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X-WR-CALDESC:Events for Positive Exposure
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DTSTART;VALUE=DATE:20250408
DTEND;VALUE=DATE:20270102
DTSTAMP:20260501T151936
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LAST-MODIFIED:20260430T125124Z
UID:42288-1744070400-1798847999@positiveexposure.org
SUMMARY:University of Louisville: Community - based Exhibition
DESCRIPTION:Introductory Panel \nChange How You See\, See How You Change is a photography exhibition that redefines medicine as a deeply human experience. Created with local participants and University of Louisville health sciences students\, this portrait collection highlights the people behind the diagnoses—celebrating their joy\, strength\, and individuality. \nEach image tells a story\, reminding us that patients are more than their conditions—they are individuals with rich lives and identities. As you explore\, we invite you to reflect on the power of empathy in healthcare and the importance of truly seeing and understanding those we care for. \nIn partnership with POSITIVE EXPOSURE\, the University of Louisville Health Sciences Office of Health Equity and Engagement\, the KornhauserHealth Sciences Library\, and the School of Medicine Department of Pediatrics\, this exhibition underscores our shared human experiences.  \n 
URL:https://positiveexposure.org/event/university-of-louisville-exhibition-and-lecture/
CATEGORIES:Exhibitions,Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2025/03/28164447/IMG_1212.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250503
DTEND;VALUE=DATE:20250717
DTSTAMP:20260501T151936
CREATED:20250509T185733Z
LAST-MODIFIED:20250627T201644Z
UID:42493-1746230400-1752710399@positiveexposure.org
SUMMARY:Leave It To Me: Viewings by Appointment
DESCRIPTION:AHRC NYC’s Fisher Center Artists Present\nLEAVE IT TO ME\nViewings by appointment May 6 – July 16\, 2025\nPlease contact events@positiveexposure.org or 212-420-1931\nThe Fisher Center is a day program of AHRC NYC located in East Harlem\, which provides programs and services to help individuals with intellectual\, developmental\, and other disabilities to lead full and equitable lives. \nMany of the adults who attend the program love to create art\, whether it be weaving\, other fiber art\, drawing\, painting or collage. The emphasis of the Fisher Center’s art program is to help each artist develop and nurture their unique talent and vision. The Weaving Program is made possible through the support of Intertwine Arts\, a nonprofit that inspires creativity\, joy\, and self-confidence through free-form weaving for people of all ages with disabilities or chronic illness. \nCome celebrate with us! \n \nImage Description: On a navy blue background are four images of mixed-media art\, and the following text in white: “POSITIVE EXPOSURE GALLERY\, AHRC NYC’s Fisher\, Center Artists Present\, LEAVE IT TO ME. Meet & Greet the Artists: Tuesday\, May 20\, 10:30 am – 12:30 pm\, Evening Reception: Wednesday\, June 25\, 4:30-6:30 pm. 83 Maiden Lane\, 4th Floor\, New York\, NY. Viewings by appointment May 6 – July 16\, 2025. Please contact events@positiveexposure.org or 212-420-1931.”
URL:https://positiveexposure.org/event/ahrc-nycs-fisher-center-artists-present-leave-it-to-me/
CATEGORIES:PE Gallery
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2025/05/07222604/ahrc.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250711T080000
DTEND;TZID=America/New_York:20250713T170000
DTSTAMP:20260501T151936
CREATED:20250710T193049Z
LAST-MODIFIED:20250710T201258Z
UID:43428-1752220800-1752426000@positiveexposure.org
SUMMARY:Coffin Siris Syndrome Conference: Denver CO
DESCRIPTION:Conference Presentation and Photography: Denver\, CO \nWhat is Coffin-Siris Syndrome?\nCoffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Drs. Coffin and Siris to describe individuals with a shortened or underdeveloped fifth digit or fifth digit nail\, along with developmental and learning differences\, and a variety of organ-system issues. For many years\, the diagnosis was made solely on clinical features; in 2013\, the first genes associated with CSS were discovered. As more individuals with CSS are being diagnosed\, the clinical picture has broadened and that the extent of learning\, developmental\, and growth differences vary among children.
URL:https://positiveexposure.org/event/43428/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2025/07/07222602/Screenshot-2025-07-10-at-3.24.35%E2%80%AFPM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250713T080000
DTEND;TZID=America/New_York:20250713T170000
DTSTAMP:20260501T151936
CREATED:20250710T211058Z
LAST-MODIFIED:20250710T211321Z
UID:43451-1752393600-1752426000@positiveexposure.org
SUMMARY:Disability Unite: Central Park\, NYC
DESCRIPTION:Alison and Rick Photography
URL:https://positiveexposure.org/event/disability-unite-central-park-nyc/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2025/07/07222559/Screenshot-2025-07-10-at-4.27.53%E2%80%AFPM-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250717T080000
DTEND;TZID=America/New_York:20250719T170000
DTSTAMP:20260501T151936
CREATED:20250710T200923Z
LAST-MODIFIED:20250710T201718Z
UID:43440-1752739200-1752944400@positiveexposure.org
SUMMARY:CCD Smiles: Salt Lake City\, UT
DESCRIPTION:Conference Presentation and Photography: Salt Lake City\, UT \nCleidocranial Dysplasia (CCD) is a skeletal disorder characterized by open fontanelles (soft spot)\, small or absent clavicles (collarbones)\, and multiple dental abnormalities. It is a genetic birth defect caused by mutations to the RUNX2 gene. It occurs one in every one million births. It can be passed from an affected parent or can be a random mutation. Manifestations may vary among individuals in the same family.
URL:https://positiveexposure.org/event/ccd-smiles-salt-lake-city-ut/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2025/07/07222600/3K6A2738.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250721T080000
DTEND;TZID=America/New_York:20250724T170000
DTSTAMP:20260501T151936
CREATED:20250710T193910Z
LAST-MODIFIED:20250710T201555Z
UID:43433-1753084800-1753376400@positiveexposure.org
SUMMARY:Chromosome 18 Registry & Research Society Conference: Ontario\, Canada
DESCRIPTION:Conference Presentation and Photography: Ontario\, Canada (Niagara Falls) \nTo the parents of a newly diagnosed child: \nYour baby was just diagnosed with a chromosome 18 abnormality and you may feel like all your dreams for your child just came crashing down. However\, we are here to tell you that this is not a negative life event; but rather a change in plans. We are here to catch you\, inspire and support your new dreams for your child and for your family. Welcome to our chromosome 18 family. \nFor over 30 years we have been helping parents\, grandparents\, caregivers\, extended family\, siblings\, and individuals with chromosome 18 conditions connect to the other 4\,000 families in the USA and another 2\,000 around the world. From this community you will find people who know exactly what you are feeling. They have already been in the place you are now. You can meet them through social media\, virtual get-togethers regional events\, and our Annual Family Conference. In addition\, some of our families have posted their stories on this website. Most importantly\, know that you are not alone.
URL:https://positiveexposure.org/event/chromosome-18-registry-nand-research-society-conference-ontario-canada/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2025/07/07222601/Rick.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250723T080000
DTEND;TZID=America/New_York:20250724T170000
DTSTAMP:20260501T151936
CREATED:20250710T212659Z
LAST-MODIFIED:20250710T212945Z
UID:43455-1753257600-1753376400@positiveexposure.org
SUMMARY:ReNU Syndrome United Conference: Uniondale\, NY
DESCRIPTION:Presentation and Photography: Long Island Marriott\, Uniondale\, NY \nIn the Press: ReNU Washington Post Cover Story Unique_Autumn2024MagazineNo100_RNU4-2 \nWhat Do We Know About ReNU Syndrome?\nRNU4-2 / ReNU Syndrome is a neurodevelopmental disorder caused by variants in the RNU4-2 gene.  \nVariants in the RNU4-2 gene\, a non-coding gene responsible for producing U4 snRNA\, have been identified as a significant cause of previously undiagnosed neurodevelopmental disorders. These variants\, particularly the insertion of a T between positions 64 and 65 of the gene\, disrupt the RNA splicing process\, causing errors in how RNA is processed and leading to improper protein synthesis. This exciting discovery highlights the importance of whole-genome sequencing\, as traditional exome sequencing often overlooks non-coding genes like RNU4-2. \nThe name “ReNU” was given by families and researchers to symbolize the “renewed hope” for a better future for those affected. This diagnosis opens avenues for future research and potential treatments for those affected\, and aids in the understanding that there wasn’t anything parents did prior to or during pregnancy to cause the disorder. \nReNU Syndrome is currently characterized by hypotonia\, global developmental delay\, severely impaired intellectual development with poor or absent speech\, delayed walking or inability to walk\, feeding difficulties with poor overall growth\, seizures (in most)\, dysmorphic facial features\, and brain anomalies\, including ventriculomegaly\, thin corpus callosum\, and white matter loss (Greene et al.\, 2024; Schot et al.\, 2024; Chen et al.\, 2024).
URL:https://positiveexposure.org/event/renu-syndrome-conference-uniondale-ny/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2025/07/07222557/Screenshot-2025-07-10-at-5.28.08%E2%80%AFPM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250723T130000
DTEND;TZID=America/New_York:20250723T150000
DTSTAMP:20260501T151936
CREATED:20250710T215550Z
LAST-MODIFIED:20250710T215957Z
UID:43467-1753275600-1753282800@positiveexposure.org
SUMMARY:Philadelphia College of Osteopathic Medicine (PCOM)
DESCRIPTION:First year medical student lecture. \nABOUT PCOM\nFor more than a century\, Philadelphia College of Osteopathic Medicine (PCOM) has trained highly competent\, caring physicians\, health practitioners and behavioral scientists who practice a “whole person” approach—treating people\, not just symptoms. \nAt our Pennsylvania and Georgia locations\, PCOM students can choose from several degree or certificate programs and learn to approach problem solving in a more professional\, more team-oriented manner\, which prepares them to work successfully in integrated healthcare settings with other health professionals. Our campuses feature modern facilities and state-of-the-art technologies\, all part of an innovative learning environment designed for collaboration and interaction. \n 
URL:https://positiveexposure.org/event/philadelphia-college-of-osteopathic-medicine-pcom/
CATEGORIES:Lectures & Presentations
ATTACH;FMTTYPE=image/png:https://files.positiveexposure.org/wp-content/uploads/2025/07/07222555/Screenshot-2025-07-10-at-5.58.16%E2%80%AFPM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250725T080000
DTEND;TZID=America/New_York:20250727T170000
DTSTAMP:20260501T151936
CREATED:20250710T214335Z
LAST-MODIFIED:20250710T214612Z
UID:43463-1753430400-1753635600@positiveexposure.org
SUMMARY:Moebius Syndrome Family Conference: Salt Lake City\, UT
DESCRIPTION:Presentation and Photography: Salt Lake City\, UT \nWhat Is Moebius Syndrome?\n\n\n\n\n\n\nAs a very simple explanation\, Moebius syndrome is a form of facial paralysis combined with outward\, to the side\, eye paralysis. Individuals with Moebius syndrome typically cannot make facial expressions\, such as smiling\, frowning\, squinting\, or blinking. Speech\, eating\, and lip movement may also be affected. People with Moebius syndrome also cannot move their eyes out to the side\, as you would if you were looking over your shoulder without turning your head. The syndrome has a wide range of presentations and may occur on one or both sides of the face.
URL:https://positiveexposure.org/event/moebius-syndrome-family-conference-salt-lake-city-ut/
CATEGORIES:Lectures & Presentations,Photography and Film
ATTACH;FMTTYPE=image/jpeg:https://files.positiveexposure.org/wp-content/uploads/2025/07/07222556/AX2A6735.jpg
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