COMMUNITY CONVERSATIONS: Our Shared Humanity

 

Moebius syndrome is a rare neurological disorder that is present at birth.  It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.

Other cranial nerves may be affected, especially the 3rd, 4th, 5th, 9th, 10th and 12th.  There may be skeletal involvement causing hand/feet anomalies and/or club feet. Respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders, and weak upper body strength may also be present.  Approximately 30% of children with Moebius syndrome are on the autism spectrum.

For more information, please visit the Moebius Syndrome Foundation website: http://www.moebiussyndrome.com

 

Albinism is a recessive genetic condition that causes the absence or reduction of pigmentation in the hair, skin and eyes.

For more information, please visit website for the National Organization for Albinism and Hypopigmentation: www.albinism.org