FRAME

FRAME Logo 2

3K6A0308 3K6A3981 3K6A4888 3K6A5751 Arielle and Sarah Twins

FRAME is a web-based educational library and resource created by Positive Exposure that changes how medical information is presented to health care professionals in training, clinicians, families and communities.

FRAME utilizes brief educational films hosted on the Positive Exposure and partner websites. What started as a pilot in collaboration with students in the Joan H Marks Graduate Program in Human Genetics Sarah Lawrence College with five genetic conditions – and formerly entitled The New Face of Genetics – FRAME is growing into an important compendium of genetic conditions that will change the way students in health care fields Billy, Marfansee and experience individuals living with genetic differences.

Each brief film will give future genetic counselors, nurses, physicians, OT’s, PT’s, families and communities, a more robust understanding of featured genetic, physical, intellectual and/or behavioral  conditions, while modeling an attitude of respect for the humanity of patients.  Viewers will get to see participants talk, move, and smile, a departure from the “patient-as-a-specimen” model that most educational medical literature utilizes.  FRAME presents individuals living with specific genetic conditions in a manner, which captures their humanity and beauty.

In each film, participants connect differently with the audience as they introduce themselves to viewers and then demonstrate hallmark characteristics of their condition, not in a clinical, but in a “ natural, real life” manner.  This provides each visitor to the site, the opportunity to study and fully understand a genetic condition on a real, dynamic person, bringing a new perspective to medical education and the learning process.  The script for each segment of the film will 3K6A7786reflect the most current information on each condition as well as input from our team of well-regarded geneticists, specialists, families and support groups.

The goal is that, once completed, each segment will be used by health care providers in training and professionals as a tool to learn, understand and experience the distinct characteristics of the specific genetic condition.  It will be an important teaching and learning tool that highlights humanity alongside key medical information.  Additionally, FRAME can be utilized by families, therapists, educators, communities as well as a tool for transition medicine as an increasing number of young adults living with genetic conditions now enter into the adult health care system.

 

3K6A7254_edited-1Our team:

Shabnam Asgari, MS, CGC,  Cory Moser, MS, CGC
Film Crew: Amitabh Joshi and Erik Spink, www.vacant-light.com
Special thanks to our initial team at the Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College: Audrey Fan, MS, CGC, Caroline Lieber, MS, CGC, Jessica Martineau, MS, CGC and Katherine Stoate, MS, CGC.