I was warned that when I wake up from surgery I would be on a ventilator and not be able [...]

November 15th, 2019 -- a day I will never forget and a day I never thought would actually come. 5:30am [...]

With my Marfan Syndrome I get an echocardiogram and see my cardiologist every 6-9 months. This was the first appointment [...]

As I have mentioned in another post, I love staying active and fit but having Marfan Syndrome makes it super [...]

My boyfriend is a Professional Poker Player, yes you heard correctly! That being said, every June he goes to Las Vegas [...]

So many things have happened over the past 2 years. I met the love of my life, I moved in [...]

I have started working for St. Mary's Children's Hospital full-time as the new Manager of Strategic Partnerships. The hospital is [...]

If you know me you would know that I am not a "camping girl." Don't get me wrong, I love [...]

I love summer. I love the beach. I love the sun. And I HATE the winter. There are many reason [...]

I am a sports girl at heart. My diagnosis of Marfan Syndrome causes me to not be able to play [...]

7 days: unlimited food, drinks, activities, and paradise. That is a vacation. I haven't been on a week long vacation [...]

There are certain things I can't do having Marfan Syndrome. Lifting things over 10 pounds, going on roller coasters, playing [...]

I am officially a quarter of a century old! I have been through my rough patches, especially with my Marfan [...]

My boss at work is from Mobile, Alabama and still owns a house down there, so for Mardi Gras this [...]

I am a HUGE sports fan. Any way I can get sports, I love it. Since I can't play sports [...]