Portia
Portia living with Icthyosis
Hi Everybody: I love singing, playing piano and writing songs. I have a little brother named Myles. I have a cat and a dog. I am living with a rare skin condition called Ichthyosis. The kind that I have is really rare and is called Confetti.
To find out more about Ichthyosis, please watch this FRAME film that I helped create to education med students and the community about Ichthyosis.
or visit this website: http://firstskinfoundation.org
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Portia's Recent PEARLS Posts
By: Portia
September 20, 2024
Hello everyone! I hope everything is going well for you. I wanted to recap my summer of 2024! I [...]
By: Portia
May 13, 2024
Hello Everyone! I hope April treated you guys well. Here is my monthly blog! I found a new artist I [...]
By: Portia
April 8, 2024
Hey Guys! March has been probably one of the most anxiety inducing months of my life :D First [...]