Boston, October 2: FRAGILE X in FRAME
DAY 1 SLATE #3
5:00 PM 500 KENDALL STREET SANOFI GENZYME FIRST FLOOR
• RARE INSIGHTS PRESENTED BY PREMIER RESEARCH
B+ directed by Nazir Mirzaee 8 minutes, addresses Thalassemia
Saving Sight directed by Nate Strubhar 21 minutes, addresses Choroideremia (CHM)
Fragile X in Frame directed by Rick Guidotti 10 minutes, addresses Fragile X Syndrome
Imagine directed by Carl Mason 10 minutes addresses Niemann Pick Type C
ABOUT
Disorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. It will be held Oct. 2nd -3rd, 2017 in Boston, MA. Most (but not all) of our films are documentaries. Many are less than 15 minutes.
Each film maker attending will have an opportunity for questions and answers with our audience following the presentation of their film.
Between our slates of films rare disease researchers and patient advocates will also share stories from their experience.
We believe increased awareness can connect patient families, inspire conversations about translation applications of current science, lead to new paths for research and save lives. These films put the often abstract and dire clinical information into the context of real people living their lives.