Events

K-T Support Group's 40th Anniversary Conference Klippel-Trenaunay Syndrome Klippel-Trenaunay (K-T) Syndrome is characterized by a localized or diffuse capillary malformation [...]

Chromosome 18 Registry and Research Society Family Conference with Rick Guidotti: San Antonio, TX At the core of Chromosome 18’s [...]

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Coffin-Siris syndrome Family Conference with Positive Exposure's Alison Graham What is Coffin-Siris Syndrome? Coffin-Siris Syndrome (CSS; fifth digit syndrome) was [...]

PRISMS Family Conference: Minneapolis, MN Smith-Magenis Syndrome Smith-Magenis Syndrome (SMS) is a rare neurobehavioral disorder characterized by a recognizable pattern [...]

Family Conference in Boston.   IDefine is a nonprofit organization that exists to provide a central community for families affected [...]

Positive Exposure Photography, exhibition and Keynote address. Mission: To protect and promote the well-being of children. Three days of powerful [...]

Buffalo Speaks: A  Story Collection of Individuals, Families, Friends and Caregivers An amazing day photographing and interviewing people living with [...]