Women with glasses and brown hair wearing a red shirt sitting at a desk


Alexianna living with Treacher Collins Syndrome

I am in 10th grade this year. I turned 15 years old on January 7th. I was born with TCS (Treacher Collins Syndrome), so I’m missing the middle part of my ears as well as having little closed ears. I hear with my Baha Attract ( hearing aid). I am missing some bones around my eyes. I am hoping to have an ear reconstructive surgery and maybe my cheekbones/ eyes done someday. 

I am an SFX (Special Effects) makeup artist and I am a percussionist in Marching Band, I play the bass drum. I have 5 sisters and 2 brothers, I am an aunt to 5 but soon to be 6, and I am a godmother to my nephew. I’m a proud sister, aunt, and godmother. 

To learn more about Treacher Collins Syndrome: Click Here

Check out this Treacher-Collins in FRAME film for more information.


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