Yesterday was a crazy day! I wasn’t feeling good so I went in for some tests. I found out my appendix was weird. I had to go to the emergency room. I was there until 4 a.m.! And, I didn’t get to eat the whole time. The only thing I got to do was drink a flavored medicine – two whole glasses! – that I had to have for a scan. I got medicine to help, but it still hurts. One thing about having a rare disease, is sometimes it takes a lot longer to find out what exactly is up with me. It can be frustrating!