As I have mentioned in another post, I love staying active and fit but having Marfan Syndrome makes it super difficult to find a workout that not only is safe for your body to handle, but that actually makes a difference.
Having Marfan Syndrome is a bit challenging when it comes to working out. There is no specific data to show what is safe and what isn’t for a Marfan patient, besides the obvious contact sports. Luckily for me I was a dancer and golfer when I was diagnosed so I didn’t have to change my hobbies, but growing up and living with Marfan Syndrome is a challenge to keep active. Trying out different activities, work outs, etc. is always a feat. You cant lift more than 10 pounds, you need to be careful to not use too much force for your chest and of course being on a beta blocker my resting heart rate is 45!!!
I have tried yoga, pilates, going to the gym, Zumba, etc. I loved all of those but none of them made quite a difference in my body shape and I wasn’t working out to lose weight, I just wanted to gain muscle and be able to eat what I want :) One day while I was driving to work a store sign caught my eye, it was small but something told me to read it. It explained a new kind of workout, barre classes, bootcamps, etc. and the business was called, Jane Do. As soon as I got to work I looked it up, emailed the front desk and scheduled my test class.
2 years later I am still taking Jane Do classes and I take more now than I ever have. Jane Do is a kick-butt workout that is barre-centric. The ladies who own the studio are former Radio City Rockettes and are amazing women, as well as all the teachers and trainers there. They really are focused on women achieving their best bodies, mentally and physically. They have changed my life, and body! I have seen such results in my body, which is rather difficult when you cannot do high-impact or heavy weight lifting with Marfan Syndrome. They are so keen on their clients and every workout they do, they are always looking at me for modifications that fit my body and my Marfan Syndrome. They have made me a mentally and physically stronger woman and I am proud to be a Jane :)