I like going to Disneyland and to movies. I love to surf- it makes me feel like flying! I love to go to conventions like Comic Con and dress up in cosplay. My rare disease is called xeroderma pigmentosum/trichothiodystrophy(XP/TTD). Yes, it’s a long word. It means I have to be very careful with sunlight among other things. I like to set goals and reach them. I think if you believe you can do something, you can do it!