Events

Positive Exposure to photograph the 15th World Down Syndrome Day Conference at the United Nations Headquarters in New York City. [...]

PRISMS Family Conference: Minneapolis, MN Smith-Magenis Syndrome Smith-Magenis Syndrome (SMS) is a rare neurobehavioral disorder characterized by a recognizable pattern [...]

Coffin-Siris syndrome Family Conference with Positive Exposure's Alison Graham What is Coffin-Siris Syndrome? Coffin-Siris Syndrome (CSS; fifth digit syndrome) was [...]

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Chromosome 18 Registry and Research Society Family Conference with Rick Guidotti: San Antonio, TX At the core of Chromosome 18’s [...]

K-T Support Group's 40th Anniversary Conference Klippel-Trenaunay Syndrome Klippel-Trenaunay (K-T) Syndrome is characterized by a localized or diffuse capillary malformation [...]

Family conference portraits with Positive Exposure's Alison Graham Featuring: Cockayne Syndrome (CS) , Trichothiodystrophy (TTD), and  Xeroderma Pigmentoseum (XP) overlaps. [...]

Rare Disease Day 2026 in New Zealand Launching RARE Disorders Month: 22q Foundation Australia & New Zealand to Host Landmark [...]

We’re excited to share that we have two films featured in the Socially Relevant Film Festival, screening March 10th and [...]

Mark Your Calendar for Tuesday, November 18th to watch Christopher Alvarez as El Padrino in a very timely autobiopic that [...]

Film Screening: The Biggest Obstacle Monday, December 8, 6:00-8:30pm Join us for a screening of the 2021 film The Biggest [...]

Film Screening: The Biggest Obstacle Wednesday, November 19, 6:00-8:30pm Join us for a screening of the 2021 film The Biggest [...]