I’m looking forward to going to New York this week to talk about my book at Positive Exposure. I’m going [...]

This weekend was my book release party for my children’s picture book, See Me. It was fun seeing people I [...]

CAMP FOR ALL I was in Texas with the Made a Masterpiece Foundation to attend Camp for All over President’s [...]

I recently visited New York City and it was so much fun! I got to see two shows. First, I [...]

https://vimeo.com/1091511268

DOLLS AND DISABILITIES It’s the holidays and lots of kids are excited for presents! I found out that a lot [...]

A few weeks ago at my "share" for my theatre program (Studio D at Segerstrom Center for the Arts), I [...]

AU REVOIR 2023! It's time to say goodbye to 2023. It was a crazy year! I got to do a [...]

This summer I decided to spend some time writing a story I've been thinking about. It includes a Sasquatch, a [...]

Watch Amy's film "On Special Needs"

AM I A VAMPIRE? One thing I hear around Halloween every year is that people with Xeroderma Pigmentosum are actually [...]

As a person who really has this condition, I think this isn’t really smart. How would you feel if you [...]

Hi everyone! I have started something new – musical theatre classes! I’ve been taking class at the Segerstrom Center for [...]

All these facts about rare diseases are not really that positive if the person who reads the facts doesn’t get [...]

I had a birthday on May 1st, and my family gave me a big surprise! I opened a note and [...]