Freya stood yep STOOD on her own for 10 seconds on Midsummer eve. 10 whole seconds might not be much [...]

Freya has had her botox injections in her leg muscles to calm down her leg spasms today,,, Here's a few [...]

Tomorrow Freya is off to get her so needed Botox injections in her leg muscles to calm her leg spasms [...]

Freya Update: As always Freya was a brave little soldier whilst they measured all her joints and angles of how [...]

To sit with Freya like this (a few seconds) makes our day more enjoyable xxx  #freyabookersjourney #superhero #sunshine

Love from all of us here at POSITIVE EXPOSURE!!

Freya loved talking to Rick,Mikk,Helene,Mummy,Daddy and Ann today on Zoom . The greatest birthday EVER ❤️❤️ Freya loved it and [...]

❤️❤️Freya ❤️❤️ one of many reasons  “you” should Stay Home and Stay Safe so we can get to see our [...]

https://youtu.be/lmKy-WIrOEY Freya and Mummy having a dance during self distancing. Dance is the best medicine

Hello My name is Freya and I don’t have a voice so my Daddy is being the voice for me [...]

Freya Update: we picked up Freya’s standing help aid yesterday and it looks massive. We’re used to Freya sitting down [...]

and our Freya is wearing her stripes #freyabookersjourney #RareDiseaseDay #ShowYourStripes #undiagnosed #willefonden

Sitting training with Freya, she found it scary but once she had one foot on the floor this happened. Freya [...]

 “It’s one small step for mankind BUT two giant steps for our sunshine “ Freya has just walked two steps [...]

Freya loves her new peekaboo bear. Enjoy this short film and we love you all for following ❤️❤️thank you guys [...]