Upcoming Photography and Film Events
November 14, 2023 @ 6:00 pm - 8:00 pm
You are invited to a film screening! The one and only Oscar Segal is back with the second installment of [...]
October 5, 2023 @ 9:00 am - October 7, 2023 @ 5:00 pm
Photography and Keynote The GBS | CIDP Foundation International is a global nonprofit organization supporting individuals and their families affected [...]
September 23, 2023 @ 1:00 pm - 5:00 pm
Image Description (ID): On a pale yellow background is the following text: Sickle Cell Awareness Event, Saturday, September 23, 1pm [...]
August 22, 2023 @ 6:30 pm - 8:00 pm
You are invited to a virtual screening of our latest FRAME films! There will be time for discussion and feedback [...]
August 15, 2023 @ 6:30 pm - 8:00 pm
You are invited to a virtual screening of our latest FRAME films! There will be time for discussion and feedback [...]
July 22, 2023 @ 8:00 am - 5:00 pm
Get ready for a day of inspiration and learning! Award-winning photographer Rick Guidotti will kick off the morning with a captivating talk [...]
July 15, 2023
What is Coffin-Siris Syndrome? Coffin-Siris Syndrome (CSS; fifth digit syndrome) was first reported in 1970 by Drs. Coffin and Siris [...]
July 10, 2023 - July 12, 2023
Excited to see all of our Friends & Families at the Chromosome 18 Party!!!!
July 2, 2023 - July 9, 2023
Image above from Mali, West Africa 2020! SO excited to be on the road again with the Undiagnosed Project, traveling [...]