![Portia Woman wearing a light blue dress smiling](https://i0.wp.com/positiveexposure.org/wp-content/uploads/2023/06/Portia-1.jpg?fit=300%2C239&ssl=1)
Portia
Portia living with Icthyosis
Hi Everybody: I love singing, playing piano and writing songs. I have a little brother named Myles. I have a cat and a dog. I am living with a rare skin condition called Ichthyosis. The kind that I have is really rare and is called Confetti.
To find out more about Ichthyosis, please watch this FRAME film that I helped create to education med students and the community about Ichthyosis.
or visit this website: http://firstskinfoundation.org
Have a question for Portia? Ask a question here.
Portia's Recent PEARLS Posts
By: Portia
May 13, 2024
Hello Everyone! I hope April treated you guys well. Here is my monthly blog! I found a new artist I [...]
By: Portia
April 8, 2024
Hey Guys! March has been probably one of the most anxiety inducing months of my life :D First [...]
By: Portia
September 5, 2021
“Make a Difference For Yourself and Someone Else”. That is what our former principal, James A. Brown once said. That [...]