Alexianna
Alexianna living with Treacher Collins Syndrome
I am in 10th grade this year. I turned 15 years old on January 7th. I was born with TCS (Treacher Collins Syndrome), so I’m missing the middle part of my ears as well as having little closed ears. I hear with my Baha Attract ( hearing aid). I am missing some bones around my eyes. I am hoping to have an ear reconstructive surgery and maybe my cheekbones/ eyes done someday.
I am an SFX (Special Effects) makeup artist and I am a percussionist in Marching Band, I play the bass drum. I have 5 sisters and 2 brothers, I am an aunt to 5 but soon to be 6, and I am a godmother to my nephew. I’m a proud sister, aunt, and godmother.
To learn more about Treacher Collins Syndrome: Click Here
Check out this Treacher-Collins in FRAME film for more information.
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Alexianna's Recent PEARLS Posts
By: Alexianna
September 24, 2020
Hope everyone had a good summer! I couldn't do as much because of some places being closed. My family and [...]
By: Alexianna
April 7, 2020
I'm pretty sure most people can agree that 2020 is a crazy year! It'll definitely get better though. Since I'm quarantined, [...]
By: Alexianna
February 21, 2020
A lot can change in a year! February 2019 vs February 2020. See me in the left photo? That was [...]