September 22

We are very excited to announce our newest exhibit to celebrate our shared humanity.

Please join us, and Rick Guidotti, at a special opening event for participants and their families on Thursday September 22nd from 4:30-6pm. There will be space to ask questions and share stories about the experience working on this project together.  Feel free to share your own photos and videos of the evening using the hashtags below.

The exhibit will remain installed after Thursday for the larger community to visit until December 14th. Please tell friends, families and your communities about this project via email and social media.

#Whatsyourthing

#PositiveExposure

#prisma

When?  Wednesday, September 22nd- December 14th, 2022

Where? Brown Medical Education Building; 222 Richmond Street, Providence, RI

The gallery is open to the public Monday-Friday  8:30- 5pm.  No reservations or tickets necessary.

We are very excited about this community collaboration to raise awareness about the importance of diverse perspectives and celebrate individuality.

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PRISMA & Positive Exposure

https://www.precisionmedicineinautism.org/community

https://positiveexposure.org/

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Estamos muy emocionados de anunciar nuestra mas reciente exhibición de fotos con el fin de celebrar nuestra humanidad compartida.

Únete a nosotros y a Rick Guidotti en un evento especial de apertura de la exhibición de fotos  para los participantes y sus familias el jueves 22 de septiembre de 4:30 pm a 6:00 pm. Tendremos un espacio para poder hacer preguntas y compartir historias sobre la experiencia de trabajar juntos en este proyecto. Siéntete libre de tomar sus fotos y videos durante toda la noche, y compartirlas en tus medios sociales usando los hastags abajo.

La exhibición permanecerá instalada después del jueves para que la comunidad en general pueda visitarla hasta el 14 de Diciembre. Dile a tus amigos, familiares y tu comunidad sobre este proyecto por correo electrónico y redes sociales.

#Whatsyourthing

September 14

Philadelphia College of Osteopathic Medicine

Lecture to 1st Year Medical Students

1-2pm

September 13

22nd  Lecture to 1st Year Medical Students at Weill Cornell Medical College. 22 Years!!

11am-12pm

September 6

Oregon Health & Science University

Department of Dermatology: Virtual Presentation

11:45 PST

September 6-7

Achieving Equitable Oral Health for those with Intellectual and Developmental Disabilities: A Promise, A Pledge, A Plan

University of the Pacific, Arthur A. Dugoni School of Medicine

Register and More Information

 

September 8

California Dental Association

Simply Brilliant Art and Science of Dentistry

September 8-10

For more information

Image Description: Bright purple, green and orange logo over a woman smiling and dancing.

August 24

Lecture: TOURO University

“Diverse Perspectives on Developmental Medicine” (Virtual)

 

Rick Guidotti will share his journey as a fashion photographer disenchanted with the narrow parameters of the beauty standards to forming Positive Exposure, a non profit that celebrates the beauty and richness of our shared humanity.

Moebius Sundrome Foundation National Conference

Atlanta, Georgia

July 15-17, 2022

Positive Exposure July 16th All day

July 14-17

 

The National Organization for Albinism and Hypopigmentation, NOAH

Experience the Magic!NOAH’s 19th National Conference

Orlando FL July 14-17 2022

website

July 7-9

2022 Chromosome 18 Decoded Conference San Antonio, TX

June 23 – June 28

The International 22q11.2 Family Meeting

Hosted by the 22q11.2 Society

Le Méridien Lav Hotel in Split, Croatia – On the Dalmacijan Coast

June 26 – June 28, 2022

22q Family Program

22q Family Program

June 21- 23

CCD Smiles: Conference Salt Lake City

Improving the lives of people with cleidocranial dysplasia through Connections, Awareness, Research, Education and Support.

Cleidocranial Dysplasia (CCD) is a rare condition that primarily affects the development of bones and teeth.

June 11

Virtual Presentation: 10:30 EST

Overview:

Pitt Dental Medicine, in recognition of the 30th anniversary of the American Disabilities Act, and building on more than half a century of caring for individuals with special care needs, presents a three part continuing education webinar series. The course will consist of 9 hours of accredited CE Credit. This course features speakers from multiple disciplines, promoting the incorporation of special care dentistry into your practice and to highlight available community resources.

Objectives:

The objective of the course is to promote increased access to dental care for patients with disabilities through the education of practicing dental clinicians.

May 22 – June 10

At the Gallery: Call for an appointment

 

June 4

AADMD Annual Conference

Orlando, Florida + The Grand Opening toe the Special Olympic Games..

On the cover: Amanda Harrinauth is a Special Olympic Athlete, self-advocate and poet. Amanda will welcome everyone back on Day 2 and will deliver her latest poem.

(Image Description:  Beautiful young woman with brown hair and brown skin with red lipstick, closely cropped, is smiling and looking off to the right of the camera.)

Message from AADMD President, Allen Wong:

“Let me win, But if I cannot win, let me be Brave in the attempt” is the Motto of the Special Olympics Athletes.  If you read it again, it is more than just a motto but a philosophical way of thinking.  It reminds us that we should be hopeful and courageous in our lives.

As President of AADMD, I intend to bring the spirit of the Athletes of Special Olympics in being hopeful and courageous in our organization’s attempt to educate, advocate, collaborate and propagate the attitude of inclusion and improved health care for all people.  Injustice is wrong but not being courageous to help make improvements is worse.  We cannot mend all the wrongs in life but we can certainly do our part individually and collectively.

AADMD was formed to help improve interdisciplinary healthcare, improve access to care, and help end disparity of care for people with intellectual and developmental disabilities. We invite like-minded people and organizations to join us in our cause.

Conference Agenda

May 19

Michigan Oral Health Coalition Conference, Lansing Michigan

Conference Information

Description:

The Michigan Oral Health Coalition annual conference is the place to find the latest information on oral health in Michigan. The 2022 Conference will be held May 19 and 20 at the Marriott in East Lansing. The first day, sponsored by the Delta Dental Foundation, will feature national speakers sharing best practices on dental care for people with disabilities. The second day will focus on the value of the Medicaid dental benefit to overall health as well as many innovations in oral health care.


Objectives:

  • Identify 3 barriers to people with disabilities accessing dental care.
  • Name 5 ways that people with disabilities can be supported to access oral health care.
  • List 3 reasons why Medicaid Adult Dental Care is important to population health.
  • Identify 3 actions that you can take to advocate for the proposed Michigan Medicaid Dental Restructure.
  • Describe 5 Oral Health Care Innovations.

What to Expect:

The opportunity to learn the latest in oral health care innovation and a change to network and collaborate with Oral Health Advocates from across the state.

Positive Exposure presentation:

Conference Link

May 10

Grand Rounds with Rick Guidotti May 10 @ 12 pm & Exhibition thru June 10 @ Dartmouth Hitchcock Medical Center

(Image Description) Photograph of a gallery with images hanging on a wall, captions reads: “We are honored to host this empowering exhibit to help foster conversations that work to address stigma and ethical challenges surrounding people with genetic differences.”)

Photography exhibition at Dartmouth Hitchcock Medical Center highlights beauty of people with physical differences

Lebanon, NH – A photography exhibition highlighting the beauty of people who live with physical differences due to genetic variations is currently on display at Dartmouth Hitchcock Medical Center (DHMC). “The New Faces of Genetics and Beyond” is a portrait collection from Positive Exposure, a New York-based nonprofit organization that promotes a more inclusive world through award-winning photography, films, exhibitions, lectures and educational programs. Comprised of dozens of images hanging in the main mall of DHMC, the creators of this gallery hope to contribute to creating a more compassionate, understanding, and respectful community.

“The New Faces of Genetics and Beyond” has traveled to numerous hospitals around the United States and the world, including the Mayo Clinic in Rochester, MN, Brigham and Women’s Hospital in Boston and NYU Langone in New York City. The exhibition was brought to DHMC by Marianne L. Barthel, director of the Dartmouth Health arts and humanities program, working with William A. Nelson, PhD, MDiv, professor and director of the Ethics and Human Values program at the Geisel School of Medicine at Dartmouth, and Eleonore B. Baughan, a student at Geisel.

“Art can evoke many emotions, from joy to sadness,” Barthel said. “It can also be a tool to have uncomfortable conversations and break down stigma. Photos can give a new perspective on how we view our fellow humans. We are honored to host this empowering exhibit to help foster conversations that work to address stigma and ethical challenges surrounding people with genetic differences. Positive Exposure founder Rick Guidotti’s spectacular photography on display as part of ‘The New Faces of Genetics and Beyond’ celebrates beauty in all its diverse, magnificent forms and reminds us of our common connection: we are all human.”

The organizers have also created a series of educational events surrounding the exhibition. Some of these events include an upcoming Grand Rounds presentation with Guidotti, and a self-guided narrative medicine experience at the exhibition site developed by Kathryn B. Kirkland, MD, section chief and director of palliative care at DHMC.

“The New Faces of Genetics and Beyond” is on display at DHMC until June 10. For more information, contact Barthel at Marianne.L.Barthel@hitchcock.org or visit https://positiveexposure.org/gallery/.

Photo Caption: “The New Faces of Genetics and Beyond,” a portrait collection from Positive Exposure, is on display at Dartmouth Hitchcock Medical Center through June 10.

 

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Dartmouth Health, New Hampshire’s only academic health system and the state’s largest private employer, serves patients across northern New England. Dartmouth Health provides access to more than 2,000 providers in almost every area of medicine, delivering care at its flagship hospital, Dartmouth Hitchcock Medical Center (DHMC) in Lebanon, NH, as well as across its wide network of hospitals, clinics and care facilities. DHMC is consistently named the #1 hospital in New Hampshire by U.S. News & World Report, and is recognized for high performance in numerous clinical specialties and procedures. Dartmouth Health includes Dartmouth Cancer Center, one of only 51 National Cancer Institute-designated Comprehensive Cancer Centers in the nation, and the only such center in northern New England; Dartmouth Health Children’s, which includes the state’s only children’s hospital and multiple locations around the region; member hospitals in Lebanon, Keene and New London, NH, and Windsor, VT; and Visiting Nurse and Hospice for Vermont and New Hampshire; and more than 24 clinics that provide ambulatory and specialty services across New Hampshire and Vermont. Through its historical partnership with Dartmouth and the Geisel School of Medicine, Dartmouth Health trains nearly 400 medical residents and fellows annually, and performs cutting-edge research and clinical trials recognized across the globe with Geisel and the White River Junction VA Medical Center in White River Junction, VT. Dartmouth Health and its more than 13,000 employees are deeply committed to serving the healthcare needs of everyone in our communities, and to providing each of our patients with exceptional, personal care.

 

April 29

Undiagnosed Day 2022

Image Description:  A young boy against a green column, smiling into the camera.

Image DescriptionL Collage of images of young people with the words Welcome to the worldwide webinar to celebrate Undiagnosed Day April 29

Image Description: Image of 3 boys, tightly cropped on faces smiling. Caption reads: The Undiagnosed Inititiative. Aliou

Aliou is 16-year-old young man from a small village in Mali. He is a happy and kind creating lot of great energy around him. He loves breeding and playing with his goats.

June 26-28

Split, Croatia

22Q COnference

April 5

NYU College of Dentistry will host its second AHEAD Symposium — Achieving Health Equity through Access for All with Disabilities — focused on changes in policy and practice. The event will take place virtually on Tuesday, April 5, 2022, from 9:00 am to 12:00 noon EDT, and will bring together experts in the areas of health care advocacy, access, and funding at the state and federal levels for people with disabilities.
COVID-19 created new access issues in health care, but people with disabilities have faced significant barriers to receiving care long before the pandemic. To see a dentist, people with disabilities may need to find a practice with an accessible office and a provider who is willing and prepared to see patients with disabilities. Payment can also be a barrier: while more than 10 million people with disabilities are eligible for Medicaid, many dentists do not accept it due to low reimbursement rates.
“Ensuring people with disabilities have access to compassionate, comprehensive oral health care is an important health equity goal, and we need policymakers and the oral health community at the table for these conversations,” said Charles N. Bertolami, DDS, DMedSc, the Herman Robert Fox Dean of NYU Dentistry. “We’re pleased to reconvene for our second AHEAD symposium to discuss how to both increase access for this patient population and prepare the next generation of dentists to care for them.”