Dear Jonah

Our names are Naya and Precious, and we wanted to write to you because we care about you and hope to hear from you.  We think that you are so adorable and that you sound fun!  As we read your blogs you seemed like the type of person that doesn’t let something bad ruin you and that you never give up.  Please continue to be like that.  We are 14 years old 9th grade girls.  We both like Subway and Chicken Alfredo.  What is your favorite Fast Food place and Home Cooked Meal?  We Like listening to music but we don’t have the same favorite artist.  Do you have a favorite artist or song?  One thing we both have in common with you is that we never give up.  Precious and I definition of beauty is a lot different, mine is more about what is inside more than outside like your personality, attitude and you itself.  Precious’s definitions is most times it may be on just looks but how you caring yourself around other people.  We would love to know what your definition about beauty is.  We would also know how you are holding up with your disorder if you are okay and if it is not affecting how you live as much.  Also we want to know how did Rick Guidotti have an affect on your life. We hope you write to us soon.

Sincerly

Naya and Precious

Dear Jonah

Hi! My name is Liz, but my full name is Lizbette (pronounced Liz-Bet).  I am in 9th grade (freshman in high school).  Just like you, I also love music and M&M’s but my favorite candy is probably Snickers, Reese’s Cups or Crunch!  My favorite type of music is punk rock/alternative rock, such as Nirvana and Pierce the Veil.  I also read that you like Spongebob.  I LOVE Spongebob.  I have my own Spongebob onesie!  I’ve seen every episode about 4 times each but my favorite show is probably American Horror Story, Dr. Who, Supernatural or Soul Eater.

My name is Jada, I am in 9th grade, and like you I like to exercise and be healthy with my dad.  I love to play Minecraft on the computer and play Clash of Clans on my iPad with my dad.  I have two dogs and a cat.  My cat and one of dogs are in love with each other.  They give each other baths.  I absolutely LOVE to ride horses and to care for animals.  My absolute favorite show takes place in a hospital, it’s called Red Band Society.

Liz:  The word “beauty” has so many meanings behind it.  To society, beauty is based on appearance; that beauty is a combination of qualities, such as shape or color that come together and pleases the sight of others.  But I believe beauty is more powerful than appearance, for it is deep inside personality and heart. Beauty can also mean to not be afraid to be who you are in front of anybody, no matter what they say.  No one should be afraid to be themselves because everybody is different and special in their own way, just like you are different in special in an amazing way.  You are what my definition is of beauty, and when I look at you I feel inspired because you’re smiling and happy and I think that’s beautiful. Be happy. Eat pizza. ((^-^)/)

Jada: Beauty is defined as someone’s appearance and whether they are pleasing to look at but to me it’s what you see in yourself and the beauty that others see.  It’s having the confidence to show your self off to the world.  To be confident in who you are, your body and mind, spirit, having mind over matter, to not be afraid of what people think.  Be happy.  Eat pancakes.

Some questions we would like to know are:

1. What career do you see yourself pursuing in the future?
2. How has working with Rick Guidotti changed your life?
3. What is your definition of beauty?
4. Do you like being in front of a camera?
5. What was your first reaction to being in the photography business?
6. Who/what do you see yourself as?

 

We would appreciate if you could write back to us. Thank you, and keep smiling.

Sincerely

Jada :) and Liz :)

 

Dear Jonah

Hello, my name is Randy Mejia.  I’m 14 years old and a 9th grade student at Ypsilanti New Tech in Michigan.  I love to play games, watch TV and go outside.  I also have a little sister like you but she is 11.  I been assigned to be your partner in this project we are doing in our class.  I been doing research and I heard you have genetic disorder and I hope you’re doing okay.  You seem like a very nice kid and I would love to meet you.  I saw your blog on Positive Exposure and it’s fun reading what you post.  We have a lot of things in common like playing on the computer, taking pictures and talking.  I saw that you last posted on the 13th of January and I hope you keep on posting more!  You look like a kid that would be fun to talk to and have fun with playing around.  I was wondering, what is your definition of beauty?  Mine is that beauty doesn’t matter about how the person looks, what matters is their personality.  If their personality is nice and sweet, then that person is beautiful but if their personality is ugly and disrespectful, they have no beauty at all.

I have a lot of questions to ask you.  How does your genetic disorder affect your daily life?  Does it affect the way you talk or look?  What are you doing to help it? Is there any way to get rid of it?  How would it affect your life later on?  I’m also interested in other aspects of your life.  When is your birthday?  What are your favorite foods?  What are your favorite hobbies to do?  What is your favorite subject at school?  Do you like going to school?  What types of sports do you like play or watch?  These are all my questions to ask. I hope you can answer me back some time later.

Sincerly

Randy

 

Dear Jonah

Hello, my name is Shawn.  I am 14 years old and a 9th grader at Ypsilanti New Tech High School…Ypsilanti, Michigan.  I love to play baseball because it keeps me active and in shape.  I and my partner Randy have been assigned you to be our Ambassador for our project and we are happy that we got you as it.  We have been doing a lot of research on you and we found out that you have a genetic disorder and we hope that you feel better and it doesn’t bother you as much.  You seem like you’re a very n ice person and you look like a normal person.  We would love to meet you and be your new friends.  We have a lot of common, things like playing on the computer and taking selfies and talking.  We love talking because we always get in trouble in class because we never can stop talking.  We saw that you last posted on January 13, 2015 and we hope that you keep on posting so that we can see that you are doing good just like we are.  You look like a kid who would be fun to meet and play around with. What is your definition of beauty?  Beauty means to have a nice personality no matter what you look like, but if the person is disrespectful, then they don’t have any kind of beauty in them no matter how sorry they are.

I have just a few questions to ask you.  What caused you to get you genetic disorder?  How does it affect your daily life and does it bother you at all?  What is your favorite hobby?  My last question to ask you is do you have any siblings and if so do they have the same genetic disorder as you, or do they have any genetic disorder?  What type of effect does working with Rick Guidotti have on you? Those were my only questions that I wanted to ask you and we hope that we can soon meet each other.

Sincerly

Shawn