Freya finally got her Superhero cape from TinySuperHeroes, for being amazeballs and she’s trying out her new wheels ❤️❤️ TinySuperheroes

These two haven’t seen each other since September last year (274 days ago) Nanny Gun finally gets to hug her [...]

We couldn’t resist this opportunity to buy this £2 pound coin for Freya on her birthday as it’s Mr Men’s [...]

An amazeballs inch-stone moment yesterday , we’ve been dancing and I (Daddy) has been hands free . Let’s Dance or [...]

We can’t believe our little miracle and sunshine is  8 years old today ‍♀️. Freya is a real life superhero, [...]

Remember no matter what to stop for a second and smell the flowers, It’s the bestest medicine ❤️ ‍♀️

It’s amazing to think Freya was the size of a Coke bottle when she was born 8 and a half [...]

Freya has been at the hospital to register and prep for tomorrow’s sedation whilst having her teeth checked. Freya is [...]

Freya Update: 19 seconds of great music played by Freya Sunshine ❤️ . Looks like we have a pianist in [...]

Freya Update: Enjoy this short film we received from school today guys. Freya loves her new wheels , so nice [...]

We have been sorting Freya’s bedroom out ❤️ let’s hope she loves it when Freya comes home on Monday

Freya seems to be settling in nicely ❤️❤️ We would like to thank all of you for following Freya’s journey, [...]

Today is rare disease day and we’re celebrating Freya ❤️

A tad emotional day as it’s Freya’s last evening at our house 22 today , Freya will be at short [...]

Here’s a few photos that has been a struggle for us for many years now but on the 26th of [...]