Growing up with 18q deletion syndrome
By: Lucia
I got diagnosed when I was a baby. I had difficulty feeding, low muscle tone, frequent ear infections, narrow ear canal and a mild heart murmur.
I didn’t walk until I was 2 years old. I had difficulty making friends and asking people for what I wanted. I felt a bit excluded in high school, but things got better.
I liked english and science at high school, but was never good at maths. I liked most of my teachers and they were caring( for the most part). I received learning support on and off in primary and high school. This really helped my academic skills and confidence.
I participated in two social programs in the final years of high school called Bungee art therapy and volunteered at a special school. These programs made me feel unique and helped my confidence. I made some friends and no one bullied me.
I felt like I was ready for the big wide world.