Amy's PEARLS Posts
By: Amy
December 31, 2023
AU REVOIR 2023! It's time to say goodbye to 2023. It was a crazy year! I got to do a [...]
By: Amy
July 18, 2023
This summer I decided to spend some time writing a story I've been thinking about. It includes a Sasquatch, a [...]
By: Amy
November 13, 2022
AM I A VAMPIRE? One thing I hear around Halloween every year is that people with Xeroderma Pigmentosum are actually [...]
By: Amy
April 27, 2022
As a person who really has this condition, I think this isn’t really smart. How would you feel if you [...]
By: Amy
November 15, 2021
Hi everyone! I have started something new – musical theatre classes! I’ve been taking class at the Segerstrom Center for [...]
By: Amy
August 14, 2021
All these facts about rare diseases are not really that positive if the person who reads the facts doesn’t get [...]
By: Amy
May 13, 2021
I had a birthday on May 1st, and my family gave me a big surprise! I opened a note and [...]
By: Amy
February 11, 2021
Guess what?! Positive Exposure is going to have an art installation that celebrates light, love, unity and inclusion. There will [...]
By: Amy
December 21, 2020
When President-elect Joe Biden gave his acceptance speech on November 7, 2020, he said these words: “We must make the [...]
By: Amy
September 10, 2020
Yesterday was a crazy day! I wasn’t feeling good so I went in for some tests. I found out my [...]
By: Amy
June 18, 2020
IN RESPONSE TO: What's Your SUPERPOWER? My superpower is using my voice. I use it a lot when I advocate [...]
By: Amy
May 26, 2020
I am sort of glad that face masks are getting more common. That might sound strange! But with XP/TTD it’s [...]