Woman wearing a light blue dress smiling


Portia living with Icthyosis

Hi Everybody: I love singing, playing piano and writing songs. I have a little brother named Myles. I have a cat and a dog. I am living with a rare skin condition called Ichthyosis. The kind that I have is really rare and is called Confetti.

To find out more about Ichthyosis, please watch this FRAME film that I helped create to education med students and the community about Ichthyosis.


or visit this website:  http://firstskinfoundation.org

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