Woman with fair skin with hair pulled back, looking into camera


Living with 22q 11.2 deletion syndrome

My name is Aine Lawlor and I’m 39 years old. I was diagnosed with 22q 11 deletion syndrome at the age of 16. When I was a teenager I was very quiet and shy wouldn’t talk to anyone. The Special Olympics has taught me a lot. I found a club in 2005 ten pin bowling. It’s my passion and it’s my life. I started growing into a beautiful human being during that time. I was able to socialise I was able to mix with others and gain friends through sport. But yet I was still afraid of telling people that I was a special Olympian. Then one day I stopped being afraid and told the whole world. That  gave me confidence and there was no fear. So I started educating everyone about 22q. Now I have no fear in telling anyone about me being a Special Olympian or that I have 22q. Just a while ago back in February I won a bronze medal in the area games for Special Olympics. Nothing makes me happier to be able to compete and make new friends. My tip for you all never be ashamed of who you are.

To learn more about 22q11.2 deletion syndrome, please watch our FRAME film:



Have a question for Aine? Ask a question here.

Aine's Recent PEARLS Posts