Jonah

Jonah living with 18q-

18q-

Since getting my BAHA hearing aids, I really talk a lot now. I started my own You Tube channel. It is fun making videos and movies. I have also been teaching myself how to play songs like Beethoven’s Fur Elise on the piano.

To learn more about Chromosome 18/18q-: Click Here

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I think Advocacy is really important because I want to educate people about disability because there's a lot of people who don't understand about what we go through every day of our lives. 
Why is Advocacy important to you?
I'm a really kind person and I love people. I don't want to be loved by everyone.
What would you like people to know about you?
Getting a job that really helps throughout my life. It is called the CTC academy. I have a three grand job at a place called Bergen County special services and there are so many more. These are just some.
What are you most proud of accomplishing?
I would love to see more resources for people with disabilities, and I would love to see the airlines make their airplanes acceptable for everyone who uses a wheelchair or any mobility equipment. Because it's a hassle to travel, and I wish it was easier.
What change would you like to see in the world?

Jonah's Recent PEARLS Posts

  • By: Freya

    Biggest INCH-Stone EVER!!!!!!!

    September 17, 2025

    Freya Update: the biggest inch-stone moment EVER!! Freya walking 😱 happy tears every time we watch this video from short [...]

  • By: Freya

    Rare Disease Day

    June 9, 2025

    Freya Friday Smile ❤️❤️ Have a great weekend guys XX ?Today is also rare disease day? Our Freya is undiagnosed [...]

  • By: Freya

    Valentine’s!!

    February 14, 2025

    Freya Friday Smile ❤️❤️ Have a great weekend guys XX Happy Valentine’s Day from sunshine Freya? Freya has been busy [...]