Rare Disease Day Presentations

February 28, 2023

It’s Rare Disease Day! Here are scenes from the weekend spent spreading awareness about rare diseases and the importance of seeing the human beyond the diagnosis.

We were honored to bring together so many wonderful individuals, including:
@gabriellamaya, ambassador of Ollier disease and founder of @redefinepod
@_elizabethjameson_, artist and ambassador of Multiple Sclerosis
Merlene and Molino of the Sickle Cell Awareness Foundation Corp Int.
@flow_inc7165, ambassador of Rombocytopenia Absent Radius Syndrome
@christopheralv__, journalist and ambassador of Thanataphoric Dysplasia Type 2
Khadija of @meat_and_bread_nyc
@rachelmindrup, artist and visionary behind The Many Faces of Neurofibromatosis


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ID: a series of videos shows people in an art gallery giving presentations and mingling surrounded by canvases depicting colorful portraits.