Freya's PEARLS Posts

  • B&W tiny infant in mom's hand

    By: Freya

    February 28, 2023

    Today we celebrate Rare Disease Day💚💙💜. Our Freya Sunshine has a undiagnosed brain disease 💚💙💜   #rarediseaseday2023 #rarerdisease #undiagnosed #globalgenes [...]

  • Family of 3 dressed in red christmas pj's.

    By: Freya

    December 24, 2022

    Merry Christmas Sweden ❤️ . Have a great day all. Lots of love from Freya,Johanna & Graham xxxx #freyabookersjourney

  • Young light-skinned woman wears a blue-striped shirt and looks downward.

    By: Freya

    November 25, 2022

    Freya Update: After many months of Freya being poorly she finally gets her well and truly needed EEG . EEG [...]

  • Black and white image of a child lying down.

    By: Freya

    November 18, 2022

    Freya Update: Today is World Prematurity Day Our Freya was born 31+2 weeks weighing 1505g and 40cm’s long . On [...]

  • Young person moves around in a wheelchair.

    By: Freya

    November 8, 2022

    Freya Update: new chair nearly sorted so Freya can use it for everyday use. Her other two chairs we have [...]

  • Two light-skinned young women smiling at the camera.

    By: Freya

    August 17, 2022

    Freya Update: Two Pearls Ambassadors meet for the first time , thank you for the lovey visit Talia & Liz [...]

  • Three light-skinned people smiling at the camera.

    By: Freya

    June 26, 2022

    We have had a great mid summer guys ...     Glad Midsommar! from family Booker/Ekström Photo Cred: Anna Olsson #freyabookersjourney #midsommar [...]

  • Light-skinned person wearing yellow and sitting in a chair.

    By: Freya

    June 14, 2022

    We’re Celebrating Freya’s end of term party at school #skolavslutning #endofterm

  • Light-skinned woman holding a light-skinned young girl.

    By: Freya

    June 7, 2022

    Super Mum + Super Sunshine

  • Light-skinned woman with blond hair standing and smiling on grass by the water.

    By: Freya

    May 5, 2022

    She’s My world JoJo @joloekstrom ❤️ An amazing Superhero Mum that lets Freya shine the brightest #freyabookersjourney

  • By: Freya

    March 1, 2022

    Today is international wheelchair day   #internationalwheelchairday #freyabookersjourney  

  • By: Freya

    February 28, 2022

    Due to all 3 of us having COVID we have totally forgot about rare disease day today. Our Freya Sunshine [...]

  • Screen shot of young girl in pink shirt standing and laughing against a green back drop. There is a play button in red and white in center of image.

    By: Freya

    February 18, 2022

    https://youtu.be/yjlkrnYs0hA The awesome Freya. Freya Update: INCHSTONE MOMENT TIME .This has to be the best 2mins of film EVER. Just [...]

  • By: Freya

    February 14, 2022

    It’s not just Valentines it’s also International Epilepsy day today Epilepsy is and always will be Freya’s and ours biggest [...]

  • By: Freya

    December 31, 2021

    Freya Friday Smile ❤️❤️ Have a great weekend guys XX Happy New Year from Freya  #freyafridaysmile