This has been my first full week home for the summer.  It’s just me and mom this week.  My sister went to grandma’s house for the week.  I’m kind of bummed that I can’t go to but there’s really no where for me to sleep and it’s hard for my grandparents to handle all my medical issues and my crazy sister.  But I’ll take a week home alone with mom too.  We’ll have fun.  My mom and sister just went to the Chromosome 18 Registry family conference in San Antonio.  I didn’t go, again because of the sleeping issue.  But they brought me back some cool swag.  Plus I was just in San Antonio in March with mom and dad so I’m ok with it.  In two weeks we leave for Smith Mountain Lake to go see great grandma and great grandpa.  So I’m pretty excited about that.  Can’t wait to get out on the boat!

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