Meet our Ambassadors

  • I am a 62 year old mom of 3 young adults, Public Health School Nurse, living with Sickle Cell Disease.

  • Medical student interested in plastic surgery, especially craniofacial care.

  • A family with a variety of interests and challenges connected by love, diabetes, Angelman syndrome, Cerebral Palsy and Autism.

  • Well dressed classic rocker living with Cerebral Palsy.

  • An amazing, loving, strong, and resilient four-year-old living with a rare and aggressive brain cancer known as ATRT or Atypical Teratoid Rhabdoid Tumor.

  • Physician and a dedicated Army veteran living with Leber Hereditary Optic Neuropathy

  • Tanner Nicole is the pure evidence of resiliency living with Ankyloblepharon-ectodermal defects–cleft lip & palate syndrome (AEC)

  • Sarah is a medical student motivated to pursue a career in palliative care living with Rheumatoid Arthritis.

  • Power wheelchair soccedr player living with Transverse Myelitis.

  • Living with autism, this energetic young man is one of 5 very active brothers.

  • A love story between 2 very active models, actors, athletes living with Down syndrome.

  • Mom is a cardiogenetic counselor and son is a writer living with marfan syndrome.

Ask an Ambassador

Interested in talking with an Ambassador for a research or educational project? Have a question about an Ambassador’s story? Just want to connect? Send us a note!