PEARLS Blog

November 3

ALD Connect Family Conference

Courtyard Marriott Philadelphia Downtown, 21 N Juniper St, Philadelphia, PA 19107

Lecture and Photography: Rick

What is ALD?

Adrenoleukodystrophy (ALD) is a progressive, genetic disease that affects the adrenal glands, the spinal cord, and the white matter (myelin) of the nervous system. ALD is considered a rare disease, and affects approximately 1 in 15,000 people worldwide.

ALD Connect: Our mission is to improve health outcomes for patients with X-linked adrenoleukodystrophy (ALD) by empowering patients, raising awareness, and accelerating the translation of scientific advances into better clinical care.

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