Women with pale skin and blonde hair wearing glasses and a black blouse leaning against a wall.


Bailey living with Lamellar Icthyosis

I have a passion for anything in the arts…music, dance, theatre, and writing.  I love to travel and experience other cultures. I appreciate being around the beauty of nature with the forest and starry night skies.

To learn more about Lamellar Icthyosis: Click Here

Or watch our Ichthyosis in FRAME film:


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Advocacy is important to me, because I want the next generation to grow up in a more accepting, more accessible, more compassionate, and more loving environment than my generation did.  And I want people to see those with differences as someone unique and special rather than as someone who has something “wrong” with them, because we can lead full and rich lives even within our limitations.
Why is Advocacy important to you?
 I choose to not let my skin disorder hold me back.  I dance.  I love doing musical theatre.  I travel.  I share my story whenever and wherever I can -- like Allure magazine, in a documentary, and Dr. Oz!  And I will be marrying the love of my life this fall and hopefully start a family soon after that.
What would you like people to know about you?
I’m proud of how I’ve been able to use my growing confidence over my lifetime to inspire others, both within my skin disorder community and beyond.  I’m also proud of myself for competing in beauty pageants and actually winning the state title and finishing in the top 5 at nationals!
What are you most proud of accomplishing?
I would like to see more compassion, empathy, and kindness; people taking the time to understand each other rather than jumping to conclusions; and people walking in another’s shoes to look at situations from their perspective.
What change would you like to see in the world?

Bailey's Recent PEARLS Posts