The International 22q11.2 Family Meeting

Hosted by the 22q11.2 Society

CCD Smiles: Conference Salt Lake City

Improving the lives of people with cleidocranial dysplasia through Connections, Awareness, Research, Education and Support.

Cleidocranial Dysplasia (CCD) is a rare condition that primarily affects the development of bones and teeth.

Virtual Presentation: 10:30 EST

At the Gallery: Call for an appointment

AADMD Annual Conference

Orlando, Florida + The Grand Opening toe the Special Olympic Games..

On the cover: Amanda Harrinauth is a Special Olympic Athlete, self-advocate and poet. Amanda will welcome everyone back on Day 2 and will deliver her latest poem.

(Image Description:  Beautiful young woman with brown hair and brown skin with red lipstick, closely cropped, is smiling and looking off to the right of the camera.)

Message from AADMD President, Allen Wong:

“Let me win, But if I cannot win, let me be Brave in the attempt” is the Motto of the Special Olympics Athletes.  If you read it again, it is more than just a motto but a philosophical way of thinking.  It reminds us that we should be hopeful and courageous in our lives.

As President of AADMD, I intend to bring the spirit of the Athletes of Special Olympics in being hopeful and courageous in our organization’s attempt to educate, advocate, collaborate and propagate the attitude of inclusion and improved health care for all people.  Injustice is wrong but not being courageous to help make improvements is worse.  We cannot mend all the wrongs in life but we can certainly do our part individually and collectively.

AADMD was formed to help improve interdisciplinary healthcare, improve access to care, and help end disparity of care for people with intellectual and developmental disabilities. We invite like-minded people and organizations to join us in our cause.

Conference Agenda

Michigan Oral Health Coalition Conference, Lansing Michigan

Conference Information

Description:

The Michigan Oral Health Coalition annual conference is the place to find the latest information on oral health in Michigan. The 2022 Conference will be held May 19 and 20 at the Marriott in East Lansing. The first day, sponsored by the Delta Dental Foundation, will feature national speakers sharing best practices on dental care for people with disabilities. The second day will focus on the value of the Medicaid dental benefit to overall health as well as many innovations in oral health care.

Objectives:

• Identify 3 barriers to people with disabilities accessing dental care.
• Name 5 ways that people with disabilities can be supported to access oral health care.
• List 3 reasons why Medicaid Adult Dental Care is important to population health.
• Identify 3 actions that you can take to advocate for the proposed Michigan Medicaid Dental Restructure.
• Describe 5 Oral Health Care Innovations.

What to Expect:

The opportunity to learn the latest in oral health care innovation and a change to network and collaborate with Oral Health Advocates from across the state.

Positive Exposure presentation:

Conference Link

Grand Rounds with Rick Guidotti May 10 @ 12 pm & Exhibition thru June 10 @ Dartmouth Hitchcock Medical Center

(Image Description) Photograph of a gallery with images hanging on a wall, captions reads: “We are honored to host this empowering exhibit to help foster conversations that work to address stigma and ethical challenges surrounding people with genetic differences.”)

Photography exhibition at Dartmouth Hitchcock Medical Center highlights beauty of people with physical differences

Lebanon, NH – A photography exhibition highlighting the beauty of people who live with physical differences due to genetic variations is currently on display at Dartmouth Hitchcock Medical Center (DHMC). “The New Faces of Genetics and Beyond” is a portrait collection from Positive Exposure, a New York-based nonprofit organization that promotes a more inclusive world through award-winning photography, films, exhibitions, lectures and educational programs. Comprised of dozens of images hanging in the main mall of DHMC, the creators of this gallery hope to contribute to creating a more compassionate, understanding, and respectful community.

“The New Faces of Genetics and Beyond” has traveled to numerous hospitals around the United States and the world, including the Mayo Clinic in Rochester, MN, Brigham and Women’s Hospital in Boston and NYU Langone in New York City. The exhibition was brought to DHMC by Marianne L. Barthel, director of the Dartmouth Health arts and humanities program, working with William A. Nelson, PhD, MDiv, professor and director of the Ethics and Human Values program at the Geisel School of Medicine at Dartmouth, and Eleonore B. Baughan, a student at Geisel.

“Art can evoke many emotions, from joy to sadness,” Barthel said. “It can also be a tool to have uncomfortable conversations and break down stigma. Photos can give a new perspective on how we view our fellow humans. We are honored to host this empowering exhibit to help foster conversations that work to address stigma and ethical challenges surrounding people with genetic differences. Positive Exposure founder Rick Guidotti’s spectacular photography on display as part of ‘The New Faces of Genetics and Beyond’ celebrates beauty in all its diverse, magnificent forms and reminds us of our common connection: we are all human.”

The organizers have also created a series of educational events surrounding the exhibition. Some of these events include an upcoming Grand Rounds presentation with Guidotti, and a self-guided narrative medicine experience at the exhibition site developed by Kathryn B. Kirkland, MD, section chief and director of palliative care at DHMC.

“The New Faces of Genetics and Beyond” is on display at DHMC until June 10. For more information, contact Barthel at Marianne.L.Barthel@hitchcock.org or visit https://positiveexposure.org/gallery/.

Photo Caption: “The New Faces of Genetics and Beyond,” a portrait collection from Positive Exposure, is on display at Dartmouth Hitchcock Medical Center through June 10.

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Dartmouth Health, New Hampshire’s only academic health system and the state’s largest private employer, serves patients across northern New England. Dartmouth Health provides access to more than 2,000 providers in almost every area of medicine, delivering care at its flagship hospital, Dartmouth Hitchcock Medical Center (DHMC) in Lebanon, NH, as well as across its wide network of hospitals, clinics and care facilities. DHMC is consistently named the #1 hospital in New Hampshire by U.S. News & World Report, and is recognized for high performance in numerous clinical specialties and procedures. Dartmouth Health includes Dartmouth Cancer Center, one of only 51 National Cancer Institute-designated Comprehensive Cancer Centers in the nation, and the only such center in northern New England; Dartmouth Health Children’s, which includes the state’s only children’s hospital and multiple locations around the region; member hospitals in Lebanon, Keene and New London, NH, and Windsor, VT; and Visiting Nurse and Hospice for Vermont and New Hampshire; and more than 24 clinics that provide ambulatory and specialty services across New Hampshire and Vermont. Through its historical partnership with Dartmouth and the Geisel School of Medicine, Dartmouth Health trains nearly 400 medical residents and fellows annually, and performs cutting-edge research and clinical trials recognized across the globe with Geisel and the White River Junction VA Medical Center in White River Junction, VT. Dartmouth Health and its more than 13,000 employees are deeply committed to serving the healthcare needs of everyone in our communities, and to providing each of our patients with exceptional, personal care.

Undiagnosed Day 2022

Image Description:  A young boy against a green column, smiling into the camera.

Image DescriptionL Collage of images of young people with the words Welcome to the worldwide webinar to celebrate Undiagnosed Day April 29

Image Description: Image of 3 boys, tightly cropped on faces smiling. Caption reads: The Undiagnosed Inititiative. Aliou

Aliou is 16-year-old young man from a small village in Mali. He is a happy and kind creating lot of great energy around him. He loves breeding and playing with his goats.

Split, Croatia

22Q COnference

The James B. Edwards College of Dental Medicine

The James B. Edwards College of Dental Medicine is a strong, academically progressive, financially stable institution with a committed faculty and staff that serves a uniquely talented cohort of students and patients across South Carolina. Through academic excellence, innovation and discovery, and a commitment to serving patients with the highest level of care, we are changing what’s possible in dental education.

Community Based Photography for a Permanent Exhibition on Campus.

Image Description: Large group of students all in white coats, smiling into the camera.

The RFK IDDRC’s Tenth Annual Rare Disease Day Celebration

“POSITIVE EXPOSURE: SPIRIT OF DIFFERENCE”

Photographic presentation by Rick Guidotti

Rick Guidotti is an award-winning former fashion photographer who has turned his talents
to photographing individuals with genetic disorders. His photographs recognize beauty within difference and challenge the way beauty is defined. His non-profit organization, dedicated to this pursuit, is called Positive Exposure.

Please join us for a photographic presentation followed by Q&A on:

TUESDAY, MARCH 1, 2022 6:00 – 7:30 PM

https://einsteinmed.zoom.us/j/98270082150

ASL and closed captioning will be provided

This year Rare Disease Day is being sponsored at Einstein-Montefiore by The Rose F. Kennedy Intellectual & Developmental Disabilities Research Center (RFK IDDRC), The Rose F. Kennedy Children’s Evaluation & Rehabilitation Center (RFK CERC), The Rose F. Kennedy University Center for Excellence in Developmental Disabilities (RFK UCEDD), and the Einstein Student Chapter of the American Academy of Developmental Medicine & Dentistry (AADMD).

5 square  portraits on left with blue, gold and white lettering. The text is above.

RARE Disease Day: POSITIVE EXPOSURE Community wide virtual presentation

True Colors Film Festival featuring ON BEAUTY!

Image Description: Logo True Colors Film Festival 3-12 December, Perspectives. Below logo s an image back shot of Photographer photographing young woman against a blue and white backdrop looking into the camera. Bottom left: TRUE COLORS FESTIVAL in multicolored blocks, with the words 1 world 1 family. Bottom Right ON BEAUTY directed by Joanna Rudnick.

Yellow Background with TRUE COLORS FILM FESTIVAL 3-12 December 2021 Perspectives on left. n right is a collage of 7 images of excerpts from the featured films.

Official On Beauty Trailer.

True Colors Film Festival Trailer

Website Link

Check out this conversation:

The AADMD leadership summit: Dallas TX

American Academy of Developmental Medicine and Dentistry

aadmd.org

POSITIVE EXPOSURE Presentation: 5 pm EST

The Pulse of Art:

Course Overview Course Description The Pulse of Art: Connections Between the History of Art and the History of Medicine is a unique, full-semester course that harnesses the power of significant works of art to increase the observation skills and empathic responses of medical students, physicians, and health-care providers. By organizing the course into thematic topics ranging from plague and ebola to portraiture and prosopagnosia, and recognizing historic contexts for the art and science discussed, students also gain an awareness and understanding of the trajectory of medical understanding and discovery.

About Greater New York Dental Meeting:

Welcome to the 97th Annual Greater New York Dental Meeting! We invite you to participate in one of the largest Dental Congresses in the world. At our 2019 Meeting, we hosted over 52,000 health care professionals at the Jacob K. Javits Convention Center featuring over 1,600 Technical Exhibits which demonstrated the newest technology for the dental profession.

Positive Exposure presentation.

(Image description: Graphic of the head of the Statue of Liberty in white, royal blue, Navy and purple with bold lettering Greater NY Dental Meeting 2021)