Freya Update: We’re soo happy that we got a new bed for our Freya today. It’s time for our baby [...]

BIRTHDAY GIRL Today isn't any ordinary day because it's Freya's 12th birthday 😱!! 12 years ago our lives changed totally, [...]

Freya Update: Two weeks of ongoing seizures and we’re still none the wiser. Blood tests done and now it’s a [...]

Today we celebrate Rare Disease Day💚💙💜. Our Freya Sunshine has a undiagnosed brain disease 💚💙💜   #rarediseaseday2023 #rarerdisease #undiagnosed #globalgenes [...]

Merry Christmas Sweden ❤️ . Have a great day all. Lots of love from Freya,Johanna & Graham xxxx #freyabookersjourney

Freya Update: After many months of Freya being poorly she finally gets her well and truly needed EEG . EEG [...]

Freya Update: Today is World Prematurity Day Our Freya was born 31+2 weeks weighing 1505g and 40cm’s long . On [...]

Freya Update: new chair nearly sorted so Freya can use it for everyday use. Her other two chairs we have [...]

Freya Update: Two Pearls Ambassadors meet for the first time , thank you for the lovey visit Talia & Liz [...]

We have had a great mid summer guys ...     Glad Midsommar! from family Booker/Ekström Photo Cred: Anna Olsson #freyabookersjourney #midsommar [...]

We’re Celebrating Freya’s end of term party at school #skolavslutning #endofterm

Super Mum + Super Sunshine