure\, young girls with albinism jumping in the air›
URL:https://positiveexposure.org/event/about-face/
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2024/09/07225442/Screenshot-2024-09-25-at-1.50.49%E2%80%AFPM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240926T150000
DTEND;TZID=America/New_York:20240926T160000
DTSTAMP:20260626T034659
CREATED:20240926T183553Z
LAST-MODIFIED:20240926T183932Z
UID:41151-1727362800-1727366400@positiveexposure.org
SUMMARY:National Task Group on Intellectual • Disabilities and Dementia Practices
DESCRIPTION:Virtual Presentation \nThe NTG is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia – as well as their families and friends – are taken into account.
URL:https://positiveexposure.org/event/national-task-group-on-intellectual-disabilities-and-dementia-practices/
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2024/09/07225441/Screenshot-2024-09-26-at-2.24.23%E2%80%AFPM.png
END:VEVENT
END:VCALENDAR